STITCHES Medicine - the Best of Medical Research @medicine.stitches.today From the experience of @stitches.today, we bring you the best papers in medicine, daily in your inbox - for free!
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Al Jazeera English @aljazeera.com Your story. Your platform. Follow our live coverage on aljazeera.com
VASCERN | European Reference Network @vascern.bsky.social Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe.
🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education
📌 Visit us: www.vascern.eu
European Society of Human Genetics @eshg.bsky.social The ESHG is a non-profit organization. Its aims are to promote research in basic and applied human and medical genetics, to ensure high standards in clinical practice and to facilitate contacts between all persons who share these aims.
RHET AI Center @rhetai.bsky.social erforscht, wie wir über #AI kommunizieren & der Herausforderung AI mit #wisskomm begegnen können
Website: https://rhet.ai/
Kooperation zwischen der Uni Tübingen und dem KIT Karlsruhe
Postings auf Deutsch & in English
BBMRI-ERIC @bbmrieric.bsky.social Pan-European network to support biobanking and biomolecular research. Co-funded by 🇪🇺 within EU Horizon 2020 Research Infrastructures programme
The Association For Frontotemporal Degeneration @theaftd.bsky.social AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.
https://www.theaftd.org/
Amsterdam Leukodystrophy Center @amsterdamleuko.bsky.social In the Amsterdam Leukodystrophy Center (ALC), clinicians and laboratory scientists work together to develop treatments for heritable white matter diseases | part of the Emma Children’s Hospital (Amsterdam UMC)
ERN eUROGEN @erneurogen.bsky.social The European Reference Network for Rare Urogenital Diseases and Complex Conditions - https://eurogen-ern.eu/
Rare Disease Clinical Trial Network @rarediseasectn.bsky.social HRB-funded clinical trial network aiming to increase the quantity and quality of rare disease clinical trials in Ireland, keeping the patient voice at our core.
Nature Reviews Genetics @natrevgenet.nature.com Publishing reviews and commentaries across the fields of genetics and genomics. Part of Springer Nature and Nature Portfolio.
https://www.nature.com/nrg/
AFAF - Association Française de l'Ataxie de Friedreich @afaf-asso.bsky.social Compte de l'Association Française 🇫🇷 de l'Ataxie de Friedreich #AtaxieDeFriedreich #MaladieRare #FriedreichAtaxia ♿️
www.afaf.asso.fr/
The European Federation of Neurological Associations (EFNA) @efna.net The European Federation of Neurological Associations [EFNA] is a non-governmental organisation (NGO) that brings together 21 pan-European neurology patient groups.
Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an association. 
WHO @who.int The World Health Organization (WHO) is the United Nations’ health agency, championing Health For All.
Always check the latest posts for updated advice/information.
We reserve the right to remove misinformation, spam, and hate speech under our posts.
EUPHA @eupha.bsky.social The European Public Health Association, or EUPHA, is an umbrella organisation for public health associations and institutes in Europe.
European Disability Forum @myedf.bsky.social The European Disability Forum defends the interests of 100 million persons with disabilities in Europe. #DisabilityRights
EuroHealthNet @eurohealthnet.bsky.social A European partnership of public health bodies working to reduce health inequalities and improve health and wellbeing for all.
European Research Council (ERC) @erc.europa.eu European Research Council, set up by the EU, funds top researchers of any nationality, helping them pursue great ideas at the frontiers of knowledge. #HorizonEU
Institute for Stroke and Dementia Research (ISD) @isd-research.bsky.social Welcome to the Institute for Stroke and Dementia Research (ISD) in Munich – Director: Prof. Martin Dichgans
https://www.isd-research.de/
ERKNet - European Reference Network for Rare Kidney Diseases @erknet.bsky.social ERKNet is devoted to improving the lives of patients with rare kidney diseases.
https://www.erknet.org
JWMDRC Patient Registries @jwmdrc-registries.bsky.social Our neuromuscular research databases offer patients the chance to securely share their data and stories to support and access research.
https://linktr.ee/jwmdrcregistries
#UK #NMD #DM1 #DM2 #FSHD #SMA #Col6 #FKRP #MTM #CNM #Myotonic #MuscularDystrophy
The Lancet @thelancet.com Welcome to The Lancet, one of the world’s leading medical journals, published weekly since 1823.
