Sarah @sarssee.bsky.social Life on Pause. Design. Architecture. Environment.
H2oBio @h2obio.bsky.social Passionate swimmer housebound due to LongCovid.
Interested in biology, biochemistry, systems theory, exercise science and LongCovid/MECFS
Charles Turner @kafkaboots.bsky.social 
Deep Jace Nine β¨π @captuntouchable.bsky.social Uncle. Space Nerd. He/They. Bisexual. Neurospicy.
ME/CFS. ADHD. Autistic maybe? βΏπ³οΈβπ
squidward's long lost black cousin (they/themme) @djinnofthedamned.bsky.social π πππΎ π½ππππ πππΊπ ππππ π»π πππΎ π½πππππΊπ π
πππππππ | π πππππ | ππππππππ ππππ | πππ ππ’ππππ
βΆ ο½ο½ ο½ο½ο½ο½
ο½ο½ο½ο½'ο½ ο½ο½ο½ο½ο½
ο½ο½ ο½ο½ο½
ο½ο½ο½ π΄
i came to haunt shit, π'πππ ππ ππππππ
https://linktr.ee/djinnofthedamned
Wilkie is Tired @wilkie28.bsky.social Spoonie,π, pro-democracy.
A hopepunk tragic optimist @kmartino.bsky.social Dad, Husband, software engineer, bad songwriter.
Outrage engages, but truth & trust, scale.
Be Kind, Be True, Believe.
Freedom is a pure idea
Be excellent to each other
Emily Lim Rogers @elimrogers.bsky.social anthropologist working on biomedicine/debility/capital. she/her dog dad π΅πΈ
emilylimrogers.com
janeycull @janeycull.bsky.social Artist Old School Lefty Severe ME She/her
rachaelawaits @rachaelawaits.bsky.social [tired of things that break, andβ
just tired]
Sleepy Amy @sleepyamy.bsky.social Pile of poor coping mechanisms in a malfunctioning meatsack.
POTS, EDS, probable ME/CFS and more π Nature lover, bird watcher, politically left. @amy_is_tired on The Other Place. Mask up! π·
For my music, follow @amyclaromusic.bsky.social 
Razzle dazzle @rozzledozzle.bsky.social π·ππͺ΄π²ππ¦ π»π¦
Bringing irreverent tumblr energy to see what people smarter than me are up to and represent no one's thoughts or opinions
You don't have to follow me or interact, feel free to ignore me and don't hesitate to use that mute/block button! /genuine
Rose Mallow @swamp.bsky.social
Do no harm, take no shit.
Recent transplant to the PNW.
Growing native plants, gardening for critters. ππͺ±π
***
Pfp: bright green flower buds from a Rose Mallow plant I grew.
Banner: a light pink Rose Mallow bloom in the sun.
Eleanor Fielding @meownersclub.bsky.social βWeβre driving in the dark with our sunglasses on!β
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS Bβham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
BB Fridgers @bbfridgers.bsky.social Ice age coming
A Jelly Squishes Slowly By @ubiquisquish.bsky.social Jellyfish lurker queen
chronic illness
random yelling
CYBERDARK DRAGONMAID @retr0flesh.bsky.social Locri, it/they/any, 30s, queer artist
π frequently & horrifically sexy
pfp by @rbluemera.bsky.social, @/RBoumera on twt
Scott Hugo @scotthugo.bsky.social In it for the long haul. Healthy doses of chronic illness advocacy, (dark) humor, and hope. No Rx needed. Fighting the world's fight, from home.
IG: @therhodesscholarlonghauler
Bright D Limm μλμ€ @bdlimm.myatproto.social Interested in everything; dedicated to base-building & party-building. Member of NY WFP & NYC-DSA. Partner to one, sibling to three, comrade to many.
@workingfamilies.org | @nywfp.bsky.social
@socialists.nyc | @socialistmajority.com
πJamaica, Queens NYC
eli @elipheleh.bsky.social eli. they/them. adult. disabled.
dont ascribe malice to what is likely misinterpretation. kindness is my default.
i regularly delay posting things for privacy.
arapache @arapache.bsky.social π«No DMβs.
Raging lefty.
ME warrior (every second of every day, yawn).
Wrong kind of Jew for Zionists.
