The Zebra Alliance Community @thezebraalliance.bsky.social The Zebra Alliance represents a beacon of solidarity for navigating the challenging waters of Ehlers-Danlos Syndrome, Rare Diseases, and Chronic Illness.
Education • Resources • Advocacy
https://linktr.ee/thezebraalliance
@deafblinduk.bsky.social @deafblinduk.bsky.social 
Innovative Health Initiative @ihieurope.bsky.social We're an EU public-private partnership funding health research & innovation under #HorizonEU. We also manage Innovative Medicines Initiative projects. ihi.europa.eu
Wellcome Trust @wellcometrust.bsky.social Supporting research to transform life, health and wellbeing. We’re taking on three urgent health challenges: mental health, climate change & infectious disease.
Rare Disease Research UK @rdrukhub.bsky.social We hope to be able to significantly impact the RD research landscape and improve the lives of those directly or indirectly affected by rare diseases.
22q Ireland CHY 17647 @22qirl.bsky.social Parent group raising awareness of #22q
Working toward integrated care for 22qDS and other rare conditions.
Do it 'with' us, not 'to us' #PatientPartnership 
ECRIN-ERIC @ecrin.bsky.social The European Clinical Research Network Infrastructure's (ECRIN) mission is to support the conduct of multinational clinical research in Europe
UCD School of Biomolecular & Biomedical Science @ucd-sbbs.bsky.social BSc, MSc & PhD programmes spanning key areas of biomolecular & biomedical science;Biochemistry, Genetics, Microbiology, Neuroscience, Pharmacology, Biotechnology, Biotherapeutics, Infection Biology, Regulatory Affairs & Toxicology.
https://www.ucd.ie/sbbs
UCD Geary Institute for Public Policy @ucdgearyinst.bsky.social The UCD Geary Institute is a centre of excellence for policy-relevant research in social and behavioural science. Visit http://publicpolicy.ie
UCD Centre for Digital Policy @ucddigitalpolicy.bsky.social An academic research centre on all aspects of tech and digital policy. Part of UCD School of Information and Communication Studies. Dublin, Ireland. https://digitalpolicy.ie/
Emma Heffernan @freakyfur.bsky.social Anthropologist & nurse. Equality, health, social justice, public health, poverty, SDoH, clinical research, clinical trials, research ethics #SciComm #Bioethics #FBPE
Chan Zuckerberg Initiative @chanzuckerberg.bsky.social Supporting AI tools and resources to accelerate discoveries in science and transform learning at @biohub.org and Learning Commons.
Association of Medical Research Charities @amrc-uk.bsky.social The membership organisation of leading medical and health research charities in the UK.
www.amrc.org.uk
@fionariordan.bsky.social @fionariordan.bsky.social EU Research Officer | UCC, Ireland
Rita O’Reilly @ritaoreilly.bsky.social Journalist, RTÉ TV Current Affairs / RTÉ Investigates
@rte.ie Ireland’s national public service media
Likes/Reposts = Read this
Pauline Dunne @paulinedunne.bsky.social Postdoctoral Research Fellow at RCSI School of Population Health.
CORÚ Registered Dietitian.
Research interests include maternal health, health promotion and chronic disease prevention.
She/Her. Views my own.
Declan Meenagh @declancabra.bsky.social Disabled grumpy nerd
The Francis Crick Institute @crick.ac.uk We're the Crick, a biomedical research lab in London working to figure out how life works.
Home to more than 2,000 scientists and a free public exhibition space.
https://www.crick.ac.uk/
Laura Breen @laurabreen.bsky.social Research Development and Impact Manager - Research Strategy Team @University of Manchester. All things research, meaningful engagement, impact, co-production, collaboration and collegiality. And cheese, wine and gigs.
Conor Purcell PhD @conorpurcell.bsky.social Science & Research Journalist | Ireland Correspondent at Research Professional | Wicklow, Ireland |
Beth McGinty @emmabethmcginty.bsky.social Health policy, especially for stigmatized populations. Chief of health policy and econ at Weill Cornell and founding director of the Cornell Health Policy Center (CHPC).
John O’Connor @johnoconnor10.bsky.social Postdoctoral researcher at Maynooth University | creation, sharing and use of evidence in public policy. @maynoothuniversity.ie
@mu-ssi.bsky.social https://orcid.org/0000-0001-9027-8214 🇮🇪
Ian McNamara @ianmcnamara.bsky.social Galway, Ireland. Music, travel, nature and bike lover who longs for a caring society where people are willing to listen a little more. I'm not buying or looking for anything.
#photography
#creativity
#Galway
#landscapes
#ireland
#Peace
Nicola Mountford @nmountford.bsky.social Associate Professor and PhD Director at School of Business, Maynooth University.