🌐 thelancet.com
The Lancet Diabetes & Endocrinology @thelancetendo.bsky.social Your leading source of international, cutting-edge research, review, and opinion in clinical #diabetes and #endocrinology. IF=36·3.
🌐 thelancet.com/journals/landia/home
Rare Disease and Neurodevelopmental Disorders Lab @rdndlab.bsky.social RDND Lab at King’s College London led by Cristina Dias. Clinical Geneticist and Rare Disease researcher. Rare Conditions, neurodevelopmental disorders of chromatin regulation and chromatin remodeller-TF interactions.
https://tinyurl.com/rdndkcl
MyScienceWork @mysciencework.bsky.social Empowering research institutions with custom open-source institutional repositories, CRIS, grant management systems, & much more! | Advocates of #OpenScience and #OpenAccess | Paris 📍
🔗 www.mysciencework.com
European Academy of Neurology @ean.org The EAN unites and supports neurologists across Europe.
European Reference Network - MetabERN @ernmetabern.bsky.social The European Reference Network for Rare Hereditary Metabolic Disorders (MetabERN). A better future for Rare Inherited Metabolic Disease patients.
Visit us 🔗 https://metab.ern-net.eu/
European Brain Council (EBC) @braincouncil.eu 
The Lancet Reg Health-Europe @lancetrh-europe.bsky.social The Lancet Regional Health-Europe publishes #OpenAccess research that advocates change in clinical practice & health policy in Europe.
🌐 https://www.thelancet.com/journals/lanepe/home
National Organization for Rare Disorders (NORD) @nordrare.bsky.social NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.®
www.rarediseases.org
Medics for Rare Disease @medicsforrare.bsky.social Our vision is a world in which there is equitable healthcare for everyone
ERN-RND @ern-rnd.bsky.social European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients.
Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
Raimo Kangasniemi @rk70534.bsky.social A useless humanist with a love for art, astronomy, history, literature, science, human rights and social justice. I hate oppression.
https://linktr.ee/raimokangasniemi
Aaron Parnas @aaronparnas.bsky.social J.D. from GW Law ⚖️ | Attorney | Your go-to news source | Strategist | Views are my own | Retweets ≠ endorsements
All other platforms: https://linktr.ee/aaronparnas
Ricky Davila @therickydavila.bsky.social Singer-songwriter. Political Junkie. Foodie. Resist.
Apple Music: https://music.apple.com/us/artist/ricky-davila/1031751601
Spotify: https://open.spotify.com/artist/6zF1QxnjEXcnW9L0f0tReC?si=1wnOD3ezSAi7zbFXZs53eA
Business: RickyDavilaMusic@gmail.com
Aaron Rupar @atrupar.com Independent journalist, SnapStream brand ambassador, and publisher of the Public Notice newsletter https://www.publicnotice.co/subscribe
Department of Imaging Neuroscience @imagingneuroucl.bsky.social The Department of Imaging Neuroscience, home of the Functional Imaging Laboratory (The FIL), is part of the Institute of Neurology, UCL
Journal of Cognitive Neuroscience (JoCN) @jocn.bsky.social peer reviewed journal published by MIT Press. JoCN publishes papers that bridge the gap between descriptions of information processing and specifications of brain activity. neuropsychology, experimental psychology, neurology, computational modeling, AI ..
Nature Reviews Neurology @natrevneurol.nature.com Nature Reviews Neurology is a clinical review journal from Springer Nature. Follow us for the latest updates in neurology from the journal and beyond. www.nature.com/nrneurol
Stacey L. Clardy @staceylclardy.bsky.social Autoimmune Neurologist.
Physician Scientist.
