ME/CFS warrior @justjones43.bsky.social Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is.
Free-thinker. Sometimes my thoughts wander off and I have to go look for them.
Matasoft @matasoft.bsky.social Fuzzy data matching, entity resolution, data science, data analytics
PEMF-devices.com @pemf-devices.bsky.social PEMF, Molecular Hydrogen, Infrared/Red Light Therapy Research and Product Development since 2012.
Transactions on Artificial Intelligence @transaai.bsky.social Transactions on Artificial Intelligence (TAI) is a peer-reviewed, open-access journal dedicated to advancing trustworthy, explainable, and human-centered AI. Currently, it is indexed by ASCI and DOAJ.
https://www.sciltp.com/journals/tai/
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
A tired human @saffronandsky.bsky.social disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
SunCat Trinkets @suncattrinkets.bsky.social Hand-made bracelets and beadwork specializing in custom and intentional pieces ✨
Online Shop:
www.suncattrinkets.com
Whatnot:
https://www.whatnot.com/user/moondrivezee
TikTok :
https://www.tiktok.com/@suncat.trinkets
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Minnesota Monarch 🌱🐛🦋 @jnp-mn.bsky.social Nature lover. Loves all creatures, including dogs, cats, and monarch butterflies. (Except that one cat. You know who you are…)
Committed to supporting #Monarch #Butterflies & other #pollinators. #GrowMilkweed #Bees | 🇺🇸 USDA #zone4b
@cazzie-d.bsky.social @cazzie-d.bsky.social Associate Professor of Neuroscience and Genetics, Biomolecular Sciences Research Centre and Advanced Wellbeing Research Centre, Sheffield Hallam University
Long COVID, ME/CFS, pharmacogenetics
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Nic @lilnic000.bsky.social
Otrosdías @otrosdias.bsky.social For music go to: @otherdays.bsky.social
For COVID, public health, politics, etc.. stay here...
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Ian Charman @chunky-baby.bsky.social Drama Llama from the UK, now living in Seattle. LFC, OU Football and all things progressive. Long Covid. ME/CFS. He/him.
Edith CL @edithcl.bsky.social #longcovid #MEcfsally #mèresaufront #féministe #citoyenneengagée, idéatrice congrès #ecologiedelenfance
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
@theycallmeswift.bsky.social @theycallmeswift.bsky.social
Just Nick - 🇵🇸 🇮🇷 🇨🇺 @nick-boileau.bsky.social Songwriter - International Political Economist - Guerrilla Gardener
#architecture #gardening #LGBTQ2 #MECFS #ONTECH #socialist
Jason Murphy @jasemurphy.bsky.social Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia.
Rene Sugar @renesugar.bsky.social https://renesugar.substack.com/
@helsv.bsky.social @helsv.bsky.social
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Quarantegan @quarantegan.bsky.social Covid is airborne. Covid is not mild (ask your neurons & vasculature).
And -- Covid is not over 😷 #wekeepussafe #covidcompetentcommunity #makeairbreathableagain #maskup
[art credits: Eyvind Earle, "Paradise"; Artur Rosa, "Layers of Impossibility"]
Hanna Jo @hannajow.bsky.social Medically retired PT bc decades-long #ME/CFS, #MCAS, #hEDS, #POTS, #IIH, #CPP. Worked w/ ppl like me in a system that refuses to meet our medical needs. 🩺💉History/GINT B.A. b/f PT. #Alaskan born in #SC. 😉
Happiness is #GamecockWBB🏀🏆 #WNBA #Unrivaled
♿️👩🏼🦼➡
@poirebelle.bsky.social @poirebelle.bsky.social
@reddusyriver.bsky.social @reddusyriver.bsky.social
Paul Keeble ME/LC @paulkeeble.co.uk ME since 2017 (Mild), 2019 Moderate , 2020 Severe
Long Covid since March 2020 (V Severe)
Funcap55 = 1.9 ( (Severe)
@amazedeu.bsky.social @amazedeu.bsky.social
under_transformation @trans4m8tion.bsky.social Long covid brought me here, from fit to wheelchair. In a shitty club with great people #FBLC. No woowoo. #PEM #PESE #MECFS
Mastodon: @_trans4m8tion@zeroes.ca
@coloraturasoprano.bsky.social @coloraturasoprano.bsky.social
@ela-sh.bsky.social @ela-sh.bsky.social
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
@novid2catz.bsky.social @novid2catz.bsky.social
J.E. Barnard @jebarnard.bsky.social #NoCoalAB #ProtectOurParks
Incisive Editing Services; MECFS amateur sleuth in The Falls Mysteries from Dundurn; owned by a large ginger tomcat
Linktree http://linktr.ee/je_barnard
Uninvited DMs get you unFollowed
Brent @brentter.com Just a nerd that spends way too much time on setting up new playlists and not enough time updating documentation. FOSS, Linux, Dev, Dogs, Deadhead.
Blog about random stuff: https://brentter.com
Also over at: https://defcon.social/@brentdev
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
@andrebergholz.bsky.social @andrebergholz.bsky.social
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
Moi m'EM @nofutureforme.bsky.social #EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
@artisticadventurer.bsky.social @artisticadventurer.bsky.social Sunset or sunrise? The ghost of Ben Franklin knows.- F Rick Ford @fordski.bsky.social Retired Canadian currently living in Mexico. Mostly home-bound and bed-bound with Long Covid since mid 2022.
- J Jessika @jessikafe.bsky.social ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS
Emory 🩶 @emory-f8.bsky.social I write dark Victorian fiction and specialize in the long 19th century.
She/Her 🏳️🌈🇪🇸✡️ (I'm always kind)
#writer #historian #Lesbian #sapphic #wlw #Hispanic #feminist #goth #vampires #jpop #bibliophile
NO DMs | Terfs & Narcissists DNI
Hesitation Marx @scarecrowpete.bsky.social Scheming + sycophantic eunuch, right hand of the empress, loving arborist and semi-semiprofessional line cook
Manpreet Singh @gorichodni.bsky.social
krlwlfrt @krlwlfrt.bsky.social War das ein Tag. Aus dem kannst du zwei machen. - Earl Sneed Sinclair
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Steve Bullock @guitarmoog.bsky.social Large, slow-moving, land mammal. Bed-dweller. Horizontal guitarist. Loser of remote controls, vapes and plectrums in blankets. Deactivater of account for no reason sometimes. Late adopter of fuzz. Haver of Long Covid. He/him/Moog
@resilientnerves.bsky.social @resilientnerves.bsky.social trans disabled leftist antizionist jew with #MEcfs #POTS #MCAS #EDS #SjogrensSyndrome #migraine #smallfiberneuropathy etc
Vincent Martens @vinmar61.bsky.social Vechtdal, Overijssel, Netherlands
Biology, Ecology, otters, birds, butterflies & blue skies
Recording bird sounds at night #nocmig #birds #bioacoustics
Didier @medidier.bsky.social ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
Claudine Prud’homme @clau-prudhomme.bsky.social #MECFS #POTS #Fibro patient/atteinte d’EM/POTS/Fibro- since 2008 🇨🇦
New caregiver of my 19yr old son with severe #LONGCOVID/ME #POTS 😢😭
Former veterinarian
Membre comité scientifique AQEM-
post infectious illness interest
Jeffrey Lubell (EDS, ME/CFS, LongCOVID Research) @jefflubellc19.bsky.social I am researching treatments for my daughter, who has hEDS, ME/CFS and other conditions, with implications for #EDS, #MECFS and #LongCOVID. I am a researcher, but not an MD.
leebryant.bsky.social @leebryant.bsky.social - C C Has Long-Covid @cocdcy-health.bsky.social Here to follow the science in a pretty literal way actually now I think about it
Ody @odyody.bsky.social Chronically ill. Medical research, better care for underresearched & rare conditions, disability rights & ethics. @OdyO11 at 🐦- M Maria Segur @mariasegur.bsky.social Mantengo al dia, cuando las enfermedades me dejan, una página sobre #Fibromialgia #EncefalomielitisMiálgica #SensibilidadQuímicaMúltiple
https://recursosdefmemsqmehs.wordpress.com/
Wrenewable @wrenewable.bsky.social 🟨⬜🟪⬛
PFP @alcorchannel.com
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
@zoloru.bsky.social @zoloru.bsky.social Grateful to have found 🦋 after the s***show that🙅🏼had become…
Cloudy @claudiabenne.bsky.social Psychologist, nature and animal lover, based in CH. We need to act against Climate change, Covid, Fascism.
acw69 @acw69.bsky.social Nature lover and Photographer, Deeply caring for our Environment, Convinced European, Covid-conscious, Organisational developer based in CH
@imgurabuser.bsky.social @imgurabuser.bsky.social
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
The Boudica @boudicathe.bsky.social Stands with Fists..mind your manners, former MH Professional..sees thru bs
Vladimir Neskovic Kesma @kesma.wtf Use the feed below and get first-hand news in climate sciences, directly from:
13,700+ scientists, sci comms and reporters
🌎 Climate Change Sciences 🌎
https://bsky.app/profile/did:plc:rprxe2jmbftg3ajamqhrgxji/feed/aaamxvffjaodq
I maek typos
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots 🫁
Swiftie 🫶, F1 🏎, cricket 🏏 fan
London, UK
Nicky @oceandreaming50.bsky.social Former surfer and scuba diver. Lover of the ocean and environment.
24yrs ME, POTS, TN
#pwME #millionsmissing #MEScience
Location: Australia
Paul Watton @paulwatton.bsky.social I was "TheGodofPleasure" on Twitter.
I've had M.E. most of my adult life and am still trying to find a way out of it.
I believe that Prof. Bhupesh Prusty is close to providing the answers.
@fatcatfoe.bsky.social @fatcatfoe.bsky.social Cat lover. Writer. Dabbling in improv. Mom of 🏳️🌈 kids. She/her 💙🥄
babs ✨ @itsbabs.bsky.social artist 📸 + activist / have lupus, studying the spectacularization of hydroxychloroquine / just trying to have a nice time On The Internet™️ / she/they #DoMaskBlocShit 😷🦋🍐🏳️🌈
tiktok/twitter: @babs_zone
signal: @babszone.07
elsewhere: abbymahler.com/linktree
Tara F, PhD, MPH @taraf.bsky.social Health Equity & Translational health researcher | Improving healthcare services & experiences for marginalized | Part-time research associate | Renegade Research volunteer
Tampa, FL
😷🌈☮️📊📚🫂🩼♿️🗣️
#Disabled #LongCovid #PostVax #MECFS #POTS #hEDS #Lyme #AuDHD- K @knausssss.bsky.social @knausssss.bsky.social
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
Let’s make history. Shall we? We must!.Pass it on!🇺🇦🇨🇦🇩🇰 @infosourcer.bsky.social ☀️Good Trouble #FTW!.🕵🏼 CI Manager at a Leading Cloud Company.👩🏻🎓 MS Grad Student. AI/ML Avid Follower.🤖 Chatbot Wrangler. Seeker of Truth. Fan of Science & History. Scrappy. Critical Thinker. Global Nomad."Tweeting"Since 2007. 🏴☠️Opinions My Own.
🌈❄️ @shoshele.bsky.social Aspiring Gentle 🌈 Parent | 💜 Caregiver ♿️😷 | Academic Adjacent📚
#EnvironmentalJustice #DisabilityJustice #COVIDIsNotOver #CureAbleism
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Horizontal Views @horizontalviews.bsky.social Visual Artist and Writer | Posts from the sick bed #ME #pwME #LongCOVID #ZeroCOVID #Crip #ChronicIllness #DisabilityJustice #ContemporaryArt #ConcretePoetry #PostdigitalPoetry #PoeticWeb
n=50 @remissionbiome.bsky.social
Poetry @diktgymnasiet.bsky.social
Violeta @violetaqsmith.bsky.social The strength is in the strain.
#DontGiveUp
Daniel Swain @weatherwest.bsky.social Weather and climate scientist focused on extreme events like floods, droughts, & wildfires on a warming planet. www.weatherwest.com
Cffnthmrnng @cffnthmrnng.bsky.social #LongCovidKids #LongCovid
#ME/CFSKids #ME/CFS
#MillionsMissing #CureME
Call Me Cassandra @stitchingtwitcher.bsky.social Spotter of patterns, sometimes wishing I could unsee
ME/CFS, Chronic Illness, AuDHD, Still Coviding
Michael Swan @michael-swan.bsky.social
Calbear @calbeargirl.bsky.social cb_grl on Twitter. Asian! Books! Star Trek! Christ follower. When I am able, I enjoy playing trivia w/ #pwlc. snoopy memes cheer me up. hetereodox in my opinions #covidsky
Will block bots, grifty & sus accounts with no info.
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
Asker Brejnrod @askerbrejnrod.bsky.social bioinformatics, microbiomes, data scientist
Elisa @elisahi.bsky.social Här finns jag främst för long covid/postcovid. Med hoppet om att briljanta människors forskning ska få mig tillbaka till träning med kära, jobbet jag brinner för och umgänget med vänner.
Walter M. Rafelsberger @walterra.dev Data Visualization Engineer @ Elastic.
walterra.dev
Protein and Veg and Fasting @mccheapo.bsky.social Old straight white aspie male
1. Buy British, eg 70% PRUK 30% GILS
2. HODL
3. Profit!
(maybe 50/50 just now)
One party for the 5% (aristocracy, oligarchs, elite), and one for the 95%, choose wisely!
#diet #lcl6 #fifo #paleo #keto #politics #BrainEnergy
Babs 🩵🐝⌛️🦋🔻 @babs05.bsky.social For he was more than over shoes in love.
'Tis true; for you are over boots in love
I rather like music.
Moderator for http://Last.fm
She/her. Deep Woke.
Man City FC 🩵
@Babs_SK on Twitter
Christophe Veltsos @drinfosec.bsky.social University prof. on cyber risk & systemic risk | He/him | Posts/RTs lots on #Covid #LongCovid. Covid is significant systemic risk. #COVIDisAirborne #MaskUp #IAQ #AirQ
Erin LeDell @ledell.bsky.social Chief Scientist @ Distributional.com @dbnlAI.bsky.social #MLSky #StatSky
Founder @ datascientific.com
Founder wimlds.org & co-founder rladies.org
PhD @ UC Berkeley
🏡 🌈 Oakland, California.