Diane O'Leary @dianeoleary.bsky.social Phil of mind/phil of medicine. Think the mind-body problem is wholly an abstract concern? Mind-body reasoning impacts your care every time you see a doctor - and right now that reasoning is incoherent. https://www.dianeoleary.com
#philosophy #philsky
Awais Aftab @awaisaftab.bsky.social Psychiatrist with philosophical interests | Conversations in Critical Psychiatry (Oxford University Press, 2024) | Psychiatry at the Margins www.psychiatrymargins.com
Norma @looftsabine.bsky.social Interessierter Laie
Wissenschaft/Forschung - Covid, LongCovid, ME/CFS - Pandemie, Endemie -
pro Ukraine
"Outbreak" - "Wag the Dog" -
"World War Z" and now
"Wayward Pines"? Human?
Kasper C. Jansen @kasperjansen.bsky.social Het leven is een langzame, pijnlijke dood. (Uitgebreidere meningen in @desnijtafel.bsky.social.)
Fred Rossi @darthfoo.bsky.social I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
https://darthfoo.substack.com
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Winslow Santé Publique @winslowsp.bsky.social Association de lutte contre le COVID composée de personnes vivant avec le COVID Long et de personnes handicapées et/ou malades chroniques.
👉 https://winslow.fr/
📧 winslowsantepublique@proton.me
Hans H. Diebner @unbewegter-beweger.eurosky.social Alumnus @Ruhr-Uni-Bochum.de
Mathematical and Statistical Modelling
Interests:
- Antibiotic Resistance
- ME/CFS
- Selective Mutism
- Critique of EbM, Causality, AI
Profile Banner: Endo View of the Rössler Attractor
Eja Kapeller @ejakapeller.bsky.social Journalistin @dossier.at
https://eja-kapeller.info/
Emily Mendenhall @emendenhall.bsky.social Editor-in-Chief of Science Politics, Anthropologist and Professor, Director of STIA, Author of Invisible Illness, Guggenheim Fellow
Helma @helma.bsky.social Ein freundliches Hallo an alle :)
(she/her)
"One day at a time. We cross the bridge when we get there"
Bibesch Header:
Ein Rüsseltier
Bibesch Profilfoto:
Gesicht mit Maske
Constanze Ertl @constanzeertl.bsky.social journalist, ORF, Vienna
persistence > contacts + competence :)
constanzeertl.at
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Mirja Nicolas @privilegienschreck.bsky.social Medical Gaslighting; Psychologisierung, Stigmatisierung von ME/CFS, PAIS;
Kritik an "Psychosomatischer Medizin"
Universität Leipzig
sie/ihr, they/them
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
💙 = ME/CFS solidarity
#noAfD
Ronja Büchner @buechnerronja.bsky.social psychologist | research associate @UniLeipzig | psychotherapist in training | my research is on psychologization & stigma of Long COVID, ME/CFS, PAIS
Margarete Stokowski @margaowski.bsky.social Hausfrau und Edelfeder
Antifa und Handarbeit
Kommas nur für Geld
Georg Schomerus @geschom.bsky.social Psychiatrist, stigma researcher, w/ special interest in time trends, SUD Stigma, and Long COVID/ ME/CFS stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
MissingDOCTORSandPSYCHOTHERAPISTS @medocspsytheras.bsky.social Austausch für Ärzt*innen, Mediziner*innen, Apotheker*innen und Psychotherapeut*innen, die von ME/CFS, LongCovid, PostVac und ähnlichen Erkrankungen betroffen sind.
Enno Park @ennopark.de Früher mal Tech-Journalist. Heute berufsunfähig wegen Long Covid.
Chantal Rovers @chantalrovers.bsky.social Internist infectious diseases physician | professor | Radboudumc 🇳🇱 | Q fever | COVID-19 | pandemic preparedness | high consequence infectious diseases | One Health | emerging infections | fever of unknown origin | ORCID 0000-0003-4900-6262 | #IDSky #MedSky
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Biotech Digest @biotechdigest.bsky.social Complex chronic illness patient advocacy
Fabian Fritz @ffhambu.bsky.social Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Marc Veldhoen @marcveld.bsky.social Professor of Immunology 🇳🇱 🇬🇧
Lisbon, 🇵🇹
#Immunology
Time for Science, not silence
https://scholar.google.co.uk/citations?user=7vG1jLIAAAAJ&hl=en
https://orcid.org/0000-0002-1478-9562
threads.net/@marc_veld
https://buymeacoffee.com/mveldhoen
Sujana Reddy, DO @drsujanareddy.bsky.social Internal Medicine Physician👩🏻⚕️🩺Humanitarian🌏🫶🏼Nerd🧠🤓Chronic Illness Warrior❤️🩹🦄Pianist🎹Crisis Counselor👩🏻💻Music/Movie Enthusiast🎶🎬Alabama,USA🏡🇺🇸
Verena Hackl @verhac.bsky.social ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna | posts/skeets = personal opinion
www.verhac.at
de/en
Anne Vroegindeweij @thisistheillme.bsky.social 🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Katharina 🦋🍋🍀 @katha1970.bsky.social Here for research and info on #Migraines #MECFS #LongCovid #MCAS #MCS #ChronicPain #MetabolicHealth #Neuroscience #Psychology #MedicalGaslighting, posts German & English, hobby songwriter
Lieven Scheire @lievenscheire.bsky.social Science and comedy on stage and on TV, in Dutch and English.
Www.lievenscheire.com
Gerben G van Dijk @gerbengvandijk.bsky.social #animation, #AI, #video. Like Bluesky? Follow me now!
