@sagebird.bsky.social @sagebird.bsky.social Amateur photographer. Hiker. Love the outdoors, animals, gardening, cozy fires. ๐ฅพ๐ฒ๐ฒ๐ชป
Lumia @wearlumia.bsky.social What you feel is real. Lumia tracks blood flow to the head. Designed for #pots #orthostatichypotension #syncope #longcovid #myalgicencephalomyelitis #fainting #dysautonomia #chronicillness Currently for USA, iPhone, and adults 18+ only. www.lumiahealth.com
@jessamyn-ann.bsky.social @jessamyn-ann.bsky.social Nah, Iโm good.
Alt-IRS @alt-irs.altgov.info This is a #AltGov account. Federal employee. Love my job. Ask for help and you shall receive. Read any USPS mail you get from the IRS.
#Resist #spoon ๐ฅ
John Pavlovitz @johnpavlovitz.bsky.social Author, pastor, activist, fighter for the common good.
@jennawhatjennawho.bsky.social @jennawhatjennawho.bsky.social
Fields of Mistria โจ Out now in 1.0 @fieldsofmistria.bsky.social Fields of Mistria is a fantasy farming / life sim RPG ๐ฑ
Download on Steam: http://bit.ly/Mistria
Cohen Center for Recovery from Complex Chronic Illness @coresinai.bsky.social We are a center at Mount Sinai Hospital in NYC, advancing treatment and knowledge of Long COVID, Connective Tissue Disorders, ME/CFS, and Post-Treatment Tick and Vector Borne Illnesses. core.myflodesk.com
Alt CDC (they/them) @altcdc.altgov.info Public health experts resisting harmful policies, fighting disinformation, and defending public health from within.
Not official CDCโbut close enough for transmission.
Proudly #AltGov
Tips? signal altCDC.99, email altCDCtips@proton.me or DM- J JShuey @judithshuey.bsky.social
MECFS Clinic MN @mecfsclinicmn.bsky.social We are a free clinic staffed by all volunteers to treat ME/CFS and Long COVID.
WPCampus @wpcampus.org WPCampus is a non-profit advancing higher ed through WordPress and accessibility, offering resources and networking for faculty, staff, and students. Learn more at WPCampus.org.
Tend and Befriend @txjuju.bsky.social Idler who enjoys a good lollygag
David Troeh @dst1980.bsky.social
The Guardian @theguardian.com The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com
๐บ๐ธ Guardian US https://bsky.app/profile/us.theguardian.com
๐ฆ๐บ Guardian Australia https://bsky.app/profile/australia.theguardian.com
Rinn Liadon @rinnliadon.bsky.social They/Them. ๐๐ค๐ค๐|๐๐๐|๐ณ๏ธโ๐ AuDHD. Nerd. Gamer. Lover of Dungeons & Dragons. Aspiring Writer. Twitch Affiliate Variety Streamer. Business: rinnliadon@gmail.com https://www.twitch.tv/rinnliadon https://www.tiktok.com/@rinnliadon
Trude Schei @tschei.bsky.social ME patient advocate, architect by training- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Naomi Whittingham @naomiwhitt.bsky.social Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Cyrus @cyruxime.bsky.social Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.
Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social Author of "stranger and strangerโ, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Dr. Daniel Loy @drdanielloy.bsky.social Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
Alice Wong @sfdirewolf.bsky.social Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
#DisabilityJustice feed I created:
https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho
More about me
https://linktr.ee/disability_visibility
Fionna OโLeary @fascinatorfun.bsky.social Retired Lawyer, cook, Europhile, books, music, good conversations, gardens, walking. Bird site refugee ๐ฌ๐ง ๐ฎ๐ช
Aris Katzourakis @ariskatzourakis.bsky.social Viruses, Evolution, Education, Trade Unions, things like that. Prof at Uni of Oxford, NEC member for UCU. Posts mine, reposts not.
The Vertlartnic @thev.bsky.social Democracy Drowns In Dankness
Andrew Gwynne @theandrewgwynne.bsky.social Husband | dad | grandad | gardener | VIC-20 & Amiga user | recovering politicoholic | ex Crown Steward & Bailiff of the Manor of Northstead | Charity Trustee
Prof Nisreen Alwan @nisreenalwan.bsky.social ูุณุฑูู ุงูุนููุงู
Pronounced /nisri:n/ with an s not a z and a long ee โบ๏ธ
Professor of Public Health MBE
Southampton
Not afraid of my voice
Still curious
Posting my personal views not those of any organisation
Reposts not necessarily endorsements
๐ ๐งฟ ๐ป
Prof Cath Noakes @cathnoakes.bsky.social Pro Dean Research and Innovation in Engineering and Physical Sciences at Leeds University. Indoor air, ventilation, infection risks, fluid dynamics, academia, EDI in science and a few cats. Views my own. #academicsky
Jessica Wildfire @jessicawildfire.bsky.social Your local Cassandra
https://www.the-sentinel-intelligence.net/
Kelly @broadwaybabyto.bsky.social Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people arenโt expendable. Covid is airborne ๐ท
https://www.disabledginger.com
A redheaded snippet who loves Sondheim. Once fainted into Hugh Jackman.
Dr Satoshi Akima, FRACP @toshiakima.bsky.social Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
Brian Hughes @bmhughes.bsky.social Prof Psych โข Writer โข Galway โข he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
๐ท https://www.photoblogism.net
Layla Moran MP ๐ถ๐๏ธ @laylamoran.bsky.social Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the โother (social) placeโ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
Steve Griffin @profstevegriffin.bsky.social Professor of Cancer Virology, University of Leeds.
Co-Chair, Independent SAGE
Prof Deborah Lupton, MPH PhD @dalupton.bsky.social Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Sociology of health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
Clean Air Stars @cleanairstars.com Non-profit. Helping businesses better protect their customers from viruses like SARS-CoV-2. Fix your air with the guides cleanairstars.com/steps.
Air filter recommendation tool (non-profit) at filters.cleanairstars.com
Dr Kate Cushing @drkatecushing.bsky.social Doctor, scientist, mum, cat slave.
Public Governor Newcastle upon Tyne Hospitals Trust
Long Covid & CCH.
Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU
Wrote Little Orange Book 4 parents of babies & small kids.
Green Party member
Adam Squires @adsquires.bsky.social Biophysical Chemist. Aerosol scientist. Jew. Likes lipids, nano materials, x-ray / neutron scattering, pretentious coffee. (he/him/his). Twitter @adsquires
Barry Hunt @barryhunt008.bsky.social -------------------------------------
๐ The World Needs More Canada ๐
โค๏ธ ๐ช ๐จ๐ฆ
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Sally Doherty @sallywrites.bsky.social MG author: Toby and the Silver Blood Witches, Max and Monty with Collins Primary
Winner of the Book Bloggers' Novel of the Year Award 2022
Owned by three-legged rescue dog
ME/CFS
https://linktr.ee/SallyDoherty
loscharlos @loscharlos.bsky.social ๐๐๐ท #LongCovid March 2020 ๐ตโ๐ซ
Anna Brooks, PhD @drannanz.bsky.social Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
๐ณ๐ฟ๐ฅ๐ฉธ๐งฌ๐งช๐ฌ๐ฉ๐ผโ๐ฌ
Cat in the Hat @catinthehat.bsky.social Mum โข Lover of nature and clean, fresh air โข Passionate about science โข โWithout data, youโre just another person with an opinion.โ
#CleanAirCrew @cleanaircreworg.bsky.social #CleanAirCrew #COVIDisAirborne
Airborne pandemic tips & tools
#COVIDco2 #CorsiRosenthalBox #ClearTheAir
Anna Wood @annakwood.bsky.social Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Julie Houston @julesahouston.bsky.social Body malfunctioning since 1998 #MECFS #PoTS #MCAS #hypermobility & other delights.
I'm a #LongCovid #LongCovidKids and #Pans #Pandas ally. Here to make connections old & new.
#CovidIsNotOver #CleanAirForAll #MasksInHealthcare #GreatestMEdicalScandal
Scribbler Pen @scribblerpen.bsky.social Writer, editor, analyst. Disability employment rights advocate.
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
Sten Helmfrid @stenhelmfrid.bsky.social Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Vlad Vexler @vladvexler.bsky.social Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Born in USSR, home is London | Living with ME since 2003.
youtube.com/vladvexler (main channel)
youtube.com/vladvexlerchat (chat channel)
youtube.com/@vladvexlerphilosophy
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Ian Tucker-Bell @iantuckerbell.bsky.social Playwright, theatre maker and coach in Kent.
Co-founder of Orange Works. Author of Ghost Light and Locusts.
Exploring how theatre and story illuminate leadership, identity, and the roles we choose to play.
Nina Steinkopf @ninasteinkopf.bsky.social Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and writer. www.melivet.com
Anti-genocide.
Smart Air UK @smartairuk.bsky.social Smart Air is a social enterprise and B-Corp committed to changing the way we breathe clean air! We create incredibly effective air purifiers and share life-hacks and tips on protecting your health from poisonous air
Dr. Ashley | Panicked Foodie @panickedfoodie.bsky.social Scientist | Cornell Alum | Bedridden | Gamer | #NutcrackerSyndrome #MayThurnerSyndrome #Endometriosis #B12 #FluidMechanics #HeatTransfer #CovidIsAirborne
Living Kidney Donor
TikTok, YT: The Panicked Diaries
Clean Air Club @cleanairclub.bsky.social Providing free air purifiers to Chicago artists, organizers, and touring musicians.
linktr.ee/cleanairclub
Steve Chalmers @fstevenchalmers.bsky.social Retired person, was in tech industry for 37 years
Self and family got multiple chemical sensitivity from a sick house incident in the mid 1990s
Heretic, with a heretical research hypothesis on the nature of MCS and a dozen other complex chronic illnesses
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
Lisa Diaz @lisabd.bsky.social
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Tilman Andris @tilmanandris.bsky.social Philosophy graduate | former science event organiser | former performance artist | โformerโ and โexโ at most of everything due to #MEcfs
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on โธ 1st ๐ #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne ๐ท
BuDS Disability Service @buds-disability.bsky.social BuDS Disability Service is a user-led, pan-disability grassroots charity working across England. Formerly Buckinghamshire Disability Service. Registered Charity 1102511 #Fair4All #Reach4Work
Chronic Illness Channel @chronicchannel.bsky.social Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality.
https://www.youtube.com/@ChronicIllnessChannel
Clean The Air http://bit.ly/CleanTheAirUK
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Antonio Caramia @antoniocaramia.bsky.social
Stickman Communications @stickmancomms.bsky.social Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
James Glen @jamesglen.bsky.social Having a bit of a break O_o
โ Founding member @LongCovidSupport
โ Long Covid advocate #FBLC
โ Watford FC fan
โ #FBPE ๐ช๐บ
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Dormouse @dormousediaries.bsky.social Cartoonist, #BylinesNetwork, artist, occasional writer, and sketcher of things. Likes tea and books. Sometimes hibernates.
Living with #LongCovid
Profile picture: Dormouse in a teapot chewing on an ink-pen.
Banner: Cup, saucer and a dormouse with a pen.
Ravi Veriah Jacques @ravihvj.bsky.social Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
- J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Emma Wooller @emmawooller.bsky.social
Richard Vallรฉe @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Katie J. @kjohnstone.bsky.social ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
Dx Revision Watch @dxrevisionwatch.bsky.social Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
LymeDisease.org @lymenews.bsky.social The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co ๐ conditions go to:
๐ https://gptoolkit.ehlers-danlos.org/ ๐
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
@michaeltikus.bsky.social @michaeltikus.bsky.social
Sarah Barley-McMullen (she/her) @sarahbarleymc.bsky.social Ill health retired ๐FHEA๐Christian. Chair, Pride in Belper ๐ณ๏ธโ๐๐ณ๏ธโโง๏ธ. Chair, Long Covid SOS. JNC. Married to my Wife. โค๏ธLong Covid-autoimmune/immunocompromised
Alisontomyradioooo @arisonsned.bsky.social Cat and Dog botherer. Young persons counsellor retired. Want my bike and my health back ๐ฉต
Prof Sheena Cruickshank @sheencr.bsky.social Immunologist & science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome & how this exposome affects health. Also quite likely to share random dog and nature pics ๐งช๐ฉโ๐ฌ #AcademicSky #SciCom
Erin Biba @erinbiba.bsky.social She/Her
Freelance Science Journalist. Fact Checker.
NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others.
Hire me to fact check your book.
I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills.
Jersey girl.
Trish Greenhalgh @trishgreenhalgh.bsky.social DEI hire. Prof of Primary Care, Uni of Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
Rupert Higham @ruperthigham.bsky.social ๐งโ๐@UCL |โ๏ธValues-based leadership |โEducational dialogue & agency | ๐Humane intelligent responses to global threats |๐ Carer for #LongCovid-affected family
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
๐ง๐ท Rio ๐บ๐ธ Sacramento ๐ฉ๐ช Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Kirstie Sivapalan @kirsties.bsky.social UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise)
as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added
https://writingandme.com/
https://open.substack.com/pub/kirstiesi
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Kimberly Prather PhD @kprather.bsky.social Atmospheric Chemistry professor, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. โค๏ธ โค๏ธ gardening, cooking, empathy.
https://airborne.ucsd.edu
https://kprather.scrippsprofiles.ucsd.edu/
Maike Osborne @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her ๐ณ๏ธโโง๏ธ๐ณ๏ธโ๐
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
tern @1goodtern.bsky.social truth, science, hope
cbme-mark.bsky.social @cbme-mark.bsky.social Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
Paula Knight ๐จโ๏ธโฟ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs โฟ TAC/ Migraine