@ltollet91.bsky.social @ltollet91.bsky.social 
Anne Kremer @annek94350.bsky.social Psychiatry resident currently on very long sick leave due to long covid/ME. Also interested in the ethics of both subjects.
ME Advocates Ireland (MEAI) @meadvocatesireland.bsky.social Advocating for People with Myalgic Encephalomyelitis (ME) of all ages & severities.
Webpages:
https://meadvocatesireland.blogspot.com
Email: info@meadvocatesireland.com
Karen @eethie.bsky.social Mainly here to look at dog photos.
Might occasionally chat #Pompey 💙 | #F1 🧡 | #ME/CFS 💙 | #MentalHealthNursing 💚
ME/CFS warrior @justjones43.bsky.social Standing at the corner of Social determinants of health & Common sense and wondering where everyone else is.
Free-thinker. Sometimes my thoughts wander off and I have to go look for them.
https://ko-fi.com/jones43
for help with car repair- S Stef D'Andrea @stef777.wsocial.eu
Christian Haberhauer @haberhauer.bsky.social Redakteur - APA Innenpolitik
Dr. med. Michaela Bauer @drmichaelabauer.bsky.social https://www.dr-michaela-bauer.ch/
Fachärztin für Psychiatrie & Psychotherapie FMH; Fähigkeitsausweis Abhängigkeitserkrankungen
Entpsychologisierung von ME/CFS
Gründungsmitglied Psychotherapie-Netzwerk ME/CFS e.V.- J Joanne D'Andrea @joanne.wsocial.eu
@verdantspace.bsky.social @verdantspace.bsky.social 
Tony Britton @thewestonmale.bsky.social Retired UK journo and charity PR/fundraiser. Proud dad and grandad. Such an Oddfellow. Soft spots for @MillMedia.bsky.social, @newjournal.bsky.social and @FenlandOF.bsky.social. By the way, I also ❤️ #Tasmania
Marion Michell @marjojo2004.bsky.social Visual artist, writer, M.E. advocate (have severe M.E. and POTS). Author of SUPINELY SUBLIMELY. Queer. Pronouns she/her.
@traceydooley.bsky.social @traceydooley.bsky.social Living an increasingly small life enforced via chronic illness yet striving to embrace snippets of delightfulness wherever and whenever I can
#MillionsMission
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
oughhh @splendidsun.bsky.social 25+.♿. nsfw on this account
yet another trigun nerd.
covid is not over, mask up and resist eugenics.
my masto: https://kolektiva.social/@tinypaperstars
WILDsound Feedback Festival @wildsoundfestival.bsky.social Telling stories through film and conversation. WILDsound showcases the best of new films & screenplays from around the world in a daily film festival.
www.wildsound.ca
https://filmfreeway.com/WILDsoundFilmandWritingFestival
Count Melancholia @lillyh.bsky.social Working for a fascism-free, habitable Earth and for Scottish independence. #MECFS #BasicIncome WGB'er
I spend more time on Mastodon, the ethical platform. You can follow my bridge from there at: @LillyHerself.mastodon.social.ap.brid.gy
BlueSky broke DMs.
Ciaran De Buitlear | Gardeningwell @gardeningwell.ie Author of Nature’s Acre. Founder, Gardeningwell.ie — wildlife gardening in Ireland (Stamullen, Co Meath).
Walled garden + school/community projects.
Peat-free, pesticide-free. Native plants, pollinators. Media: gardeningwell.ie/press/media
Tiger-Lily Snowdon @tigerlilywrites.bsky.social Freelance Journalist
London School of Journalism Diploma
Bylines: The Guardian, The i Paper, The Lead, Inspire the Mind, Shout Out UK
https://linktr.ee/tigerlilywrites
Kerstin @sannara.bsky.social #MECFS #MILLIONSMISSING #MEAwareness
#PEM #POTS #MCAS
#PostCovid #LongCovid
#TeamWissenschaft #GdB
https://www.mecfs.de/was-ist-me-cfs/
https://www.psychotherapie-mecfs.de/
Jacques Pretorius @jacpret.bsky.social Stand together against fascists, dictators, aggressors, haters, conspiracy theorists, disinformation.
