Impact Global Health @impactglobalhealth.bsky.social We are a not-for-profit research and policy organisation renowned for our G-FINDER project. We offer gold-standard funding & pipeline data and provide advice & tools to make decisions on global health R&D.
Visit impactglobalhealth.org for all our insights
AVAC @avac.org Proven strategies for today and research for tomorrow. A global source for updates, advocacy and information on HIV prevention. More at AVAC.org. 
Scott Waldman @scottpwaldman.bsky.social White House energy reporter for POLITICO
swaldman@politico.com
Signal: @waldman.04
Kara Wada MD FAAAAI, DiplABLM @immuneconfidentmd.bsky.social 4x boarded immune system 🕵️
Sjögren’s & dysautonomia patient
Midwest Mom 👧🏻👧🏻👦🏻
Elder millennial, recovering people-pleaser, low-key rebel
Telehealth 🔜
Kate's Health Log @healthlog.kateviolette.com A "director's cut" of @kateviolette.com 's medical journey: not just what treatments they're trying but why, and how they make medical decisions generally. Also various educational bits!
📋 Lyme (+ bartonella & babesia), MCAS, ME/CFS, and mold toxicity
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
Ilko-Sascha Kowalczuk @ilkokowalczuk.bsky.social Wollte immer Historiker werden, ich arbeite dran:"Seltsam,im Nebel zu wandern!/Leben ist Einsamsein."
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
Colleen Steckel @colleensteckel.bsky.social Advocate for #MyalgicEncephalomyelitis using ME-ICC.
Contracted ME in 1989
Substack: https://colleensteckelmeiccinfo.substack.com/
Volunteer at www.MEadvocacy.org
Aspiring writer of paranormal fiction
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Juli Maëlle @julimaelle.bsky.social Ex-Fotografin 📸 & Musikerin 🎶,
jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie.
Leidenschaft still on.
#noAfD #wirsindmehr
Violet 𓆉 @violetta.bsky.social New main account:
@violet.eurosky.social
#PwME #MEcfs #PoTS #CPTSD
#MCAS #SFN #FQtoxicity
#CR41W
#IchBinArmutsbetroffen
Wishlists: https://paths.to/VioletsWishlists
German/English
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
symptomodyssee @symptomodyssee.bsky.social Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern.
"Das ist nur Stress" ist keine Diagnose.
symptomodyssee@chaos.social
Djesus @djesusuncr0ssed.bsky.social Sie kennen mich nicht, aber ich bin müde…
CaliforniaHeartBavariaHome @lgoshen.bsky.social Here mainly for evidence-based discussion of public health and the climate crisis.
#TeamWissenschaft
#ProtectTheKids
#MaskUp
Posts in German and English
she/her
@lgoshen@mastodon.social
O. Johnstoni alias einfach_machen3 @ojohnstoni.bsky.social Psychology, research, mother of three, fighting for my husband with #LongCovid, disillusioned yet cheerful, haven't lost humour #MECFS #maskup #ParentsForFuture
Simon Gehren #LongCovidAlly #LowCovid (@CoronaZeroCH on Twitter) @simongehren.bsky.social Advocating to #PreventLongCovid, through a smart scientific strategy: Honest risk education, good masks, mucosal vax, PlusLife, air filters.
#MEAlly / #TreatLongCovid/ME💛.
Swiss lawyer & strategic advisor for NGOs.
https://twitter.com/CoronaZeroCH
Sandra 👩🏻🔬👩🏻🏫 @rsandra266.bsky.social M.Sc.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | life pauses due to #LongCovid #MECFS #PEM #MCAS #SFN
| team member of @Not_Recovered
Heike @heikewigr.bsky.social One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
Bettina Semolina @bettinasemolina.bsky.social #mecfs
(sie/ihr)
"Es ist hoffnungslos, aussichtslos und ermüdend, aber noch schlimmer wäre es, wenn wir aufgeben würden."
Profilbild: Ölbild einer liegenden Person vor einem Teich
Header: Ausschnitt einer Person, die ein Fadenspiel vor sich hält
Anne @annekhlr.bsky.social 42-jährige Münchnerin mit #MEcfs nach einer Corona-Infektion im April 2022, die Hörbücher 📚, Podcasts 🎙️ und die #kleineKunstklasse 🎨 mag.
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
💙 = ME/CFS solidarity
#noAfD
MEnsch @momof2andahalf.bsky.social Mom of 👧🏼👧🏽 and a Bonus 🧒🏼
#PostCovid #POTS #MECFS since
Juli ‘22
#Schattenfamilie
Collecting Information about Postcovid + ME/CFS - bc I had to become my own doctor.
@pehpunkt.bsky.social @pehpunkt.bsky.social ich bin krank. jeden tag. das ist keine metapher.