Michael Barrett @peri-dublin.bsky.social Paediatric Emergency Medicine Dublin | Clinician Researcher | Paediatric Emergency Research and Innovation (PERI) group
Kate Frazer @katef224.bsky.social ‘Crossed rubicon’Dublin via Belfast. Nurse. Curious.UCD.QUB.PhD,MPH. https://people.ucd.ie/kathleen.frazer Tobacco Control.Human Rights.Assoc Ed.Health Promotion International. #SDoH #PPI #systems #IFIC. #Fulbright Ireland HRB Impact Scholar 2024/25 #UCSF
Sanctuary Runners Ireland @sanctuaryrunner.bsky.social A Solidarity-Through-Sport movement bringing together people from ALL backgrounds in Ireland and beyond.
www.sanctuaryrunners.ie #RunAsOne
Donate: https://eventmaster.ie/fundraising/charity/sanctuary-runners/donate.html
DisabledWorld @disabled-world.com The Disabled World disability community website encompasses a broad spectrum of issues and experiences faced by the approximately 1.3 billion people (around 16%) worldwide who live with significant disabilities - https://www.disabled-world.com
BlindNewWorld @blindnewworld.bsky.social #BlindNewWorld: empowering the #blind and #VisuallyImpaired community while demystifying #blindness and breaking down barriers to #inclusion.
Powered by Perkins School for the Blind. Learn more at BlindNewWorld.org.
National University of Ireland @nuimerrionsq.bsky.social National University of Ireland is a federal university comprising 4 constituent universities and a number of other educational institutions.
RCN: 20000035
Dublin City Council @dubcitycouncil.bsky.social Official Bluesky account for Dublin City Council.
E. customerservices@dublincity.ie T. (01) 222 2222
Sarah Kidner @kipper100.bsky.social I am passionate about storytelling for good. I've worked for non-profits and charities as a journalist, editor, writer and comms leader for 30+ years. Beyond that passions are running, writing, family and dogs!
Enable Ireland @enableireland.bsky.social Making a difference in the lives of over 13,000 children and adults with disabilities in Ireland. Registered Charity No. 20006617.
RCSI Faculty of Nursing & Midwifery @rcsi-facnurmid.bsky.social Welcome to the official Bluesky page of the Faculty of Nursing and Midwifery, RCSI.
🔗 https://www.rcsi.com/dublin/about/faculty-of-nursing-and-midwifery
Professor Mariya Moosajee @profmariya.bsky.social Professor of Molecular Ophthalmology @UCLeye & @TheCrick, Consultant Ophthalmologist in Genetic Eye Disease, Genetics Lead @Moorfields, Mum 💙Art & Equality
RNIB Scotland @rnibscotland.bsky.social We’re the Royal National Institute of Blind People Scotland.
Profile pic: Our logo, bold black capital letters spelling RNIB Scotland, with a pink underline and See Differently.
Header pic: RNIB Scotland community outside Hillside
linktr.ee/rnibscotland
Rare Diseases International (RDI) @rarediseasesint.bsky.social RDI is the global alliance for persons living with a rare disease, across all countries and all rare conditions.
Rare Disease Research Network_RDRN @rd-rn.bsky.social An online hub supporting patient driven research ideas to be realised & flourish. Open to all.
Join the #RareDisease #Research revolution at www.rd-rn.org
* connections * resources *mentoring
NIHR funded, co-created by CamRARE, PLRH & patient experts
Irish Hospice Foundation @irishhospice.bsky.social We're the national charity in Ireland that addresses dying, death and bereavement. Our vision is an Ireland where people facing end of life or bereavement, and those who care for them, are provided with the care and support that they need. RCN: 20013554
Irish Nurses and Midwives Organisation @inmoirl.bsky.social We are 51,000 proud nurses and midwives across Ireland, standing together for fairness at work and a better health service. #SafeStaffingSavesLives
European Medicines Agency @ema.europa.eu EU regulatory authority working for public and animal health.
We ensure that all medicines available on the EU market are high quality, safe and effective. Based in Amsterdam.
https://www.ema.europa.eu/
Rare Ireland @rareireland.bsky.social 
European Disability Forum @myedf.bsky.social The European Disability Forum defends the interests of 100 million persons with disabilities in Europe. #DisabilityRights
ChildVision @childvision.bsky.social Located in Drumcondra, Dublin, ChildVision is Ireland’s only dedicated centre for children with sight loss, some of whom also have profound sensory impairments and additional disabilities.
Reg. Charity No. 20001278 | CHY 817
European Patients Forum (EPF) @eupatientsforum.bsky.social We are the leading voice of patient organisations in Europe. 
