Anna - Please boost pinned tweet.๐ @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
๐Safe housing needed ๐ก
#Melbourne ๐ฆ๐บ
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Princess in the Tower @apainprincess.bsky.social Healing Portal for everyone affected by severe #ChronicPain & #ChronicIllness~by a princess with full body #CRPS.
Resources, community, awareness | www.princessinthetower.org
#YouAreNotAlone ~ wishing you support, strength & hope for far kinder days.โฅ
@frankohh.bsky.social @frankohh.bsky.social Covid safety advocate. Biopolitics. Anti-capitalist. Anti-fascist. #ActuallyAutistic
Living on unceded sovereign lands of the Whadjuk Noongar people of the Bibbulmun nation.
alpachaar @alpachaar.bsky.social 19 | he/him | oceania | rabid advocate for AvPD awareness โ https://avpdinfo.carrd.co/ | chronically ill โ here for a good time; not a long time โค
Chronic Illness Resource Library @spoonieresources.bsky.social Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es).
Not a health professional.
Requests/suggestions welcome.
๐ซ No AI
linktr.ee/chronicillnessresourcelibrary
Jenn Jackson, MPH, RDN, LD (she/they) @lovejennik.bsky.social Fat liberationist, COVID realist๐ท, queer AF ๐ณ๏ธโ๐, trauma-responsive eating disorder dietitian (she/they) - lived experience=disability, T2DM, perimenopause + neurodivergence ๐๏ธ podcast: https://bsky.app/profile/embodimentrestofus.bsky.social
S.J.๐๐ฉต๐๐ฆ๐ฆ @glimmers2.bsky.social Disabled worrier,weather-watcher, amateur artist, crocheter, vegan, endlessly curious, love my family, dogs,cartoons, and medieval weaponry. Military historian.She/her. ๐ family. Free๐ต๐ธ
Linda Anderson, PhD, RN @lindaanderson.bsky.social Proudly liberal nurse, researcher, Ehlers-Danlos syndrome advocate. So-so artist. Eclectic tastes and interests including bonsai, opera, and sumo wrestling. My views are my own.
Squeeful Raven ๐ฆโโฌ @squeefulraven.bsky.social Irish, Photography, Art, Craft, Gaming, Anime, Food, Books & SciFi Geekery.
Advocate of #LGBTQ+ & #Disability Rights๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ
โฟ๏ธ Chronic Illness - #EDS #Pots and other stuff!
Cis Queer Gal, She/Her ๐ โค๏ธ๐งก๐ค๐ฉท๐
My waifu: @astermaho.bsky.social
Lila Sjรถberg ๐ถ @mumblog.org My beautiful (or not!) journey of being a Woman, Mom, and Wife. Daily tips, inspiration, and stories to help you balance it all with grace and joy.
๐ https://mumblog.org
Charlotte L ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ @lotternine.eurosky.social 37, she/her, Edinburgh, Scotland ๐๐ด๓ ง๓ ข๓ ณ๓ ฃ๓ ด๓ ฟ๐ช๐บ
Left but melty to many. Rude. I'm not FBPE, ML or anarchist
Ex-Borderer, now forever Lothian-er. I block often, sorry. Can't donate
Autistic, ME/Fibro, T1D, HSD, mair chronic hings. ๐ to @scroff.bsky.social
steffbehring.bsky.social @steffbehring.bsky.social
Jade Turtle @jadeturtle.bsky.social Old fashioned, I like fountain pens and RSS feeds.
Christine Milbank @ccmilbank.bsky.social UT by way of CT, NY, PA and MA
Anas @anasaj.bsky.social Some films end with the credits.
Others stay, disturb, and quietly change perspective.
