Ravna Marin Siever @zesyra.bsky.social πnary lesbian | they/them | white | autistic | disabled | polyam | 3-5 kids | Author | "Was wird es denn? Ein Kind!"
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
ME/CFS Research Foundation @mecfsresearch.bsky.social Für mehr ME/CFS Forschung!
We promote & finance #MECFS research!
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Linkübersicht: https://t.ly/Tt3W8
dpa @dpa.com Offizieller Account der Deutschen Presse-Agentur
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
New York Times Opinion @nytopinion.nytimes.com We amplify voices on the issues that matter to you. Read on: https://www.nytimes.com/section/opinion
Wensk. @interwen.bsky.social Mainly covid, social justice + shitposting.
Naylor007 @naylor007.bsky.social #pwME #MyalgicEncephalomyelitis One day at a time ... will do what I can to help others 
Karen Denmark @kmdenmark.bsky.social Mostly just crocheting these days. Former USAF and maternity RN. #ME/CFS- L FrancoiseDupont with ME @latortuebleue.bsky.social ME/CFS
In France
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Mirja Nicolas @privilegienschreck.bsky.social Medical Gaslighting; Psychologisierung, Stigmatisierung von ME/CFS, PAIS;
Kritik an "Psychosomatischer Medizin"
Universität Leipzig
sie/ihr, they/them
Sebas @sebajones.bsky.social Long covid/ME since 2020. Literary fiction and em dash fan. Retired junglist. 🪴 patient.
Guiri madrileño. Socialista. Anti-fascista.
RV @rv-enigma.bsky.social em. Prof. Computer Science, s4f, Mathematics, Physics, 9x💉
Daten zur Corona-Lage (täglich) und zur Klimakrise
noAFD, noCxU
Pedro Lérias 😷 @rplerias.bsky.social Médico (mas não aqui). A COVID continua a matar demasiadas pessoas. Todos têm direito a recorrer aos cuidados de saúde em segurança. Usem 😷, por favor.
https://t.me/COVIDzeroPortugal for COVID in Portugal related discussion 
Miah Flowers (they/them/no pronoun) @miah-flowers.bsky.social Art of diversity of humans, nature
Artist on hold by ME/CFS
Fat activist, intersec. Queer Feminism
vulvaflowers.de
Sickandtiredaus Jordan Crane @sickandtiredaus.bsky.social http://heymp.com.au/sickandtired
http://change.org/LongCOVIDInquiry
http://www.instagram.com/sickandtiredaus
https://x.com/JordanCrane2?t=qsba4zmDGLFUas_tcP_pnw&s=09
https://www.facebook.com/share/19nSvtGPNz/
Linda @lindaoh.bsky.social Interested in
history, disability, politics, chronic illness. Loves animals, dry white wine, chocolate and my bed. Irish.
ADHD, ME sufferer. Cat and dog person.
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp😷
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
The Real ME 🏴👩🦽➡️♿️ 👩🦼🇵🇸 @therealmecfs.bsky.social Chronically ill & disabled person with lots of personal opinions, who sometimes likes a hat. Occasionally an advocate for PwME, gamer and proudly on the Autism spectrum. I’ve low tolerance for ignorance and assholery so if you come for a fight, expect one.
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
It's M.E. Linda @happyhoundhouse.bsky.social 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Dt. Ges. für ME/CFS @dgmecfs.bsky.social ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
It’s ME Kathryn @joyk8.bsky.social Medically retired palliative care RN, #pwME since 2001. #MECFS #POTS #MCAS #EDS
Enthusiastic gardener, baker, and candlestick maker.
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
ThisisMEtweeting @thisismetweety.bsky.social Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
MBwME @mflares.bsky.social PhD in physics, former scientist, educator, and athlete, now housebound due to ME/CFS and POTS from SarsCov2, she/her
Rudi @remissionme.bsky.social ME/CFS since 2019, painter, yoga and health enthusiast. The healthiest sick person I know and on a quest for turning this around!