@retinauk.bsky.social @retinauk.bsky.social 
Christopher Patrick Taylor @drchristaylor.bsky.social Associate Professor @ The New England College of Optometry
Hannah Follett @hannahfollett.bsky.social Graduate student studying vision and squirrels 👁️🐿️🔬
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Mike O. Karl @mokalab.bsky.social Using #organoids to decipher macular degeneration.
neuroscientist
vision research
#regeneration
#retina
#glia
#organoids
MTBiker
opionions are my own
Iris Rush @iris-m-rush.bsky.social Assoc. for Research in Vision and Ophthalmology (ARVO) Executive Director
Ophthopedia @ophthalmology.bsky.social Latest updates on publications and news from #ophthalmology and #visionscience. Curated by @rohanbir.bsky.social.
Let the #OphthoSky begin! :)
Michael Beyeler @mbeyeler.bsky.social 👁️🧠🖥️🧪🤖 Associate Professor in @ucsb-cs.bsky.social and Psychological & Brain Sciences at @ucsantabarbara.bsky.social. PI of @bionicvisionlab.org.
#BionicVision #Blindness #LowVision #VisionScience #CompNeuro #NeuroTech #NeuroAI
Rodrigo Young @rodrigoyoung.bsky.social Developmental biologist studying eye formation at UCL Institute of Ophthalmology.
https://zebrafishucl.org/young-lab
#zebrafish #eye #devbio
Ophthalmology Review @ophthreview.bsky.social Ophthalmology-related education.
Ophthalmic Professional @ophthalmicpro.bsky.social 
JulieBWriter @juliebwriter.bsky.social Professor and journalist: Reading, writing, traveling, swimming, walking. Aspiring polyglot. RP/USH She/her
Images of a ceramic fox and a neon “Magikist” sign.
Wandering Monk @sagecedar.bsky.social Celtic Spirituality, Druid, Nature, Catholic, seeking anamcara, Gay partnered 20+ years, exploring naturism, lives in PNW.
Assistive Technology trainer (self employed)
Amgen @amgen.bsky.social Our mission is to serve patients with a cutting-edge, science-based approach.
🔗 https://wwwext.amgen.com/
@ukeyegeneticsgroup.bsky.social @ukeyegeneticsgroup.bsky.social 
Elfride De Baere @elfridedebaere.bsky.social Professor @UGent I Rare eye & developmental diseases I IRD I Retina & RPE I Non-coding variation I Multiomics I Targets for treatment
debaerelab.com progret.eu
Pobal @pobal.ie Pobal is a not-for-profit company that manages programmes on behalf of the Government of Ireland the European Union.
Email: enquiries@pobal.ie 
Paul Chrystal @pwchrystal.bsky.social Research Associate at University of Toronto studying inherited retinal dystrophy.
St Vincent's Healthcare Group Libraries @svhglibraries.bsky.social We provide knowledge, expertise and resources that support exceptional patient care, clinical research, lifelong learning and personal wellbeing.
Our website: https://library.svhg.ie
Suja Somanadhan @sujas.bsky.social Associate Dean of Global Engagement| Associate Professor #UCDSNMHS #UCD # Dublin #Ireland #Researcher #Paediatric Nursing #Rare Diseases #PCOM #PREM #Child Health #Family Health
Carmichael.ie @carmichael-irl.bsky.social Training and support for nonprofits in Ireland. Carmichael Centre and Coleraine House in Dublin 7 is home to 42 nonprofits as well as meeting rooms for nonprofits.
RCSI School of Population Health @rcsipophealth.bsky.social Tackling the world's population health challenges through research, education & collaboration | www.rcsi.com/sph 
Adrian Carroll @adriancarroll.bsky.social Senior Policy Officer @AsIAmIreland | Board @NDAIreland | Alum @ULSchoolofLaw @NUIGCDLP | #ActuallyAutistic | Views my own
NERI @neriresearch.bsky.social The Nevin Economic Research Institute is a research organisation which, at its core, has a vision of the achievement of a better,fairer society.
Anne-Marie @amflynn.bsky.social Columnist, board member, learner,
dreamer, scribbler, Gaelic Games fan, Left leaner, cat servant 🐈🐈⬛️
📍Mayo, Ireland
👩🦰 She/her
🔐 Views my own
Shine @shineonlineie.bsky.social Shine is Ireland's national organisation dedicated to upholding the rights & addressing the needs of people affected by mental illness.
Near FM @nearfm.ie Community Radio for Northside Dublin. The official account for Near FM 90.3. Reposts are not an endorsement. nearfm.ie/livestream RCN: 20205453
Mental Health Ireland @mentalhealthirl.bsky.social Mental Health Ireland provides #mentalhealth & #recovery information, resources & training. www.mentalhealthireland.ie
CHY 5594
Zoë Shaw @zhshaw.bsky.social PhD student investigating gene therapy for congenital deafness
iDonate.ie @idonate.ie Ireland's leading fundraising platform, helping over 5000 charities & non profits to raise more.