Writing about the ones that refuse to leave.
https://letterboxd.com/anasaj/
GW @garrywatters.bsky.social enjoying life it's busy at times ๐ I also enjoy the sport of rugby and have a website for that on www.intouchrugby.com and i will post ideas here for that. Have a nice day xx
dr. z, ph.d (they/themme) @djinnofthedamned.bsky.social ๐ ๐๐๐พ ๐ฝ๐๐๐๐ ๐๐๐บ๐ ๐๐๐๐ ๐ป๐ ๐๐๐พ ๐ฝ๐๐๐๐๐บ๐ ๐
๐๐๐๐๐๐๐ | ๐ ๐๐๐๐๐ | ๐๐๐๐๐๐๐๐ ๐๐๐๐ | ๐๐๐ ๐๐ข๐๐๐๐
โถ ๏ฝ๏ฝ ๏ฝ๏ฝ๏ฝ๏ฝ
๏ฝ๏ฝ๏ฝ๏ฝ'๏ฝ ๏ฝ๏ฝ๏ฝ๏ฝ๏ฝ
๏ฝ๏ฝ ๏ฝ๏ฝ๏ฝ
๏ฝ๏ฝ๏ฝ ๐ด
i came to haunt shit, ๐'๐๐๐ ๐๐ ๐๐๐๐๐๐
https://linktr.ee/djinnofthedamned
Ranto @rantogethernow.bsky.social #ND, parent of NDs. #EDS #MCAS #POTs, #Dysautonomia etc. Arts nature animals politics news. I'd be delighted if you use AltText (and more likely to repost...). Probably the wrong temperature.
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
๐: https://www.emjreviews.com/en-us/amj/
Vitr @vrobn.bsky.social She/Her, progressive, anti-racist, foodie ๐ฃ, millenial, feminist โ๏ธ, veteran ๐บ๐ธ, girl mom ๐, ally ๐ณ๏ธโ๐. Deconstructing.
Immigrant rights are US rights.
Caroline Keep @ka83k.bsky.social Data Scientist, Award Winning Teacher, Maker, PhD Researcher ๐ #Tes #Edtech50 #Bima100 #Judge #Crafting edu/tech narrative.
@doctordad1948.bsky.social @doctordad1948.bsky.social
WuWei2024 @wuwei2024.bsky.social No patience for b.s.
Zero pieces of flair
Environmental Scientist
Industrial Hygiene
Knit for my sanity ๐งถ
hEDS /MCAS/HaTS๐ฆ
Anna Bagels @anna-bagels.bsky.social Acronym collector, possibly human, tattooed weirdo
I <3 Great Lakes Science
๐Waawiyaataanong
FookyFBSandcat @funkypuffin56.bsky.social Music (Open Eared Passion, not genre specific)
Wild Life & Beauty in the World
๐&๐โโฌ
The State of Things
Books, Film
ADHD, Chronic Pain, #LongCovid
#CannabisCareForAll
Ex Reg Nurse
Green Wing Chris Morris Peter Cook
Anders Edwards @andersedwards.bsky.social โ๏ธ Dystopian Author
๐ Erased & What Happened To Ava
โก๏ธ https://a.co/d/9wxT23L
๐ www.andersedwards.com
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Coldhotel @coldhotel.bsky.social Lifelong Democrat. Retired, former union member. Rabbit parent. Cat foster parent. Ballroom dancer. Equal protection under the law for all. For all!
molly @mollybdillon.bsky.social Clumsy Feral Librarian F89
Michael Kessler @mickessler.bsky.social Global Health Media Consultant
#hiv #tb #infectiousdiseases #CRDs #drugpolicy #ncds #pandemics
Psyrenity Psychology @psyrenity.org Psyrenity Psychology, here to listen. http://psyrenity.org
Hyp+Access @hypaccess.bsky.social Care access 501(c)(3) for people with connective tissue disorders & overlapping conditions - including but not limited to "hypermobility" syndromes, dysautonomia, MCAS, fibromyalgia, ME/CFS, and Long Covid. Hyp+Care clinic opening in NYC in 2026.