How?
Address crisis of trust in institutions
Address crisis of masculinity
Address disinformation
Promote responsible navigation of social media, bubbles.
KarrieS @kspink.bsky.social Colour Is Life! Artist /Consultant #mecfs completely disabled by #LongCovid since March 2020 . Art &History Politics wife mum gran aunt and dog lover 📚 🦋♿️🇬🇧🇪🇺🇨🇦🇺🇦🌻💪🇬🇱🇩🇰🩵🩶🖤🎀♋️ 💚Individual #HopeNotHate!
Richard Lewis @z3r0gravitas.bsky.social Extropian sci/tech geek. Improving moderate #MEcfs, #non24-hour sleep. #ADHD-PI, #AuDHD, #dyslexic. "ZeroGravitas" in PC gaming. He/him. 43. Please correct me. https://linktr.ee/ZeroGravitas
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Matt Wake @mattowake.bsky.social 
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
The Nonconformance Report @qmsnews.bsky.social curated medical-device quality & regulatory news · FDA · MDR · ISO 13485 · eQMS releases · every post links its source
Sarah O'Brien @qmssarah78.bsky.social quality director @ a dublin pharma-adjacent CM. 30yrs in the trenches. 8 FDA inspections survived. tin whistle thursdays. two jack russells
Autistic Realms (Helen Edgar) @autisticrealms.bsky.social 💜 ♾️ AuDHD | Monotropic | Neuro-affirming Autism advocate & consultant.
Interests: monotropism, flow, burnout & neuroqueer theory.
Writer • Trainer • Resource Creator | Former SEND EY/Primary teacher ♾️ 💜
https://www.autisticrealms.com/
Ollie @chamberlago.bsky.social cham·ber·lar·go: Mostly tired and angry #mecfs He/Him cis
Louise Kenward @louisekenward.bsky.social Writer, Artist, Psychologist
MOVING MOUNTAINS
PhD candidate at Centre for Place Writing, Manchester Met Uni.
Exploring the Romney Marshes & its coastline through post-viral illness. https://louisekenward.substack.com
Rep'd by @portyliterary.bsky.social
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Patienterna @patienterna.bsky.social 📍Kunskapshub med patientperspektiv. 🔎Postcovid & ME/CFS ⚖️ Jämlik och tillgänglig vård för alla - oavsett diagnos, ekonomi eller geografi.
—-
📍Swedish knowledge hub with a patient perspective. 🔎Post-COVID & ME/CFS
@radioluxradar.bsky.social @radioluxradar.bsky.social 
Reda @onlymurders.bsky.social (She/her)
Former Television Producer living with Long Covid, Writer and Angeleno —Meet me over on Substack at Only Murders In The Inbox
http://onlymurdersintheinbox.substack.com
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
melissajwx.bsky.social @melissajwx.bsky.social Very severe M.E/POTS/MCAS. (FUNCAP 0.2)- P @pennysfromwales.bsky.social @pennysfromwales.bsky.social
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Fiona Christophers @fionachris.bsky.social Nature-loving city dweller. Sewing enthusiast and crafter. Life on pause due to Long Covid Oct 2020. #FBLC #longcovid #me/cfs
dSavannah @dsavannah.bsky.social ~ Life stolen by MEcfs-hEDS-fibro-POTS-&c; FT sick since 12/2014
~ #LiveInBedButIAintDead
~ When brain & body behave: Chronic Illness Advocate
~ Discworldian, Browncoat
~🐱(x3)🐢💐🌻🌷📸📚🖼️
~ she / her ~ Love Is Love ❤️💚🧡💛🩵💙💜🤎🖤🩶🤍🩷
https://linktr.ee/thedsavannah
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.- D @dbach.bsky.social @dbach.bsky.social
@0li-b.bsky.social @0li-b.bsky.social 
@ari-nokita.bsky.social @ari-nokita.bsky.social Listener by trade; Observer by nature; Silent by design.
