- L @lenecch.bsky.social @lenecch.bsky.social
@wamesmecfs.bsky.social @wamesmecfs.bsky.social
Manuel Ruiz-Pablos @manruipa.bsky.social 🔬Diving deep into #MECFS, #LongCOVID, #LongEBV & post-vaccine syndrome research. 🦠Dual role:Researcher and EBV ME/CFS patient. Seeking answers. #Antivirals #HLA
Miri @miri2.bsky.social Idk man I’m just here to get weather news and talk about being chronically ill
xx Rose xx @tanteros.bsky.social Not much energy / too many migraines. Nature keeps me going #pwME #MillionsMissing
Lizzy @hopefullizzy.bsky.social 31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
ME/CFS warrior @justjones43.bsky.social Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is.
Free-thinker. Sometimes my thoughts wander off and I have to go look for them.
Span @anna2.bsky.social spanning with spandrels whiles tnetting on 'kneedles
ILFU Boeken etc. @ilfu.com All things literature. Festival, Academy, Online magazine. Boeken, verhalen, ideeën. #nachtvandepoezie #boekfest #yalfu #exploringstories • https://ilfu.com/
Charles Turner @kafkaboots.bsky.social
@lcrefugee.myatproto.social @lcrefugee.myatproto.social
irem @iryilmaz.bsky.social trying to restore my healthy mitochondrial function.
📍berlin
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Mandy @mandylifeboats.bsky.social Happily married, cat loving Londoner. Leftie, activist, journalist (sub) but ME shrank my world … now housebound but still smiling. Mostly!
#pwME #ChronicIllness #ME/cfs #Spoonie #ChronicPain #cats #CatsOfBlueSky #DadJokes #BeKind
🍉🍋 😷🩼🇱🇧ⒿⒿ 🇵🇸 @msjacksonnm.bsky.social COVID realist 😷💜 Accomplice 🏳️⚧️🏳️🌈 who loves to repost (she/they) abolitionist feminist rewilding one unlearning at a time … header pic by incredible @CourtneyAhnDesign on IG!
Embodiment for the Rest Of Us @embodimentrestofus.bsky.social EFTROU podcast empowers listeners to radically improve their relationships with their bodies & look beyond oppressive systems. We’re on a temporary hiatus - thank you for your patience! http://EmbodimentForTheRestOfUs.com
Jenn Jackson, MPH, RDN, LD (she/they) @lovejennik.bsky.social Fat liberationist, COVID realist😷, queer AF 🏳️🌈, trauma-responsive eating disorder dietitian (she/they) - lived experience=disability, T2DM, perimenopause + neurodivergence 🎙️ podcast: https://bsky.app/profile/embodimentrestofus.bsky.social
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Patienterna @patienterna.bsky.social 📍Kunskapshub med patientperspektiv. 🔎Postcovid & ME/CFS ⚖️ Jämlik och tillgänglig vård för alla - oavsett diagnos, ekonomi eller geografi.
—-
📍Swedish knowledge hub with a patient perspective. 🔎Post-COVID & ME/CFS
Thank You for Masking! @thanksformasking.bsky.social A sticker project supporting a wonderful family in Gaza - Bahaa, Manal, and their two kids Anwar (3) and Ayla (6mo).
https://linktree.com/thanksformasking
Emma 🛏️♿🌱☮️♻️🍉 @veganmua.bsky.social She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter
#TransRightsAreHumanRights
Support striking workers
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺- J @jessicawinter.bsky.social @jessicawinter.bsky.social
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Elly Bailey @ellbail.bsky.social Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. Remission Biome R50. She/her.
ConnieB @cjbro48.bsky.social 🇨🇦🇺🇸Mostly reposts. Politics, Climate Change, Photography, CovidCautious, Humour, Truth, Beauty, Goodness. Born 310.5 ppm.- T Frida for friends @timeflies.bsky.social
The2Margarets @the2margarets.bsky.social Retired RN. ME/LC.