Eloise Stager, LMT, CST-D, OFI-DI @eloisestagercst-d.bsky.social I'm a manual therapist specializing in CranioSacral Therapy and OsteoFascial Integration.
www.ctcranio.com
www.stager-institute.com
Maria Lindqvist,PhD (ร
bo,Stockholm,Uppsala,Roma) @amazingmariapian.bsky.social PhD and postdoc in medicin
https://balticseanews.se/ http://www.finlandiabiosciences.com
http://www.educateandhelplocally.eu
instagram: https://www.instagram.com/balticseanews/
youtube: https://www.youtube.com/@finlandiabiosciences
justfara @justfara.bsky.social #Resist ๐ ๐๏ธโก๏ธ๐๐ฆ๐บ๐ฆ๐
Fara Kaufman Nana
Jersey Girl living California Dream
NO DM's No Messages
Banned Books
Knitter
#Fight Antisemitism #BLM #LGBTQ+
Reiki Master #Foodie Music Fibromyalgia Ehlers Danlos
insta @justfara1
Rito @ritomoreno.bsky.social NYโก๏ธCOโก๏ธVAโก๏ธDCโก๏ธVTโก๏ธFLX
๐ณ๏ธโ๐
Rural queer, anti fascist, crow servant, dog attendant, kayaker, seedfolk, LMHC, EDS, creator of many things, gardener, straight talker, love maker, fire star-tar ๐ฅ
Caitlin ๐ ๐ฐ @sickbaycheese.bsky.social she/they โข Disabled โข Soapmaker โข Standard Nerd โข Mom of 3 โข I love: Star Trek | Golden Girls | coffee | cats | gaming | photography | science | documentaries
#IDIC #hEDS #POTS #MCAS #PsA #Migraine #SalicylateSensitivity
Bopeep-Burton ๐๐๐๐๐ก๐ ๐ฆ๐บ๐ฆ๐จ๐ฆ๐ณ๏ธโ๐๐ซ๐ท๐ต๐ธ๐ณ๏ธโโง๏ธ๐ @bopeep-burton.bsky.social Old
AutismEpilepsy mom
Diagnostic Medical Ultrasound 45 yrs
Parkinson's wife
The right to bodily autonomy should not be determined by your sex, your government, or your geography
Our future has been stolen from us
With fear for our democracy
I dissent
Krista @kristacatlady.bsky.social Mcas, migraine, and dysautonomia, oh my. Cat lover, especially seniors. Cusses online when in pain. She/her
Anthony Johnson @aejtyger143.bsky.social I'm a husband, a furbaby papi, an advocate, a woke thinker, and an educator.
Juicieca ๐ฆ๐ฅฉโช๏ธ๐ญ๐ฅฃ @juicieca.bsky.social (she/her) Detroiters, ITYSL & #๐ชCo
all power to the people, liberation for all, ๐ท
ACAB, Free Palestine ๐ต๐ธ
Detroitersquotes.com #BringBackDetroiters
banner alt text: Tim Robinson โwhat the fuck is this world?โ
married to @acabracadabra.bsky.social ๐
LaffingKat @laffingkat.bsky.social Former editor, happily partnered queer woman, disability/chronic illness advocate. I mostly share my amateur photography, as well as anything else that tickles my fancy.
History Scientist @historyscientist.bsky.social Professional scientist. I like reading books about history. Editor of the Bluesky edition of Gibbon's Decline and Fall of the Roman Empire.
