A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
Jamie 🏳️⚧️🏳️🌈 (they/them) @treesofreverie.bsky.social they/them 🏳️⚧️ queer, trans non-binary | disabled. neurodivergent. chronic illnesses. | artist. reader. writer. | cats: Charlie & Lola |
Ex-Bookseller 7yrs.
Mostly bedbound with Severe ME. #MECFS #MillionsMissing #pwME
Rachel Leingang @rachelleingang.bsky.social Midwest political correspondent at @TheGuardian.com. Lots of Arizona journalism before this. Based in Minneapolis. Email: rachel.leingang@theguardian.com. Find me on Signal: rachelleingang.21.
Michael Evans @bearlyzen.bsky.social 6th grade ELA teacher and mindfulness coach. Sometimes podcaster and writer. Full time dad.
Scotch, vinyl, books and good food.
Support my work as a mindfulness coach and podcaster by buying me a coffee... https://buymeacoffee.com/michaelscottevans
Dr Clint Heacock @dismantledoctrine.bsky.social #Exvangelical and host of The Dismantling Doctrine Podcast. Proud to #resist the fascism of the Trump administration. Warning about Christian nationalism and the threat it poses to American democracy. https://podcasts.apple.com/us/podcast/the-dismantling-d
Alexandria Ocasio-Cortez @aoc.bsky.social Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible.
ocasiocortez.com
Nina Wildflower @ninawildflower.bsky.social Music fan. UK science teacher in an FFP3 mask.
The right mask makes it easy to sing, perform, teach, or speak in public.
#N95 #FFP2 #FFP3 #YallMasking
He/him
Dov @dovsz.bsky.social He/him. Spoonie. Why couldn’t we be bonobos.
Protect trans kids.
Trans rights are human rights.
Cohost pempod (pempod.com) podcast about life with ME and long covid.
@ruthbraham.bsky.social @ruthbraham.bsky.social Severe M.E bedbound, socialist, artist, cat lover, free palestine, trans rights are human rights
She/her
Eliza James @elizajames.bsky.social n95’s + HEPA’s | Long COVID | MECFS
Our leadership & medical providers have failed us on c19
ANTI-profit-over-people
burgermind @burgermind.bsky.social ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Paul Swann (he/him) @pauldjswann.bsky.social Christian, early retired, priest living with ME/CFS. Author of Sustaining Leadership (BRF). Spirituality. Inclusivity. Vulerability and Grace. Photography. Nature. Politics. Husband and father.
Horizontal Views @horizontalviews.bsky.social Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Claudine Prud’homme @clau-prudhomme.bsky.social #MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭
Former veterinarian
Membre comité scientifique AQEM-
post infectious illness interest
Marie Jobin @whywhy.bsky.social Doctor in psychology, proud participant of #RemissionBiome first cohort, #EDSh #MCAS #ME/CFS. The pandemic is not over. #CleanAir #MaskUp #StandWithUkraine #StopGenocideInGaza
Karen Radenkova @laradenkova.bsky.social Artist,partner, mother, keen archaeologist and baker of cakes! Carer for daughter with M.E. for twelve years, housebound for ten of those years.
Based in East of England.
Daniel Wales @danielwales023.bsky.social Sports Editor & Reporter for Tyne & Wear TV, Teesside TV & Leeds TV 📺
Hannah @pipsminitwee.bsky.social M.E(Over26years so far🐦🔥🪫🙄)🥄Depression,Millennial,Vegan🌱Sloth🦥Magpie✨Love:Animals🐾🐘,Piercings,Tattoos,Soaps,📸,Crystals💎LipBalm💄J2🖤1R🎵TT🎵+Coffee☕️+More🫶She/Her✌️
Alone LL @ladylonghaul.bsky.social Born 324 ppm. small spoons & sensory spaces. 🥄🎧
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
Skirrell (they/she) @deliqueena.bsky.social Maker of Many & Varied Things
Queer disabled/AuDHD/Chronically Ill dork with Too Many Thoughts (won't put any back)
Edible plant/food forest/companion planting nerd, oak tree/acorn fanatic
Advocate for Housing Justice, Universal Accessibility
🐈⬛🐈🐾😻
🐇🐇🐇🐇🐇
DorsetSAFC 🇬🇧 🏴 🇺🇲 @dorsetsafc.bsky.social I'm a life long Sunderland AFC fan.