#jederTagMECFS
🔴🔴 Eine kämpfende Mama mit schwer krankem Kind 🔴🔴 @arizona10238417.bsky.social #MECFS #LongCovidKids
Wir fordern mobile Ärzte/Telemedizin mit Wissen von M-Schwabing/ Charite
Träumen von einer Grundversorgung für schwerstkranke Menschen 
MEFreake @mefreake.bsky.social #MECFS #PostCovid seit 2021,
selten👩🏻🦼, meist 🛌
Früher Gesundheitswesen/Wissenschaft.
ME/CFS ist somatisch.
Jennifer Brea @jenbrea.bsky.social 
Jurika82 pflanzt Bäume für Aufklärung über ME/CFS @jurika82.bsky.social Meine Forderung: Aufklärung, Anerkennung, Forschung und Unterstützung für Betroffene von #MECFS #LongCovid und des viel selteneren #PAVCS
https://gofund.me/80e5c7f7 für Aufklärung über #MECFS vor Ort
Dadlani @dadlani.bsky.social just arrived
#LongCovidAwareness
#BildungAberSicher
#BringBackMasks
#DavosStandard
#SolidarityWithUkraine
#CleanIndoorAir
so far covid-free,
born 319ppm
Raoul Schendel @raoullucas.bsky.social 27 I ME/CFS seit 2021 I WING Universität Augsburg I DE II EN
https://www.mecfs.de/was-ist-me-cfs/
Yvi MECFS-fighter @yvonneschulzmecfs.bsky.social An #MECFS erkrankte EX- Feuerwehrfrau 👩🚒 & Mutter von 3 großen Kindern, 🫶🏽 Tiere
#wirsindmehr #wirsindbunt #fckNZS
#TeamWissenschaft💉💉💉💉
Ulrike1985 @ulrike1985.bsky.social Aus gesundheitlichen Gründen vom Leben suspendiert: Long-Covid!
fight for our right since 2021
Stay with ME/CFS, Post-Vac!
Specialist in health and social
#AfDnee
SPD AG Selbst Aktiv Hessen Süd #WiesbadenerErklärung
MariaStein @steineundbasalt.bsky.social #MEcfs #LongCovid seit 12/21 durch Omicron
Für #Prävention und #DieMaskeBleibtAuf
Ich mag Steine.
#MECFS Astrid ♿ @infinyti.bsky.social 7 x 💉 - 2 x 🦠 - Teeniemutter - 🐈🐈🐈- Schwäbin in NS - HSP -
23 Jahre #MECFS 😷 -
#IBA #TeamVorsicht #TeamWissenschaft
https://paypal.me/AstridWerner
Oliver Striebling ♿️ @ostriebling.bsky.social #MECFS seit 2017 - Bell 20-30
Ulli Brand @brandgefaehrlich.bsky.social #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS etc.
Durch Reha in die schwere Krankheit gefoltert und nicht mehr herausgeholt worden.
chronisch- progredienter Verlauf. severe-very severe
Chrissie P @chrissiep.bsky.social Dog-, Book, Sea-, Camping-, Music-, Yoga-, Nature-, Espresso-Lover. #Booktober #Yoga #Poetry
#ProtectTheKids (Schweiz) @protect-the-kids.ch #TeamScience | Gesundheitsschutz für Schulen und Kindergärten | Aufklärung über Atemaerosole, COVID-19 und Risiken von Langzeit- und Spätfolgen | #VaccinesPlus: Reduktion der Gesundheitsrisiken durch rechtzeitige Impfung und Verbesserung der Luftqualität.
Bayou Mystère @bayoumystere.bsky.social 🦇Undead undead undead 🦇
Ex-burlesquer
Queen of Wortwiederholungen
I got #MECFS & a rock n’ roll heart, ADHD too
🖤🩶🤍💜
Judyintheskynet @judyintheskynet.bsky.social Neo-artist & ex researcher with severe #MECFS, very severe #MCAS, #CSFleak & more. Co-founder of blackferkstudio.com (art & science for ME/CFS). 💘 for piglets. PhD in social sciences. 🇦🇹. Insta & Masto: judyintheskynet
https://linktr.ee/Judyintheskynet
Max Wassermann @maxwassermann.bsky.social 20+ || life paused due to #MECFS since 2013 || likes cats, video games and good bad movies || member of saME
Golightly @holdgolightly.bsky.social Früher Künstlerin, Textildesignerin, Reisende.
Eine von #MillionsMissing seit ca. 1987
̷L̷o̷r̷e̷n̷z̷ ̷ @restthingever.bsky.social formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 50.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Lisdexamfetimon @5tertimo.bsky.social Studiert Theatertechnik, mag Medizin. Berlin.
