Nicola @nic12c.bsky.social Dogs, books and plants
AuDHD
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@piltovercurator.bsky.social @piltovercurator.bsky.social
A Chronic Voice @achronicvoice.com I share #ChronicIllness, #ChronicPain, #disability & #MentalHealth info from VARIOUS #perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy Open to constructive chat, will block overly opinionated people.
https://achronicvoice.com/
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
jetobe @jetobe.bsky.social just here to learn
Grace Solutions Ltd. @grace-solutions.bsky.social A tech services and support company here to help you achieve your goals by crafting aligned, best-value tech solutions. Specialises in supporting and providing discounted services to not-for-profit organisations.
Based in Cambridge, UK.
Eleanor @eleanoralbaugh.bsky.social Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and let’s connect.
In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW.
Alt text required.
Sebastiaan Deetman @lymecfs.bsky.social Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
patientledhypothesis.github.io
@tildemaria.bsky.social @tildemaria.bsky.social
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.- E emmalwood15.bsky.social @emmalwood15.bsky.social
Sarah G @sarahshaldon.bsky.social
Ali Messer @freereed59.net History. Trad music. Teacher Education. #HistoryEducation #TeacherEducation #UKteaching #SSChat #ContraDancing
📒🕰🎓🗺 No DMs unless we talk irl.
https://intheoryandinpractice.wordpress.com/2023/04/11/and-then-the-bell-rang/
https://linktr.ee/Freereed59
Becky @beckymsc.bsky.social ✨Chronically ill artist✨
@annarix.bsky.social @annarix.bsky.social
@andylivs79.bsky.social @andylivs79.bsky.social 💚🚴🏼Ⓥ
hunt billionaires not foxes
Longcovid 🤬
Cllr Richard Kemp CBE @cllrkemp.bsky.social Lib Dem spokesperson on Housing. Former Lord Mayor of Liverpool and Councillor for the fabulous Penny Lane ward. Married to Ald. Erica Kemp CBE with three children and five grandchildren
Ann Memmott @annmemmott.bsky.social Autistic disabled researcher, carer & Mum.
#AutisticElder
Personal page, own views.
Like/repost = "I've read it"
See also LinkedIn
Encouraging moderation, a peaceful & fair society, & better research.
Sammie McFarland @sammiemc.bsky.social Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Andrea Dewhurst @andreadewhurst.bsky.social
Jenny @starlightsleep.bsky.social Advocating mum EDS PoTs CFS MCAS. Passionate about sleep, neurodiversity and crochet.
Living Safely With Covid @covidsafenz.bsky.social Covid Safe NZ #CovidIsNotOver
Layers of Protection: Vaccines + Masks + Ventilation + Filtration
Indoor Air Quality Standards
Masks in Healthcare and Aged Care
Aotearoa New Zealand Kikorangi
Pandemics | Typos
@rozb23.bsky.social @rozb23.bsky.social
Marc L. Bernstein @marclesbernstein61.bsky.social Born 1961 - Lifelong Neutral observer of Politics & Current Affairs UK, USA & World. Love Audio Books, Podcasts, stand up Comedy, Tottenham Hotspur FC.
Message me if you want to be friends.
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person
Inclusive New Normal @inclusivenew.bsky.social Sharing international Covid-related new learning, opportunities and creativity; driving good practice towards a safe Inclusive New Normal. Please tag if you have some to share. Thanks!
Covid Action Scotland @covidactionscot.bsky.social www.covidactionscotland.org
#COVIDAwareness
#LongCOVID
#COVID
#PublicHealth
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org- G @goldfinch1991.bsky.social @goldfinch1991.bsky.social
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Alex @drglammie.bsky.social #pwME #Cavies
Leslie Kasza @lesliekasza.bsky.social
#MEAction Scotland @meactionscotland.bsky.social
Nic @lilnic000.bsky.social
THE ANOINTED ATHEIST @theanointedatheist.bsky.social Welcome to my little corner of heaven. This is where I write about politics and religion with a dose of humor. But of course, if you find my posts offensive, you can just turn the other cheek. Have a blessed day!
AMACOP Asociación Madrileña de Covid Persistente @covidmadrid.bsky.social Asociación madrileña de #CovidPersistente #LongCovid.
🌎 www.amacop.org
✉️info@amacop.org
Hazte SOCIO https://tinyurl.com/AltaAMACOP
40:40 Recruitment - celia@4040recruitment.co.uk @4040rec.bsky.social We are a Specialist Recruitment Partner within the Pharma, Healthcare, Medical Devices & MedTech arenas throughout UK & Ireland. We cover all levels of roles in Commercial, Sales, Market Access, Market Research, Marketing, People Management & Medical
@shannonrlake.bsky.social @shannonrlake.bsky.social
@khanadil.bsky.social @khanadil.bsky.social
Kim @kimbarrett92.bsky.social Writer. Aerialist. Surrogate. Queer.