π«no DMβsπ«
no pornπ«
No DMβsπ«
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Kat βοΈβ¨ @gardenpoppy.bsky.social swiftie | tn1 | gardening | pop
π clean air/water/soil/food
Moss_thegaymer @mossthegaymer.bsky.social Pronouns: They/It
moss_thegaymer on all socials
Genderfluid | Disabled | Chronically ill | Cosplayer
-20-
FunkisHen @funkishen.bsky.social Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, AuDHD, lives in the forest.
Gender neutral pronouns preferred.
Trying to be kind.
Kate Sattler | Sweet Freeze @katesattler.bsky.social Enthusiastic. Makes lonely music.
https://sweetfreeze.bandcamp.com/
she/her π· mpls > pdx
spacer #SevereMECFS @spacer.bsky.social π³οΈββ§οΈ he/they
+18 please (i reskeet NSFW)
pfp: cow in pool
banner: Communists, Haters, Perverts and Boring Individuals
π΅πΈ donate to Shrouk Al-Qita'a @shroukqataa.bsky.social
https://chuffed.org/project/129725-altbraa-mn-agl-aaaylty
Hughie @hugle.uk It's the surviving that's killing me #π£π¬ππ₯π²πππ§π€π¦π
https://www.goodreads.com/author/show/20671806.Hughie_Carroll
pumpkin @pumpkinstars.bsky.social hi im pumpkin. she/her. π§ πΆοΈ. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. πΊπΈ
hannah @hannza.bsky.social exhausted millenial swears slightly less often than previous; more news at 11. Jewish, neurodivergent, queer ace, disabled. will make things (& theatre) when not exhausted. nerd, fannish (ask for pseud). she/her.
(also @hannza on twitter)
Beth Morton @migrainechat.bsky.social Education researcher turned migraine advocate
#MigraineChat moderator
VT maple syrup aficionado
π« Unsolicited advice
She/Her/Dr (PhD kind)
Header: Dinosaurcouch
MigraineChat Resources & Discord:
https://campsite.bio/migrainechat
MC feed/starter packππ»
James Hamilton @jameshamiltonwriter.com Emmy nominated wordclown. Londoner lurking in LA. Head Writer of Jentry Chau Vs The Underworld (Netflix) and Dogs In Space (Netflix).
Creator of award winning horror-comedy-mock-doc Murder for Dummies (murderfordummies.com).
jameshamiltonwriter.com
Anna Holmes @annabookwriter.bsky.social Author (The Ember of Elyssia Quartet, Fortune's Calling Trilogy, THE BRIDAL PARTY, THE PRINCE WITH SIX FACES). Dice roller. Disabled in the library. All opinions mine. All around nerd.
https://linktr.ee/annaholmeswritesbooks
(She/they) βΏοΈπ³οΈβπ
Heather Naomi @mysticalmarigold.bsky.social Gardener, yarn lover,
mid-Atlantic coastal plain,8a
native plant obsessed,
me/cfs, left left, veteran,
mom, married to Bart,
Once a bookseller, always a bookseller,
visual stimmer,
she/her
@arcticfox87.bsky.social @arcticfox87.bsky.social 
r #FreeΕink @rifka.bsky.social she. basically 40. reforming β’οΈ
discord: rif.161
mostly autodidactic in: political linguisticsπ΄
san diego wheelchair user. VERY AUTISTIC, relatedly also #1 US Carrlyn AND Quinton fan
ππ€΄β½οΈπ ππ³πΏ|ππ₯π¦βΎοΈπΏππ₯οΈ
remember block me @rifka1.myatproto.social tooππ΄
Mask Up Comments and Opinions @commentsandopi2.bsky.social Fact, history, opinion, and sarcasm, with an occasional side dose of sass.
Primary function of being occasionally useful in between shitposting and ranting about politics! Expect bad language
#CovidisNotOver #Masksinschoolsnz #MasksinHealthcare
Disability Culture Lab @disabilitylab.bsky.social DCL is a nonprofit disability media and narrative lab, by and for disabled folks. We exist to dismantle ableism and celebrate disabled community and culture.
https://linktr.ee/disabilityculturelab
@h0pe4dfuture.bsky.social @h0pe4dfuture.bsky.social American, 4th Generation Military, Retired NOAA, Democratic Socialist and Anti-fascist, Radical Left Scum and proud of it.
