Alem Matthees @alemmatthees.bsky.social A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
#LongCoid + #Philosophy (Wild Strain 2020) 🏳️⚧️🏳️🌈🩵 @be-herenow.bsky.social https://www.online-tribute.com/AdamWolk
Long COVID takes lives, but we can keep their legacy alive. 🩵
Don’t erase them a second time.
Philosophy @
https://doi.org/10.5281/zenodo.20779467
Solidarity Social @solidarity.social Sign up at
solidarity.social
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*NOT A BOT* Please read replies
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Tom Peacock @peacockflu.bsky.social Virologist - Influenza and Coronaviruses 
Marcelo Freire @drinflammation.bsky.social Professor in mucosal immunology at JCVI and UCSD | Exploring how inflammation drives #chronicdiseases 🧬 | Investigating oral-systemic microbiome links & using saliva proteomics as a monitoring tool | Focused on infection-associated chronic illnesses ✨”
David Kronig @davekronig.bsky.social Voting rights & government accountability lawyer. Previously: American Oversight, WisDems. Musician. Immunocompromised/disabled. Fan of N95s, democracy, and righteous fights. he/him. Opinions are mine alone but generally pretty good
Chessa Thinks Regime Change Should Start at Home 🐉🧡📚 @chessawrites.bsky.social Book wyrm. ND. Spoonie. Married. She/her.
#PwME #BookSky #LongCovid
The Lancet Infectious Diseases @thelancetinfdis.bsky.social The Lancet Infectious Diseases is the leading clinical infectious diseases journal for peer-reviewed research and review, comment, and news.
🌐 https://www.thelancet.com/journals/laninf/home
Meg seanchaibeag @seanchaibeag.bsky.social Writer. Disabled (CP, RA, Long Covid and more). Lifelong political nerd (US/UK/RoI/RU/UKR/etc). Owned by cats. Yes, that's Paul McCartney in the profile pic- and me, left.
Dr Claire Smith @drclairesmith.bsky.social Associate Professor @UCLchildhealth studying epithelial, neutrophil and mucosal responses to respiratory virus infections including influenza, RSV and SARS-COV2.
Brian Wasik @brianrwasik.bsky.social Virologist. Evolutionary biologist.
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
Cyn @cyncharron.bsky.social Ōtautahi, Aotearoa/New Zealand. Was a biology teacher. Green voter.
Proudly 🇨🇦🇳🇿
🏳️🌈🏳️⚧️ally
Desperate for covid safety in schools.
Views mine.
❤️ Pearl the greyhound, cargo e-bikes, cycle infrastructure, libraries.
Spokes Canterbury member.
Pls use alt-text.
Molly Knight @mollyknight.bsky.social Journalist and author. @HoFoCo.org board member.
My newsletter, the Long Game, is about baseball, creativity, and mental health. You can find it here: https://mollyknight.substack.com.
My dog is named Canelo.
Chiko | Digital Creator @chikocfm.bsky.social Digital Creator | #FibroWarrior 💜
Turning pain into purpose, one post at a time. “Strength isn’t the absence of struggle – it’s creating something beautiful in spite of it.” Learn more>>> https://theleap.co/creator/chikocfm /
https://ko-fi.com/chikocfm
Healthy Labyrinth (Clinical Pharmacist) @healthylabyrinth.bsky.social https://linktr.ee/healthy.labyrinth.pharmacist
Me/cfs, fibromyalgia, disability, equality, medication safety, animal, feminism, veganism, minimalism, cost saving, menopause, pharmacist, introversion, HSP. Amazon associate, earn from purchases
Liz. 508 [Loop Detected] @grief-enduring.northsky.social My belief system is straight forward. ALL humans deserve basic HUMAN rights. Food, shelter, freedom of thought & ability to find joy. Religion is personal & QUIET. Healthcare's free & widely available. Ppl are horrible though & the human experiment failed.
The_Lady_Red @theladyred.bsky.social queer "elder", street & community activist, intersectional feminist, community sex & HIV educator, wife, singer, auntie. lifelong Democrat, reader, & people watcher!