A Darkened Room @adarkenedroom.bsky.social One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Fiona Wood @mewarrior1.bsky.social Wife, mum, Severe ME, 💙✝️♿️Fibromyalgia
Observe small things, don't rush, love & forgive
#loveyourself #loveothers ❤️
#chronicillnesswarrior1 on X & IG
Opinions are my own 🤓
PenGwen With LC @pengwen.bsky.social P/w Long Covid, writer, nerd, loudmouth, green thumb, artist, queer, ND, & unstoppable!
No alt text= no RT
#AltUBI #LongCovidAid
Tanya @chronicmyalgice.bsky.social Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
Sinéad @spoonless-me.bsky.social 
The Doctor is Missing @pestilany.bsky.social Neurodivergent queer disabled pwME anthropologist.
Anthropology. Social work. Disability. Long Covid. ME/CFS. Race & ethnicity. Dogs. Queer stuff. Eastern Europe. Literature. Design & photography. Gardens. TV & pop culture. Social justice. Opre Roma.
Rachel @rachelme.bsky.social Trying to be a good human. Living with Myalgic Encephalomyelitis. 
Melissa @mcochrane13.bsky.social mum of 2 kids, 1 cat & 1 dog, wife, ADHD, PMDD, POP, & ME/CFS with fibromyalgia, she/her, human rights are for everyone. LGBTQ+ safe here. 🇨🇦 in 🏴
Tracy @tracyme.bsky.social Neurodiverse socialist. Love history, science, nature and creativity.
Medically retired biomedical research associate with severe ME
Ö. Ges. für ME/CFS @mecfs.at 💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
C. F. Srebalus @cfsrebalus.bsky.social Illustrator, Prop Maker, Writer, trad. Artist 🎨
Stories haunt between my heart and my fingers and I love to set them free.
🚫 No permission to use my art for AI
(she/her 🏳️🌈) Content in german & english
💻 www.cfsrebalus.de
📧 kontakt@cfsrebalus.de
COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social Raising awareness #COVID19 and #LongCovid Supporting fellow long-haulers. Join our group for support! (Human curated) Media: covidlonghaulers@gmail.com
#MedSky
facebook.com/groups/COVIDLongHaulers
YouTube.com/@covidlonghaulers
Patreon.com/BrookeLine
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
| Y | @butteredchai.bsky.social cinephile | regional champion for reeve foundation | polyglot | she/they
Jessamy Barker (they/she/he) @jessamybarker.bsky.social Serving genderqueer drag and goth looks
Brit living in California
Genderqueer Drag as https://www.instagram.com/lordofmxrule
Painted rocks https://www.instagram.com/stained_stones
Chloë Lum @compulsiveobserver.bsky.social Installation artist. Perfume fanatic. Chronically ill. Concordia University PhD student(disability studies + performance studies + practice-based research.) Ex jammer, current failure. She/her Montréaler in Edmonton. https://linktr.ee/ChloeLum
Liz Whitmere @lizwhitmere.bsky.social 🇨🇦
I like making movies, I like taking pictures. You can find my photography/videography on instagram @LizWhitmere
www.lizwhitmere.com
Signal: @lizw.85
Erin Candy 🍒🇨🇦 @erincandy.bsky.social 🇨🇦Just a chronically ill East Coast girl with a sailor mouth. #NB
History/Science/Politics/Gaming/Movies/ #Leafs Hockey/Creator/Cat Rescuer
Leukaemia cancer survivor!
Anti-fascist/Anti-disinfo activist.
Battling #LongCovid since March 2022
#MCAS
#POTS
♑
DR Evans @drevans.bsky.social Book lover, avid crafter, loves nature and spending time in it
Amber @aschmugge.bsky.social Occasionally misplaced Minnesotan. (she/her)
hazel marie @dykeworship.bsky.social i'm Them, i'm Her
love me worship me adore me
perfect dyke apotheosis 1995
squid owner
follow for more tips, tricks, and divine judgements
Fionna O’Leary @fascinatorfun.bsky.social Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee 🇬🇧 🇮🇪
Aris Katzourakis @ariskatzourakis.bsky.social Viruses, Evolution, Education, Trade Unions, things like that. Prof at Uni of Oxford, NEC member for UCU. Posts mine, reposts not.