Ranked News @rankednews.bsky.social Ranked News is the most diverse, unbiased/uncensored free news platform. Articles ranked, summarized and translated in +200 languages. More in the iOS/Android app.
iOS app https://apps.apple.com/app/ranked-news/id6753876990
Website: https://Ranked.News
Simmaron Research Foundation @simmaronresearch.bsky.social 501c3 dedicated to discovering treatments for ME/CFS, LongCovid and IACCs, collaborating with expert clinicians and scientists.
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Nev @alphukit.bsky.social Outdoors and all things nature type of guy.
I love camping, hiking, foraging and travelling anywhere, anytime.
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Sargasso @sargassoblog.bsky.social Hopeloos Genuanceerd (sinds 2001) met dagelijks artikelen op sargasso.nl
Geïnteresseerd in uw mening, of bijdrage als schrijver.
Anna H. @annahh.bsky.social 🍋 MEcfs seit 2002, Diagnose 2021
mild zu moderat nach Covid 2020
Ü50, Hamburg
#lemonchallenge #MEcfs #pwME #PAIS #POTS #PEM
#WirLiegenDasLeben #MEawareness
#DavosStandard #CleanAir #Lufthygiene #MillionsMissing
#TeamVorsicht #TeamScience #TeamGrundgesetz
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
@moonsky79.bsky.social @moonsky79.bsky.social
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
@danirmt.bsky.social @danirmt.bsky.social - G Just Gerver @gerver.bsky.social nonprofit controller in higher education; freelance writer/editor/educator/patient advocate; interested in non-profit finance, public transit, history, science, Jewish texts #FBLC
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
@notmadeforhere.bsky.social @notmadeforhere.bsky.social
@calltobase.bsky.social @calltobase.bsky.social
Maud Sac @papillyon.bsky.social Severe ME/CFS, mostly bedbound.
@voxem.bsky.social
@cm297.bsky.social @cm297.bsky.social
Vanessa Global @vanessaglobal.bsky.social 207K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
Callum Laing @callumlaing.bsky.social I help ambitious people raise capital, get board seats, take companies public. Let's get more entrepreneurs and builders on bsky!
Author of 4 best selling business books
Greg Hayes @soundgmh.bsky.social Family | Music | Film | Surfing | http://imdb.me/greghayes | aKD #MIS_C #MISC May2020 #longcovidkids
Sam McIntyre @sammc44.bsky.social Long Covid Patient Advocate
@greenspringrise.bsky.social @greenspringrise.bsky.social If not love, what are we here for!
Simone L @simalulu.bsky.social Moving image & digital artist, educator, organizer.
They/ she
Trin Shoe @trinshoe.bsky.social
@waltsharpe.bsky.social @waltsharpe.bsky.social
Jakov @yakovmrc.bsky.social #longcovid since March 2022. | #SevereME since February 2023
Ruggeheim @ruggeheim.bsky.social Non-conformist. Wars van clubjes, stammen en moralistisch gezever. Geïnteresseerd in ambivalentie en complexiteit. Fascisten raus. Kunst, filosofie, natuur: ja graag. Sociaal-economische gelijkheid.
Lisa Staadegaard @lisastaadegaard.bsky.social
tenorune @tenorune.lightseed.net Berlin, with Texas roots
Guyb12 @guyb12.bsky.social USAF Veteran , stroke survivor, husband, girl dad, cat and dog dad
No maga, lifetime democrat slow to answer DMs, NO PORN- C Chris @cpfl65.bsky.social UK immigrant to Texas
Trust the professionals, not the quacks!
Get Launched @getlaunched.bsky.social Make yourself the 'Go To' person in any industry and earn a side income from running small networking events.
Earn through entrance fees, membership fees, sponsorships & deals. GetLaunched.org
@peskyflies.bsky.social @peskyflies.bsky.social Innocent bystander...
Be kind. Don't be a dick. Pay attention.
