saskia papadakis @sazpaps.bsky.social geographer / sociologist / oral historian interested in race, gender, class, life stories, place, gay stuff
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
COVID-19 Longhauler Advocacy Project @c19lap.bsky.social COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3).
Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth.
#LongCOVIDAwareness #OneInfectionAway
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Sabine @sabineg.bsky.social Fighting ME/CFS and hoping for a brighter future
Somewhere in the U.K. 
Jon Moses @jon-moses.bsky.social Co-director of Right to Roam 🥾
Co-editor of WILD SERVICE: Why Nature Needs You 🌿
https://linktr.ee/jonathanmoses
M @emgilso.bsky.social Housebound pwME
Audhd
Currently burnt out
Prof Sheena Cruickshank @sheencr.bsky.social Immunologist & science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome & how this exposome affects health. Also quite likely to share random dog and nature pics 🧪👩🔬 #AcademicSky #SciCom
The Safer Air Project @saferairproject.bsky.social Creating accessible and inclusive communities through safer indoor air. Registered charity with the Australian Charities and Not-for-profits Commission (ACNC).
@lbdavis2296.bsky.social @lbdavis2296.bsky.social Former social worker with MECFS, CVID
@sazjb.bsky.social @sazjb.bsky.social Disabled mum just trying to make the most of life! Passionate about equality issues, inclusion and accessibilty.
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Juli Maëlle @julimaelle.bsky.social Ex-Fotografin 📸 & Musikerin 🎶,
jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie.
Leidenschaft still on.
#noAfD #wirsindmehr
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
symptomodyssee @symptomodyssee.bsky.social Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern.
"Das ist nur Stress" ist keine Diagnose.
symptomodyssee@chaos.social
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Dr. Daniel Loy @drdanielloy.bsky.social Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Djesus @djesusuncr0ssed.bsky.social Sie kennen mich nicht, aber ich bin müde…
CaliforniaHeartBavariaHome @lgoshen.bsky.social Here mainly for evidence-based discussion of public health and the climate crisis.
#TeamWissenschaft
#ProtectTheKids
#MaskUp
Posts in German and English
she/her
@lgoshen@mastodon.social
O. Johnstoni alias einfach_machen3 @ojohnstoni.bsky.social Psychology, research, mother of three, fighting for my husband with #LongCovid, disillusioned yet cheerful, haven't lost humour #MECFS #maskup #ParentsForFuture
Simon Gehren #LongCovidAlly #LowCovid (@CoronaZeroCH on Twitter) @simongehren.bsky.social Advocating to #PreventLongCovid, through a smart scientific strategy: Honest risk education, good masks, mucosal vax, PlusLife, air filters.
#MEAlly / #TreatLongCovid/ME💛.
Swiss lawyer & strategic advisor for NGOs.
https://twitter.com/CoronaZeroCH
Sandra 👩🏻🔬👩🏻🏫 @rsandra266.bsky.social M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS #SFN
| team member of @Not_Recovered
Heike @heikewigr.bsky.social One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
💙 = ME/CFS solidarity
#noAfD
MEnsch @momof2andahalf.bsky.social Mom of 👧🏼👧🏽 and a Bonus 🧒🏼
#PostCovid #POTS #MECFS since
Juli ‘22
#Schattenfamilie
Collecting Information about Postcovid + ME/CFS - bc I had to become my own doctor.
Jennifer Brea @jenbrea.bsky.social 
Jurika82 pflanzt Bäume für Aufklärung über ME/CFS @jurika82.bsky.social Meine Forderung: Aufklärung, Anerkennung, Forschung und Unterstützung für Betroffene von #MECFS #LongCovid und des viel selteneren #PAVCS
https://gofund.me/80e5c7f7 für Aufklärung über #MECFS vor Ort
Dadlani @dadlani.bsky.social just arrived
#LongCovidAwareness
#BildungAberSicher
#BringBackMasks
#DavosStandard
#SolidarityWithUkraine
#CleanIndoorAir
so far covid-free,
born 319ppm
Oliver Striebling ♿️ @ostriebling.bsky.social #MECFS seit 2017 - Bell 20-30
Chrissie P @chrissiep.bsky.social Dog-, Book, Sea-, Camping-, Music-, Yoga-, Nature-, Espresso-Lover. #Booktober #Yoga #Poetry
Bayou Mystère @bayoumystere.bsky.social 🦇Undead undead undead 🦇
Ex-burlesquer
Queen of Wortwiederholungen
I got #MECFS & a rock n’ roll heart, ADHD too
🖤🩶🤍💜
Judyintheskynet @judyintheskynet.bsky.social Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet
https://linktr.ee/Judyintheskynet
Max Wassermann @maxwassermann.bsky.social 20+ || life paused due to #MECFS since 2013 || likes cats, video games and good bad movies || member of saME
Golightly @holdgolightly.bsky.social Früher Künstlerin, Textildesignerin, Reisende.
Eine von #MillionsMissing seit ca. 1987
̷L̷o̷r̷e̷n̷z̷ ̷ @restthingever.bsky.social formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 50.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Lisdexamfetimon @5tertimo.bsky.social Studiert Theatertechnik, mag Medizin. Berlin.
