April Smith | The Thriving Spoonie @thethrivingspoonie.com Sharing practical tools and real talk about adapting to chronic illness. Building community along the way. 👉 Learn more at www.thethrivingspoonie.com
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Empty Stands @emptystands.me ⚽️ Fußballfans mit ME/CFS & Long COVID
🪧 Für mehr Aufmerksamkeit & Forschung
🖇️Linktree 👇🏼
https://emptystands.me/links/
Lingonaut @lingonaut.bsky.social A volunteer made language learning platform built to teach and not to profit.
No ads, no subscriptions and no timers!
🔗 https://linktr.ee/Lingonaut
Krishnan Guru-Murthy @krishgm.bsky.social Channel 4 News, Unreported World, Ways to Change the World, The Fourcast, Class of 2023 on Strictly
Also Chairman of Duchenne UK
@JohnVsJonVsME @johnvsjonvsme.bsky.social #JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com
Libro.fm @libro.fm 🎧 The audiobook company that shares profits with independent bookshops
💗 Certified B Corp
🔗 Shop, sign up, find bookshops, & more: www.libro.fm
DC Rainmaker @dcrainmaker.com I write about sports tech and endurance sports. I also put together some pretty detailed product reviews along the way...stop by the site to check it out. Once DC, then Paris, Amsterdam, and now Mallorca.
Http://www.dcrainmaker.com
Biketerra @biketerra.com Web-based 3D virtual cycling app. Group rides, races, workouts, and ride your own uploaded routes
https://biketerra.com
Putrino Lab @putrinolab.bsky.social 
Jo Platt MP @joplatt.bsky.social Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Emily Mullin @emilymullin.bsky.social Staff writer @wired.com covering health+biotech
https://www.wired.com/author/emily-mullin/
emily_mullin@wired.com
emullin.06 on Signal
Hannah Buttle @han-written.bsky.social freelance journalist 
Daniel Pacey @jdanielp.bsky.social Creator of online learning materials. Interests include cats, cinema, cycling, film-making, gaming, motorsport, sustainability etc. Green. Lives in Edinburgh. https://linktr.ee/jdanielp
Scholar @scholaruk.bsky.social Impactful online learning and teaching https://linktr.ee/scholaruk
Salvatore Mattera @salvmattera.bsky.social Help people with Long COVID by posting a review of your doctor or a treatment you've tried: http://HelpForLongCOVID.com - All opinions my own.
Dr. Amy, PsyD @dramypsyd.rmh-therapy.com Psychologist, author, speaker. ADHD, autism, trauma. #ActuallyADHD, #ActuallyAutistic. Also cats. I like to think I'm funny. She/her
Best friend of @cmiriam.bsky.social
www.resiliencymentalhealth.com
Elizabeth @eac31.bsky.social Mom of 2 kids 💜 and 2 cats 🐈⬛ in the Philly suburbs, Doctor of Physical Therapy, left leaning, pagan curious, lover of science, history, reading, learning new things, emo kid at heart 🖤
Elly Brosius, MS @ellybrosius.bsky.social Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Carol Stevens @carolstevens.bsky.social Wife, Mom, Nanny. Proud to live in the maritime province of New Brunswick. Life altered by ME/CFS. Gobsmacked by US election results. Concerned the MAGA trend is growing in Canada too. #IStandWithCarney
Kitten Whisperer @benjaminbooks.bsky.social | ME/CFS-hater | poet | mage | ttrpg designer | fka Stinger | lover of handwritten letters | advocate for essais | ungrading professor | kitten connoisseur 😺 | he/him |
Kevin Hall @kevinh-phd.bsky.social Nutrition, metabolism & obesity scientist. KevinHallPhd.com
Ronald Fowle-Grider @nightscientist.bsky.social Postdoctoral fellow in the Gary Patti lab.
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Theo @t3.gg Full time CEO & YouTuber. Also an investor and developer. More info at t3.gg
Fell Running Guide @fellrunningguide.bsky.social Dave Taylor, UK Athletics Fell & Mountain Running coach providing specialist training for trail, fell and mountain runners.
Sub 24hr Paddy Buckley, Charlie Ramsay and Bob Graham rounds.
Also - camping, mountains, nature.
https://fellrunningguide.co.uk
John Muir @johnamuir.bsky.social Retired exercise scientist, welfare and public health worker. Primary focus - rehabilitation & sport science/medicine.
Kevin Brackley @kbrackley.bsky.social Long-covid.
Archery.
Hydroponics.
Brain Injury Rehab Support Worker.
Passionate about UFO/UAP disclosure.
Fredericton NB, Toronto ON 🇨🇦
Still masking 😷
Ditch your lawn for wildflowers.
Adrienne Asher @asheradrienne.bsky.social poet, artist, #longcovid since 2020
swears a lot since the election
Alastair Lawless @alastairlawless.bsky.social Chronically fatigued quondam actor, milonguero, law reformer. SVQ in furniture-making. Will answer to “Hi!” or to any loud cry.