John Wilson @theoldguy56.bsky.social Getting old but very content.
I love my wife and my dog. A good bit left of centre, let’s Re-join the EU. I like to swear a fucking lot. Glaswegian, now living in Coatbridge #FBPE. Trump is a cunt. Scotland 🏴 forever.
🦊Lauren🦊 @lollyfox12.uk Living with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / Long Covid since 2022.
Big fan of: McLaren F1 🏁 ★ Foxes 🦊 ★ Stars ✨ ★ PC Gaming 🖥️ ★ Nature 🌿
@nikki-992.bsky.social @nikki-992.bsky.social #MECFS #longcovid
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Chronic Allies @chronicallies.bsky.social Chronic Allies is a health advocacy website dedicated to providing reliable information, practical strategies, and resources to support individuals in managing chronic illnesses and enhancing their quality of life.
Rebecca @softgothkitten.bsky.social She/her, chronically ill, writer.
BA degree in Disability Studies
Anti-eugenics, pro-masking & clean air.
RFK Jr & MAHA hater
Free Palestine
Lizzy @hopefullizzy.bsky.social 31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Jenny (Kowalczuk) Sanders @jennysanders.bsky.social On a quest for joy.
Mother of #psychosis experiencing adult child - Writer and #poet - living with #ME/CFS/LC.
Creative work shared on https://rewritepsychosis.org
JK @fyttirakkernagitt.bsky.social "I was in the minority. As a matter of fact, I was the entire minority."
Skeptisk til dømmingen i norsk fotball.
Jess @jesspearce.bsky.social Interested in public policy, public health, planetary health, risk, philosophy, and ethics.
Long Covid / ME since 2022.
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
The Crosby Teacher @adriennemckay.bsky.social Training to be a primary school teacher in Liverpool - inclusive teacher for all. Feminist. SEN mum. Reader. Writer
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Katie As @katieas.bsky.social 🏳️🌈💙pw/ME #LwiththeT arty activist MyalgicE -Still Masking 😷
(I have left the other place permanently, please interact with me here!)
Fergus Murray @oolong.co.uk Monotropic writer, science tutor, Autistic community organiser and independent researcher. Based in Edinburgh.
they/them.
https://linktr.ee/0olong
@fatiguedfrog.bsky.social @fatiguedfrog.bsky.social 
Hamburgerabroad @hamburgerabroad.bsky.social A Hamburger on the Isle of Man. Living and pacing one day at a time while waiting for more treatment, research and answers for ME/CFS and POTS. In the meantime being kept company and being kept sane by two Miniature Schnauzers.
Joanna Redfeather @joannaredfeather.eurosky.social MSc Data Science student. BSc Hons Zoology grad.
Interests: Behavioural ecology, rewilding, HORSES! 🐴, communication, data, coding, ML, EDI&A 🏳️🌈. Ex tech SEO & analytics.
Kindness. Hope > hate 💚
AuDHD. #pwME. UK 🇬🇧
@wanderingnomad78.bsky.social @wanderingnomad78.bsky.social 
Louise Foster @louisefoster.bsky.social @SfpLouise on X, much prefer to be here!
Anti Brexit, pro immigration, humanist, (actually Marxist), studied & am passionate about politics & economics. Hate current journey of travel in UK, US & on X. Diminished by Long Covid, Fibro, ME & PoTS.
Myra Batchelder @myrabatchelder.bsky.social Advocate. Consultant. Health Equity. Gender Equity. Social Impact. SRHRJ.
New Yorker. Midwesterner.
She/her.
jo @moerakijo.bsky.social Living with Long Covid and ME
Love books, libraries, histories
she/her
Aotearoa New Zealand
#LongCovid #ME #WearAMask😷
#CovidIsNotOver
#LongCovidAwareness
Kristin Houlihan, Writer @kristinwrites.bsky.social Poet, Wife, Mom, LongCovid/MECFS. Looking to connect and learning to advocate. EIC, Poetry @epistemiclit.Bsky.social, @nimblewitlit.bsky.social. Micropoetry chapbook Lift the Mask available widely. www.kristinhoulihan.com
Trish Davis @ozfish.bsky.social Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info 
Yvie Juniper-Johnson @yviejohnson.com 🌈Illustrator & Storyteller & Poet
♿️ ME & TN // ✨AuDHD // 🪴Intuitive
🦋 Disability, Creativity & Feeling Whole
🏴 Denbigh, Wales // dw i'n dysgu 🏴
Delightful: https://yviejohnson.com
Lisa Geiszler @melovewarrior.bsky.social Chronically ill/disabled poet, activist. A dancer in my dreams. 🦥🐌🐢Part of the go-slow, rest often club.
Sarah Stockton @sarahstockton.bsky.social Author of the poetry book: The Scarecrow of My Former Self (MoonPath Press 2024, finalist for the WA State Book Award) and 3 chapbooks: Time's Apprentice 2021, Castaway 2022, Pelican's Daughter 2026.
Kayleigh Kavanagh @kayleighkavanagh.bsky.social Writer. Author. Spoonie. Part time jewellery maker
@artandlongcovid.bsky.social @artandlongcovid.bsky.social Living w/ Long Covid, still trying to make art.
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
Niraj Patel @nirajp.bsky.social Colour in this silhouette, let us all try to forget
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
Sleepy Portal Ghost @sleepyportalghost.bsky.social 
Callum Laing @callumlaing.bsky.social I help ambitious people raise capital, get board seats, take companies public. Let's get more entrepreneurs and builders on bsky!
Author of 4 best selling business books
@pwme.bsky.social @pwme.bsky.social 
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
SunCat Trinkets @suncattrinkets.bsky.social Hand-made bracelets and beadwork specializing in custom and intentional pieces ✨
Online Shop:
www.suncattrinkets.com
Whatnot:
https://www.whatnot.com/user/moondrivezee
TikTok :
https://www.tiktok.com/@suncat.trinkets
Chelsea Without Barriers @chelseawbc.bsky.social Chelsea’s Official Global community uniting disabled Chelsea fans worldwide.
https://chelseawithoutbarriers.com/
Ahimsa @ahimsa-pdx.bsky.social Vegetarian, book lover📚
ME/CFS since 1990 ♿️
She/Her
What's ME/CFS? = https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-596527
Mastodon = https://disabled.social/@ahimsa_pdx
Profile: Tabby cat w/white chest & paws
Banner: Green trees
VegPlotter: Online Vegetable Garden and Allotment Planner @vegplotter.com The best online Vegetable Garden & Allotment planning software to get you organised in the garden.
Fully featured garden planner vegplotter.com
Frost dates and growing zone calculator frostdates.com
Nic Wilson @nicwilson.bsky.social Writer, Editor, Guardian Country Diarist. Author of LAND BENEATH THE WAVES (one of BBC Wildlife Best Books of 2025): https://shorturl.at/PFJPF
MA, PGCE, FBNA, Patron #JohnClare Countryside, Trustee of British Naturalists' Assoc. Rep: Joanna Swainson
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
FarmerHoggit @farmerhoggit.bsky.social Guitarist for SilburnBand |
Co-founder of TheSpookatorium
he/him
Stripy Lightbulb CIC @stripylightcic.bsky.social Award-winning #SocialEnterprise working to improve the lives of people living with #MEcfs by educating professionals who have a duty of care.
CPD accredited online training courses.
www.stripylightbulb.com
Am Chima @ace9801.bsky.social ME - patient/advocate LC, ME/CFS & more; RACE - human; RELIGION - truth; BIAS - unbiased integrity/evidence based science/reality; AVERSIONS - money, ego & power driven DEMENTORS; ASPIRATIONS - a DEMENTOR-free world & satisfying my “cerebral nerd crushes'!
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Edith CL @edithcl.bsky.social #longcovid #MEcfsally #mèresaufront #féministe #citoyenneengagée, idéatrice congrès #ecologiedelenfance
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
@barbaralavelle.bsky.social @barbaralavelle.bsky.social