Alan @alanlab.bsky.social LGBTQ Labour Party member JLM ally. 50 years NHS Nurse. St.Helens Rugby League supporter #pigoneer #ukraine #merseyside #BLM Spiteful Class Warrior
Bérengère G. Digard @berengeredigard.bsky.social Postdoc 🧠 researcher at Edinburgh Uni Med School CCBS (with a cool side job 🎥🎬)
| Aphantasia / Hyperphantasia / Autism / Bilingualism
| Science Communication
| faceblind girl w a confusing 1st name & unbelievable middle name 🧝♀️
📍🏴 from 🇫🇷🇪🇸 | 🍉
Cato Frederiks 🏳️🌈🏳️🌈 @catofrederiks.bsky.social Trying to live my life, preferably without a dozen chronic issues, assisted by a healthy dose of DnD, and the very slow production of my (Dutch) trilogy.
Follow my journey after a spinal fusion
https://linktr.ee/catofrederiks
Tori 🌙 (she/her) @legendoftortor.bsky.social did you hear about the girl who lives in delusion?|♿️ disabled & bi 🏳️🌈|sebastian sallow is my coping mechanism 💚|🇺🇸 ⇨ 🇬🇧|swiftie & cat lover 🐱
@geraldinesf.bsky.social @geraldinesf.bsky.social
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
Fred All In 🇺🇸🇺🇦 @fred-all-in.bsky.social Civil and Voting Rights Advocate! Pro-Democracy, Pro-Democrats, Pro-Choice, Pro-Human Rights, Pro-Mother Earth! Let's continue to hold the line against hate, racism, bigotry, and fascism!
F MUSK, F TRUMP, F MAGA GOP
💙 VOTE BLUE '26 💙
Al'ahad Charity Foundation @ahmedjuma.bsky.social Alahad Charity Foundation is a non-profit organization dedicated to providing humanitarian aid and support to marginalized communities worldwide. We strive to make a positive impact and improve the lives of those in need.
Nicholas Hudson @nicholasjsy.bsky.social PhD Student UoW
Research areas focus on sedentary behavior and vascular health in COVID/Long COVID
(All views my own)- O @onedavidwright.bsky.social @onedavidwright.bsky.social
Drummer andrews @drummerandrews.bsky.social Querying writer of MG and YA. I follow all writers / authors. I live in the U.K. with my husband and 6 cats. I🖤The Cure.
Healthwatch England @healthwatchengland.bsky.social We make sure NHS leaders and other decision makers hear your voice and use your feedback to improve care.
Elliot 🏳️⚧️ @elliotelephants.bsky.social Queer, Quaker, Art Therapist In Training, Autistic, Multiply Disabled
Bevan Commission @bevancommission.bsky.social The Bevan Commission is Wales’ leading health and care think tank, hosted by @swanseauni.bsky.social. We challenge, change and champion thinking and practice to ensure sustainable health and care that is fit for the future.
💻 https://bevancommission.org
@xlau93.bsky.social @xlau93.bsky.social ICU nurse ♡ Cat mom ♡ Candle lover ♡ Dutchie in the UK ♡ Fighting chronic pain daily thanks to Endometriosis, nerve damage due to endo scar tissue, hypertonic pelvic floor, adenomyosis & fibromyalgia
Rescue Cats @rescuecats.bsky.social We have six wonderful cats who live with us. We’d love to hear about other cats, especially rescues, and will share details of any cats who are looking for a home.
@verityb22.bsky.social @verityb22.bsky.social
Sheena Campbell @sheenacampbell.bsky.social Freelance writer, editor, trainer and social media manager working with clients in the charity and health information sectors.
Special interest in health literacy and clear, accessible communications.
All views my own.
Patients Association @patients-association.org.uk We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://bit.ly/3X9Hd83
Martin Grimshaw Has Long Covid @thrivingplanet.bsky.social Was: Facilitation & organisational culture nerd for do-gooders; climate & sustainability. Healthy, athletic; MTB, ski, mountaineering, outdoors. Everything on pause: Long Covid is brutal.
