emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Sinéad @spoonless-me.bsky.social 
Long Covid Lad @longcovidlad.bsky.social Long covid since April 2020. R 50 participant. Trying to navigate a plethora of health conditions without any NHS support. #ME/CFS #POTS, #Long Covid, BBB dysfunction, #SIBO, #Leaky Gut, reactivated infections, #MCAS, Clots 
MaryGR65 @marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Shosha Adie @shoshaadie.bsky.social Senior environmental journalist at ENDS Report - on the water and chemicals policy beat👩💼previously a local reporter 🗞 News Associates alumni 👩💻 UCL anthropology grad👩🎓 she/her
Kyle @klmatter.bsky.social Engineer, father, and avid outdoor enthusiast. Current dealing with post viral illness/long COVID. Trying to fix that last one.
Phil P @pprydderch.bsky.social Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry 💧 | @PJPrydderch on X | Medium Blogs: https://medium.com/@prydd
Elke Asen @elkeasen.bsky.social MSc Economics Student @LSE | former tax policy analyst | Life on Pause since Dec 2021 due to #MECFS
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
BD @bdunsmore.bsky.social More observer than commentator. Here to absorb and pass on. Long covid/CFS has altered my life dramatically. It sucks.
NinjaBex @ninjabex.bsky.social Engineer, knitter, spinner, designer, mother, covid conscious.
#WearAMask #CovidIsAirborne #SFN #Dysautonomia 
Firstname Lastname #FuckTrump @notunpackedyet.bsky.social Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Hugo @mxworldwide.bsky.social They/them | 28 | ME/CFS since 2016, very/severe since 2022 after covid | Severe hyperacusis
Mostly post about ME but will share things relating to disability justice, leftist & queer issues and Palestine 🇵🇸
In "Australia" on Wurundjeri Country
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Ileana @ileanaorevienta.bsky.social Trying to leave finance for music but escape plan thwarted by Long-Covid
flowermad @flowermad.bsky.social Disabled, unable to work due to Long Covid, first waver March 2020. #LongCovid #LC/ME, #ME/CFS, #POTS. Housebound since June 2020. Passionate about nature, science, gardening, art. Lefty #FreePalestine🇵🇸 Sorry I cannot afford to donate to fundraisers :(
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
James Glen @jamesglen.bsky.social Having a bit of a break O_o
● Founding member @LongCovidSupport
● Long Covid advocate #FBLC
● Watford FC fan
● #FBPE 🇪🇺
Martin Lewis @martinlewis.moneysavingexpert.com Founded MoneySavingExpert, @moneyandmentalhealth.org, (ish) the Martin Lewis Money Show ITV & Martin Lewis Podcast
Larry the Cat @number10cat.bsky.social Chief Mouser to the Cabinet Office. 17 year old tabby. Living with my seventh Prime Minister. Unofficial.
https://www.buymeacoffee.com/Number10cat
christina4hope @christina4hope.bsky.social 👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Nwiss @gronnet.bsky.social ME/CFS, Long Covid, Hypermobility, Cranio-Cervical Instability CCI, Atlanto-Axial Instability & Dislocation (AAI, AAD), Spondylosis, Spondylolisthesis, Occult Tethered Cord (OTC), Internal Jugular Vein Compression (IJVC).
Trailrunner402 @trailrunner402.bsky.social COVID is airborne. Still masking in enclosed spaces and crowded outdoor environments. Trying to find my peeps here from the other app.
Dr Noor Bari @njbbari3.bsky.social MBBS BSc Hons Infectious Diseases 🇬🇧 🇦🇺 Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
Amanda Hu @amandalhu.bsky.social I do advocacy for public good, communications, problem solving, and sometimes I get people elected. She/her.
📍Treaty 7 Territory (Calgary, Canada)
(Opinions expressed are solely my own and do not reflect the views or opinions of my employer.)
Infectious Disease Tracker @hmpxvt.bsky.social Infectious disease news.
Sharing reports on outbreaks, from bird flu to Ebola.
Now on Substack :)
https://outbreakanalyst.substack.com/
Raven Clean Air Map @ravenapp.bsky.social A global map of indoor places with good quality ventilation. Help prevent the spread of Covid-19!
