xx Rose xx @tanteros.bsky.social Not much energy / too many migraines. Nature keeps me going #pwME #MillionsMissing
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Seán Padraic Birnie @seanbirnie.bsky.social seanbirnie.com
https://undertowpublications.com/shop/i-would-haunt-you-if-i-could
Short stories in ergot, Weird Horror, Interzone, Remains & elsewhere
me/cfs
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
irem @iryilmaz.bsky.social trying to restore my healthy mitochondrial function.
📍berlin
Emma Doty @emmadoty.bsky.social Researcher interested in ME/CFS, long Covid, etc.
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
@jorybak.bsky.social @jorybak.bsky.social Finance & Art. History & Sociology & Fashion History. ME/CFS & LC - A Ash @ash27.bsky.social 💙🕯️
Anne-Cath R @anne-cath.bsky.social Kronisk syk kolonihageentusiast 🌺 og tidligere crazy cat lady 😿💔
🇳🇴
Shout🇨🇦 @shoutshoutletitout.bsky.social 
Doug Greig 😷🍁☮️⚖️📚🎵 @douggreigyyc.bsky.social Peace. Love. Understanding. Service.
Caring for loved one with complex infection-associated chronic illness incl. #MEcfs. Decades-late biomedical research funding means no end in sight.
#Calgary #YYC #Alberta #Treaty7 #Canada 🇨🇦
Temme Tacsume @tem-me.bsky.social #CitizenScientist living with challenging chronic illnesses, among them severe skin conditions triggered by allergies. #ME/CFS. Promoting advocacy and efforts to improve research into these debilitating illnesses. Mastodon: @Temme@chaos.social
@0li-b.bsky.social @0li-b.bsky.social 
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
@bellablue99.bsky.social @bellablue99.bsky.social 
Simon Del Favero @simondelfavero.bsky.social https://simondelfavero.com
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Lee Murphy @leemurphy.bsky.social I run a genomics lab @ University of Edinburgh investigating the role of genetics on health & disease. Supporter of Technician Commitment. CSci MIScT. Hill runner.
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Ellie @ellie9.bsky.social Climate lawyer on pause with ME/CFS and LC
@calltobase.bsky.social @calltobase.bsky.social 
@melodise.bsky.social @melodise.bsky.social Just here to follow others!
@voner56.bsky.social @voner56.bsky.social 
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Crazie Daizee @craziedaizee.bsky.social #DemandDemocracy
I have dreamed a dream
but now that dream is gone from me
(former?) grand-masters #runner
Please support #LongCovid research
#LongCovidAthletes #MastersRunning #RunSky
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
Jason Murphy @jasemurphy.bsky.social Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia. 
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
💜🌹CosmicRose🦋 @cscosmicrose.bsky.social ✨ #Sparkler OG✨ Fwanq.com< HalSparks on #Twitch
Loves Jazz, Photography, #Aurora Wolves💞 💙☠️💙
💜"Let the Beauty you LOVE, BE what You DO."🌹
🇺🇸"Patriotic Democratic Liberal" 🚫 HATERS
CALL YOUR Reps & Sen (202) 224-3121 ✅
BIO+Posts "English"✅ 🚫 PORN🚫 MAGAts
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
Leigh @leigheldridge.bsky.social Chronically-ill podcaster and fibre craft enthusiast. Co-creator of @dungeonpunks.bsky.social. Masks are community care.
She/Her | ♿️
Profile pic by @filcieplak.bsky.social
https://linktr.ee/leigheldridge
ME/CFS research @cfsresearch.bsky.social Interested in research into ME/CFS/MECFS, FND and related conditions. https://medium.com/@cfs_research
rachel @rachlke.bsky.social reader🌙🔮📚she/her
Carl @carlf.bsky.social ME secondary to Covid vaccination. pro vax/vax injured.
Zero tolerance for personal abuse.
Do unto others as you would have others do unto you.
Sarah Sweet @sarahsweet.bsky.social Journalist at TVO. Responsible cat owner. This article is a stub. 
@samanthatonge.bsky.social @samanthatonge.bsky.social 
Panda Queen @jaycee888.bsky.social In my Rebellious Queen Era - living life in PJs. Compassion, Creativity, Self-Love & Long Covid. With just a little bit of glitter.
#longcovid #mecfs
#emotionalwellbeing #selflove #mentalhealth
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Suzanne Forbes aka Slurketta @suzanneforbes.bsky.social Queer disabled MECFS (and Filth!) Elder in Berlin, housebound retired artist. Still respirator masking. Trans rights FOREVER. Sex worker ally. Baby vegan. Location: Atlantis by Gaslight. She/her.
Camille Buckner @camillebuckner.bsky.social My pen is huge & I love sentences. And words. Like wombat & elixir. People & planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid #MECFS #Poetry #AcademicSky🏳️⚧️🩷💛🩵😷🍉
🚫AI
Banner: Large stone balls
PP: My 🤚🏼- J Jason @jason8.bsky.social Felled by long covid, me/cfs in 2020
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
@statist27.bsky.social @statist27.bsky.social 
Dr Kate Cushing @drkatecushing.bsky.social Doctor, scientist, mum, cat slave.