A lot funnier IRL
Lancaster, North West England (Plague Island) ⓥ🇨🇭
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Tracey Binnie @traceybinnie.bsky.social Radio presenter, graphic design student, occasional vtuber, gamer, lover of loud music and shitposting. Living with moderate/severe ME, PoTS and a wonky brain. Views are my own, but can be yours for a reasonable price.
https://twitch.tv/selennathegreat
helephant @helephant.bsky.social 👋 Illustrator-on-hold, #LongCovid (COVID-induced #POTS / #ME), UK
Lau Hadley-Smith @lauhadleysmith.bsky.social Disabled, ex-blogger, plant based, lefty, married woman ✨🌙
Finapres Medical Systems @finapres.bsky.social Finapres Medical Systems BV, based in the Netherlands, develops and distributes medical devices and software for totally non-invasive hemodynamic monitoring.
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
K Comalli Dillon @timbre440.bsky.social Former fine violinist, disabled, medical editor, queerdo, feminist, Francophile, Californian, buddhist. DM = block. 🏳️🌈🏳️⚧️♿️ 😷; #medsky; Covid is airborne; prosecute ICE. #BlackLivesMatter!
Lisabet @whatlisabetdoes.bsky.social STEM PhD | Science | Health | Data | Teaching | Music | Books | Loves: Tea, F1, R | Hates: Mis- & Disinfo, AI | Ally 🏳️🌈🏳️⚧️ | Views own |
Holistic Health Visitor @holistichv.bsky.social 🇬🇧Holistic, inclusive, trauma-informed, neurodivergent experience and inequalities aware, paediatric Nurse, Health Visitor &researcher (with lived experience of ADHD, hEDS,CRPS & SEND parenting).
Think KPI (not ✅ box)- Keeping People Included!
Views my own.
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Jo Palmer @josephinepalmer.bsky.social ❤️ Free Palestine
💙 Protect Our NHS
💚 Green Party Member
Michael Ryan @michael-a-ryan.bsky.social Events at The King's Fund. Views are my own.
The King's Fund @thekingsfund.bsky.social The King's Fund is an independent charity working to improve people's health. Our vision is a world where everyone can live a healthy life. https://www.kingsfund.org.uk/
@sonalpatel-82.bsky.social @sonalpatel-82.bsky.social
CoSRH - College of Sexual and Reproductive Healthcare @cosrh.org Previously FSRH.
We are the largest UK professional membership organisation working at the heart of sexual and reproductive health, supporting healthcare professionals to deliver high-quality care.
https://cosrh.org/
Bonnie @room301.bsky.social Family member. Teacher. #COVIDIsNotOver
lolgem @lolgem.bsky.social cozy she/her who loves dogs and pizza | audhd | chronically ill | uk
Elmo Wigget @arjaylee54.bsky.social The names have been changed to protect me. There are no innocent.
🇵🇷💙🇺🇦👽 🌮🍺🍕🚭🗽🇨🇴🇺🇸
That which doesn’t kill you should piss you off enough to RESIST!
I work with special needs young adults. Medicare For All!
Be excellent to each other…
Party on Dude!! My
Judith Navarro-Otano @jnavarrootano.bsky.social Neurologist with an interest in Autonomic Medicine. Hospital Clinic, Barcelona.
Lyric (7.3 spoilers) @scientiaclan.etheirys.social Plural, Polyam, nonbinary/bigender SAHP.
37, disabled gamer, writer, gposer. Not a bot just a lot of free time
Multifandom. Profic/prosurvivor. Fiction =/= reality.
Do no harm, but take no shit.
#RinShots - gposes w/Rin!
#gpose - all gpose!
@azfitid.bsky.social @azfitid.bsky.social Mom| Wife| Loves books, movies, puzzles| Pro-democracy| Belief in the golden rule.
Spoon Of Salt @aspoonofsalt.bsky.social #hEDS #PoTS #DisabilityRights ♿🌻
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
TheRGBvision @thergbvision.bsky.social 30. he/him. Married. #Spoonie
Books, art, fantasy, and tenderness
Disabled, queer, and creating as I can.
Living somewhere between books and art
Fantasy worlds, fandom joy, and honest feelings.
https://linktr.ee/thergbvision
@joplums.bsky.social @joplums.bsky.social
Jussy @jussyjus28.bsky.social #longcovidsufferer #NHS #hereditarycancer #Pots #ME #Chronicallyill #hiddendisability ♿️
I am me....redhead, menopausal, & grumpy
Lacey @laceyshares.bsky.social Chronically Ill Mom, Podcaster, Joyful Support Movement Co-Founder
Learning to live with ease
Patient Information Forum @pifonline.bsky.social PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK – the independent credibility mark for health information.
www.pifonline.org.uk www.piftick.org.uk
QuyetPawz @quyetpawz.bsky.social 43 - Disabled polyam quest non-binary femme, geek living in Ottawa, Canada.
Loves board games & 3D Printing. Retired CanFURence Co-Chair
PFP is by Jinxsis
Ask to DM because my DMs are off.
https://voggtech.ca/qp/