Editor, Neurology Podcast & Neurology Minute.
Joao Pereira @jdpereira.bsky.social Neuroscientist.
Assistant Professor of Neurology at UAB
Trying for a better, more humane approach to science.
Interested in neurodegenerative diseases, AI toolsets, and science in general!
STOP ALS.
Mikko Kolkkala @xcsci.bsky.social Evolutionary biologist, geneticist, conservationist & teacher
💚 All extant & extinct life forms
💜 Modern physics & all science
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
RC - Stop Wealth Inequality @rc12453dd.bsky.social Human, #Resist , here to discuss and address wealth inequality
Hanna Kienzler @hannakienzler.bsky.social Mental Health in War and Conflict
Refugee Mental Health and Place
Palestine, Kosovo,UK
Josep Goded @josepgoded.bsky.social Independent Journalist
- Support me here:
http://buymeacoffee.com/josepgodedf
www.patreon.com/josepgoded
https://www.paypal.com/paypalme/JosepGoded
- Backup acct.: https://bsky.app/profile/josepgoded2.bsky.social
- Telegram: https://www.t.me/josgoded
Charles Keener @charleskeener.bsky.social Anti-Zionist Free Palestine Ukraine Solidarity Anti-Racist Anti-Carceral Abolitionist Anti-Genocide Anti-Colonial Anti-War Anti-Imperialist Intersectional Feminist Queer LGBTQI+ Green Eco-Socialist People Planet Peace Interfaith Seeker of Beloved Community
Skeets App @skeetsapp.com ...an accessible 3rd party iOS / iPadOS Bluesky App
Key Features:
- Keep reading position
- Edit posts
- Post notifications
- Bookmarks
- Drafts
- Push Notifications filter
Get it here: https://www.skeetsapp.com
created by: @seabass.bsky.social
Flashes App 🌩️ @flashes.blue A photo viewing client for u from the creator of @skeetsapp.com & @bluescreen.blue
iOS: https://t1p.de/b3o4x
Android: Not available yet
❓ FAQS: https://t1p.de/24kj0
🐞 Bug Reports: https://t1p.de/phwii
💡 Feature Requests: https://t1p.de/8tmnc
Palestine Action @palaction.bsky.social A direct action network dismantling Britain's participation in the genocide #ShutElbitDown
Ireland-Palestine Solidarity Campaign @ipsc.bsky.social Campaigning for freedom, justice and equality for the Palestinian people. R/T does not equal endorsement
Amplify Palestine @amplifypalestine.bsky.social cultural organizing + production in solidarity with Palestine
amplifypalestine.org
Institute for Palestine Studies @palestinestudies.bsky.social Oldest research institute & publisher of academic journals, books, databases, & stories on Palestine & the Palestinians.
Explore, write, signup: https://linkin.bio/palestinestudies
Ely Rabani #GazaTruceNow @radsci.bsky.social 🌎/acc & K2/acc founder. Molecular nanotech/ocean & climate restoration/space tech/biotech/neuromorphic AI, I do it all….
Project: save the planet from humanity, & humanity from itself.
(Not so sure the second part is feasible 😭)
https://linktr.ee/radsci
Brian Sweet @sweetinxs.bsky.social 🇺🇸🤓🖖🔭🐱🌳👽Deleted Twitter when he said he was buying it. Politicians shouldn’t pick their voters. Tax the rich. Healthcare for all. Live long and prosper.
Arcas De Disco @puckarks.bsky.social #MutualAid #GeneralStrike
#Occupy #StreetMedic(Retired)
We must learn that passively to accept an unjust system is to cooperate with that system, and thereby to become a participant in its evil.
Organize Educate Agitate Resist
bioRxiv Physiology @biorxiv-physio.bsky.social 
ACR Journals @acr-journals.bsky.social Official journals of the American College of Rheumatology:
Arthritis & Rheumatology
Arthritis Care & Research
ACR Open Rheumatology
SoMe Editor: Karen Costenbader, MD, MPH