Colin Hung @colinhung.bsky.social CMO & Editor @Swaay.Health and @HealthcareITToday, Healthcare Advisor @ventureLAB #HealthIT true believer #pinksocks #hcldr #hcmktg #HITsm #SwaayHealth 
Stand Up for Science! @standupforscience.net We mobilize the fight for science and democracy - because science is for everyone! 🧬🧪🌎
Donate here: https://bit.ly/SUFS_GIVING
Learn more ⬇️
https://linktr.ee/standupforscience_bluesky
EveryLife Foundation for Rare Diseases @everylifeorg.bsky.social We empower the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments, and cures.
Linda Stotsky @liastot.bsky.social Good human | Digital health veteran | Fractional CMO | Patient advocate + authentic storyteller | DogMom | Let’s fix what’s broken in healthcare & the 🌎 No bots please!
#1stGen 💕 🟦 #Marketing #Dogs
#BlueSky #Science #MedSky #BeKind- M Matthew Pescosolido @mfpesco.bsky.social Neuroscientist | Neurological diseases | Background: Psychology → Neurogenetics/Rare disease → Neurobiology |
PhD: Brown University
Emily Bonkowski @esbonkowski.bsky.social Research Genetic Counselor (& Public Health Genetics PhD student)
Interests in neurogenetics, bioethics, and precision medicine for kids 🧬🧠💜
Science is real, views are mine (she/her) 
Jillian McKee, MD, PhD @jillianmckee.bsky.social child neurologist | epilepsy neurogenetics | digital health | machine learning/AI enthusiast | physician mom | @ChildrensPhila 🇨🇦🇺🇸
Helen Branswell 🇨🇦 @helenbranswell.bsky.social I cover infectious diseases for STAT (www.statnews.com). 2020 Polk winner. Nieman '11. She/her. I write about H5N1 (in all species), Covid, polio, flu, Ebola, RSV, mpox, STIs. Send me news tips on Signal: HBranswell.01
STAT @statnews.com Reporting from the frontiers of health & medicine.
Explore all of our newsletters here: https://www.statnews.com/signup/
@eneilb.bsky.social @eneilb.bsky.social 
Dr. Danny Sands @drdannysands.bsky.social PCP at the intersection of #innovation #informatics and #healthcare; Chief Advocacy Officer, Society for Participatory Medicine
Society for Participatory Medicine @participatorymed.bsky.social Collaboration is the best medicine. We envision a time when patients become full and valued partners in collaborative relationships with health professionals to achieve better health and wellbeing.
U.S. Food and Drug Administration @fda.gov Yes, it’s really us!
Our posts are FDA-approved!
Visit us at https://www.fda.gov
Harriet Dashnow @hdashnow.bsky.social Asst. Prof, CU Biomedical Informatics.
#RareDisease #Genomics #STRs #bioinformatics #WomenInSTEM. Parent. Aussie. she/her
Views my own.
https://dashnowlab.org/
Img by familydestinationsguide (CC-BY)
Zebrabande @zebrabande.bsky.social ☀️Sammlerin der Sonnenstrahlen im Leben ☀️
Patientensprecherin #Twankenhaus
#EhlersDanlosSyndrome #hEDS #SFN #MCAS
#kptbs #dis #DissoziativeIdentitätsstörung #Trauma #NotJustSad, #ADHS, v.A. #Autismus
#rareDisease #SelteneErkrankung
#Assistenzhund
Jillian C. Banfield @jillianengages.bsky.social Patient partnership in research. Team Lead, #PatientPartnership for Institute of Genetics, Canada. #RareDisease. Disabled. Opinions mine & not that of my employer.
She/her
Victoria Killian @victoriakillian.bsky.social 👩🏻🏫Always chronically educating & advocating
⚕️Board Certified Patient Advocate
😷Disabled patient with multiple chronic & rare diseases
🗣️Speaker
Lauren Testa, Ph.D. @laurenctesta.bsky.social PhD, Gene Therapy & Vaccines @ Penn. Project Lead, Innovative Genomics Institute, UC Berkeley. #RareDisease patient-scientist interested in genetic therapies, connective tissue, dogs, and climbing. Go Bills. 🧗♀️
Leslie Ordal @gencounsnews.bsky.social genetic counselor (neuro/psych), fiber arts and other crafty stuff, film photography, science art, cats, fancy pens, words, etc. 🇨🇦🇺🇸
The Jackson Laboratory @jax.org Est. 1929, JAX is a nonprofit scientific research institute specializing in genetics, genomics, mouse, and cellular models of disease. www.jax.org
Mill_lab @cilialab.bsky.social Group at MRC HGU using genetics, cell biology and lots of imaging to unlock the mysteries of mammalian #cilia. #cilia. #centrioles #cytoskeleton #RareDisease www.cilialab.co.uk
SuMon KM, Ph.D @sumonkyawmyint1.bsky.social population health, scientist, feminist, living with rare disease, disability and chronic illnesses, NDIS, lover of books & science, all posts are personal
Stefano Pacifico @stefpac.bsky.social Founder, CEO www.epistemic.ai - #AI for Life Science Information. Father of #MEM #rhabdomyosarcoma child
Personal: www.pacifico.cc
Company: www.epistemic.ai
Mastodon: https://sigmoid.social/@stefpac- M Masha @mashunlimit.bsky.social -Spoonie/POTSie
-Functional Medicine Health Coach
-Public Health Advocate esp. for Chronic Illness and Rare Disease
Creator of POTS Wellness
Jodie Ingles @jodieingles27.bsky.social Head, Clinical Genomics Lab | Director, Genomics & Inherited Disease Program, Garvan Institute, Sydney | Cardiac Genetic Counsellor | Feminist | Willow’s human | Swiftie 🫶🏻 #cardiogen #genechat #cardiosky
A-Danielle Grenier · Ma vie de zèbre @adangrenier.bsky.social Patiente partenaire & communicatrice en maladies rares
Patient partner & rare disease advocate
#COVIDinformed
🦓 #COVIDisAirborne #LesVulnérablesComptentAussi
*Follow doesn’t mean approval
BartonSmock @bartonsmock.bsky.social poet, failed movie lover, mostly father mostly husband mostly son. rare disease beginner for life.
writes at kingsoftrain.com
Rae Martens ♿️ @coffeeandresearch.bsky.social Research Knowledge Broker, speaker, knowledge mobilization, cancer, childhood disability, rare disease, spoonie, coffee drinker. Opinions are my own.
Megan @mkell.bsky.social OH Proud KC livin. Mother of Pups, Rare Disease Warrior/Advocate, Coffee Enthusiast, Avid Reader, Pelo & Dip 💅🏼
Chris Saunders @ctsa.bsky.social Rare disease and cancer analysis models for sequencing data. Art school survivor. Views my own.
Jessica Chong @jxchong.bsky.social Associate Professor. UW Center for Rare Disease Research, @MyGene2, Deputy Editor of @HGGAdvances. #raredisease genetics. CovidWA data
Bruno Ramalho @naovouporai.bsky.social Software developer, movies tv games and guitar, Mafalda's dad, who has a rare genetic disease #CTNNB1 Syndrome.
Melissa "Snack Lady" @melondc.bsky.social She/her.. Living, working, doing OK w/chronic illness. Please #MaskUp indoors and save disabled and elderly lives. We are all related. I help my neighbors!
MUTUAL AID for DC Families>>>
https://www.amazon.com/hz/wishlist/ls/320WSBV74U0NP?ref_=wl_share
RARE. | unlike anyother @findyourrare.bsky.social Clinical therapist, rare disease patient, health advocate, small business owner & always chasing peace 🖤🦓🤟🏻
Lia Boyle, MD PhD @lamboyle.bsky.social Pediatric genetics resident at University of Michigan, MedTwitter escapee, rare disease researcher, theatre fan
Tara Tisch @taratisch.bsky.social Artist🎨, Rare Disease Warrior, Patient Advocate, Wife, Bonus Mom, Gramma, Finder of 🍀 
Elna @elna916.bsky.social PhD
Multi-/Inter-/Transdisciplinary
・Rare Disease・
・Quantum Biology/Genetics・
・Physics・Applied Physics・Biophysics・
・Health Psychology・Psychobiophysics・
Marianne @marvandijk.eurosky.social Spinale Musculaire Atrofie (SMA) Rare disease 👩🦼 Hyperacusis
Getrouwd - Zorg -PGB - Lezen - Katers Teddy en Casper - Metal - Verjaardag 8 september 1952
Legitkirstie @klovesy.bsky.social 30. She/Her. Professional gay. Chronic Illness and rare disease unicorn
Devin Shuman (she/her) @mitogc.bsky.social Smithie 2014, mitochondrial disease, spoonie, rare disease, genetic counselor, 🏳️🌈 ♿️ opinions are my own
Caitlin Ray @caitlinray.bsky.social rhetoric and composition, focusing on disability/rhetoric/rare disease. Now in public health. Rare disease patient and advocate. Grant/scientific writer. In Omaha!
Salem Oaks @salemoaks.bsky.social We create patient education about Pharma R&D to empower patients and patient organizations. 
Heather (she/her) @heathermm.bsky.social 
Jay 🦋 @jay.bsky.team Founder & Chief Innovation Officer @ Bluesky
Working on @attie.ai
🌱 🪴 🌳
The New York Times @nytimes.com We seek the truth and help people understand the world. Not a subscriber? Your first month is now free in our app. https://nytimes.onelink.me/Xpht/zbx4nci9
The Washington Post @washingtonpost.com Democracy Skies in Blueness