LightUpTheNight4ME @lightupthenight4me.bsky.social Offizieller Account
ME/CFS Awareness, Aufklärung und ein bisschen mehr
https://lightupthenight4me.wixsite.com/website 
Sandra _mecfs_since1987 @pociomo.bsky.social
#severemecfs #mecfs
nicht du @pissinpants.bsky.social #Forschung #wissenistmacht #postcovid
ME/CFS-Netzwerk Baden-Württemberg @mecfsbw.bsky.social Das ME/CFS-Netzwerk Baden-Württemberg gründete sich im April 2022 und engagiert sich seitdem für die Wahrnehmung von ME/CFS
https://mecfs-freiburg.de/
Uschi Hahn @uno2608.bsky.social Fluorchinolon geschädigt #FQAD #FQtoxicity
Vorsicht bei Antibiotika deren Wirkstoffe auf -floxacin enden! Es gibt fast immer Alternativen.
Gegen Hass und Hetze, mag Natur, Fotografie und tolerante Menschen. #NieWiederIstJetzt
losronjos @losronjos.bsky.social Ronja she/her
#mecfs
MightyMermaid @mightymermaid87.bsky.social M.A. Early Childhood Education // #MECFS #SFN #Hashimoto #ChronicPain #fundraisingbc007MEcfs #MEawarenessHour #Kinderschutz // MightyMermaid87 @ web.de (she/her)
PostX @postx.bsky.social Co-Founder Unitetofight2024, Pharmacist, Long Hauler since 2020
Harry van Gerven @drenrettiwt.bsky.social Born @ 335.42 ppm CO2 #LongCovid since april 2020.
@lisazett.bsky.social @lisazett.bsky.social 
FrauXausNRW @frauxausnrw.bsky.social MomOf2 mit #LongCovid since 08.22 #noafd #noCovid #UniteToFight2024
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Beth Morton @migrainechat.bsky.social Education researcher turned migraine advocate
#MigraineChat moderator
VT maple syrup aficionado
🚫 Unsolicited advice
She/Her/Dr (PhD kind)
Header: Dinosaurcouch
MigraineChat Resources & Discord:
https://campsite.bio/migrainechat
MC feed/starter pack👇🏻
Kelly Meiners PT, PhD @kellymeiners.bsky.social Former professor and physical therapist/ athletic trainer disabled by Long COVID since 2021. #LongCOVID #POTS #MECFS
KöniginErl @koniginerl.bsky.social #MECFS seit 25 Jahren 🦽 statt 🏍,#Longcovid, #Postcovid MECFS ist somatisch,Humanoides Oxymoron 🖤->einmal Grufti immer Grufti(fast nur noch im 🖤)#noAFD#FQToxicity #ArmutAbschaffen,Armutsbetroffen, suchte den Stein der Weisen+fand den Fels der Narren
Chris | ME/CFS Research Foundation @ungenesbar.bsky.social LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Mein Name ist M… TM. @bremen.bsky.social Pro Wissenschaft. Contra Schwurbel.
🔗 www.mecfs-assistenzhund.de 🐕🦺
#TeamWissenschaft #TeamVorsicht #CovidIsntOver #DieMaskeBleibtAuf #MECFS #NichtMeinKanzler
Reiselustig 🌎 und entdeckungshungrig 🔍. (Normalerweise… 🙄)
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Laura Miers @lauramiers.bsky.social Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
Maike Osborne @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Penncat @pennicat.bsky.social Shy, disabled, queer, autistic.
Requires alt text to follow you.
Writer of contemporary m/m/m and lesbian historical novels.
Book related stuff found mostly at @penthewriter.bsky.social
Cornwall dweller.
May actually be the cat in the picture
Daniela Dirlenbach immer noch Urlaubsreif @urlaubsreif.bsky.social Liebe meine Familie & Potenzial in Menschen zu entfalten.
Mitglied des Löwinnenrudels,
Aktiv für Sichtbarkeit, Unterstützung und Aufklärung
#PostCovidKids & #ME/CFS ❤️-Mensch
#Schattenfamilie #NoAFD
www.daniela-dirlenbach.de
Waldmeer @waldmeer.eurosky.social ME/CFS | Medizin | Wissenschaft
Website: https://bit.ly/waldmeer
Auch unter: @waldpol.eurosky.social
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Dr. Ashley | Panicked Foodie @panickedfoodie.bsky.social Scientist | Cornell Alum | Bedridden | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #HeatTransfer #CovidIsAirborne
Living Kidney Donor
TikTok, YT: The Panicked Diaries
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs
Nate Bear @natebear1.bsky.social Ecology, tech, empire, public health, other stuff.