Amy π€οΈ @cloudsandsunshine.bsky.social #CovidisAirborne
#LongCovidKids
#pwLC
#pwME
A life long reader, a sometimes baker and a community gardener.
Views are my own.
Annals of Family Medicine @annfammed.bsky.social The leading peer-reviewed journal for research in #PrimaryCare, with a 5-year impact factor of 5.5. Always #OpenAccess, no fees to publish.
https://linktr.ee/annfammed
Mother Jones @motherjones.com Investigative journalism π΅οΈ, politics π³οΈ, chart-tastic π, and sometimes sarcastic πππ€ͺ
Join our people-powered nonprofit newsroom: motherjones.com/subscribe
Amy N-K @aankphd.bsky.social She/they. Nonprofit grant writer/consultant. PhD, research and evaluation nerd. Mom of 4 wonderful young adults. Queer, polyfi, disabled, Quaker, PNW. Grateful for love, art, music, birds, gardening, and my service dog.
π³οΈβππ³οΈββ§οΈπ€π€βΏοΈ
Claudia Alick @callingupjustice.bsky.social Justice Producer Online, Onstage, In Real Life. Poet, inclusion exporters, Crip Doula, Ex. producer Calling Up Justice 
Stand Up for Science! @standupforscience.net We mobilize the fight for science and democracy - because science is for everyone! π§¬π§ͺπ
Donate here: https://bit.ly/SUFS_GIVING
Learn more β¬οΈ
https://linktr.ee/standupforscience_bluesky
Ness @nessau.bsky.social Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets.
AUS
Erin Raeburn @erinraeburn.bsky.social Scribbler of stories, bookworm, nocturnal hermit, nature & whimsy lover, ME/CFS & fibromyalgia+, vaxxed/masked, socially-minded lefty on Wolastoqiyik territory. (New Brunswick, Canada) She/her.
Jane Pannell @granejane.bsky.social Disabled by ME/cfs, artist, former RN, progressive.
WaysideCat @waysidecat.bsky.social Wear a #respie #covidisntover #VaxUp #CleanTheAir
Renewable energy now
Penncat @pennicat.bsky.social Shy, disabled, queer, autistic.
Requires alt text to follow you.
Writer of contemporary m/m/m and lesbian historical novels.
Book related stuff found mostly at @penthewriter.bsky.social
Cornwall dweller.
May actually be the cat in the picture
Sigrid C. Degener @esceedee.bsky.social Horizontaalvirtuoos
Nachthaker
Runt af en toe een bed & brakdag
Maakt* de wereld graag mooier
(*handwerken, koken, fotograferen, schrijven) wanneer het lijf het toelaat
π³π΄TrΓΈndertun β90/β91
#pwME
christy @giggo77.bsky.social Hockey Nut. Animal Lover. Vinyl Hoarder. Team Oxford Comma. Thalassophile π©΅ If I ever start a band, Iβm naming it Wicked Wrister.
Owl @typicaltheythem.bsky.social Dynamically disabled dysautonomic trans non-binary forest dweller and sleepy sloth. π³οΈββ§οΈ
Part of the viral underclass disappeared from society by COVID denial π· but doing my best to be part of the collective good anyway π
Wobbly π΄
Erika ZD @ezd.bsky.social Professor, Parent, POTsie, baker. Minnesotan forever. Assoc Professor in the humanities. Taking things slow thanks to long Covid. Sharing Covid science and public health. Always speaking for myself, not my employer.
Amnesty @amnestyclaire.bsky.social she/her
@kathleenoneill.bsky.social @kathleenoneill.bsky.social 
@plushposse9.bsky.social @plushposse9.bsky.social 
Chronic Illness Resource Library @spoonieresources.bsky.social Sharing fact sheets, how-to guides, online tools, worksheets, research, and other helpful info for people living with chronic illness(es).
Not a health professional.
Requests/suggestions welcome.
π« No AI
linktr.ee/chronicillnessresourcelibrary
Not Many Spoons @tironbeard.bsky.social Dad. Husband. ME/CFS. Interested in history, politics, books, gaming, food. Quiet but here.
Banner: Picture of a mountain covered with green trees and a cloudy blue sky.