http://historybooksreview.co.uk/
https://beautyscientist.github.io/GSDIANOZAS/
Septimus Brown @septimusbrown.com Senior editor at DarlingAxe.com. Novelist at SeptimusBrown.com. Award-winning short-fiction writer. Chaotic good. He/they. ๐ณ๏ธโ๐
ProdigalHoosier @prodigalhoosier.medsky.network Co-conspirator/Partner to @Bellmore
Mom
OG Punk Rock Grrrl
IU Alum
CASA Volunteer
Mantid Mom
Future Corvid Murder Bestie
NERD: History, Politics, Policy
Healthcare, Justice, & Education Equity, Organizing, Books, Research, Data, Trauma Informed Care
corncob tv @corncobtv.bsky.social some jokes, some advocacy
#๐ณ๏ธโ๐ #HiddenDisabilities ๐ป
#POTS ๐ซ๐ง #hEDS ๐ฆ #ClimateCrisisAwareness ๐๐๐
corncob tv is home to some of your favorite tv shows including Coffin Flop #ITYSL
Banner alt: Netflix is a Joke,
Chump of the Week with Mort Crim #Detroiters
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Benjamin Brigant, PhD @crisprandbeyond.bsky.social Researcher ๐ฌ | CRISPR | Unraveling the link between inflammation and pathologies, Focus on Ehlers-Danlos syndrome and osteoarthritis
PhD in France, Post doc in Norway and Canada
The Brigant Lab @brigantlab.bsky.social Welcome to BrigantLab! ๐งฌ๐งช๐ฌ Where science meets innovation in action! โจ
๐ Inside The Brigant Lab : https://linktr.ee/brigantlab
HotDog89 @hotdog89.bsky.social Retired Psychologist former social worker Degrees in Neurobiology /biochemistry. Worked big Pharma for 9 yrs further degrees in Psychology and Mental health world travelled. Married.2 daughters 1 grandson age 6 live Maidstone Kent UK. Interest's many
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research) @jefflubellc19.bsky.social I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Merula @merula.bsky.social (she/her); Barista Barista Antifascista! ๐ฆโโฌ ๐จ๐ญ ๐ฌ๐ท ๐ณ๏ธโ๐ โพ ๐ฆ
ยซLa solitudine รจ fondamentale perchรฉ aiuta a vivere meglio.ยป
Lucio Corsi
Lebt mit ๐ die sich benimmt wie ein ๐ถ.
#Procrastibaking๐. โค๏ธ Lievito Madre
#cyclebreaker
๐ฆ #eds โพ #asd
Sara L @sazzypants.bsky.social A South African professional game master (D&D 2014, Pathfinder 2e and Blades in The Dark) living life with Ehlers-Danlos Syndrome.
๐Chronic Pain Princess๐ @cpprincess.bsky.social Liberal. ๐ง โป๏ธ ๐ โฎ๏ธ Chronic illness warrior. โฟ๏ธ Crazy ๐ธ lady. Neurospicy. โพ๏ธ
Health Policy Watch - Global health news reporting @healthpolicywatch.bsky.social Independent global health news written by experienced journalists. Non-profit media company with HQ in Geneva, Switzerland.
Sign-up for daily email news alerts: http://healthpolicy-watch.news
MUSC Institute for Neuroscience Discovery (MIND) @muscmind.bsky.social Transforming life for neurological patients by practicing, teaching, and exploring brain science like never before.
Eleanor Fielding @meownersclub.bsky.social โWeโre driving in the dark with our sunglasses on!โ
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bโham, feminism, politics, culture, disability, science, music, languages. Woke AF
meownersclub@bsky.social
Maker of #FanningTheFlames
The Atlantic @theatlantic.com Exploring the American idea through ambitious, essential reporting and storytelling. Of no party or clique since 1857. http://theatlantic.com
Spoonie Scholars at UAB @spooniescholars.bsky.social Advocacy, community, and support for #disabled, #chronicallyill, & #neurodivergent scholars at UAB ๐๐
https://linktr.ee/spooniescholarsatuab
Constance @constance080305.bsky.social Michigan Democrat. Diabetes Warrior.
