Alem Matthees @alemmatthees.bsky.social A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
Otto English @ottoenglish.bsky.social Pen name of Andrew Scott.
Fake History, Fake Heroes and Notorious.
Represented by Pew Literary
Links:
https://linktr.ee/OttoEnglish
Astrid Meyer-Knutsen @astridmeyerknutsen.bsky.social Interests: ME/CFS, Long Covid, politics, science, nature and animals. Norwegian but post mostly in English. Newbie allotment gardener.
Ruth Ann Crystal @drruth.bsky.social Also known as @CatchTheBaby on Twitter
OBGYN physician, innovator, baker
Weekly newsletter at https://drruth.substack.com/
#Medsky #LongCOVID
Diana Leigh Waldron (she/her) @dianaleighwaldron.bsky.social Wife, poet, dog and cat mom, retired civil servant, ethical vegan, chronic illness warrior (ME/CFS, POTS, fibro)
Profile pic: Me, middle-aged White woman with brown hair, lying in bed with Wrexford, a fluffy black cat, on my chest
Banner: Femme pride flag
John Dabell @johndabell.bsky.social Incurable optimist living with incurable cancer. Hopepunk, Grit Spreader & Force Multiplier. The difference between a warrior and a worrier is a couple of vowels.
British Infection Association @biainfection.bsky.social We are a membership led professional organisation. Our aim is to improve patient care by advocating for, and supporting infection specialists. We provide education, guidance, research grants and more. https://www.britishinfection.org/
Adam Bienkov @adambienkov.bsky.social Political Editor of Byline Times and Online Editor of BylineTimes.com. Lobby journalist in the House of Commons. 📩Adam@bylinetimes.com
Subscribe to my Substack ⬇️
https://www.adambienkov.co.uk
Oxford Nanopore @nanoporetech.com 🌍Direct DNA/RNA analysis for anyone, anywhere
🧬Short to ultra-long reads in real-time for rapid insights
🔬Products for research use only
Institute of Genetics and Cancer @uoe-igc.bsky.social Our mission is to improve the lives of people living with genetic disease and cancer through research.
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺
Reform Party UK Exposed @reformexposed.bsky.social Exposing Reform UK.
Peter Welsh @peterwelsh68.bsky.social Green Party Member. NHS Worker. Wells. Somerset. Green Runner. Late Rosette Adopter. Hot Fuzz Superfan.
MEAction UK @meactionuk.bsky.social Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. 
Ava Khamseh @avakhamseh.bsky.social Reader (Associate Professor) in Biomedical AI at University of Edinburgh |Quantitative Biomedicine #causalinference #ML #AI - views are my own
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
@wamesmecfs.bsky.social @wamesmecfs.bsky.social 
Bellingcat @bellingcat.com Bellingcat is a global collective uncovering facts to hold power to account. Our work is independent. Our methods are public. Our community is global.
Want to support our charity? bellingcat.com/donate
Virginia Heffernan @virginiaheffernan.bsky.social Longtime journalist. Politics, literature, tech.
MAGIC + LOSS
https://virginiaheffernan.substack.com/
Contributing editor, The New Republic
https://newrepublic.com/authors/virginia-heffernan
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Sharon Hodgson MP @sharonhodgsonmp.bsky.social Labour MP for Washington and Gateshead South🌹
If you would like to contact me, please email sharon.hodgson.mp@parliament.uk
GreenPartyHan @greenpartyhan.bsky.social Green MP for Gorton and Denton
Plumber, runner, multiple greyhounds 🏃🏼♀️🔧🐾
The Green Party of England & Wales @greenparty.org.uk 💚 Real hope. Real change.
greenparty.org.uk
Promoted by Chris Williams on behalf of the Green Party of England and Wales c/o PO Box Green Party London SE1P 6YL
Tom Morrison MP @tommorrisonmp.bsky.social 🔸Liberal Democrat MP for Cheadle 🔸 Deputy Chief Whip for Lib Dem Parliamentary Party 🔸 Promoted by Lib Dems at 47 Church Rd, Gatley 🔸
Jason Hickel @jasonhickel.bsky.social Professor at ICREA, ICTA, and the Department of Political Science & Public Law at UAB • Author of THE DIVIDE and LESS IS MORE • Global inequality, political economy and ecological economics
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Alex Kanefsky (he/him) @alexkanefsky.bsky.social Writer, theatre-maker, bread enthusiast.
Book-writer: Cable Street.
AD of Paper Balloon Theatre.
Living/working with chronic illness
OUFC 💛
AlexKanefsky.com
JBR Creative Management
Tim Goodwyn @timgoodwyn.bsky.social 
Solidarity RPM @solidarityrpm.bsky.social Darren Mark Skilton - Brighton & Hove. Left. Supporting activism, social action, and activist organisations. Collective Action.
Socialist. LGBTQIA+. Anti-facism. Anti-racism. Climate activism. Free Palestine. NHS. Love and Solidarity.
Paul Cochrane @paulcochrane87.bsky.social Global Services Manager @ Hyland | Passionate about services, healthcare, digital health, AI & cloud | BSc, PRINCE2, MSP, L6σ Green Belt | Opinions are my own | https://linktr.ee/paulcochrane
@curemecfs.bsky.social @curemecfs.bsky.social 
Jack - amatica health @jackamatica.bsky.social ME/CFS patient and researcher
Co founder of amatica health
https://amaticahealth.com
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Jamie @jamiec68.bsky.social Newcastle United. Turning into a Bread Wanker. INFP.
Ageing raver with fond memories of The Gurn.
Worthing by the sea, ME/CFS, dogs.
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Yuen Chan @yuenchan.bsky.social Was @xinwenxiaojie on the app formerly known as Twitter, where I was allegedly a bot and "sell-out blue-check boba Asian", possibly simultaneously.
Hongkonger, South Londoner.
Teaching journalism at City St George's, University of London.
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Arthur Snell @snellarthur.bsky.social Writer, podcaster and former diplomat.
Buy my book👇
https://tr.ee/ElementalBookshopOrg
https://tr.ee/ElementalAmazon
https://tr.ee/ElementalWaterstones
If you don't want to buy my book, you could buy me a coffee👇
https://ko-fi.com/snellarthur
@cradlefish.bsky.social @cradlefish.bsky.social Scribbler, scoffer, astrophotographer, Early Modern Historian, Long Covid endurer, Heavy Metal lover, occasional gamer, hot sauce connoisseur, often found with ale.
Wendy Chamberlain MP @wendychambld.bsky.social Liberal Democrat MP for North East Fife 🔶 Chief Whip
Shinty player 🔶
Wendy.Chamberlain.mp@parliament.uk
she/her
CommonGroundOrgUK @commongroundorguk.bsky.social The billionaires and their media are using hate and fear to divide communities and win power. We believe there’s more that unites than divides us and we’re having the conversations that prove it. www.commongroundorg.co.uk
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Roy Spencer @roystonserious.bsky.social Vinyl hunter-gatherer and writer | Formerly @FRUK
and @BrightYoungFolk | Hindered by ME/CFS since 1996
Rachel Hall-Clifford, PhD, MPH, MSc @rahallclifford.bsky.social Global health, medical anthropology, co-design for health equity. @Johns Hopkins U, working in Guatemala and beyond. Loves sightings of the absurd and compassion.
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Alex Hall Hall @alexhh.bsky.social Ex-🇬🇧diplomat. Now an 🇺🇸. Resigned over Brexit lies. Frmr Ambassdr to 🇬🇪 . Writer Byline Times. Patron, European Movement. Advisor Eurasia Foundation. Member, Commission on Political Power looking at how to strengthen UK democracy. Frazzled mom. Owner of 2 🐕🦺
Jonah Weisz @weiszguy.bsky.social Lib Dem Disability Association committee/Long Covid and Psychedelic Research advocate/Drake Emergent disabled artist 2024 as Post Viral (https://www.instagram.com/p0st.viral)
Catherine Hale @catherinehale.bsky.social Founder, Disability Insight. Independent research and policy consultant on disability employment and social security. Founded Chronic Illness Inclusion. #pwME and survivor of medical abuse.
Rutger Bregman @rutgerbregman.com Historian | Author of ‘Utopia for Realists’ (2014), ‘Humankind’ (2020) and ‘Moral Ambition’ (2025) | Co-founder of The School for Moral Ambition | moralambition.org | rutgerbregman.com
📖 substack.com/@rutgerbregman
📺 youtube.com/@rutger.bregman
Riley @invisible81.bsky.social #MECFS is like attending your own funeral. You disappear, forced to watch the world move on without you, hoping that someday, you may rejoin the living. 🇺🇸🇬🇧
Melanie Williams @melaniewilliams.bsky.social She/her
Energy Limiting Chronic Illness (E.L.C.I.)
Loves her/history
Kerry @covidconscious.bsky.social Covid aware 🦠 masks in healthcare
😷🏥 #longcovid #mecfs #pots #mcas 
Nic @lilnic000.bsky.social 
PrecisionLife @precisionlife.bsky.social Solving chronic disease with the world’s leading precision medicine AI. Creating better, more personalized treatment options and diagnostic tools to predict, treat, and prevent the most common, costly, and complex diseases.
Nick Stapleton @nickstapleton.tv Helping you avoid scams
#ScamInterceptors & #BBCMorningLive
Author #HowToBeatScammers, available wherever
#ScamClinic podcast
2 x BAFTA winner 🎭
Most places online I am @staplenick
Rook Irwin Sweeney @ris-law.bsky.social Award winning specialist public law and human rights firm. Judicial review | education law | health & social care | mental capacity | environmental law
www.rookirwinsweeney.co.uk
Kate Evans @cartoonkate.bsky.social Cartoonist, artist, author, activist
David Oliver @mancunianmedic.bsky.social NHS Acute Hosp Dr 37 y. GER/GIM. Ex DH Nat Clin Dir. Lapsed Academic. Policy Think Tanker. Ex BGS/RCP Pres/VP
Med Journalism. Byline: @BMJ_latest. Columns: health press newspapers. @mjauk
Manc-in-South. MCFC. Craic, Schlock, Sharing, Learning, Friends
Dr Eleanor Roberts @elbelbumble.bsky.social Neuroscientist, writer, singer, artist, thinker, doer, laugher, unabashed lefty, feminist, ME/CFS absolute warrior, disability campaigner, 100% LGBTQI+ ally (and all-round Q), all from a small flat in noisy South London.
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
James Ball @jamesrball.com Political editor @ The New World
Opinion @ The i Paper
Fellow @ Tech Policy Press
Fellow @ Demos
PhD researcher @ UCL Laws
newsletter @ techtris
Latest book: The Other Pandemic – How QAnon Contaminated The World. 🏳️🌈
https://www.jamesrball.com/
Ewan Birney @ewanbirney.bsky.social Director of EMBL-EBI. I have an insatiable love of biology. Consultant to ONT and Cantata (Dovetail)
Dr Robert Bohan @robertbohan.bsky.social Artist, Scientist, Woodland Ecologist, Statistician, Historian & former Research Scholar at the RIA | Art from Dublin, Ireland 🌈 He/Him | Sé/é
Buy my work here: https://robertbohan.etsy.com
Private Eye Magazine @privateeyenews.bsky.social Britain's best-selling news and current affairs magazine with a unique mix of jokes and investigative journalism.
Website: https://private-eye.co.uk
Subscribe: http://subsonline.co.uk
Marisa Privitera Murdoch @marisapmurdoch.bsky.social Cuban-Sicilian-American in Scotland. Documentary filmmaker and photographer. Exhibitions: Scottish Portrait Prize, Venice Bienniale, ICP NYC, NPG Scotland: You Are Here,
Lover of rocks, mother of boys, wee wifey. marisapmurdoch.com
Insta 📷 @marisapmurdoch
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Zohran Kwame Mamdani @zohrankmamdani.bsky.social Mayor of New York City
Atlanta Rey ❤️🔥🐦🔥 @atlantarey.bsky.social Dystopian romance writer ✍️ WIP: Fire & Steel series ⚔️ Bookish content creator 🪄British-Spanish. Powered by books, snark & sugar. Owned by a cat ❤️🔥 #BookSky ✨
🔗 https://linktr.ee/areyoflight
Emma Bower @emmabower.bsky.social Editor of GPonline https://www.gponline.com gponline.bsky.social and GP Business https://www.gpbusiness.co.uk, host of Talking General Practice podcast https://podfollow.com/talking-gp 
Steve Race MP @steveracemp.bsky.social 
Luke Charters MP @lukecharters.bsky.social Labour Member of Parliament for York Outer 🌹Proud Dad & Yorkshireman🫖
Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social Campaigning on and off the water to end the illegal Israeli blockade of Gaza and for freedom of movement for all Palestinians.
https://linktr.ee/freedomflotillacoalition 
Laurie Dunkin Wedd @ldw1.bsky.social Bought no coal or gas since 1977, no flights since 2006, no petrol since 2015, zero energy bills since 2024. You can give up fossils too!
PV, EV, domestic battery.
ME/CFS. #UBI
Kent UK.
Sometimes musical.
Dr Ellie Chowns MP @elliechowns.bsky.social 🍏 Green MP for North Herefordshire and leader of the Green Party MP group in Parliament. Mum, activist, optimist!
Simon Oldridge @sioldridge.bsky.social Cofounder National Emergency Briefing on the climate & nature crisis www.nebriefing.org | Science communicator | former manufacturing CEO & business consultant | Moog 🎹
Katharine Cheston @kacheston.bsky.social Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology. 
Fabian Fritz @ffhambu.bsky.social Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Nigel Rothband @nigelrothband.bsky.social Chair of Long Covid Support, Speaker, Event Host, Podcaster, Leadership Coach.
Amnesty International UK @amnestyuk.bsky.social Fighting for human rights across UK & the world 🌍 follow for activism & news. Amnesty UK (Charitable Trust & Section).
http://amnesty.org.uk/
@samaritans.bsky.social @samaritans.bsky.social 
mori (sep goal $115.68/$500) @kookysnell.bsky.social 25 - very severe ME/CFS, hEDS, MCAS, POTS, all manner of brain things.
if you don't believe in mutual aid, don't follow me.
https://linktr.ee/moriende
Bhatt Murphy Solicitors @bhattmurphy.bsky.social A team of lawyers who work together to make a contribution to the protection of civil liberties
https://bhattmurphy.co.uk
Karama @el-karama.bsky.social Network for women's groups in Africa and the Arab region, we are working to end violence against women and girls, and to ensure that women participate fully in the decision-making processes that affect them.
www.el-karama.org
Nesrine Malik @nesrinemalik.bsky.social Columnist and features writer - The Guardian. Georgetown Fellow.
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Carla Denyer @carladenyer.bsky.social Green MP for Bristol Central.
Former Co-leader of the Green Party of England and Wales.
Engineer. Bi 🏳🌈. She/Her.
Need to get in touch?
📧 carla.denyer.mp@parliament.uk
https://linktr.ee/carladenyer
Zarah Sultana MP @zarahsultana.bsky.social Your Party MP for Coventry South 🌹
coventrysouth@parliament.uk
Promoted by Zarah Sultana at CWU South Midlands, Coventry, CV1 3EG
Pippa Crerar @pippacrerar.bsky.social Political Editor, The Guardian
https://www.theguardian.com/profile/pippacrerar
Jess Phillips @jessphillipsmp.bsky.social MP for Birmingham Yardley
John Crace @mrjohncrace.bsky.social Political sketch-writer for the Guardian. Author. Latest book out now 'Taking the Lead: A Dog at Number 10'.