Profile: Winter landscape with a tree and snowy mountains in the background.
Stephanie Burgis @stephanieburgis.bsky.social Fantasy writer, history geek, dark chocolate addict! Writes sparkling fantasy rom-coms for adults and fun MG fantasy adventures. She/her.
linktr.ee/stephanieburgis
@fadingred.bsky.social @fadingred.bsky.social 
Lilith Grace ToitΕ« Te Tiriti @lilithgrace.bsky.social Me again. Whatβs one more social medium? Chronically ill artist who also writes. Loves cats, jokes, social justice, clouds. She/her. Aotearoa. π³οΈβππ³οΈββ§οΈally.
Hippymum @hippymum.bsky.social Happily married. Fighting to get through one day at a time. 43 years with M.E., hEDS, POTS, COPD, Fibromyalgia, Osteoarthritis, Scoliosis, Reynauds, and a whole heap of other crap. I've no quality of life, mostly bedbound and hate it.
Eleanor @eleanoralbaugh.bsky.social Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and letβs connect.
In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW.
Alt text required.
Prof Ros Gleadow FAA ππ―οΈπ @rgleadow.bsky.social Plant scientist studying how climate change affects plant toxicity (#cyanide). Born 314ppm.
Interested in science, tech, plants. #MECFS ally #botanist πΎπͺ΄π§ͺπ±πΏπ
Views my own
Kristin Meekes @kmeekes.bsky.social ICU RN
Clean air + N95 fan
#CovidIsAirborne #KeepMasksInHealthcare
She/her
π Unceded Algonquin Territory (Ottawa, ON)- O raisin @ottobotto.bsky.social
Anderson Cooper's Stunt Double @boinkofscience.bsky.social He/Him l Calvin and Hobbes enthusiast | Robot umpire fan | Best friend of dogs
Galen Warden @galen2.bsky.social Artist, Author, Crafter, Caregiver, Mom to Six adults, a dog, & a cat.
Stephanie Ko @sinistralscribe.bsky.social Disabled & chronically ill admin, advocate, pixel pusher, plant enjoyer, costumier. She/her/hers.
π #MECFS et al. | π GM at @operamariposa.bsky.social
πMST Territories (Greater Vancouver, BC)
https://stephanieko.carrd.co
Sebastian (they/them) @sickseb.bsky.social Probably resting right now
I care about disability justice, PIC abolition, & staying safe in the ongoing pandemic
Into nerdy nature stuff, crafting, cozy video games
Trans, 40s, survivor, disabled (long covid, ME, POTS, PTSD, migraines)
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Nicky (π¦΅πΌπ) Rodriguez is on sub! needs an agent! @artofnickyrdrgz.latinsky.app π³οΈβππ΅π· award winning/nom'd illustrator & comic artist | gray ace-bi | disabled | support my webcomic TUOTEON | Stacked Deck Press, Scholastic, OSU Press, DC, Z2, Rutgers Uni Press | pre-press person by day. seeking new agent!
CoRy Wysz π€ @corywysz.bsky.social A disabled Photo Alchemist who thrives off Eldritch Whimsy.
HQ - https://corywysz.com/
brokenwingpoet @brokenwingpoet.bsky.social Poet. Writing on disability & eco justice. Bedbound with Long COVID and Severe ME. π π΅πΈ π² π¦ π·
My first first poetry book, WILDNESS UNAFRAID (Kelsay Books, 2026) is out now! Available at multiple book stores below:
https://linktr.ee/Brokenwingpoet
Sedimentary Stories @sedimentarystories.bsky.social Grief support & writing workshops to help you heal ancestral relationships, connect with nature, and to put your best story forward.
#AuDHD #spoonie π³οΈβππ³οΈββ§οΈβπ»π±πͺ¨
Michelle is Le Tired @michellek107.bsky.social Somewhat retired from 30+ yrs in education
I read a lot of books, and I write songs and stories for my own entertainment.
Kohala @kohala.life Resident of the illegally occupied Kingdom of Hawai'i.