Love my dogs, music, walking, reading, food, travel, people watching, football, Miami Dolphins, UK and foreign politics and spending quality time with my wife.
I like TV and movies about crime, murders and UFO's
Shona S @shona-s.bsky.social Sometimes #sociology PhDing on #BlackFeminism and #Disability. Other times "shaking shit up" in the heritage sector, or spontaneously driving 4 hours to explore. Always freely & authentically me🕊 🇯🇲🇬🇧
Make Your Day Your Tao @makeyourdayyourtao.bsky.social Ancient wisdom in today’s language for today’s world. "It's Your Day, Make It Your Tao" is on Amazon or by order from bookshops. Details at https://yourdayyourtao.org/shop/
The numbers you see in each of these images refer to the Tao’s source verse- M John C @magicjc007.bsky.social Love sports, travel and social justice. Sunderland AFC, Boston Celtics, Boston Bruins. Partial to sneakers.
Live in Boston/Florida after globetrotting for many years. English born and bred.
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Michael Smith @skibu.bsky.social Long Covid has annihilated me. Disabled musician. Created tech behind transit data companies Swiftly and NextBus. Person behind robotaxi.news & helpBluesky.me . Co-founder of Walk SF. The War on Cars will be won by @safeStreetRebel !
@qutluch.bsky.social @qutluch.bsky.social When these frail shadows we inhabit now have quit the stage, we'll meet and raise a glass again together in Valhalla.
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
JenW @stuckatlights.bsky.social Retired public servant, history/politics tutor; carer. Married.
Anti far-right, autocrats and their enablers.
Politics, health, ME, animals, environment, music and some 😊.
Born Sheffield, now Cambs.
No DMs, sleaze, GoFund or crypto please!
🇪🇺🇺🇦🇨🇿
ThreeBucks @threebucks.bsky.social #LongCovid OG, #PEM #ME (formerly #MECFS) #pwME #vWD #BleedingDisorders #ADHD #Teacher on medical leave, #design nerd, Mac lover, dog mama, #Illini fan, kind of ok at #pacing, really good at doing too much.
Misanthrope Lapierre @misanthrope-lapi.bsky.social Formerly functional human being. Covid long-(eternal)-hauler. Lady’s maid to a 3-pound chorkie. Anime, SFF, video games.
Lucinda Crimson @elsiemagenta.bsky.social Artist/teacher with me/cfs, adhd, cats and a vegan kitchen 😷
Living on Whadjuk Noongar Boodja.
https://www.lucindacrimson.com
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Anne @anneinayrshire.bsky.social Long term living with ME (over 30 yrs)
Have a lot of crashes but
Still trying
Still hoping
Largs, Scotland
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
MonzaMayhem @monzamayhem.bsky.social Mother of child with ME/CFS; trying to create a life for him while waiting for answers from medical research. My oldest is a wildland firefighter. I post primarily about public health, ME/CFS, Long Covid, and wildland firefighting.