(I Swear a lot!) NM 💞🎶🏳️🌈 She/Her
🚫AI 🚫Crypto 🚫FBR/Resist 🚫$$$ asks
Long COVID Signal @longcovidsignal.bsky.social Tracking the latest Long COVID research so you don't have to.
Christie @christiefancher.bsky.social Sociology PhD student and rhet/comp MA, living and studying chronic illness | Sociology of health and illness, medical education, embodiment, disability + crip theory, gender, qualitative methods | NorCal, married, childless cat lady
Matthew D White @mdwhite1013.bsky.social Artist / Musician / New Orleans Expatriate
Key West, FL
All photographs here are by me unless otherwise noted.
www.matthewwhitestudio.com
https://matthewdwhite.tumblr.com
#Canucks
Stephen A. Rhodes @stephenarhodes.bsky.social Lover of democracy. Proud Appalachian (living in RVA). Progressive Democrat. Seeker of a more just society. Writer. Reader. Doodler. Indivisible. Dog Lover. CFS/ME. He/Him. Sic semper tyrannis.
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
carapace shell @carapaceshell.bsky.social failed librarian, archivist, celticist, medievalist, and linguist; long covid and m.e. enjoyer
somewhere near tacoma
fix your hearts or die
pfp: skeleton cradling flower (hugo simberg's garden of death)
banner: siamese cat tucked into bed watching tv
Susan K @susankmecfs.bsky.social Scientist. Current interest in #IACC. Progressive worsening of #mecfs triggered by virus, Feb 1996.
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
M. @molaru.bsky.social Chemist. Main group, organometallic chemistry.
Moved out of academia, kinda missing it.
Perpetually exhausted.
https://harpers.org/archive/1941/08/who-goes-nazi/
Grumpy Rootbeer @grumpyrootbeer.bsky.social He/him, mid-30s, Iowan, nerd, leftist, cat lover
Sarah @scooternan.bsky.social Socialist who is #CovidAware so still shielding & masking - MS & COPD. She/Her
Jamie Crawford @jamiecrawford68.bsky.social NUFC, ME/CFS, handcrafts, dogs, and an abiding hatred for fascists and racists. Speaketh not to fools, for they despise knowledge.
Guller @gullerisback.bsky.social Retired nurse living in Denmark. Posts primarily about SARS-CoV-2 science and things related to that. DM 🚫
#CovidInformed #DemocraticSocialist
Bob Geraghty @vulgeraghty.bsky.social UMN alum and Professor. Virology. No activity on this account is endorsed by anyone, ever. There are no captains in baseball
Effie Seiberg @effies.bsky.social Nebula-winning and Hugo/Sturgeon-nominated writer. Bagel the Dog's emotional support human. Dadjoke teller. Unrepentant punster. Sentence-fragment lover. Disabled w #MECFS She/her effieseiberg.com/stories
@patientmakt.bsky.social @patientmakt.bsky.social Environmental surveillance. Things of importance for patients through time & space & for the future. https://patientmaktpatientcv.substack.com
Governor JB Pritzker @govpritzker.illinois.gov Husband and father. Proudly serving as Illinois’ 43rd governor.
SciAm Union @sciamunion.bsky.social We are the staff of @sciam.bsky.social. Just as mitochondria are the powerhouse of cells, we are the powerhouse of the oldest continually published magazine in the U.S. ✊ wgaea.st/sciam-letter
Vera Kober Art @vera-kober-art.bsky.social Modern Floral Painter
https://www.verakober.com/floral
Madhu Pai, MD, PhD @madhupai.bsky.social Inaugural Chair, Department of Global & Public Health, McGill University, Montreal & Canada Research Chair in Epidemiology & Global Health 🇨🇦
Tweets: own views. He/him.
