🦉naked alien🪐 @pinealgasm.bsky.social #feral #jaded #cynical #nonconformist #imaginalcell #stardust #artist. professional #spamscamscum #bully annihilator. #outgrowcapitalism.
https://undetectablelight.substack.com/
https://www.tumblr.com/theozzcause
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
A tired human @saffronandsky.bsky.social disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
@elizabeth34517.bsky.social @elizabeth34517.bsky.social
Elly Bailey @ellbail.bsky.social Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. Remission Biome R50. She/her.
@wablues.bsky.social @wablues.bsky.social
Jen Frazier @jenfraiz.bsky.social Maker @minimuseumshop
Jeweler @jenfrazierdesigns
Cofounder @ ThinkGeek
Geek, introvert, hippie, dogs, Phish ⭕️,
naps, kindness, humor, cake, peace
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
Paddy Monahan @paddymonahan.bsky.social #longcovid since 2020 | Software Engineer | Co-founder
@vindarahealth
Taija Rutanen @taijarutanen.bsky.social TtM | Kansanterveystieteilijä | Työkykykoordinaattori | Työllisyysasiantuntija | Sairaanhoitaja | Kiinnostunut pandemiaan liittyvistä asioista ja työhyvinvoinnista | long covid since 04/2020
Meder @itsmeder.bsky.social from @cleanairla
https://covid-studies.org/
https://covid-list.org/
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
@ericrericruth21.bsky.social @ericrericruth21.bsky.social
@danirmt.bsky.social @danirmt.bsky.social
Rory Mullins @rorymullins.bsky.social Mostly just tree-besotted…..
Bibhu Ranjan Mund, MPH | Healthy Home @lovelyhealthtips25.bsky.social https://healthhom.com
https://shop.healthhom.com
It is a trusted family health and wellness platform providing practical guidance for mothers, children & families. We focus on child health, maternal care, nutrition, fitness & wellness for a healthier home.
Sam McIntyre @sammc44.bsky.social Long Covid Patient Advocate
Sara @baybdoll.bsky.social Caregiver
❤️ science/nature/🌎/kindness/music/peace
ANTI-HATE!
MAGA & mean people suck ☠️
Stay strong for democracy 🇺🇸 & ☮️ & ❤️
All DM’s get blocked!
MicMak @micmak.bsky.social Afro TCK.
Cory Wright @corywright.org
aaron @amdesign.bsky.social architectural designer. science and technology enthusiast
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
@jalola.bsky.social @jalola.bsky.social
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Jamie Liu @joshlmj.bsky.social Currently I am working as a Manager for Growth Strategy - Charles Schwab (SF Office) my Responsibility: Deal Leadership, Portfolio Value Creation and Fund Strategy & LP Relations.
Carol Ivanić @mayfieldpath.bsky.social Oakland native. Gramma.
Obsessions: History, baseball, music, books.
Work: neuroscience and trauma recovery.
Living with MCAS
she/her/hers
Sue Poncin @sueponcin.com After Jan 2021: #Disabled by Long COVID & #BookSky author #LongCOVID memoir
Before Jan 2021: overachiever, #MathSky Calculus teacher, Mom Uber driver
www.sueponcin.com
In The Space Between: https://a.co/d/0fkSZMd
Chronically Pondering @chronicleofdays.bsky.social Spoonie. Neurodivergent. Chihuahua enthusiast. Poet. Enjoys film photography and crafting. ME/CFS. Wheelchair User.
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Karam Bales @karambales.bsky.social Counter Disinformation Project, Former NEU and ATL union executive
Freelance journalist & researcher @bylinetimes @whowhatwhy
Educator
Counterdisinformationproject.substack.com
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Becky Ancira Robertson @ancirabecky.bsky.social Survivor. Proud mother. Teacher. Activist. Trying to make a difference.
#PatientAdvocate #longcovidawareness #LCDC #March15 #ValueCognition #WHN
Interview with @theWHN :
https://youtu.be/YUgcqJ-m7C0
Daniel (GMP GUIDE) @gmpguide.bsky.social Creator of the GMP GUIDE youtube channel, sharing 25 years of pharma experience 💙
https://www.youtube.com/@gmpguide?sub_confirmation=1
I think Pharma knowledge should be free and accessible to anyone.
unidentified alien @afroalien.bsky.social U, Cambridge, England. MPhil Global Risk and Resilience at CSER. Interested in long covid, disability justice, global inequality and climate adaptation.
