Disability Culture Lab @disabilitylab.bsky.social DCL is a nonprofit disability media and narrative lab, by and for disabled folks. We exist to dismantle ableism and celebrate disabled community and culture.
https://linktr.ee/disabilityculturelab
ADA National Network @adata.org Provides information, guidance, and training on how to implement the Americans with Disabilities Act (ADA). To contact a specialist, call 1-800-949-4232 (toll-free) or https://adata.org/email
National Disability Rights Network @ndrnadvocates.bsky.social We are the national membership association for the congressionally mandated Protection & Advocacy Systems and Client Assistance Programs. https://linktr.ee/ndrnadvocates
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Adam Crafton @adamcrafton.bsky.social ✍️ I am a journalist at The Athletic
🏆 British Sports Writer of the Year
🇺🇸 Recently relocated to NYC
Video Game History Foundation @gamehistoryorg.bsky.social Non-profit dedicated to preserving, celebrating, and teaching the history of video games. Our free digital archive is now open to the public! http://archive.gamehistory.org
Frank Cifaldi @frankcifaldi.bsky.social I made GameHistory.org and you can too
Jan Ochoa @janochoa.bsky.social Chief Operating Officer and Owner of Giant Bomb | giantbomb.com/join | ✉️ jan@giantbomb.com
Jeff Grubb @grubb.wtf President and owner of Giant Bomb
giantbomb.com/join
Mike Minotti @tolkoto.com Co-owner of Giant Bomb. I podcast! Game Mess Decides, Last of the Nintendogs, 90s Disney. I like Arby's and Mega Man. giantbomb.com/join profile pic by @mleelunsford.com
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Jason Wood @saintdoodle.bsky.social Just a guy, a geek, a nerd, trying to survive [gestures widely] all this, while trying to be a good husband, stepdad and cat dad.
@beyondchaz.bsky.social @beyondchaz.bsky.social Blue-state girl, cares about social fairness, environmental protection, and the little joys in life.
Picard online, his face palmed @archispite.bsky.social Spite house architect (no, seriously). Disabled and bedbound; surviving severe stage ME/CFS, and all the super-fun comorbidities </s> that came with it, since 2021
The internet was a mistake
Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Dave Ghoul @daveghoul.com Philly based Artist, DJ, Streamer
Disabled (Dercum, Long Covid, MCAS, POTS)
he/him | no ai
Art + Store - https://decwrk.com
DJ Info - https://daveghoul.com
DJ Streams- https://twitch.tv/daveghoul
Will Judd 威廉 @wsjudd.bsky.social Website Editor - Digital Foundry, formerly at Eurogamer and IGN. Email will.judd@digitalfoundry.net. I still have way too many keyboards with lights on and mice with holes in. Tweets to retailers may contain affiliate links to financially support our work.
Thomas Morgan @cataferal.bsky.social Video person and writer for Digital Foundry. Musings on films and cats represent only mine.
Oliver Mackenzie @oliemack.bsky.social Video producer/writer, contributor at Digital Foundry. Past work at various news companies and nonprofits.
John Linneman @dark1x.bsky.social Video Editor + Senior Staff Writer for
Digital Foundry and creator of DF Retro! Open to contract work!
日本語OK
Digital Foundry @digitalfoundry.bsky.social Charting the state of the art in gaming tech | Please consider supporting our Patreon: http://bit.ly/39jltgA | Commercial enquiries: business@digitalfoundry.net
Alex Battaglia @dachsjaeger.bsky.social Ray Tracing Radical, Turok Technophile, Crysis Cultist, Motion Blur Menace and PC Police Officer for @Digitalfoundry. Wird auch Hermann genannt.
Sarah @sarahnz.bsky.social Post grad student, (former but no doubt I'll be back) teacher, parent
Suzanne Asher @sashduck.bsky.social Borderlands - Language - Books - Grains - Fabrics - Trees - Snow - the Work of Life
Stacy @stacysp.bsky.social Former healthcare worker #MECFS #FM
Charles Turner @kafkaboots.bsky.social
Gary Robinson @lessorfewer.bsky.social PhD geography: money & finance • Life mostly on hold from Long Covid 03/2021 • 개리말고 가리
________________
🇮🇪 | https://linktr.ee/g_a_r_y
@caeruleasong.bsky.social @caeruleasong.bsky.social Hiking, conservation, music, public health, dance, gardening, theater, books, social justice, visual arts, history, and whatever else strikes my fancy. And cats. Never forget the cats.
Liz Ellis (She/Her) 🏴 @lizellisphd.bsky.social New Scot. Opinionated & sweary af. Rural sociology and health with a side order of coproduction and weird recipes. Living with Long Covid.
Racists, TERFs, misogynists, and fascists blocked.
Tom Molmans, MD @molbaas.bsky.social Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
heather gm (she/her) @heathergm.bsky.social Nonprofit design and interenet stuffs for work, cats and cooking for home, politics and anti-racism for making a better world and fighting fascists. Chronic illness & COVID safety concerned.
Rarely post but reskeet lots of smart folks I follow.