Public Governor Newcastle upon Tyne Hospitals Trust
Long Covid & CCH.
Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU
Wrote Little Orange Book 4 parents of babies & small kids.
Green Party member- L @louisebarhi.bsky.social @louisebarhi.bsky.social
Clinic inventory @clinic-inventory.bsky.social DRG-Jongleur, KV-Sklave, Doppel-FA, Merci-Vernichter, Visiten: blindfolded
3 Tage Klinik, 2 Tage Ambulanz... theoretisch
Gegen die Privatisierung des Gesundheitswesens
#Medizinbrennt #wirsindmehr (hoffentlich) #medibubble 
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Sarah Brodsky @sarahbrodsky.bsky.social Freelancer writing about personal finance and business. Interested in science, math, books, cooking, languages. St. Louis, MO #pwME
@mecfsrecluse.bsky.social @mecfsrecluse.bsky.social Lawyer. ME since Oct 2000. Mostly housebound since 2014. #ME #hEDS #dysautonomia #Citrate synthase deficiency #impaired oxygen extraction #celiac #mitochondrial disease
Interested in ME research and treatment options.
Beverly Stark 🌻💙💛 @beverlystark.bsky.social Writer, carer, tea drinker. Probably out walking the dog. Trying to stay hopeful.
Chronically Pondering @chronicleofdays.bsky.social Spoonie. Neurodivergent. Chihuahua enthusiast. Poet. Enjoys film photography and crafting. ME/CFS. Wheelchair User.
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
@hendrickforex.bsky.social @hendrickforex.bsky.social 
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Katharine Cheston @kacheston.bsky.social Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology. 
@ystodwen.bsky.social @ystodwen.bsky.social 
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back 🩵
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
@barbaralees.bsky.social @barbaralees.bsky.social 
StarDust949 @stardust949.bsky.social Aspiring to write for stage & screen. Dyslexic ball of chaos. She/ her. #pwME #MECFS #POTS #BLM #TransRightsAreHumanRights. Twitter account: @StarDust949
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
💙 = ME/CFS solidarity
#noAfD
mimmoth @mimmothteaparty.bsky.social Fragile coolhouse flower
Library card collector
Usually EN, sometimes FR, sometimes JP
#UglyDogs #pwME #ME/cfs
@wolflabs.bsky.social @wolflabs.bsky.social 
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
BMC @bmc.springernature.com A pioneer of sustainable open access, where research is always in progress.
Discover Journals @discover.springernature.com Springer Nature’s new series of fully #openaccess journals, covering hot topics from across all disciplines and focusing on speed, service and integrity.
Science HR @sciencehr.bsky.social A career network featuring science jobs in academia and industry.
Visit our platform at www.science.hr
Crystal @gemzme.bsky.social 
Citizen with LC @citizenwithlc.bsky.social Just here to get information about Long Covid and share ideas
diamond @diamondqc.bsky.social ♿ australian living on unceded wadarni noongar land (southwest WA)・she/her・very sweary!
#SevereME #POTS #auDHD #OCD #cPTSD #CSAsurvivor #AccessibilityMatters #Disability #genXgoth #TechGeek #Linguistics #Straya #AusPol #AusMusic #IndieMusic #AltMusic
Wigglethemouse @wigglethemouse.bsky.social 49ers and Swindon Town supporter. Engineer. #MEcfs has got in the way of having a life and doing much of anything really.
Housebound and mostly bed bound but longing to do so many things.
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
kate @bookhaven.bsky.social Neurodivergent library ghost 👻
Napping instead of making lemonade 😴
♿🦓🛏️ 😷 📚🚀
🪫 Often limited capacity #pwME
Don't share my posts on other platforms without asking.
Header: Will Santino 🍋🥛
PFP: Pies Are Awesome 🥧
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
H2oBio @h2obio.bsky.social Passionate swimmer housebound due to LongCovid.
Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS
Arthur @unrealarthur.bsky.social ME Patient-ly Waiting for Biomedical Research | Volunteer @crunchme.bsky.social
#GreatestMEdicalScandal @unreal_arthur crunchme.org
Institute of Genetics and Cancer @uoe-igc.bsky.social Our mission is to improve the lives of people living with genetic disease and cancer through research.
Joshua Slaughter @jslaught.bsky.social PhD Student, University of Edinburgh
Michal Caspi Tal, PhD @immunofever.bsky.social Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford
https://talresearchgroup.mit.edu/
Otrosdías @otrosdias.bsky.social For music go to: @otherdays.bsky.social
For COVID, public health, politics, etc.. stay here...
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
@skellou.bsky.social @skellou.bsky.social 
@kudosscience.bsky.social @kudosscience.bsky.social 
Leonie Potgieter @despicablemebsky.bsky.social Fur mamma to Sammy & Twinx
#pwME #PoTS
Supports Invest In ME Research
KarenG @tenaciousmumma.bsky.social Mum & carer of Sophia, bedbound with very severe ME. Constantly searching for answers and a way out of the abyss. #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo