ninapryce.bsky.social @ninapryce.bsky.social covering tech, culture and entertainment @ http://yespress.io
Caitlin Sheahan 🇦🇺 @caitlinsheahan.bsky.social AuDHD | BEdStuds graduate | MAutND student
Learning about neurodiversity, mental health, education, sociology, and weight stigma
Lived experience with DSP, NDIS, and the mental health and social housing systems.
She/her
On Wurundjeri Country (Melbourne)
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
Long Covid Switzerland @longcovidch.bsky.social Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids.
Martha @marthayoung.bsky.social Covid aware, bird flu aware. Prevent, treat & cure Covid-19 and Long Covid. Ukraine. Former USSR & E. Europe. Democracy. politics. ProChoice. Corporate Psychopathy. Coercive Control.
Long Covid Nederland @longcovidnederland.bsky.social Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
Chantal Britt @chantalbritt.bsky.social Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVax, AntiGlobuli
@ BFH, Long Covid Switzerland & Europe, Kids CH, SPO, Swiss PPIE
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC, ENOVAT, EUPATI
Darren Parkinson @greendarrenshipley.bsky.social Green Party Campaigner | Living with Long Covid | Bradford | Shipley Town Councillor 2020-24 | Metalhead |
https://linktr.ee/darrenparkinson
Promoted by D Parkinson (Bradford Green Party) at 88 Hirst Wood Road, Shipley, BD18 4BU.
ShareAction @shareaction.bsky.social 💸 Independent charity and expert on responsible investment
💚 Working to create a world where the financial system serves people and planet
Berlin Buyers Club @berlin-buyers-club.bsky.social Cure Long Covid & ME/CFS berlinbuyersclub.com
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
The Canary @thecanaryuk.bsky.social Disrupting power since 2015
Nicola Jeffery @nicolajeffery.bsky.social Digital Editor at The Canary.
Events manager at AMBI
🫶🎶🏳️🌈🏳️⚧️
#FreePalestine🇵🇸
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
Catherine Hale @catherinehale.bsky.social Founder, Disability Insight. Independent research and policy consultant on disability employment and social security. Founded Chronic Illness Inclusion. #pwME and survivor of medical abuse.
Paul Cochrane @paulcochrane87.bsky.social Global Services Manager @ Hyland | Passionate about services, healthcare, digital health, AI & cloud | BSc, PRINCE2, MSP, L6σ Green Belt | Opinions are my own | https://linktr.ee/paulcochrane
Mark Ungrin @mark-ungrin.bsky.social Parent. Interdisciplinary biomedical researcher. Hardline scientist, Professor, PhD. New platforms and real-world impact, emphasis on scientific rigour, reproducibility, integrity and efficiency. Diverse interests.
Plum Stone @plumskyjam.bsky.social Founder of The Safer Air Project and on a mission to get IAQ recognised as an accessibility and inclusion issue.
LSHTM alumni. Mum of 2. Long covid. She/her.
Www.saferairproject.com
The Safer Air Project @saferairproject.bsky.social Creating accessible and inclusive communities through safer indoor air. Registered charity with the Australian Charities and Not-for-profits Commission (ACNC).
NB COVID info @nbcovidinfo.bsky.social #COVIDisAirborne clean air rebel alliance crew, sharing the best info I can find from other people - especially engineers and industrial hygienists. New Brunswick focus but SARS works the same everywhere. Don't breathe it in. https://linktr.ee/Nbcovidinfo
@home-bird.bsky.social @home-bird.bsky.social This week/year(s) I have been mostly staying at home. I’m old(er).
No Trend @notrend.bsky.social Long Hauler since 2020. Here to connect with other’s dealing with chronic illness.
Long COVID Labs @longcovidlabs.bsky.social Non-profit accelerating a cure for 100M+ people with Long COVID.
Longcovidlabs.org
Protect the Heart of the Arts 💕🎗️🌈 😷 @heartofthearts.bsky.social Maintained by Slightly Overqualified Stagehand @justjennagain.bsky.social 🎭
Advocating for COVID safety on-set and onstage 😷
🚨There is a LONG COVID CRISIS in performing arts🚨 https://docs.google.com/document/d/1-PVLP_aQpcp-I2eXvcMOsALLRBD-sFxqdWJOhm
Anne Marie @annemarie1.bsky.social Mum of two boys. Early Childhood Lecturer. Long Covid Kids advocate. Clean Air campaigner. Long Covid in 2021.
There ARE things we can and should be doing...
Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social UK Covid-19 Inquiry Core Participant
Safe access to health, workplaces, education and beyond
Donate: http://bit.ly/CVFdonate
JOIN us on FB 📸cv_cev ❌️@cv_cev
www.clinicallyvulnerable.org
UniteToFight @unitetofight.bsky.social LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Putrino Lab @putrinolab.bsky.social
David Steadson @davidsteadson.bsky.social Public Health academic back when Public Health was a thing. Now Entrepreneur, Raconteur, and Karateka. #LongCovid (recovered) #LongCovidKids #Kyokushin #NAFO
Life shared between Sweden and Ukraine.
Layla Moran MP 🔶🕊️ @laylamoran.bsky.social Member of Parliament for Oxford West and Abingdon | Chair of the Health & Social Care Select Committee | Here because Musk ruined the ‘other (social) place’ | she/her | Promoted by the Lib Dems, Unit C5 Grange Court, Barton Lane, OX14 3NB
Greens Against Covid @greensagainstcovid.bsky.social #GreenParty of England and Wales #covid and #longcovid campaign working group. Join us? https://linktr.ee/greensagainstcovid
Carla Denyer @carladenyer.bsky.social Green MP for Bristol Central.
Former Co-leader of the Green Party of England and Wales.
Engineer. Bi 🏳🌈. She/Her.
Need to get in touch?
📧 carla.denyer.mp@parliament.uk
https://linktr.ee/carladenyer
Kirstie Sivapalan @kirsties.bsky.social UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise)
as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added
https://writingandme.com/
https://open.substack.com/pub/kirstiesi
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Emma Gore-Lloyd @emmagl.bsky.social Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Karen Hargrave @karenlhargrave.bsky.social Co-founder ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Oonagh Cousins @oonaghcousins.bsky.social
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Bylines Network @bylinesnetwork.co.uk Powerful citizen journalism | Regulated by Impress
https://bylinesnetwork.co.uk
A network of 10 volunteer-led news publications from across the UK
Donate via https://bylinesnetwork.co.uk/donate/
Email info@bylinesnetwork.co.uk
Led By Donkeys @ledbydonkeys.org Art, Activism and Accountability
https://linktr.ee/ledbydonkeys?utm_source=linktree_admin_share
Byline Times @bylinetimes.bsky.social A reader-funded newspaper that truly sits outside the established system and answers only to the public.
Subscribe for exclusive content in the Byline Times monthly print edition: subscribe.bylinetimes.com
Visit our website: bylinetimes.com
Resolution Foundation @resolutionfoundation.org The Resolution Foundation is an independent think-tank dedicated to lifting living standards in the UK.
Joseph Rowntree Foundation @jrf-uk.bsky.social We work to speed up and support the transition to a future free from poverty, in which people and planet can flourish.
https://www.jrf.org.uk/
UK Parliament @ukparliament.parliament.uk Where the House of Commons and the House of Lords scrutinise the work of the Government. Learn more about Parliament, its people and our unique heritage.
linktr.ee/ukparliament
Disability Rights UK @disrightsuk.bsky.social We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all.
https://linktr.ee/disabilityrightsuk
Patient Safety Learning @patientsafetylearning.org Patient Safety Learning is a charity and independent voice for improving patient safety.
🔗Our website: https://www.patientsafetylearning.org/
🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app