steffi @mecfshawaii.bsky.social Patient Advocate / pwLC / Caregiver to pwME 🦓🦒 #ME #EDS #POTS #MCAS #LongCOVID #MEActionHawaii
Niall @safcniall.bsky.social 18 | SAFC
Davinder Sangha @davindersangha.bsky.social Digital Marketing Manager in Washington, Tyne & Wear. Play football (still), organise footy tours and events. SAFC fan. Get angry on the football pitch but don't mean it. Love the wife, some of the kids and the cat. Granddaughter is priority 1 though
@kirstenwithmecfs.bsky.social @kirstenwithmecfs.bsky.social 
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Leigh @leighkendal.bsky.social I have opinions, you may not like them. Theatre fan, living with ME, everyone's big sister. Child free by choice of but number 1 Auntie! Usually found napping or stuck in a book
sweetfernwrites @sweetfernwrites.bsky.social zinester and poet of end times
Jeremy Jeffs | photography & documentary @jeremy-jeffs.bsky.social Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
https://linktr.ee/jeremyjeffs 
Iamstaceylynn @iamstaceylynn.bsky.social I make balloon animals and drink coffee. Lots of coffee. All of my Houseplants have names & I talk to them. I repost a lot of art. Kansas City, Missouri
Unrepentant Bitch, stroke survivor,in my crone era, Sagitterrorist
Loyal member of the Leguminati.
Saskia in de Boekenhemel @saskiajacobslabree.bsky.social Hopes and fights for recognition and the cure of ME, disabled since decades, loves singing, reading and writing blogs.
Jury member for Max Vleermuis Thriller prijs.
Blog https://www.hebban.nl/spot/saskia-in-de-boekenhemel
Bill Clayton @clanman.bsky.social Caring for the York ME Community & Accessibility in York UK. Could talk football all day long.
Like to Word Doodle (some call it poetry) The Word Doodle Trilogy is out on Amazon now !
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Ollie C @olliecornes.bsky.social Living in London with a Hungarian, two Russian Blue cats, #MEcfs and a healthy obsession with the art of Keith Haring. 🇬🇧🇪🇺🏳️🌈🇺🇦♥️
Callirhoé @callirhoe.bsky.social Between illness and rebellion.
Climate, healthcare, anti-ableism, ophthalmology. EDS,MCAS, ME/CFS.
Climat, santé, antivalidisme, ophtalmo.
Engineer by training, activist by heart.
Fantasy &SF. Good Omens &Andor.
Posting in 🇫🇷/🇬🇧
https://linktr.ee/callirhoe_
Stephanie Schmit @stephanieschmit.bsky.social Math and Science Educator🧪MechE🔧
Retired Acrobat🤸
ME/CFS and Long Covid🛌
Advocate for Clean Air in Schools🫧
& Masks in Healthcare Settings😷
www.bostonprivatetutors.com/ccprograms
Lettymontana @lettymontana.bsky.social Democrat, Left-Handed, Right-Brained, Writer of short stories and screenplays, and we'll all figure it out despite The Orange Clown and his carnival barkers.................#WeWillWinIn2026
Minnesota Grown!
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages. Woke AF
meownersclub@bsky.social
Maker of #FanningTheFlames
Slow Lane @slow-lane.bsky.social Having to live in the slow lane due to ME, would rather be gardening, crafting, cooking, socialising and so much more. And walking our beautiful Spanish Water Dog, Lily - the light of our lives 🐾
under_transformation @trans4m8tion.bsky.social Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
Cornelia ME/CFS @corandmecfs.bsky.social I used to be a person, now I’m a ghost, lingering on in the world of the living. ME/CFS since 2011, severe since 2021.
Kathryn McGrath @kathrynmcgr.bsky.social Communications for #cleanenergy at Earthjustice. Opinions are all mine. 
Jenny Sherman @jennysrp.bsky.social Multi-media Producer, mystic, multi-potentialite, expat 🇺🇸🇬🇧
https://www.jennysrp.com/links
Moriah Nightingale @sleepy-draugr.bsky.social Disabled, neurodivergent, and queer artist living with ME/CFS and CPTSD 💙
Also a leftist, inclusive Heathen, and unfortunately timed history enthusiast.
Landback, BLM
Sunderland AFC @safc.com Home of Sunderland AFC on Bluesky.