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Melissa @melissabreen.bsky.social writer | aspiring screenwriter | editor | saoirse don Phalaistíne | sí/í
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Laura Weiss @lauralew105.bsky.social Writer covering social issues especially health justice, disability, immigration & labor mostly for Prism Reports and New Republic. Editor at IndyKids. Forever NACLA. I also have a TV newsletter and beloved cat. She/her. Website: Lauraweiss.me
Daisy @suffolksky.bsky.social Severe M.E. for over 20 years.
Just getting through the day.
Living in Suffolk.
Hannah Anstee @hannahanstee.bsky.social Writer & Business Coach for #Neurodivergent Women. *Your brain isn't typical so why should your business be?* AuDHD. Yorkshire. Love hiking, trees, psychology, science, mind/body connection, books and solo travel. #ActuallyAutistic
Daniel Moore @talmandaniel.bsky.social Curious & exhausted peace seeker, co-host of Post-Exertional Mayonnaise podcast, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him
Slow Ways @slowwaysuk.bsky.social What if we created the ultimate walking, running, wheeling, cycling and horse-riding network for Britain and Ireland? Up for helping?
linktr.ee/slowwaysuk
www.slowways.org
Led By Donkeys @ledbydonkeys.org Art, Activism and Accountability
https://linktr.ee/ledbydonkeys?utm_source=linktree_admin_share
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Chris Packham @chrisgpackham.bsky.social Broadcaster & environmental campaigner
chrispackh.am/links
Dom @domsalisbury.bsky.social Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Channel 4 News @channel4news.bsky.social Stories that reveal and inspire, challenging expectations.
Weekdays 7-8pm on Channel 4.
Got a story? C4Nstories@itn.co.uk
---
Substack: https://channel4news.substack.com
Website: www.channel4.com/news
YouTube: www.youtube.com/@Channel4News
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Carol Vorderman @carolvorders.bsky.social Hello lovelies. This is my official account.. 💙💙
Glad to be over here from the "other place"😂
It's like breathing clean air again 👍🏼
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Herbert Renz-Polster @renzpolster.bsky.social physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Emilie Combet @emiliecombet.bsky.social Professor of Human Nutrition, University of Glasgow, Scotland, UK | Director, Scottish Alliance for Food | Assoc. for the Study of Obesity (ASO)
Elizabeth @neuroweaveratl.bsky.social GSU • UNG
Chronic Disease Researcher
ME Action • Board Member
#Neuroscience #ChronicIllness
*views my own*
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
ME Physio @mephysio.bsky.social UK 42 year old mum of preteen, had ME since early 20’s and I am a Specialist ME Physiotherapist www.mephysio.org.uk
Full Stack Theory @fullstacktheory.bsky.social Exploring the evolving world of software development—Frontend, Backend, AI/ML, and Software Design and Philosophy. Thoughts on code, architecture, and the philosophy of building modern systems. Currently at a FAANG. Opinions are my own.
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Elena Shekhova @lumipie.com Exploring & visualizing data on nutrition, health, and sustainability: lumipie.com
Interests: biology, charts, science communication, coding, fungi, permaculture, foraging
Previously: University of Copenhagen, MRC for Medical Mycology, Leibniz:HKI
📍🇩🇰
Tina Katsaros @tinakatsaros.bsky.social PhD candidate researching ME/CFS at La Trobe University
📍Melbourne, Australia
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Ben Canham @bencanham.bsky.social Official Account for Ben Canham
| Online Activist | Featured on ITV News
and STV News I love raising awareness
for autism. I love all of my friends.
WIRED @wired.com For Future Reference.
Sign up for our newsletters: https://wrd.cm/newsletters
Find our WIRED journalists here: https://go.bsky.app/Boj9b5E
World Triathlon @worldtriathlon.bsky.social Official account of the international governing body for the Olympic and Paralympic sport of #Triathlon and #Multisport disciplines around the world 🌎
Larry the Cat @number10cat.bsky.social Chief Mouser to the Cabinet Office. 17 year old tabby. Living with my seventh Prime Minister. Unofficial.
https://www.buymeacoffee.com/Number10cat
Susie Dent @susiedentwords.bsky.social Always in the Corner
@the-running-fela.bsky.social @the-running-fela.bsky.social “Someday we’ll look back on this and it will all seem funny” - The Boss
Astronomer Royal for Scotland | Catherine Heymans @astroroyalscot.bsky.social Astronomer Royal for Scotland, Professor of Astrophysics, Edinburgh University. Author of How to Design a Universe. @astronomerroyal on insta (She/her)
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
The Endurance Physio @theendurancephysio.bsky.social Physio | Sports Scientist | Coach | S&C | Podcast host | endurance athlete | Uni Lecturer | Athlete | Dad, specialising in ⬆️ performance & rehab for endurance athletes.🏴