David Allsopp @doublehelix.bsky.social Scientist turned software engineer. He/him
🏹 Field archery 🐀 Rats 😷 COVID cautious 🏃 Parkrun
https://medium.com/@davidallsopp
@doublehelix@mastodon.social
Elana Levin @levin.bsky.social (They) Digital & narrative trainings.
Host of Graphic Policy Radio: a podcast on genre media & movements for social change. 🤘🏻 🏳️🌈 🖖🏻 Public Health, unions, NYC, comic books, music history & DS9. #CountryRockSunday https://graphicpolicy.com/radio/
symptomodyssee @symptomodyssee.bsky.social Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern.
"Das ist nur Stress" ist keine Diagnose.
symptomodyssee@chaos.social
@franziwe.bsky.social @franziwe.bsky.social
Destiny Sugarbuns @destinysugarbuns.bsky.social She/her. Sex worker, historian, writer.
<a href="https://www.niteflirt.com/listings/13604712/call_now">Call Now</a>
Profile ID: Photo of path between trees and flowers & text reading, "We are the wayside / community is a journey."
Wendy Belluomini @belluomini.bsky.social Full stack computer scientist, IBM VP, Silicon Valley native, #zerocovid #CovidIsNotOver
Heidrun Wiesenmüller @hwiesenmueller.bsky.social She/her, Librarian and Professor, Libraries and Digital Information at Stuttgart Media University. Cataloging, Indexing. Also things historical, animals. Tweets in German and English
#CovidIsNotOver #MaskUp- F Rick Ford @fordski.bsky.social Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
Dwight Williams 🇨🇦 @dewline.bsky.social Writer/artist/office worker; openly meddling 🇨🇦; nerd re: superheroes + starships; autistic. He/him/il; Do say "Hi!" (💉 x10) + 😷=Peace of mind!
Ottawa/Adàwe/Odàwàng, Canada
https://web.ncf.ca/ad696/
@tuffrings.bsky.social @tuffrings.bsky.social AuDHD, interested in Covid, volcanoes, photography. He/they.
Cassandra Panda @redapanda.bsky.social Non-fiction reader hoping for a better ending.
elgoose @elgoose.bsky.social I read a lot. Goal in life: to be a brain in a jar. Not quite there yet.
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Heike @heikewigr.bsky.social One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Sebastiaan Deetman @lymecfs.bsky.social Down with chronic Lyme disease, Long Covid, ME/CFS and POTS. Researcher in Environmental Sciences, Industrial Ecologist, Born at 348 ppm.
patientledhypothesis.github.io
Monika FBPE @monika-uk.bsky.social No 1 cause of premature death is inequality, no 2 - survivor bias.
Sars-CoV-2 aware
Surviving with LC
Thriving on music and kindness
More info in pinned posts
@michaeleaves.bsky.social @michaeleaves.bsky.social
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Joanna Redfeather @joannaredfeather.eurosky.social MSc Data Science student. BSc Hons Zoology grad.
Interests: Behavioural ecology, rewilding, HORSES! 🐴, communication, data, coding, ML, EDI&A 🏳️🌈. Ex tech SEO & analytics.
Kindness. Hope > hate 💚
AuDHD. #pwME. UK 🇬🇧
Lacinda @lacindahummel.bsky.social Chicago parent interested in local and international human rights, chronic illness treatment, and social justice. I like board games, beautiful outdoor spaces, and speculative fiction.
*my icon is a photo of green leafy branches against a blue sky
christina4hope @christina4hope.bsky.social 👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German.
Bavaria ,Germany
Mandy @mandylifeboats.bsky.social Happily married, cat loving Londoner. Leftie, activist, journalist (sub) but ME shrank my world … now housebound but still smiling. Mostly!
#pwME #ChronicIllness #ME/cfs #Spoonie #ChronicPain #cats #CatsOfBlueSky #DadJokes #BeKind
Precedent Journal @readprecedent.bsky.social The declared system and the operating system are never the same. Power lives in the gap between them. The person who can read that gap holds the position everyone else is still arguing about. Subscribe to https://readprecedent.substack.com/ to support.
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Ré Gwaltney (she/they) ♿📝 @regwaltney.bsky.social Everything writing. Tarot witch. Disabled and powerful. NO AI
Pronounced 'Ray'.
Chris Scullion @scully1888.bsky.social Deputy Editor, VGC. Writer of video game encyclopedias. Professional games journalist for 20 years. Formerly of Official Nintendo Magazine and CVG. Tired Old Hack. Celtic supporter. Scottish. Dad joke aficionado. LGBTQ+ ally
VGC @videogameschronicle.com First for video game news.
Patreon: patreon.com/VideoGamesChronicle | YouTube: https://www.youtube.com/c/VGC1981 | Podcast: lnk.to/VGC
Matt Reeves @mattreevesla.bsky.social filmmaker http://sixth-and-idaho.com
twitter.com/mattreevesLA
instagram.com/mattreevesLA
Dar @darnitanywho.bsky.social Still masking.