π©οΈπ Z9BpiCdO_dwn
She/her/old
Magpie @magpieofthesea.bsky.social she/her
Terminaly ill with cancer but interminably thinking about:
birds, dinos, cats, landscapes, surviving, grieving out loud, m.e., disabity, cancer, covid
β¨οΈRESEARCH SAVES LIVES, not pink ribbons
Center for Racial and Disability Justice @crdjustice.bsky.social Promoting justice for people of color, people with disabilities, and individuals at the intersection of race & disability. Housed at UCLA School of Law. Reposts not endorsements. https://linktr.ee/crdjustice
ChembuπΊπ§Ά @chembarathi.northsky.social Autistic(she/they) ~Bangalore,India ~
Maker of beautiful things π§Ά
Bedbound by #MECFS and
Appreciate all kinds of Support through
https://ko-fi.com/chembarathi/shop
Jenna Norton @jenna-m-norton.bsky.social Health Equity Scientist, Bethesda Declaration signer, work at NIH, speak in my personal capacity, photo: AP/Jose Luis Magana
Also on:
https://www.instagram.com/jmnorton
https://www.tiktok.com/@jennajmn
https://linktr.ee/declarationsofdissent
Dave Underwood @oblivionwithbells.com I blog about mortality awareness. Humanist. Anti-authoritarianism. I have #MECFS. Reposts not necessarily endorsements. (he/him)
My blog: https://oblivionwithbells.com
Location: Loughborough, United Kingdom π¬π§
Firstname Lastname #FuckTrump @notunpackedyet.bsky.social Here to talk about #MEcfs, #MEspine, #hypermobility, #POTS, #hEDS, #LongCovid, #ChronicIllness and #disability ...but I also have opinions on other things. You have been warned :P
Ann Forbes @aeforbes.bsky.social noticingβwonderingβlearningβcreatingβcritiquingβrevising
truthbytwoheart aka truthbytwo music @truthbytwoheart.bsky.social Disabled multiracial reconnecting Indigenous Nahua, HñÀñú. Musician, Artist, Writer, survivor. Demisexual/demiromantic, nonbinary, agender. 2S. They/them/theirs pronouns. No asks for πΈ Iβm poor too!
ChloΓ© de Canson @chloedecanson.bsky.social Formerly assistant professor of philosophy β’ bedbound since 2022 with severe myalgic encephalomyelitis, a type of long COVID β’ philosophy of science, epistemology incl. social, and their history β’ chloedecanson.net β’ π΅πΈ
Julie Lam @msjulieslam.bsky.social MaskTogetherAmerica.org Founder, writer, photographer, independent COVID/Long COVID reporter, RECOVER rep. (IgAN Long COVID Warrior) MaskTogetherAmerica.org
Maya Dusenbery @mayadusenbery.bsky.social Journalist, editor, and author of Doing Harm: The Truth About How Bad Medicine and Lazy Science Leave Women Dismissed, Misdiagnosed, and Sick. www.mayadusenbery.com
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co π conditions go to:
π https://gptoolkit.ehlers-danlos.org/ π
Katie J. @kjohnstone.bsky.social ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
@jorybak.bsky.social @jorybak.bsky.social Finance & Art. History & Sociology & Fashion History. ME/CFS & LC π«©
Amelia Davies aka AmeliaAber @ameliaaber.bsky.social π΄σ §σ ’σ ·σ ¬σ ³σ Ώππ·π΅π§Ά
Kate Petersen @k8petersen.bsky.social Writer. Science and climate communicator. Former Stegner fellow at Stanford. Daughter of Gallahop. Opinions are my own.
Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social #Queer and #trans #disabled people have always had to find new paths for our survival
#Illder storyteller and strategist: http://thecrankyqueer.substack.com
#PandemicsAreChronic
β€οΈT4Tβ€οΈMask4Maskβ€οΈ #FBLC
#ApresJ20 - Association Covid Long France @apresj20.bsky.social Compte officiel #ApresJ20 Association Covid Long France visant Γ favoriser la Reconnaissance, les Soins, la Recherche et la Communication sur le #LongCovid
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Andrea Is Sick of Long Covid @andreastudiescovid.bsky.social Devout KN95 wearer.
MS.Ed., LPC, MA Sociology/Criminology
Trained, published researcher.
ADHD, C-PTSD, Long COVID since 1/2020.
Pro-LGBTQIA+, Anti-racist.
Listens to Genesis on an endless loop.
(Previously Ruth Langmore's Salty Attitude on Twitter.)