Amawrter @amawrter.bsky.social I am: a progressive-minded queer American man who is well-travelled + well-experienced. I love dogs, cats, and most other sentient beings [๐ bipeds excepted]. #Ehlers-Danlos #Meditation
Evil lurks behind every science denier. ๐ค
โจ Soft Grit Spoonie โจ @softgritspoonie.bsky.social Chronic illness advocate | Disability awareness | Spoonie | Mental health | CPTSD | Migraine | Fibromyalgia | Invisible illness | Daily life, support, humor & healing.
๐ต ๐ซ MAGA + Republicans ๐ซ ๐ต
#BlueCrew
Anne Murphy @drannemurphy.bsky.social Interests: Humans, general practice, vaccines, fresh air, London. Talks too much. Retweets eclectic. Bot-blocker. Obviously personal account. http://drannemurphynhs.wordpress.com
Daniel (GMP GUIDE) @gmpguide.bsky.social Creator of the GMP GUIDE youtube channel, sharing 25 years of pharma experience ๐
https://www.youtube.com/@gmpguide?sub_confirmation=1
I think Pharma knowledge should be free and accessible to anyone.
Stephen @sventh.bsky.social Designer to disabled. Here to vent about it.
SuzyQ ๐ต This Is Nowhere @northernoasis62.bsky.social (((She/Her))) Lives on indigenous land. Just watching and waiting. No DMs please. ๐ณ๏ธโ๐๐ฑ๐ฅฆ๐ฅ๐ท Science is real. Get vaccinated. #YYC #cPTSD #ACEs #ChronicMigraine #ChronicIllness #Fibro
Kate Johnson @katejohnsonwrites.bsky.social Heal religious trauma, family dysfunction & shame. Reclaim your voice & freedom.
Bi exvangelical pastorโs daughter + survivor advocate.
โฌ๏ธ Substack
Quips and Confessionals: https://open.substack.com/pub/katejohnsonwrites
K.L. Johnson | Author @kljohnsonwrites.bsky.social Writing a NA/Upper-YA fantasy featuring
Irish folklore, romance, fae, and found family.
Julian (They/Them) @dazerla.bsky.social They/them. Learning disabled, possibly autistic. Transmasc non-binary, asexual.
#Disability
#NEISVoid
#Austism
#Trans
#Non-Binary
#StarTrek
#GoodOmens.
Zebras and Friends Recipes @zebrasandfriends.bsky.social Vegan ๐ฑ Recipes for people with dietary restrictions such as Histamine and Glutenintolerance, Low FODMAP, etc
๐ฉ๐ช๐ฌ๐ง German & English
๐ฆ hEDS Zebra
๐ฉธ Endometriosis
๐ตโ๐ซ๐ซจ Migraine
www.zebrasandfriends.com
Yuen Chan @yuenchan.bsky.social "Where everything was as fresh as the bright blue sky"
Was @xinwenxiaojie on the app formerly known as Twitter.
Hongkonger, South Londoner.
Teaching journalism at City St George's, University of London.
Cats and Cheese @cgeoffroyi.bsky.social Not in the mood for any of this. You can find me under a blanket with some cheese and a cat (or 3).
Bill Vandenbush @hawkeyebilly.bsky.social Author, inspirational speaker, TV and radio personality, retired civil servant, MSW, disabled Vietnam Vet, proud Liberal. PNW Sports fan, dogs, cooking, reading, Retired and loving it. ๐ซDMs please ๐ซmoney requests ๐โ๐ฆบ๐ณ๏ธโ๐๐ฒ๐๐จโ๐๐ณ๏ธโโง๏ธ RESIST!!
Allen Tien, MD, MHS mdlogix.com 94,698 ็ฐไธๅฝฆ @allentien.bsky.social #k12StudentMentalHealth #MTSS #SuicidePrevention
https://www.linkedin.com/in/allentien/
#GeneralSemantics #EnergyNetworkScience #HelicalEconomics #WordsAreUnitsOfBrainFunction
ๅฐ็ #OnePlanet
Art I post: #WillieKohler
BashfulBlueBear @bashfulblue.bsky.social Our leaders should be role models for our children... but we live in deeply dangerous times.
