Birge @birge.bsky.social 
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Basil Halperin @basilhalperin.com Assistant professor of economics @ UVA
basilhalperin.com
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Ellie @ellie9.bsky.social Climate lawyer on pause with ME/CFS and LC
AI Frontiers @aifrontiers.bsky.social Driving AI discourse. Subscribe to our newsletter at www.ai-frontiers.org/newsletter
Hagioptasia: Perception & Meaning @hagioptasiatheory.bsky.social Exploring the hidden force of perceived 'specialness' - a natural illusion shaping human belief, behaviour, & culture.
https://hagioptasia.wordpress.com
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Milan Weibel 🔷 @weibac.bsky.social computer toucher. here for AI mostly.
🔹 trial pledger @givingwhatwecan.bsky.social
he/him
“A republic, if you can keep it.” @silverliningunited.bsky.social Everything shared here is rooted in the Constitution and nonviolent civic resistance. This is about restoring democratic norms. Withdrawal of consent means refusing unlawful abuses of power, peacefully. That’s how free people protect democracy.
Daniel Eth (yes, Eth is my actual last name) @daniel-eth.bsky.social AI alignment & memes | "known for his humorous and insightful tweets" - Bing/GPT-4 | prev: @FHIOxford
Els ten Napel @fiederels.bsky.social Lost geographer. Washed ashore on the island of Texel. Living in the parallel universe of chronic illness. MECFS with a generous dollop of Long Covid
Annemiek van der Doe-Janse @mamayacaprice.eurosky.social En weer terug in m'n hok...
Als onkruid, nog steeds niet vergaan| Zeeuws in Brabant| Zij/haar| 🌈|🍉|🇺🇦|🐕
@mefibromyalgia.bsky.social @mefibromyalgia.bsky.social 
Chris Leonard @hoohar.bsky.social Academic publishing, peer review, AI, and other niche interests (MFC). Subscribe to Scalene newsletter here: https://scalene-peer-review.beehiiv.com
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Merlot Vine @merlotvine.bsky.social Kitchen garden, DIY fundamentalist. Science news about SARSCoV2, Covid19, longcovid.
Cats! Has ME/cfs and LongCovid
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Lia Pas @liapas.bsky.social #SciArt symptomatology and #anatomy #embroidery, writing, and #MECFS. A bit of music too. Canadian settler. she/her. https://linktr.ee/lia_pas
Barbi @jksbluewhisper.bsky.social 📍 Chicago-ish 🐈 Woman
🥊 FK Trump (MSNBC ≠ the enemy)
☁️ Follow my "Top Tier" "List"
💌 Sang Spears, NKOTB, Swift...
💭 Use this place as a journal, screaming novels
♿ #MECFS #EBV #ChronicIllness...
💞 Donation/Info: https://linktr.ee/BarbiB17
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
purrtrandrussell @purrtrand-russell.bsky.social Fully automated luxury queer space georgist into effective altruism, liberalism, and feminism. More of a nyan-binary than a catgirl. I accept every pronoun (not "it") but mostly use "they" for myself. I try to post good news and actionable information
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Leonid Bugaev @leonidbugaev.bsky.social By day Head of Engineering at Tyk.io, and Indie Maker at night.
Building https://goreplay.org
Helping OSS community to grow, and people learn to code: https://helpwanted.dev/
Living a nomad life with my beautiful family.
Deep into AI.
Jippeke @jippeke.bsky.social 
Geography facts @geographyfacts.bsky.social Exploring the world through flags and maps🌍 Your daily dose of geography, one post at a time!
Peter White @mediumwhite.bsky.social Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
@jborva.bsky.social @jborva.bsky.social I’m not like them, but I can pretend. #longcovid #mecfs- O Osaca @osaca.bsky.social https://twitter.com/Osaca_ME
Life on pause due to Long Covid and ME/CFS-advocate and patient
Btje 🌶🌶🌶 @btje.bsky.social Gezonde Franse Bull dames, voor alles gevaccineerd. Zou ooit graag in Italië willen wonen. Op zoek naar een echt gezellig social platform.
📎Kate Lichtenberg, DO, MPH, FAAFP, FACPM📎 @krlichtenberg.medsky.social wife | mom | family physician | public health nerd | soccer fan | pgy-29 | she/her | skeets ≠ medical advice | opinions are mine | on a mission to end medical bankruptcy #medsky
juul @tiredjuul.bsky.social Me/cfs long covid
Will be more active once twitter goes to shit 
Britt B @beingbritt.bsky.social It's never too late to have a better life. ME/CFS treatment guinea pig creating life 2.0.
Let's talk about cats, Pathfinder, food, music, 12 step work, community building.
I'm many things but most proud of my role as family member, spouse, friend.
Willemijn Helmink @willemijnhelmink.bsky.social 
Marianne @mariannehout.bsky.social Dutch. Bedbound with severe ME. Trying to find my way back to life.
Still Masked and Living the Dream @anaraesia.bsky.social She/Elle. Teacher of students who are deaf/hard of hearing. I ❤️ my 🐈⬛, 🪴s, languages, 🎶, food, truth, and equal opportunity for all. Happily and monogamously married.
Neuro-🌶️, hEDS, POTS, MCAS, ME/CFS.
Milwaukee-born, now in Quebec- S Sam @sam18559805.bsky.social
Robert de Neufville @deneufville.bsky.social Superforecaster. Professional forecaster w/ Good Judgment, Metaculus, and The Swift Centre. I write Telling the Future (https://tellingthefuture.substack.com) and host Talking About the Future (https://tellingthefuture.substack.com/podcast).
Jonathan Lorraine @jonlorraine.bsky.social Research scientist @NVIDIA | PhD in machine learning @UofT. Previously @Google / @MetaAI. Opinions are my own. 🤖 💻 ☕️
@vivazeddie.bsky.social @vivazeddie.bsky.social academic technologist. research focus: local history, open access, #repair ; Wikidata beginner: women in handicraft, Hudson Valley NY, early 20th C.
Stefan Schubert @stefanschubert.bsky.social I run The Update newsletter: www.update.news
Book: academic.oup.com/book/56384
Bilge Cetin @bilgecetin.bsky.social Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
Sean O hEigeartaigh @sean-o-h.bsky.social Academic, AI nerd and science nerd more broadly. Currently obsessed with stravinsky (not sure how that happened).
Babs Ruiz @ixabil.bsky.social LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Wild pentachoron correspondent @crossslide.bsky.social Ame
thyst, orchid, mulberry, midnight blue, navy blue, electric blue, sapphire, turquoise, cyan, aqua, olive green, pine green, sea green.
とどまりたる例なし。
44 years old.- M MEnaced @menaced.bsky.social for when the birdapp goes down for good
(Severe ME)
Blossum @blossumplum.bsky.social Who 🤷🏻♀️?
Bart Le Fermier @bart-lefermier.bsky.social Long Covid since feb '21.
ME Centraal @mecentraal.bsky.social Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden.
https://mecentraal.wordpress.com
https://www.facebook.com/MECentraal
mecentraal@gmail.com
Judith @notsofancylife.bsky.social 30 | voormalig jeugdzorgwerker | Long Covid sinds sept. '20 | is graag creatief bezig ⬇️
www.handmadebyjuud.nl
Deborah Collier @futuristleader.com Award Winning Strategic & Futurist Leader® in Digital, Media, Business & Technology. CEO, Author, Creator, Keynote Speaker, President & Founder of the Digital Skills Authority @DigitalSkillsAuthority.org My YouTube Channel: youtube.com/@futuristleader
🌊💙 Erik - on to 2028 to make things right again!💙 🌊 @mrmugsy2u.bsky.social 🌊💙Leaving the cesspool that X has become thanks to Leon. Trying to survive the next 4 years.
Proud father of 19 year old twin boys, one an Army Combat Medic in college and the other in his 2nd year of college! Proud husband of an awesome woman!💙🌊
@allisongustavson.bsky.social @allisongustavson.bsky.social 
Bente Kubin - Magic Everyday @bentealinda.bsky.social Had pech, werd ziek, leven weg (sinds 2009) | Bedgebonden door zeer ernstige ME, POTS, LongCovid, Lyme, CCI | Columniste | Insta: @bentealinda | Strooi met schrijfsels en vooral veel liefde🫶🏼↴
MT 💙🕊🦸🏻♀️🌻🌍 @mtwoltering.bsky.social Creative & social project initiator used to work 🌎👩🏻💻 and💃🏻 a lot internationally.
Can't stand injustice. Designing solutions for health for everyone in the few moments my inflamed🤯 brain allows me to. @ 🛏🏠
#ME #LongCovid #NeuroInflammation
Dinet Koopman @dinetkoopman.bsky.social Klinisch psycholoog BIG, traumaspecialist. Geeft les over trauma. Eigen praktijk.
Poezen, Italië en Engeland, moestuin.
Long Covid Nederland @longcovidnederland.bsky.social Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
Rien de Böck @riendebock.bsky.social Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
themupsmuppet @sophie11.bsky.social enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
MarliesKdG @marlieskdg.bsky.social Imperfecte deugkneus. Helaas met ME/LongCovid. Probeert Covid dus nog steeds te ontlopen. Steekt veel energie in het minder gebruiken ervan. Automatonfan.
Pais en Frijke @paisenfrijke.bsky.social Ernstige ME door Long Covid.
Mij leven bestaat uit op de bank/bed liggen, beetje internetten en mijn liefde voor luisterboeken 🩷
Jet Roz @jetroz.bsky.social Former art historian, curator, traveler and hiker turned Long Covid patient. Five years and counting 🛏️🧟♀️
Pim’s Long Covid Avonturen @plb.bsky.social Studeerde ooit Chinees- leuke baan in de IT (ben geen IT-nerd, wel nerd in het algemeen…)- PSV- Momenteel even op de bank ivm Long Covid. 
Joanne VanDerNagel @joannevdn.bsky.social Psychiatrist, researcher ehealth equity,
Scout. - B Bettje37 @bettje37.bsky.social one of the #MillionsMissing, book lover, moderate/severe ME, favorite artists Amy Winehouse and J.S. Bach, not creative at all. Brain fog very bad, please excuse weird language now and then. More of a reacting type person than initiating threads. #ME/CFS
Yvette @iefsworld.bsky.social | writer | editor | former multi-media artist/musician |
| ME since childhood |
| young widow due to medical neglect |
Mariëlle Selser @marielles.bsky.social Passie voor onderzoeksjournalistiek & literaire non-fictie | Auteur van ‘Landziek, een medische geschiedenis’ | Nu bezig met onderzoek naar PZ Santpoort | Vogelaar vanuit huis | ME/POTS
Mariska Hoos @mariskahoos.bsky.social Ex ambulanceverpleegkundige. Nu helaas afgekeurd ivm LC
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Sophie @samsewams.bsky.social Schools & other indoor spaces should be safe for everyone. Trying to avoid covid. 
Viv @stillviv.bsky.social Biomedical engineer, mathematician, equestrian, thru-hiker and generally outdoorsy - now 99% bedbound with #severeME. I like posts on science, literature, world history and art.
Sadalbaran @sadalbaran.bsky.social NL / 20Y Daughter with severe/20J Tochter mit schweren LongCovid & ASS / C⭕️vd19 is NOT just a mild Flu!/ C⭕️vid19 is GEEN mild griepje! / UWV-WAJong / Genealogy 🧬/ Dividend-Stocks / Astronomy 🔭🌙 / He/Hij/Him
Chris J. Maddison @cmaddis.bsky.social Asst. Prof. in Machine Learning at UofT. #LongCOVID patient.
https://www.cs.toronto.edu/~cmaddis/
Solidarity✊ @solidarity2025.bsky.social Progressive Democrat | DSA supporter | Army Veteran | Award-winning producer, director & writer | Democracy, housing justice, renewable energy, cannabis reform & civil rights | #LGBTQIA2S+ #BLM #BlueCrew | Solidarity ✊ | ⛔ No DMs
Jeroen 🔸 @ahappier.world 🎬 YouTuber (youtube.com/ahappierworldyt)
💡 Active in EA Belgium
🔸 10% Pledge #9211 at givingwhatwecan.org/pledge
📍 Brussels
🌱 #sentientist #effectivealtruism
"Yeroon" /jəˈʀuːn/ (he/him)
Laura de Vries @lauravictorine.bsky.social Former medical doctor | PhD | Living with moderate/severe Myalgic Encephalomyelitis (ME) | Dutch 🇳🇱 | Cat mom of two | #pwME #myalgicencephalomyelitis #myalgicE
Sigrid C. Degener @esceedee.bsky.social Horizontaalvirtuoos
Nachthaker
Runt af en toe een bed & brakdag
Maakt* de wereld graag mooier
(*handwerken, koken, fotograferen, schrijven) wanneer het lijf het toelaat
🇳🇴Trøndertun ‘90/‘91
#pwME
Tjalco @tjalcovrv.bsky.social MD, was resident radiology, now 4+ years long covid
🇳🇱 🇬🇧 
Arlette @arlette.bsky.social I am one of the #MillionsMissing
32 years old
Netherlands
She/her