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
TRAstonDrs @castltrastondrs.medsky.network "Not all those who wander are lost" JR Tolkien
#Clinicalresearcher #DrugDevelopment
#Clinicaltrials & Registration
🧬🔬📚🔎🦠🧫 📌
Melbourne 🇦🇺 Oxford 🇬🇧& 🏴 #MedSky🧪
@caringkinder.bsky.social @caringkinder.bsky.social Australian. Very concerned about the climate crisis our fragile planet faces.
Voted yes to the voice, without question - embarrassed it even required a vote.
Walking 4 mental health & joy. Healthcare background. Also Mastodon
Alissa Ferry @alissaferry.bsky.social Lecturer in Language and Communicative Development at the University of Manchester. Usually mountains and running in my free time but currently down with Long Covid (again? Still?).
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
@cazzie-d.bsky.social @cazzie-d.bsky.social Associate Professor of Neuroscience and Genetics, Biomolecular Sciences Research Centre and Advanced Wellbeing Research Centre, Sheffield Hallam University
Long COVID, ME/CFS, pharmacogenetics
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Liz (TheLongCovidNurse) @thelongcovidnurse.bsky.social I’m an ICU nurse with interests in end of life care, technology and medication safety. Out of work food, Pilates, coffee and swimming probably not in that order. PwLC since November ‘22 She/her
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@gwedho.bsky.social @gwedho.bsky.social
Miska Knapek @miskaknapek.bsky.social Data analyst/scientist making data analysis software, #datavis, #datascience , etc, nature photography, some creativity and hobbyist personal complex medical research . ( Did I miss anything?... well, #mecfs ;)
miskaknapek.eu
Sam Thoyre @samthoyre.bsky.social 🌐 Tech Enthusiast | AI & Dev Tools 🛠️
🎥 Sharing insights on Next.js, Payload, Supabase, Tailwind, AI, and serverless architecture.
📺 Watch my tutorials & build with me: https://www.youtube.com/channel/UClxm1AYVvel_7Lhft3FPdhg
betsy ladyzhets 😷 @betsyladyzhets.bsky.social editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Iain Ballesty @iballesty.bsky.social Follow @iBallesty.mastodon.ie.ap.brid.gy for new posts. Facts matter/opinions differ. If you are not part of the solution you are part of the problem. 🇪🇺 🇮🇪 🇨🇱. #LongCovid #SDG #ARP #HostingUkrainians
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
Monica Velasco @monica723.bsky.social I have a strong interest in politics, history and social issues, and like to follow international situations and national developments.
Catherine Zimmerman @catjzim.bsky.social Retired, artsy, hiker, nature and cat lover, devoted to friends and family. Love being in and photographing nature! Living in the foothills of the Santa Catalina Mountains in Arizona, USA. Long Covid Survivor. All my shots with iPhone.
Ian Weissman, DO @drianweissman.bsky.social Radiologist @DeptVetAffairs #AdvocatingForPatients #PublicHealth #Activist @RadiologyACR and @RSNA #Leadership http://www.linkedin.com/in/ianweissmando
Wellness at the Speed of Light @drsinicropipodcast.bsky.social Expert Spine Surgeon Innovator in Minimally Invasive Surgery & Wellness Advocate #MedSky #MedEducation #Wellness #SpineSurgeon #WellnessDoctor
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Carl @carlf.bsky.social ME secondary to Covid vaccination. pro vax/vax injured.
Zero tolerance for personal abuse.
Do unto others as you would have others do unto you.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
weavercarolyna @weavercarolyna.bsky.social same as on the other app
Matt Maxwell @mattymaxwell.bsky.social Lawyer-turned-leadership coach, writer, author of How to Hold a Cockroach, and Nuggets fan! #LongCovid since Mar. 2021
@saintph.bsky.social @saintph.bsky.social
🐸 Empathy1st ❌👑 @empathy1st.bsky.social I'm an educator who cares about human rights, science, and democracy.
#HumanRights
#CovidIsAirborne
#EndGunViolence
#IndigenousAlly
Canadian/American living in Los Angeles County on Chumash land.
Avatar: circle mosaic
Picture: mossy tree
Long COVID Labs @longcovidlabs.bsky.social Non-profit accelerating a cure for 100M+ people with Long COVID.
Longcovidlabs.org