Ex teacher, married, adult children. ๐ด๓ ง๓ ข๓ ท๓ ฌ๓ ณ๓ ฟ
๐ช๐ต๐ธ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ ๐ซracists&bigots
#vegetarian #nature
#EDS #AuDHD #CFS #chronicpain
Anonymous this time round.
Pain Stories Lab @painstorieslab.org We focus on the experiences of children and young people, and their families, living with pain. Our aim is to improve society's understanding of their stories. Based at the University of Bath, United Kingdom.
painstorieslab.org
All things in moderation including moderation itself @mysticunicorn9.bsky.social
Moss @moss-meister.bsky.social 23 - He/They - ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ - Bar student
Check out my blog - https://mossmeister.co.uk
@oedsa.bsky.social @oedsa.bsky.social
Eva Hamilton (she/her) @toknitter.bsky.social ๐จ๐ฆ Formerly joyful Torontonian (currently in northwestern ON), living with lupus; lymphoma survivor; owned by English toy spaniels; passionate about knitting ๐งถ
lu @damsorrow.bsky.social lesbo slut with scary friends. gyno
Disability Daily Podcast @disabilitydaily.bsky.social
Discover a new figure or event in disability history each day!
Subscribe and tell your friends!
Katie Healey (she/her), PhD, CPACC โจ
AccessibleHigherEd.com
DisabilityDaily.podbean.com
https://ko-fi.com/disabilitydaily- C Cosmality @cosmality.bsky.social visit: www.cosmality.com
Terry Trueman @ttrueman.bsky.social Award-winning author, father & grandfather, Wikipedia, or Google. Trueman & Triola Newsletter, Just Weighing. Spokane WA. 78, loves his wife & life; not looking for love, etc. will Re to DMs. I'm FAR left & impractical. No bio/No posts, why would I fol?
Paul Cochrane @paulcochrane87.bsky.social Global Services Manager @ Hyland | Passionate about services, healthcare, digital health, AI & cloud | BSc, PRINCE2, MSP, L6ฯ Green Belt | Opinions are my own | https://linktr.ee/paulcochrane
JennySays @wasntmethistime.bsky.social Feral with Humanitarian Tendencies
Milo | Ende der Illusion @liebewerden.bsky.social Hier endet die Illusion.
Der Weg zurรผck nach Hause: https://ziel-der-menschheit.de
โMilos Gedanken und Impulse auf seinem Blog:
๐ https://ewige-erde.de
Sal Manta @svtmnt.bsky.social High school Biology, English teacher ๐ฌ๐ง๐ฌ๐จโ๐ซ; solopreneur (metaphraze.com); geek, nerd, jester. #MaskUp #COVIDisAirborne
James Berriman @jamesberriman.bsky.social Musician and Network Engineer
Fan of Hull City AFC #hcafc #theTigers
https://lnk.bio/jamesberriman
40:40 Recruitment - celia@4040recruitment.co.uk @4040rec.bsky.social We are a Specialist Recruitment Partner within the Pharma, Healthcare, Medical Devices & MedTech arenas throughout UK & Ireland. We cover all levels of roles in Commercial, Sales, Market Access, Market Research, Marketing, People Management & Medical
Gillian Kent @cambridgegill.bsky.social
Nina Danon @ninadanon.bsky.social Composer & lecturer โข AHRC CHASE PhD student researching neurodivergence in composition and musical neuroqueering โข Co-founder of the Neurodivergent Music Network โข Kinetic (ADHD) Autistic, Neurodivergent, Disabled โข she/they
https://linktr.ee/ncdanon
St. Joseph County, IN Democrats @sjcdems.bsky.social We believe government should make life better for everyday people. That's why we're committed to building a St. Joseph County where dignity, justice, opportunity, and compassion aren't just ideals... they're how we lead.