https://en.wikipedia.org/wiki/Madhukar_Pai
David Archer @davidetc.bsky.social 36 trillion cells trying to get some rest. he/him
Musician, writer, bookseller, etc. based in Haida Gwaii. #pwME
I like boosting solutions. Better ways and amazing people are all around. www.davidarcher.net
Amy Howe @ladyhowe.bsky.social Cute and savage. Mask-wearer. Cat enthusiast. Trekkie. Coldplayer. Solving problems with yarn since 2005. (she/her)
Sam @sublimepilgrim.bsky.social Dad, Security engineer, MSc Cybersecurity, now Long Covid
David Keegan @drdavidkeegan.bsky.social Academic family doc. I try to enable as much health and joy as possible. Against fascism. Lifter. Unpublished poet. Goalie. 🏳️🌈 (he/him) 🇨🇦 🇺🇦 🇵🇸 🇬🇱
Same handle (@drDavidKeegan) on YouTube.
Pandemic 𓅃. Index @panaccindex.bsky.social A public registry of all the worst disinformation peddlers throughout the ongoing pandemic, and their billionaire backers. https://www.panaccindex.info/
Dr Noor Bari @njbbari3.bsky.social MBBS BSc Hons Infectious Diseases 🇬🇧 🇦🇺 Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
Adriana P. LongCovid Canada Collab. @longcovid-adri.bsky.social Lead of LC3 FB grp. LOVE animals/nature. Former int. Competitive swimmer. Disabled by #LongCovid since Xmas 2020. #Covid #MECFS evidence-based advocate 🇨🇦🇲🇽. #FBLC We must #Unite2Fight stronger together in this chaos! #MaskUp 🖤🤘
Long Covid Safety Net @longcovidsafetynet.bsky.social Advocacy for people with post-viral illnesses facing homelessness, domestic violence, and poverty. We need a safety net for Long Covid and ME/CFS.
New York City | longcovidsafety.net
Josephine Stewart @jostewart.myatproto.social Proofreader/editor for hire, chronic replier, lover of tea and brown liquor. I also do weird art shit. I like to dance. COVID is not over.
Flying Fox @flyingfox.bsky.social Here to learn and share about Long Covid, still not recovered after spring 2020 infection.
Also look at how adorable flying foxes are!
💚
City Cast Seattle @citycastseattle.bsky.social The daily local podcast & newsletter helping you feel more connected to Seattle.
seattle.citycast.fm
Madeline Miller @madelinemiller.bsky.social Writer (The Song of Achilles, Circe), reader, theater lover. Cats, Long Covid. She/her. 
@morninggloryvt.bsky.social @morninggloryvt.bsky.social AuDHD, Long Covid, not disposable
@h-sharland.bsky.social @h-sharland.bsky.social Journalist at The Canary. Lives with ME. Disability rights and climate justice. 
Alicia Ault @aliciaault.bsky.social Independent journalist for Medscape, Smithsonian, covering all things health and science. Consumer and chronicler of food, music, art and culture. More-than-mediocre tennis player. Beach yogi.
Khalil Dennis @khaoticaa.bsky.social Chicago Freelance Journalist & Writer • they/she • Read my work w/ City Bureau, South Side Weekly, & the Sick Times • Advocate for trans rights, free speech, and disability justice
✨ linktr.ee/khaotickhalil ✨
Beth - Friend for the Long Haul @friend4thelonghaul.bsky.social I started a podcast for those with Long Covid, ME/CFS or chronic illness. "A Friend for the Long Haul" is a podcast about long covid that aims to be a supportive companion. On Spotify, Apple Pods, everywhere, really.