Cleo👠✨ @ozgib.bsky.social Silliness ~ Movies ~ Music ~ Being supportive ~ Animals ~ Nature ~ Arts & crafts ~ INFJ
👉🏻NO unsolicited DMs👈🏻
♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS
This Thing They Call Recovery @thisthingblog.bsky.social Hi, I’m Jenny! (She/her) ✏️ Chronic illness and disability content. “For when ‘Get Well Soon’ is just a bit shit”. Freelance designer, consultant, small biz owner 🏴 https://www.thisthingtheycallrecovery.com/links
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Keren Dibbens-Wyatt @honeycombhermit.bsky.social Christian contemplative, author, poet, artist. Existing with severe M.E. Seeking rep for a torrent of books and art. Trad pubbed with Paraclete Press, Herald Press, Mogzilla, forthcoming at Signum. Redbud. Views my own. https://www.kerendibbenswyatt.com
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Rachel @rachelpearson.bsky.social 
Putrino Lab @putrinolab.bsky.social 
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Cynthia Johnson @minetodo.bsky.social Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
Karen M Renton @karenmrenton.bsky.social Life is a shipwreck but we must not forget to sing in the Lifeboats ~ Voltaire
#ME #MyalgicEncephalomyelitis #pwme
#diabetes #hypertension #menopausal
Christina Baltais @christinabaltais.bsky.social Artist exploring the intersection between art & advocacy, sharing my experiences living with ME/CFS
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
blaine @jblainefoster.bsky.social genetics BS ➡️ history MA ➡️ PharmD | 🌈🏳️⚧️ | MECFS | 🇨🇦 | any/all
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others 
Amanda Bennett @amandabennett.bsky.social Usually up mountains, sidetracked by long covid since Dec 2020. Now mostly housebound with cardiac issues.
Jen Scott @jenscott100.bsky.social Occupational therapist working in Assistive Technology. Living with Long Covid/ME. Mum of two amazing neurodivergent kiddos. 🏳️🌈🏳️🌈 She/her.
Linda B @downnotout.bsky.social Full time mother, sick person and Cozy Grove addict
Oonagh Cousins @oonaghcousins.bsky.social 
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Kirsty Schnickelfritz @kschnickelfritz.bsky.social Sometimes inappropriate. Knitting and chocolate addict. Political when the mood takes me. Sick and tired. ME, LongCovid, POTS, Lyme
Joan McParland MBE @joanmcparlandmbe.bsky.social 1999 - Sudden virally-induced onset #MyalgicEncephalomyelitis
2011 - Founded Hope 4 ME & Fibro Northern Ireland charity
Acting as Voluntary Co-ordinator, driven by passion for truth
13 years campaigning for specialist #ME service in N.I.
Remain hopeful!
Cathy Sergi @cjsergi9.bsky.social M.E. Dx 2015. Since 2016 no longer able to work as a teacher due to this life-changing debilitating illness 😔Need a wheelchair if I do manage to go out. 95% housebound.
Still love music, films, TV & having a laugh. And 😺
Infrequent but interested 🦋user
Kelly @broadwaybabyto.bsky.social Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Cinnamon Rolling Along @cinnamonrollalong.bsky.social #pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne 
Tina Rodwell @tinarodwell1.bsky.social Eclectic Mother and ME Advicate. Bag maker and same with a passion.
Clarejames131 @clarejames131.bsky.social Slowly writing 2nd draft of debut novel. Enjoy music, nature, art, meditation, chatting, and tea. #pwME
Phoebe @phoebsbo.bsky.social Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. Scotland. She/her.
https://linktr.ee/phoebsbo
Nate @riffraffnath.bsky.social stuck at home with long covid
community organizer, educator, video artist
🌈♿🤒🕎 (they/she)
@lbdavis2296.bsky.social @lbdavis2296.bsky.social Former social worker with MECFS, CVID
@jenni-bearden.bsky.social @jenni-bearden.bsky.social 
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.