ME/CFS = I can't afford to get c0v*d
la flaneuse 😷 @laflaneuse.bsky.social MSP from KCMO. She/her/they. Abolish ICE. Cities, transportation, books, WNBA (go Lynx!), still masking bc Covid never went away and it’s not a cold. @lalaflaneuse on IG
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
Esther @dungeonminister.bsky.social Minister, chaplain, organizer, artist. Founder @numinousprod.bsky.social, DS9 fan. ♿️🏳️⚧️🏳️🌈. #pwME. Anti-Zionist Jew. Free Palestine. zhe/she.
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Carol Ivanić @mayfieldpath.bsky.social Oakland native. Gramma.
Obsessions: History, baseball, music, books.
Work: neuroscience and trauma recovery.
Living with MCAS
she/her/hers
Allison 🌱 🌺 🌞 @allisonzee.bsky.social I'm ready to dance (& deadlift) at the revolution. COVID cautious out of love & humanity (& because I have Long Covid). A better world is possible. If you report accounts from Gaza residents desperate for help, unfollow me. She/her.
carapace shell @carapaceshell.bsky.social failed librarian, archivist, celticist, medievalist, and linguist; long covid and m.e. enjoyer
somewhere near tacoma
fix your hearts or die
pfp: skeleton cradling flower (hugo simberg's garden of death)
banner: siamese cat tucked into bed watching tv
Kevin Gallant @kevin-gallant.bsky.social Canadian
Author of Beyond the Mark: Ashes of the Hero. 🗡🛡🔮✨️🧙♂️
https://www.kobo.com/us/en/ebook/beyond-the-mark
https://www.amazon.com/dp/B0DM96B5J9
Singer for Violet Outburst 🎸🎤
https://open.spotify.com/artist/0Vf4w9Ze38rLniADBEGKSp?si=AcWduGX
Pittsburgh Steelers @pittsburghsteeler.bsky.social HereWeGo
@penguinsjesus.bsky.social @penguinsjesus.bsky.social
PensGear @pensgear.com The on location and online retailer of the Pittsburgh Penguins Hockey Club. #LetsGoPens 🏒
Corine Witvliet @corwit74.eurosky.social Biomedicus, natuurliefhebber 🌳 en dierenvriend 🐈.
Ik houd van cijfers 🧮. Long Covid sinds 2020.
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Terresa Graham 🍁 @tealmusing.bsky.social Quietly proud 🇨🇦, mil-spouse (ret), mom, grandma. She/her. Medically-retired paralegal & #pwME. Passions: #history, #geneticgenealogy, #containergardening, #indoorplants, #rvlife, #startrek. Don't mind me; I'm just wandering.
Nina Hatfield @ninahatfield.bsky.social she/her, Writer, Learner, Mythologist, chronically ill with #MECFS
I host community peer groups www.co-resting.org
#PWME #Mythology #MyalgicEncephalomyelitis #ChronicFatigue #CFS #Resting #CoResting #Pacing #PEM #MCAS #NEISvoid
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
The American Association of Immunologists @aai.org AAI is a professional association dedicated to advancing knowledge within immunology and related disciplines, fostering the interchange of ideas and information among scientists, and promoting a better understanding of the field.
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
RikkaPik @rikkapik.bsky.social Suffering from ME/CFS, turning to art to keep (almost) sane. PTSD survior, broken brain lefty and demiace Gen X.
Some stuff:https://www.deviantart.com/rikkapik
Kevin Allen @concussed1.bsky.social Dad. Terrible painter, former food microbiology professor (UBC) now living with ME incurred from an mTBI.
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
A Jelly Squishes Slowly By @ubiquisquish.bsky.social Jellyfish lurker queen
chronic illness
random yelling
Barb @runningfutility.bsky.social Music. Hiking. Cats. Dogs. Books. News. Science. Introvert. Clinical Researcher.
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Maria Sale @mariasale8.bsky.social Owned by a cat. Refugee from the hell place. ME/CFS for 34 years and counting. "Anti-recovery activist" ( some chance!) Boring.
Jo @sepfieldpatient.bsky.social Chronically ill (CVID, adrenal insufficiency, autoimmune diseases, and the rest), sometimes a maker of things…
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
Zohran Kwame Mamdani @zohrankmamdani.bsky.social Mayor of New York City
Fiona C @drfionac.bsky.social #PwME #Music #Crochet #PersonalGrowth #MECFS #DignityRespectCivility
Katharine Cheston @kacheston.bsky.social Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology.
Paul Keeble ME/LC @paulkeeble.co.uk ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
@kittywhisperer.bsky.social @kittywhisperer.bsky.social Cat whisperer. Vaccine injured but 💯 pro-vax. Long Vax is akin to Long Covid. Please mask up and get your jabs, this sh*t is beyond awful.
#Dysautonomia #PACVS #LongVax #LongCovid #POTS #MCAS #PEM #CTE #CovidCautious #Novid #StillMasking
@wamesmecfs.bsky.social @wamesmecfs.bsky.social
Emily Mendenhall @emendenhall.bsky.social Editor-in-Chief of Science Politics, Anthropologist and Professor, Director of STIA, Author of Invisible Illness, Guggenheim Fellow
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu