@sidesmatter.bsky.social @sidesmatter.bsky.social
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
@bellablue99.bsky.social @bellablue99.bsky.social
Matt Pritchett 📷♿️ @crankycyborg.bsky.social Nature photography, my cats, & whatever grabs my ADHD brain’s interest
If you like my photos, you can buy prints or mugs, bags, etc:
https://matt-pritchett.pixels.com
#DisabledArtist
#LongCovid #MECFS #ChronicIllness
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Malka_G @malkag.bsky.social Writer/editor. Chronically ill. Slowly working on setting up this account.
Hoping to reconnect with #NEISvoid, #DisabilityTwitter, #CovidIsntOver, #StillMasking, etc.
@s-saucy.bsky.social @s-saucy.bsky.social
Emma Doty @emmadoty.bsky.social Researcher interested in ME/CFS, long Covid, etc.
Linda @lindaoh.bsky.social Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish.
ADHD, ME sufferer. Cat and dog person.
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
@stripeyfruit.bsky.social @stripeyfruit.bsky.social They/them etcetc
CosmoB @cosmob.bsky.social Cosmopolitan. Pleased to meet you here🔆
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
aaron @amdesign.bsky.social architectural designer. science and technology enthusiast
Needful Things @founder-for-good.bsky.social Somewhere between a notebook, a back office, and a half-finished tool that turns out to be useful.
A tired human @saffronandsky.bsky.social disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Di Möhr @carer4me.bsky.social Mom of a young man with severe ME/CFS. Determined to find a cure.
VirusSucks.com @virussucks.com #LongCovid since May 9, 2022. I was out for my morning run when exhaustion hit me. PEM, orthostatic intolerance, etc
Last #SARSCov2 infection: April 2022.
Medical news
https://m.youtube.com/@VirusSucks-com/shorts
#COVID is airborne so ventilate
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
Crazie Daizee @craziedaizee.bsky.social #DemandDemocracy
I have dreamed a dream
but now that dream is gone from me
(former?) grand-masters #runner
Please support #LongCovid research
#LongCovidAthletes #MastersRunning #RunSky
Whitney is Wicked @itswhitneywitch.bsky.social Disability Justice
Living with ME, EDS, POTS, MCAS, vascular compressions, spinal comorbidities & more
Ambulatory wheelchair user
Cozy gamer, lazy gardener, hopeful baker
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Otrosdías @otrosdias.bsky.social For music go to: @otherdays.bsky.social
For COVID, public health, politics, etc.. stay here...
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.- M @marydimmock.bsky.social @marydimmock.bsky.social US ME patient advocate. Mother of a son and his wife who have ME and Long COVID. My other focus is on US politics and what's coming
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Cate @midcatecrisis.bsky.social I have had myalgic encephalomyelitis (ME) since 2020 and spend the majority of my time in bed, of necessity. Mostly homebound. I used to be a climate activist, but spend any available energy parenting now. FUNCAP 2.5
Toronto, Canada
Autigender She/they 😷
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Wendy Kloiber @wendykloiber.bsky.social So did the divine right of kings. Long covid class of March 2020, the kind with ME. Would like one more tattoo, minimum. She/her. Ashland, WI —> MSP.
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
@ggottschalk.bsky.social @ggottschalk.bsky.social
@andreajoliat.bsky.social @andreajoliat.bsky.social MEcfs advocate, parent of son with MEcfs.
Epigenome Technologies @epigenometech.bsky.social Epigenome Technologies, pioneering in epigenetic and single-cell analysis, offers advanced assay kits and optimization services.
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Minestrone Monster @minstronemonster.bsky.social Dancing with the devil in the pale moonlight
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Sebastiaan Deetman @lymecfs.bsky.social Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
patientledhypothesis.github.io
@estranea.bsky.social @estranea.bsky.social
Living Safely With Covid @covidsafenz.bsky.social Covid Safe NZ #CovidIsNotOver
Layers of Protection: Vaccines + Masks + Ventilation + Filtration
Indoor Air Quality Standards
Masks in Healthcare and Aged Care
Aotearoa New Zealand Kikorangi
Pandemics | Typos
@caitbsky.bsky.social @caitbsky.bsky.social Idealist, planetist, geek #CrisisData
Was @cait on Twitter.
#CovidIsNotOver
Anyone got an Emergency Management starter pack?
@nikkimonres627.bsky.social @nikkimonres627.bsky.social