LightUpTheNight4ME @lightupthenight4me.bsky.social Offizieller Account
ME/CFS Awareness, Aufklärung und ein bisschen mehr
https://lightupthenight4me.wixsite.com/website 
Sandra _mecfs_since1987 @pociomo.bsky.social
#severemecfs #mecfs
losronjos @losronjos.bsky.social Ronja she/her
#mecfs
MightyMermaid @mightymermaid87.bsky.social M.A. Early Childhood Education // #MECFS #SFN #Hashimoto #ChronicPain #fundraisingbc007MEcfs #MEawarenessHour #Kinderschutz // MightyMermaid87 @ web.de (she/her)
PostX @postx.bsky.social Co-Founder Unitetofight2024, Pharmacist, Long Hauler since 2020
Harry van Gerven @drenrettiwt.bsky.social Born @ 335.42 ppm CO2 #LongCovid since april 2020.
@lisazett.bsky.social @lisazett.bsky.social 
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Beth Morton @migrainechat.bsky.social Education researcher turned migraine advocate
#MigraineChat moderator
VT maple syrup aficionado
🚫 Unsolicited advice
She/Her/Dr (PhD kind)
Header: Dinosaurcouch
MigraineChat Resources & Discord:
https://campsite.bio/migrainechat
MC feed/starter pack👇🏻
Kelly Meiners PT, PhD @kellymeiners.bsky.social Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Chris | ME/CFS Research Foundation @ungenesbar.bsky.social LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Kelly @broadwaybabyto.bsky.social Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Laura @harmonicsoul.bsky.social X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Cynthia Johnson @minetodo.bsky.social Storyteller. Advocate. Stand By ME/CFS!
#StandByMEcfs #StillSickStillFighting #UnitedForME #MEcfs since 2009
Laura Miers @lauramiers.bsky.social Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
Maike Osborne @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Penncat @pennicat.bsky.social Shy, disabled, queer, autistic.
Requires alt text to follow you.
Writer of contemporary m/m/m and lesbian historical novels.
Book related stuff found mostly at @penthewriter.bsky.social
Cornwall dweller.
May actually be the cat in the picture
Daniela Dirlenbach immer noch Urlaubsreif @urlaubsreif.bsky.social Liebe meine Familie & Potenzial in Menschen zu entfalten.
Mitglied des Löwinnenrudels,
Aktiv für Sichtbarkeit, Unterstützung und Aufklärung
#PostCovidKids & #ME/CFS ❤️-Mensch
#Schattenfamilie #NoAFD
www.daniela-dirlenbach.de
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Brianne Benness @bennessb.bsky.social currently: sick / haunted in Western Mass, host of No End In Sight - a podcast about life with chronic illness, creator of #NEISVoid | previously: Stories We Don’t Tell in Toronto | she / her
tern @1goodtern.bsky.social truth, science, hope
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Dr. Ashley | Panicked Foodie @panickedfoodie.bsky.social Scientist | Cornell Alum | Bedridden | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #HeatTransfer #CovidIsAirborne
Living Kidney Donor
TikTok, YT: The Panicked Diaries
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Nate Bear @natebear1.bsky.social Ecology, tech, empire, public health, other stuff.
About me and where I write about these things:
http://donotpanic.news
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@ramyisback1989.bsky.social @ramyisback1989.bsky.social Long covid and mecfs warrior
Meighan Stone @meighanstone.bsky.social Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿ 
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Courtney Baker @cbakerls.bsky.social Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated.
Running 100 miles ain’t nothing compared to living with Long Covid.
FunkisHen @funkishen.bsky.social Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, AuDHD, lives in the forest.
Gender neutral pronouns preferred.
Trying to be kind.
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Simone @phoenixme.bsky.social Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Chantzy @chantzy.bsky.social Science communicator & writer ✍🏼 🧬
MSc epidemiology grad student @ LSHTM
Activist
📍Vancouver, BC
MaryGR65 @marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
Sarah Weston RD @sarahwestonrd.bsky.social Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
Sarah @birbsarereal.bsky.social Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. Wife. For kindness, empathy, inclusion, and accessibility. She/her.
Crochet artist; https://www.ravelry.com/stores/stitches-by-sarah
Ona Albizu - PhD MSc BD @onaalbizu.bsky.social Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Lygia Navarro (she/ella) ♿️ + 🏳️🌈 💜 🏳️⚧️ @lygianavarro.com indie journalist
Signal: Lygia.65
(editor, producer, en ES & EN)
cover: Latine, LGBTQ+, health stories +more #DisabilityJustice.
disabled. queer. #LongCovid + #ME.
lygianavarro.com
contributing writer @discojourno.bsky.social & @thesicktimes.bsky.social
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
🐾Kitty.P.🐾☀️ @skittlydoo.bsky.social 🇬🇧 Love animals and travel. Take photos of everything I see just for fun 📸. I also love cake 🍰and wine🍷 o and sleeping 😴
Jo Summers (@joissummer from Twitter) @joissummers.bsky.social Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid.
#FBPE #FBLC #PWLC
Kate Sattler | Sweet Freeze @katesattler.bsky.social Enthusiastic. Makes lonely music.
https://sweetfreeze.bandcamp.com/
she/her 😷 mpls > pdx