Long COVID Rise Up @longcovidriseup.bsky.social International Federation advocating for #LongCOVID research and prevention | Together, we rise! 💪😷
#StopTheDiseaseProcess #BlockTheSpread
www.longcovidriseup.eu
Schmidt Initiative for Long Covid @schmidtinitiative.bsky.social silc.org
Meder @itsmeder.bsky.social from @cleanairla
https://covid-studies.org/
https://covid-list.org/
Jason Gale @jasongale.bsky.social Dad x3 | Snr editor | Bloomberg News | Melbourne
Author of https://www.press.jhu.edu/books/title/53726/after-covid
• public health • medicine • emerging infectious diseases • antimicrobial resistance • science
Signal: Jasongale.89
eZme Fern aka MadMaskedMxma @antieugenics-mxma.bsky.social They, MAD, Enby, disabled, abolition,,homebound, lover of disabled child, N95 masks, covid cautious, anti-eugenics, liberatory medical caregiving, anti-ableist activist
Madelinenerd @madelinenerd.bsky.social IamMadelinePOD #podcast: https://anchor.fm/i-am-madeline
#myalgicE #disability
Fb/inst/X @madelinenerdfighter
LATEST https://www.thecanary.co/global/world-analysis/2024/12/20/marcia-mecfs-canada/
WORLDWIDE PETITION pls sign https://bit.ly/Marcia_petition
Simmaron Research Foundation @simmaronresearch.bsky.social 501c3 dedicated to discovering treatments for ME/CFS, LongCovid and IACCs, collaborating with expert clinicians and scientists.
@playon.bsky.social @playon.bsky.social "No matter how cynical I get, I can't keep up." - Lily Tomlin
MUNDUS SINE CAESARIBUS
Former pro guitarist, lover of 20th century music, cat servant. Socialist. COVID is *not* over.
My alt channel @20thcenturymusic.bsky.social.
Sick Ness @sickness.bsky.social She / her
MIA secondary SEND teacher.
Sick.
Londoner.
Sewer: embroidery, needlepoint (but only for 40 mins a day max 😩)
Trapped in an unsuitable home #EndOurCladdingScandal
Ian Charman @chunky-baby.bsky.social Drama Llama from the UK, now living in Seattle. LFC, OU Football and all things progressive. Long Covid. ME/CFS. He/him.
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
John Collins @logicallyjc.bsky.social Dad ☆ Husband ☆ Low-Key Nerd ☆ EdD / JD
https://logicallyjc.substack.com/subscribe
Denise Dewald, MD @denisedewald.bsky.social Health is inextricably linked with politics. Democracy requires participation. End all aid to Netanyahu’s regime. Opinions my own.
Alister Martin @alisterfmartin.bsky.social Commissioner of Health - New York City Department of Health and Mental Hygiene
Lacinda @lacindahummel.bsky.social Chicago parent interested in local and international human rights, chronic illness treatment, and social justice. I like board games, beautiful outdoor spaces, and speculative fiction.
*my icon is a photo of green leafy branches against a blue sky
Bracken (they/them) @summonrats.bsky.social A sleepy mongoose, a feathery firefly. Rat keeper and very slow gardener. Disabled queer nerd.
Banner is a rat wearing a paper crown. Avatar is a pic crew of a white person with shaved head, firbolg ears and glasses in dungarees holding a knife.- A Ash @ash27.bsky.social 💙🕯️
Robin Boardman @robinboardman.com 🪧 @extinctionrebellion.uk youngest cofounder
✍️ Writing and editing revolutionary books
🩼 Disabled with Chronic Migraines (Long Covid)
🔔 Turn notifications on for my top news
👇 Sign up for insights & stories
robinboardman.com
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
DonnaDee 💙 @overallthiscrap.bsky.social North Texas ,military brat,( you will hate my spelling & grammar ) ,I grow stuff 🥗🌻🌺A servant to my animals 🐴🐶 Big family but Covid and politics screwed that up 🤷🏼. #FuckTrump&Putin🤬 #Women’srights #Dem #DoNotComplyInAdvance 💙🌊🥄🧂
PH 🕊️🌱😷 @ph-ph-ph.bsky.social 🕊 2050 is too late 🌏 it’s a climate + biodiversity EMERGENCY 🦋 SARS-CoV-2 is in the AIR: ventilate/HEPA #BetterMasks 😷 #ZeroCovid 🌱 PUBLIC Health
EVERYTHING is connected
30,000(+) 💔 AUS SARS2
The Mouthy Renegade Writer @mouthyrenegade.bsky.social I write humor articles. Anti-Trump, pro-LGBTQ, and I support women's rights. I want to make you laugh and think. Join our Mouthy Militia!
https://www.facebook.com/substackmouthy
themouthyrenegadewriter.substack.com/subscribe
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
COVID Chronicles @covidchronicles.bsky.social Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Just one opinion 🌹 @just1opinion.bsky.social Supporter of democracy, fairness, justice, and the rule of law.