🦋BlueAngel69🦋 @blueangel69.bsky.social Zelensky have a spine 💪🏻
Fuck Poutin 'n Krasnov 🖕🏽 TSLA💩
🚫Maga/Republican/Nazi/Facist
🚫Gofundme/Money request/Crypto
🚫Empty profil/OnlyFans
Reposts and likes are not endorsements
💙 🇺🇦 🇨🇦 🇲🇽 🇩🇪 🇵🇱 🇨🇵 🇪🇺 🇫🇮 🇬🇧 🇧🇪 🇳🇿 🇺🇸
I block in return all accounts that blocked me
lele87 @lele8787.bsky.social Dog lover
Foodie, nature lover
Democrat
Music producer
Instrumental music maker
Hiker
Neurodivergent
Nomad
Adventurer
Digital music creator
Loop music creator
Dj
Sound creator
Observer
Animal lover
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Monica A. Ross @drmonicaross.bsky.social Visiting Scholar @ UC Berkeley CSTMS/OHST. Psychotherapist–writer. Philosophy of science • Philosophy of psychiatry • STS. Interpretation • Classification • Institutional Authority. 🏳️🌈 Website: drmonicaross.com
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Print Play Protect @printplayprotect.bsky.social We make cool tabletop items :D
@inthelonghaul.bsky.social @inthelonghaul.bsky.social
Jodi @jcfineartphoto.bsky.social Searching for beauty, goodness and truth. I am a non-apologetic liberal. Don't bother trying to DM. Also, for fuck's sake, spare me the porn. I love art, photography, poetry.
Dan the LC Kiwi @longcovidkiwi.bsky.social Kiwi/New Zealander 🇳🇿 with #LongCovid (since 01/06/2022). Former Ophthalmic Technician 👨⚕️.
Here to keep up with LC advocacy, LC news, and LC research updates. 📰😷🌏🩻❤️🩹🔬🥼
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Film Milf 🌊💙Blue Dem. Resister. 🏳️🌈 LGBTQ+ 📚 @filmilf.bsky.social Work @ TrixStarT Film Productions.
🌊💙Blue Dem. Resister. 🏳️🌈LGBTQ+ 📚
Fully Full Frontal 4 Film. Crazy Cool Comics.
Rachael K @rachk.bsky.social An advocate of social justice for all. Living with ME/CFS/ Long COVID. A lover of science, nature, music, the arts, life, the universe & everything. From Ireland, living up north of England. She/her.- D Drew Hyde @drewhyde.bsky.social Misdiagnosed with essential tremor for thirty years. Now writing about Parkinson's — what I track, and what the evidence actually says.
Mari Carmen @macala0902.bsky.social ¡YO QUÉ SÉ!
PACIENTE CRÓNICA
MEcfs
EMsfc
SirWB @sirwalfredblington.bsky.social Transmasc bun mom
Mask lines are sexy
Sonic J she/her @sonic25.bsky.social Disability advocate, animal rescuer, grower of flowers in the desert. Currently residing in Vernae Province, planet Gedrel.
#MECFS for over 2 decades
#GeneticBeriberi
@goodvibes24.bsky.social @goodvibes24.bsky.social Health and wellness guru. Nature lover. Vikings fan. Iowa native. Resident of Florida. Pro-climate. Pro-science. Independent lean 💙 (all blue until the MAGA/Trump nightmare is over).
NO DM's or Porn
Some Random Monk @phranicholas.bsky.social Educator. Community builder. ☸️ monk. Tragically woke. Race traitor. Tends not to reply to DMs. https://linktr.ee/phranicholas
Tiny Dog Time @tinydogtime.cryptoanarchy.network Avatar is a sleeping Golden doodle puppy
Trying to put mutual aid into practice
@pattie56.bsky.social @pattie56.bsky.social
David @wasabookshop.bsky.social No longer in a bookshop but still in a pandemic. Going to mask etc as long as it takes. Clean the air! Don’t bother messaging ‘cos I don’t have access to that part of the app…