Andrew Gwynne @theandrewgwynne.bsky.social Husband | dad | grandad | gardener | VIC-20 & Amiga user | recovering politicoholic | ex Crown Steward & Bailiff of the Manor of Northstead | Charity Trustee
Prof Nisreen Alwan @nisreenalwan.bsky.social نسرين العلوان
Pronounced /nisri:n/ with an s not a z and a long ee ☺️
Professor of Public Health MBE
Southampton
Not afraid of my voice
Still curious
Posting my personal views not those of any organisation
Reposts not necessarily endorsements
💚 🧿 🌻
Jessica Wildfire @jessicawildfire.bsky.social Your local Cassandra
https://www.the-sentinel-intelligence.net/
Kelly @broadwaybabyto.bsky.social Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Dr Satoshi Akima, FRACP @toshiakima.bsky.social Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Layla Moran MP 🔶🕊️ @laylamoran.bsky.social Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the ‘other (social) place’ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
Steve Griffin @profstevegriffin.bsky.social Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Prof Deborah Lupton, MPH PhD @dalupton.bsky.social Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Clean air/COVID safety advocate/activist/researcher. Other health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
Clean Air Stars @cleanairstars.com Non-profit. Helping businesses better protect their customers from viruses like SARS-CoV-2. Fix your air with the guides cleanairstars.com/steps.
Air filter recommendation tool (non-profit) at filters.cleanairstars.com
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Dr Kate Cushing @drkatecushing.bsky.social Doctor, scientist, mum, cat slave.
Public Governor Newcastle upon Tyne Hospitals Trust
Long Covid & CCH.
Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU
Wrote Little Orange Book 4 parents of babies & small kids.
Green Party member
Adam Squires @adsquires.bsky.social Biophysical Chemist. Aerosol scientist. Jew. Likes lipids, nano materials, x-ray / neutron scattering, pretentious coffee. (he/him/his). Twitter @adsquires
Barry Hunt @barryhunt008.bsky.social -------------------------------------
🍁 The World Needs More Canada 🍁
❤️ 💪 🇨🇦
---------------------------------------
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Sally Doherty @sallywrites.bsky.social MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Anna Brooks, PhD @drannanz.bsky.social Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Cat in the Hat @catinthehat.bsky.social Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
#CleanAirCrew @cleanaircreworg.bsky.social #CleanAirCrew #COVIDisAirborne
Airborne pandemic tips & tools
#COVIDco2 #CorsiRosenthalBox #ClearTheAir
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Anna Wood @annakwood.bsky.social Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
#ApresJ20 - Association Covid Long France @apresj20.bsky.social Compte officiel #ApresJ20 Association Covid Long France visant à favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Scribbler Pen @scribblerpen.bsky.social Writer, editor, analyst. Disability employment rights advocate.
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
Sten Helmfrid @stenhelmfrid.bsky.social Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Vlad Vexler @vladvexler.bsky.social Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Ian Tucker-Bell @iantuckerbell.bsky.social Playwright, theatre maker and coach in Kent.
Co-founder of Orange Works. Author of Ghost Light and Locusts.
Exploring how theatre and story illuminate leadership, identity, and the roles we choose to play.
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
Smart Air UK @smartairuk.bsky.social Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
Dr. Ashley | Panicked Foodie @panickedfoodie.bsky.social Scientist | Cornell Alum | Bedridden | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #HeatTransfer #CovidIsAirborne
Living Kidney Donor
TikTok, YT: The Panicked Diaries
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Clean Air Club @cleanairclub.bsky.social Providing free air purifiers to Chicago artists, organizers, and touring musicians.
linktr.ee/cleanairclub
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
Lisa Diaz @lisabd.bsky.social 
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
Dr Ben King 🌍 @benking01.bsky.social Long Covid & PE recovery.
GeographyTeacher.
Sustainability & Climate Change.
BSc Env Science & Physics (Stirling).
Soil Erosion PhD & Geog PGCE (Exeter).
Tuba player.
Devon, UK