@drjeannem.bsky.social @drjeannem.bsky.social
Ginger Billie @gingerbillie.bsky.social Red head.
Long Covid and ME/CFS since 2022.
Here for learning and talking about Long Covid.
Software engineer.
Julia Métraux @juliametraux.bsky.social Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
Free monthly newsletter: https://bit.ly/4tUXg9r
Alice Wong @sfdirewolf.bsky.social Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
#DisabilityJustice feed I created:
https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho
More about me
https://linktr.ee/disability_visibility
Aaron Teasdale @aaronteasdale.bsky.social Writer, editor, photographer, adventure seeker.
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
COVID Chronicles @covidchronicles.bsky.social Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
Michal Caspi Tal, PhD @immunofever.bsky.social Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford
https://talresearchgroup.mit.edu/
Paul Stavrou 🇺🇸🇬🇷 @paul-stavr0u.bsky.social Writer || Film Maker || Other cool stuff
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Karyn Bishof @kbishof.bsky.social 🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Meighan Stone @meighanstone.bsky.social Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
Ian Goodfellow @ian-goodfellow.bsky.social Research Scientist at DeepMind. Opinions my own. Inventor of GANs. Lead author of http://www.deeplearningbook.org . Founding chairman of www.publichealthactionnetwork.org
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party 💚
#Feminist
Martine Mounier @reverseyourmind.bsky.social #longcovid 1st 🌊
Team zealots 😷
Pro-climate change action 🌳
France📍
Marian @marian.bsky.social Book editor, dream liver (that still doesn’t sound right). Just happy to be a part of it.
Minestrone Monster @minstronemonster.bsky.social Dancing with the devil in the pale moonlight
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Jeff Morgan @jeffmorgan1967.bsky.social Biomedical Engineer; he/him; part-time PhD student; Interested in: neuroscience, TBI, COVID/Long COVID, Von Economo neurons, and climate change.
Rooting for Biden/Harris, Justice, Gun Control, and Equality
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Copper Top @c0ppert0p.bsky.social
Leora Horwitz @leorahorwitzmd.bsky.social Director, Center for Healthcare Innovation and Delivery Science, NYU Langone Health; #NIHRECOVER adult PI; general internist; quality/safety/healthcare delivery; mom of 3 boys. Posts are my own. @medsky.social
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Liv @oliviaaahliv.bsky.social I like posting about TV shows, things I like, and things I hate
Cindy L @cuboidalhug.bsky.social
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Julie for M.E./LC treatment 😷 @dualiejulie.bsky.social In LongCOVID/M.E. hell looking for a way out! First wave Longhauler.
Trying to get my personality back from the disease.
Very cute dog.
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Nick @detsnick.bsky.social Filmmaker • Writer • #MECFS • #LongCovid
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Salvatore Mattera @salvmattera.bsky.social Help people with Long COVID by posting a review of your doctor or a treatment you've tried: http://HelpForLongCOVID.com - All opinions my own.
plague rat 🐀 @grooot.bsky.social federation of plague rats against forced mass infection 🏴🐀🐀🐀
Tristan @tristanveness.bsky.social Proud dad. Fairness/equality. Sarcasm coping mechanism. LC since Mar 22
Serial antiviral and LC treatment self-experimenter
🇵🇸🇵🇸🇵🇸 FREE PALESTINE. END THE HOLOCAUST 🇵🇸🇵🇸🇵🇸
Hate US + Israel murdering 100,000s
Fuck 🔵+🔴 parties. Both are fascist mass murderers
Pam Bishop, PhD @pamelarbishop.bsky.social Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
@anirow.bsky.social @anirow.bsky.social Posts about #LongCovid and #MECFS
C.H. Romatowski @romatowski.bsky.social Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Putrino Lab @putrinolab.bsky.social
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Daniel Lewis @daniellewis.bsky.social My #LongCovid is mainly #PEM + #POTS + #MCAS
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Sita 💫 @mamasita.bsky.social surviving dystopia | astrology | long covid | cannabis
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Ivan l'Africain @alterivan1.bsky.social Linguistics. Design. 🌱Ⓥ 🇷🇪
Interested in #Decolonize #LongCovid #MECFS
He/him
Claudia ✨ @theclaw.bsky.social Now, more: Great value
Fuck Long Covid ❌ @fucklongcovid.com exposed late january 2020, fucked up since march 2020