Luke O’Neill @lukeo.bsky.social Tired
Putrino Lab @putrinolab.bsky.social 
Ben Raderstorf @raders.bsky.social defend democracy and build homes / policy advocate @protectdemocracy.org / author ifyoucankeep.it / board @sacyimby.bsky.social / rash opinions my own
No kings but Sac Kings
📍Sacramento
Senior and Disability Action @sdaction.org We mobilize and educate with and for seniors and people with disabilities, fighting for individual rights and social justice
San Francisco, CA
sdaction.org
https://linktr.ee/sdaction
Erin Biba @erinbiba.bsky.social She/Her
Freelance Science Journalist. Fact Checker.
NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others.
Hire me to fact check your book.
I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills.
Jersey girl.
Matthew Cortland (they) @matthewcort.land Chronically ill public health JD writing to make sense of the policy hellscape so you don't have to do it alone. Actionable analysis & trustworthy guidance for people the system wasn't built to protect. Free & paid: ShouldntNeed.com
Sr. Fellow DFP. 🏳️⚧️nb
Leah Lakshmi Piepzna-Samarasinha @thellpsx.bsky.social writer, The Way Disabled People Love Each Other, Future Is Disabled, Care Work, Bodymap,Dirty River co-ed w/@ejeris of Beyond Survival ,1/3rd of http://cripsforesimsforgaza.org. seen a lot, still doing the rest. brownstargirl.org
Mia Ives-Rublee @seemiaroll.bsky.social Grad student, policy nerd, and public speaker
호랑이 담배 피우던 시절
s. e. smith @sesmith.lol that person with the peaches
national magazine award-winning culture critic & writer for hire
🌿 @theflytrapmedia.com cofounder
🐈⬛ 📖 ALL MY DEAD CATS AND OTHER LOSSES out now!
🖋️ get your grief advice on @allmydeadcats.com
✉️ sesmith at realsesmith.com
Chloé de Canson @chloedecanson.bsky.social Formerly assistant professor of philosophy • bedbound since 2022 with severe myalgic encephalomyelitis, a type of long COVID • philosophy of science, epistemology incl. social, and their history • chloedecanson.net • 🇵🇸
Nawar Naseer, PhD, MPH @naseernawar.bsky.social Director of Engagement, Penn Medicine BioBank
EHB on BET @ehbforbet.bsky.social South Minneapolis resident, tax policy wonk, and winter enthusiast. Commissioner on the Minneapolis Board of Estimate and Taxation. Unofficial account.
https://linktr.ee/ehbforbet
Susannah Fox @susannahrfox.bsky.social Author, REBEL HEALTH. Amateur sunflower farmer. There are people who would love to help you, if only they knew how to find you.
Trash Art @trash-art.bsky.social Recycled collage from a non-artist. Trash only.
Kristin Urquiza @kdurquiza.bsky.social Causing good trouble at the nexus of people, climate, public health, economic security and art. Co-founder @MarkedByCOVID. Goldman School. Lux et veritas always.
Jess Lee @jesslee.bsky.social Human rights attorney working for equity in education and the workplace. Black, Muslim, feminist, disabled, queer, golden ear. The one who always makes it weird.
(Formerly JessLeeEsq)
Public Health Action Network @publichealthaction.bsky.social Our mission is reducing airborne disease transmission with technology that protects people, advocacy that informs people, and community that supports people.
publichealthactionnetwork.org
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Phil Halperin @philhalperin.bsky.social Just here for news, wisdom and the music
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
SammyJo Wilkinson @sammyjoebv.bsky.social MS Research
Letícia Soares @leticiasaurus.bsky.social Co-lead & patient-researcher @patientled.bsky.social. Biologist, PhD. Brasileira. - G Ginaassaf @ginaassaf.bsky.social
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
Protect Democracy @protectdemocracy.org We are a nonpartisan, nonprofit group working to prevent authoritarianism. This account is owned and operated by Protect Democracy United.
Follow us on other platforms ➡️ https://protdem.org/m/stay-connected
Carl T. Bergstrom @carlbergstrom.com Professor, UW Biology / Santa Fe Institute
I study how information flows in biology, science, and society.
Book: *Calling Bullshit*, http://tinyurl.com/fdcuvd7b
LLM course: https://thebullshitmachines.com
Corvids: https://tinyurl.com/mr2n5ymk
he/him
Cat Brooks @realcatbrooks.bsky.social Executive Director, Justice Teams Network and @aptpaction.bsky.social | Host, Law & Disorder on KPFA Radio | Organizer, Strategist, Columnist, Artivist, and Playwright, Director and Actress | catbrooks.org
victoria @vashetc.blacksky.app † doktora | research+policy | perpetually horizontal
ID’s: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
Michael Hobbes @michaelhobbes.bsky.social Solitary, poor, nasty, brutish and short.
Ana Marie Cox @anamariecox.com Contributing editor @newrepublic.com Co-host of Space the Nation (sci-fi meets politics) + @pastduepodcast.com (gig economy, culture, survival). I lead The Third Story Workshop, helping writers tell the(ir) truth. Matthew 25:35 voter.
anamariecox.com
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Tinu @tinu.bsky.social It is I, trouble maker Tinu, Empress of Twerk, Thirst of my Line. Take a pic it's me.
I have a weird Leukemia and Long COVID. So forgive me for being MIA for days or months, it’s medical exhaustion. 
Wendy Adams @adamswendya.bsky.social Scientific philanthropy, patient advocacy
Formerly Research Grant Director, Bay Area Lyme Foundation
Taylor Lorenz @taylorlorenz.bsky.social Subscribe to my tech and online culture newsletter UserMag.co
Listen/watch Power User podcast on all platforms!!
Support my work on Patreon: https://www.patreon.com/cw/taylorlorenz
Jessie Harney @jessieharney.bsky.social Public Policy & Administration @ Colorado State, justice system reform and public management, will favorite all dog GIFs
Fi Lowenstein @filowenstein.bsky.social writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more...
https://www.fionalowenstein.com/
The Long COVID Survival Guide:
https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/
they/them 
Krista Coombs @kcoombs.bsky.social Plants and mushrooms ❤️🌱☘️🍄, Lyme, ME, Peer Support #LongCovid, #LongCovidKids https://padlet.com/krcoombs/long-covid-associated-conditions-2eb2h1agyvdeyffh
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
@creighton.bsky.social @creighton.bsky.social she/her | 27 🔻
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Rhyothemis @rhyothemis.bsky.social ~fluttering from topic to topic~
MLIS, MSc (marine biology)
interests: biology & medicine, nature & environment, natural products & functional foods, gardening, cats
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
Richelle Sepulveda @richellesepulveda.bsky.social Long Covid, MECFS, ADHD, etc.
Patient-led research is my jam.
A bit obsessed with GIP.
Liz Highleyman @lizhighleyman.bsky.social Freelance medical journalist. Science editor for @pozmagazine.bsky.social, Hep & CancerHealth. Words for aidsmap, Slate, Bay Area Reporter. Research beagle adopter.
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Elizabeth Linos @elizabethlinos.bsky.social Professor of Public Policy & Management, Harvard Kennedy School
Faculty Director, The People Lab
ElizabethLinos.com
peoplelab.hks.harvard.edu
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Long COVID Justice @longcovidjustice.org We are leading grassroots efforts to confront the Long COVID crisis, while centering racial, social, economic & disability justice. Our work is done by and for chronically ill & disabled people, our families and communities. linktr.ee/longcovidjustice
Angela May O'Connor @amayoco.bsky.social Neuroscientist 🧠 Bookworm, Mumma, Australian 🇦🇺 Long-Coviding since Feb 2022. All opinions my own.
C.H. Romatowski @romatowski.bsky.social Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Daniel Lewis @daniellewis.bsky.social My #LongCovid is mainly #PEM + #POTS + #MCAS
betsy ladyzhets 😷 @betsyladyzhets.bsky.social editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me