Built on top of Raven, a news and social media aggregator. ravenapp.org/cleanair
The John Snow Project @johnsnowproject.bsky.social Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
T. Ryan Gregory 🇨🇦 @tryangregory.bsky.social Back off man, I'm a scientist. Evolutionary biologist. Professor. Genome size, junk DNA, applied evolution, sci comm, philosophy of science. Also political stuff. Plus jokes. Onions have 5x more DNA than you do (not a joke). Vimy, not Vichy. He/him.
Philly 🇵🇸 🍎 @phillyhart4.bsky.social Researching Educational Isolation to understand impact on schools. Education, social justice, disability, ME/CFS, neurodiversity, LGBTQ, books, medieval history, all things Nordic. She/her. Views mine.
[banner photo: candle burnt down, looks like a crown]
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
The Vertlartnic @thev.bsky.social Democracy Drowns In Dankness
Seeking Boston Marathon @seekingboston.bsky.social Disabled w/ Long Covid & stage IV cancer. Co-host of The Butterfly Pavilion Podcast. Former marathoner & triathlete that raced w/ Liam. Artist. Long Covid advocacy satire videos. Love my wife, kids, family. https://linktr.ee/seekingbostonmarathon
Trish Greenhalgh @trishgreenhalgh.bsky.social DEI hire. Prof of Primary Care, Uni of Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
Jane Clout @janeclout.bsky.social So many lives, sailor, tailor, nurse, editor, cook, granny... Now gently helping folk online with officialdom. ME since 2009. 
@ramyisback1989.bsky.social @ramyisback1989.bsky.social Long covid and mecfs warrior
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Dr Elisa Perego @elisaperego78.bsky.social #LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
Jo @justjo.bsky.social Interested in goings on. Small life lived in a small house. Past best before date. Lefty. ME/POTS #Anti-RecoveryActivist
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Katharina 🦋🍋🍀 @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Hazie @hazie.bsky.social Very trustworthy citizen.
Untethered. Quite Bothered.
Wear a mask.
paypal.me/haziethompson
https://gofund.me/80ade9a5
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Stephen MIA @stephenmia.bsky.social Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
Dr. Lucky Tran @luckytran.com Scientist, science communicator, public health & climate justice advocate
Biology PhD from Cambridge
WHO Fides member, Grist 50 Fixer, Creative Change alum
New Yorker/Aussie
Opinions my own
https://instagram.com/luckytran
http://linktr.ee/luckytran
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Emma Wooller @emmawooller.bsky.social 
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Jenny K @knitty19.bsky.social Climate. Tree-hugger. Degrowth. Dysautonomia. PoTS. ME/CFS. Knitter. Lives in Chessington, but not in the World of Adventures.
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
George Monbiot @georgemonbiot.bsky.social Ungainly on land- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Cinnamon Rolling Along @cinnamonrollalong.bsky.social #pwME #MECFS #pwLC #LongCovid #PoTS #Dysautonomia #MCAS #LongCovidKids
#CovidisNotOver #CovidisAirborne 
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Fiona Wood @mewarrior1.bsky.social Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
ThisisMEtweeting @thisismetweety.bsky.social Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
Sally Doherty @sallywrites.bsky.social MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Long Covid Patient Action UK @longcovidactionuk.bsky.social Was LC_UK_ACTION on the other place.
Trying to rebuild community.
LC since Dec 2019. Disabled. Masking.
#CleanAir #LongCovid 
Clarejames131 @clarejames131.bsky.social Slowly writing 2nd draft of debut novel. Enjoy music, nature, art, meditation, chatting, and tea. #pwME
Lizzy @hopefullizzy.bsky.social 31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Kelsveil @kelsveil.bsky.social Prior MARAC research representative for Domestic Abuse.
| My views are my own.
Campaigning for biomedical research into LongCovid
#Longcovid
#FBLC
Conor Browne @brownecfm.bsky.social Biorisk analyst
Dame Sa @damesa.bsky.social Long Covid sufferer since 2020. #FBLC
Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir
https://petition.parliament.uk/petitions/700304
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Peter Liepmann @datadrivenfp.bsky.social Family doc, Twitter refugee, son of refugee.
#COVIDisAIRBORNE
We're in Germany 1933
Mors Omnibus Tyrannis
The outrage is to distract us from Muskrats looting the US Treasury
Ad Hominem attacks =mute
Pam Bishop, PhD @pamelarbishop.bsky.social Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Oonagh Cousins @oonaghcousins.bsky.social 
Putrino Lab @putrinolab.bsky.social 
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com