🌻🦋 💙⚖️🗽 🌈
Vote 🌊 no matter who,
we'll sort it out when 🛑 is gone.
🧓🏼 We might not always agree, but I'm just one opinion.
🔵 in OHIO 🖐🏻s OFF! 🚫 👑
🚫 Voter Suppression 🚫 Fascism 🚫 Racism
Tim Hutton @timhuttonau.bsky.social Part time teacher | Occasional freelance writer | Full time sick/disabled person (ME/CFS) | Published in Eureka Street, Junkee, Crikey.
Views my own.
Based in Meanjin (Brisbane)
Paddywack Dave @paddywackarts.co.uk Musician
Music Producer
Teacher of ukulele and more.
Community Music Advocate.
Angry, Paying Attention.
ME/CFS
Living in the moment.
ADHD
Surprisingly; a degree of bright stoicism.
paddywackarts.co.uk
#LongCovid
#ME/CFS
#ADHD
#Ukulele
Magnolia @magnoliamarmalade.bsky.social Chronically ill, disabled gamer lady. A silly goose doing silly goose things.
pumpkin @pumpkinstars.bsky.social hi im pumpkin. she/her. 🧠🌶️. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. 🇺🇸
🫖 Kate of Kate Hall @kindabbcasual.bsky.social BB Alt account: Housebound (ME/CFS/LC) #bbsky #bb27 fan. (she/her/they/them)
I watch with my family and try to follow online.
No clients, but Kamu and Haley are my opps (Adding Angela, Devens, Dee, and Drew as opps)
TRAstonDrs @castltrastondrs.medsky.network "Not all those who wander are lost" JR Tolkien
#Clinicalresearcher #DrugDevelopment
#Clinicaltrials & Registration
🧬🔬📚🔎🦠🧫 📌
Melbourne 🇦🇺 Oxford 🇬🇧& 🏴 #MedSky🧪
Xabier Ostale @embers1.bsky.social 🌳 Paradigm shift 🦮
Radical social revolution.
No mercy with bigots.
Wear a proper mask (respirator) & avoid crowds.
Sars2 is a biohazard level-3
Adrian Esterman @profesterman.bsky.social Professor of Biostatistics & Epidemiology, Adelaide University.
Evidence-based updates on public health & outbreaks.
Also on X/Twitter: @profesterman
JAMA Neurology @jamaneurology.com JAMA Neurology is a member of the JAMA Network, a consortium of peer-reviewed, general medical and specialty publications.
🌐 JAMANeurology.com
Jason Jasonson @jaseygalore.bsky.social Disabled by #MyalgicEncephalomyelitis ° Ambulatory wheelchair user ° Nazi lives don't matter ° Science is real ° #AuDHD ° #Lutruwita
I mostly repost things rather than write Bluestuff because my mind isn't sharp and lively anymore 😔
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Steph @stephandhercats.bsky.social Chronic illness collector 🙁 inc fibromyalgia, hEDS, spinal injury, ME, long covid. Love my cats more than people, reading, music, family, faith. Spoonie life sucks!
Rose @nebraskaredrose.bsky.social A nurse who finally retired after 46 years DNP, RN. Long Covid changed my life. Mask up. Completed LC PT/OT and it helped a little. Now planning to experiment with an auricular vagus nerve stimulator. Hope it takes me further along in my recovery!
Elizabeth "Lisa" Noriega @atxthisnthat.bsky.social Diehard Optimist from Austin, TX. Currently living (ODAAT) w/ Long COVID - aka P.A.S.C., Post-Covid-19, Post-viral illness, Dysautonomia, etc., and now, ME/CFS. 🫤 Part-Time Transcriptionist, Patient Advocate, and online reseller on PM.😊🐸🪷🍀🛍