Fundraising, Events, Online Raffles, Crowdfunding, and more. 
Carol Brill @carolbrill.bsky.social Chair/founder Usher Syndrome Ireland
Deafblind golfer
Civil Society @civilsociety.bsky.social Civil Society Media is the UK’s only independent media company dedicated solely to supporting the charity sector. 
Disability Federation of Ireland @disabilityfed.bsky.social National support organisation for voluntary #disability groups. RT is not necessarily an endorsement. 
Sally Ann Lynch @sorchainenil.bsky.social Geneticist & cyclist & lots more! Beagáinín gaelige 🇮🇪
People.ucd.ie/sally.lynch
Shane McKee @shaneir.bsky.social Genetics/Genomics doc, Nazareth Hospital biker, developing solutions for #RareDisease & Digital Healthcare on a #Psion Series 3a. Want to see peace in Northern Ireland, Israel-Palestine & Planet Earth. One of those Happy Lundys. https://shanemuk.github.io
Kirk Stephenson @karkstaphonsen.bsky.social Ophthalmic genetics, vitreoretinal surgery, heavy metal, science fiction
https://buymeacoffee.com/kirkstephenson
Google Scholar: https://tinyurl.com/9vjfz526
DGGT e.V. @dggzt.bsky.social Offizieller Account der Deutschen Gesellschaft für Gen- und Zelltherapie e.V.
- Official account of the German Society for Gene and Cell Therapy
Find us at https://www.dg-gt.de/
We are a partner of RAREDISEASEDAY.org
National Organization for Rare Disorders (NORD) @nordrare.bsky.social NORD is a patient advocacy organization leading the fight to improve the lives of rare disease patients. Alone we are rare. Together we are strong.®
www.rarediseases.org
ERDERA @erdera.bsky.social Advancing prevention, diagnosis and treatment research for the 30 million people living with a rare disease in Europe.
🔗 erdera.org
Co-funded by European Union's #HorizonEU Research & Innovation programme. Views expressed are of authors only.
USH2025 @ush2025.bsky.social USH2025: The international symposium on Usher syndrome and will take place on 19-21 June in Nijmegen-Lent the Netherlands. Follow us for updates and more information 🦋 https://www.USH2025.org
Sheffield Hearing Group @hearingshef.bsky.social World-leading research group at The University of Sheffield. We specialise in research on the development, function and ageing of the auditory systems.
sheffield.ac.uk/hearing
@kenia22.bsky.social @kenia22.bsky.social 
Radboudumc @radboudumc.bsky.social Het Radboudumc is een universitair medisch centrum voor patiëntenzorg, onderzoek en onderwijs, gevestigd in Nijmegen.
Dan Jagger @auditorynerves.bsky.social Professor of Cell Physiology, Ear Institute, University College London
Research interests: ion channels, hearing/deafness, cilia, rare diseases, neurons, glia
www.ucl.ac.uk/ear/research/jaggerlab
Insta: @jaggerlab
Dún Laoghaire-Rathdown County Council @dlrcc.bsky.social Local Authority for the Dún Laoghaire-Rathdown Area
dlrcoco.ie
Email: info@dlrcoco.ie
Phone: 01 2054700
Rick Brouwer @rick-brouwer.bsky.social 
Lanya McKittrick @lanyamckittrick.bsky.social 🌟 Usher Syndrome Advocate | Author | Public Speaker | Mom https://linktr.ee/lanyamckittrick
@dbiconnect.bsky.social @dbiconnect.bsky.social We connect to act.
@advofcharlienova.bsky.social @advofcharlienova.bsky.social 
Research Ireland @researchireland.ie Ireland’s new competitive research and innovation funding agency
Debra - The Butterfly Skin Charity @debraireland.bsky.social We are the butterfly skin charity. Uniting for change for everyone living with epidermolysis bullosa (EB).
Registered charity (CHY 8703/RCN 20021726)
Simon Harris @simonharrisireland.bsky.social Tánaiste (Deputy Prime Minister of Ireland) & Minister for Foreign Affairs, Trade and Minister for Defence.
Leader of Fine Gael and Wicklow TD.
Houses of the Oireachtas - Tithe an Oireachtais @oireachtasnews.bsky.social Houses of the Oireachtas - Tithe an Oireachtais - Official Bluesky account of the Irish Houses of Parliament - http://linktr.ee/OireachtasNews
Department of Health - Ireland @roinnslainte.bsky.social We work to improve the health and wellbeing of people in Ireland. gov.ie/health
HSE Ireland @hselive.bsky.social We provide a broad range of health services for Ireland. We also carry out a lot of important support work and funding to ensure health care is accessible to all. www.hse.ie