About me and where I write about these things:
http://donotpanic.news
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
@ramyisback1989.bsky.social @ramyisback1989.bsky.social Long covid and mecfs warrior
Meighan Stone @meighanstone.bsky.social Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿ 
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Courtney Baker @cbakerls.bsky.social Educator. Athlete. Lifelong learner. Auntie supreme. #LongCovid advocate. Bluesky newbie. Currently in an LTR with Los Angeles… but it’s complicated.
Running 100 miles ain’t nothing compared to living with Long Covid.
FunkisHen @funkishen.bsky.social Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, AuDHD, lives in the forest.
Gender neutral pronouns preferred.
Trying to be kind.
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
Karen Hargrave @karenlhargrave.bsky.social Co-founder ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Anne Vroegindeweij @thisistheillme.bsky.social 🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Weibsbild @weibsbild.eurosky.social WasmitMenschen. Ostgewächs. Darss-Fan. Nordlicht. Intro. Single. she/her. PlaylistCoHörende von #DerVolljährige. BGE. Ex-Chorsängerin. Online seit CI$ 1995. Folgen≠mögen. #TeamVernunft. #TeamScience. Mildes #MEcfs seit 08/2022. Manchmal geht nur🫂 oder 🫶.
M͓̽e͓̽c͓̽k͓̽e͓̽r͓̽ₘᵤₜₜᵢ 🌧 @meckermutti.bsky.social Neurologisch in wechselhaftem Zustand 👉 Hier werden
° Wechsstaben verbuchselt,
° Worte flasch geschrieben
° und dings... 🤯
#MECFS #Postcovid - Erkrankte.
My music: https://youtube.com/@chilumination?si=GRdauR3MZM_ul9JY
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Simone @phoenixme.bsky.social Bed-bound activist with severe ME/CFS.
ME/CFS, chronic illness, #AusPol, #USPol, climate justice, social justice, crochet, cats, sci fi. Views expressed are my own.
If I had any spoons, I'd be dangerous.
Boonwurrung country, Australia
Chantzy @chantzy.bsky.social Science communicator & writer ✍🏼 🧬
MSc epidemiology grad student @ LSHTM
Activist
📍Vancouver, BC
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
MaryGR65 @marygr65.bsky.social
Retired RN & Qualified Social Worker. #LongCovid since March 2020 Advocate
FBLC
Adult son, 3 grandchildren and 4 cats
A bit preoccupied after serious house fire on 15/10/24, living in temporary accommodation while they rebuild
https://gofund.me/99cc079b
Sarah Weston RD @sarahwestonrd.bsky.social Dietitian, #LongCovid since Jan 21 #dysautonomia, #patientexperience, lover of languages, all things #textile & costume.
Member research team @long_covid🧮 🩻 Trustee @healthedtrust 🍴🍲🍐🌍
Facilitator PACE program 👣🫂🌈
Ona Albizu - PhD MSc BD @onaalbizu.bsky.social Empowering persons w Myalgic Encephalomyelitis. 35y w/ME
Colab at ONG PEM Spain, ME-International.org, EMEA
ICPrimer our best tool.
#UniteToFight2024
Empoderando a #pcME. El Manual-CI nuestra mejor herramienta.
Informando ME, MCAS, ANPE, LC
Lygia Navarro (she/ella) ♿️ + 🏳️🌈 💜 🏳️⚧️ @lygianavarro.com indie journalist
Signal: Lygia.65
(editor, producer, en ES & EN)
cover: Latine, LGBTQ+, health stories +more #DisabilityJustice.
disabled. queer. #LongCovid + #ME.
lygianavarro.com
contributing writer @discojourno.bsky.social & @thesicktimes.bsky.social
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
🐾Kitty.P.🐾☀️ @skittlydoo.bsky.social 🇬🇧 Love animals and travel. Take photos of everything I see just for fun 📸. I also love cake 🍰and wine🍷 o and sleeping 😴
Jo Summers (@joissummer from Twitter) @joissummers.bsky.social Setting this up as I gradually move over from the bird place. ‘X’ since Musk is a bit like the UK post Brexit. Lovely to see some familiar faces and look forward to getting to know new ones. Post mainly about politics and covid.
#FBPE #FBLC #PWLC
Kate Sattler | Sweet Freeze @katesattler.bsky.social Enthusiastic. Makes lonely music.
https://sweetfreeze.bandcamp.com/
she/her 😷 mpls > pdx
Edna, ME Advocate & Carer 💙 @ednamacnamara.bsky.social 💙 M.E.Carer of son aged 32, ME for 13yrs 💙.
RaisingAwareness for
#PwME.
#Carers
#LCovid
#greatestMEdicalscandal
X Edna, M.E.Advocate 🇨🇮
https://www.irishexaminer.com/news/arid-40218716.html
http://www.idonate.ie/aMothersWalkforMECFSresearch