#creativity, #openess, #utrecht, #chatgpt, #canva, #adobe, #ukraine, #NLP, #Zen, #adhd, #art, #Volkskrant, #Windows11
#long-COVID #documentary :
https://www.gerbengvandijk.nl (homepage)
Teunke Arvo @teunkearvo.bsky.social Independent historical researcher (involuntarily self-taught), writing at a frustratingly slow 🐌 pace due to severe chronic illness.
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Tjalco @tjalcovrv.bsky.social MD, was resident radiology, now 4+ years long covid
🇳🇱 🇬🇧
Be Kho @bekhonl.bsky.social Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
Oonagh Cousins @oonaghcousins.bsky.social
Camille Buckner @camillebuckner.bsky.social My pen is huge & I love sentences. And words. Like wombat & elixir. People & planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid #MECFS #Poetry #AcademicSky🏳️⚧️🩷💛🩵😷🍉
🚫AI
Banner: Large stone balls
PP: My 🤚🏼
Laura @harmonicsoul.bsky.social X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Babs Ruiz @ixabil.bsky.social LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
Joanne VanDerNagel @joannevdn.bsky.social Psychiatrist, researcher ehealth equity,
Scout.
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Pam Bishop, PhD @pamelarbishop.bsky.social Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
George Monbiot @georgemonbiot.bsky.social Ungainly on land
hannah (herding cats) @alluringskull.bsky.social I get my kicks above the waistline, sunshine! ~ paranormal writer, queer/ace, covid-cautious, cat parent, slut gnome of false berlin. dog person sun, cat person rising. in a constant state of free association. she / her 👻
linktr.ee/hannahlamarre
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Sam @humanmanifold.bsky.social Evidence-based medicine over eminence-based medicine. #MECFS
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Tim Hutton @timhuttonau.bsky.social Part time teacher | Occasional freelance writer | Full time sick/disabled person (ME/CFS) | Published in Eureka Street, Junkee, Crikey.
Views my own.
Based in Meanjin (Brisbane)
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Anna Brooks, PhD @drannanz.bsky.social Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Dr. Melissa Geraghty, Psy.D. @drmelissageraghty.bsky.social 🦋 CEO of Phoenix Rising with Dr. G
🦋 Clinical Health Psychologist (Complex Medical, Rare Disease, Eating Disorders)
🦋 Medical Gaslighting Sensitivity Trainer
🦋 Keynote Speaker
🦋 #IamRare 🦓 ♿- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Danilo Buonsenso @buonsenso.bsky.social Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Nina Wildflower @ninawildflower.bsky.social Music fan. UK science teacher in an FFP3 mask.
The right mask makes it easy to sing, perform, teach, or speak in public.
#N95 #FFP2 #FFP3 #YallMasking
He/him
😷Mark Dixon @markdixon.bsky.social Filmmaker, photographer, environmental activist, runner. Working to clean the air and end fossil fuels. I don't have long COVID but support those who do. #covidisntover #maskup #airquality #climate https://linktr.ee/markedixon
Alexandra Jahn @seaiceclimate.bsky.social Climate scientist with focus on the Arctic Ocean and Professor at CU Boulder. Opinions my own. New here
Dr Satoshi Akima, FRACP @toshiakima.bsky.social Nephrology & Internal Medicine. Immunothrombosis incl DIC. ISTH Member. No Conflicts of Interest. Views my own etc
Josette Schoenmakers @josetteschoenma.bsky.social
🦙🌈Karma Llama 🌈🦙 @karmallama.bsky.social Feral Gen-X, 35 years in Tech, sci-fi junkie, Long Covid, decades in politics, advocacy and non-profs, mother of cats, nasty woman. Life is too short to spend arguing with MAGA.
Phil Latouche @platouche.com Business Analyst | #longcovid #PASC #patientpartner | Long Covid advocate
Analyste d'affaires | #covidlongue #covidlong #PACL #patientpartenaire #quebec | Défenseur de la COVID longue
juul @tiredjuul.bsky.social Me/cfs long covid
Will be more active once twitter goes to shit
Rien de Böck @riendebock.bsky.social Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Nele @nelehelena.bsky.social I'll "tweet" here about the things I don't like if the other app goes down
Bart Le Fermier @bart-lefermier.bsky.social Long Covid since feb '21.
Christoph Bammer 🩺 🎸 @cbammermd.bsky.social Facharzt für Innere Medizin | Nephrologe | Geriater | interessiert an #PAIS inkl. ME/CFS & assoz. Multisystemerkrankungen |
* Privat gerne alles mit Musik *
* Skeets in DE/EN *
* TwiX: @CBammerMD *
Alt text Profilbild: Obi-Wan de Funès mit Lichtschwert.
Yvette @iefsworld.bsky.social | writer | editor | former multi-media artist/musician |
| ME since childhood |
| young widow due to medical neglect |
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist.
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
Alastair McAlpine, MD @alastairmca30.bsky.social Pediatric infectious disease physician, author, runner, metal fan. Dislikes Pseudoscience and bigotry. Views ≠ my employer 🏳️🌈🏳️⚧️
Prescription: Ice Cream available now! https://www.amazon.com/Prescription-Doctors-Journey-Discover-Matters-ebook/dp/B0CY347H4D
Tatiana Prowell, MD @tmprowell.bsky.social Oncologist serving people w/ cancer in #MedEd, #SciComm, #bcsm, & #PublicHealth. Past ASCO Ed Chair. Co-founder HCWvsHunger.org. #LongCovid #MedSky #OncSky
Team hope/good trouble/go high💙
https://www.hopkinsmedicine.org/profiles/details/tanya-prowell
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Ulrike1985 @ulrike1985.bsky.social Aus gesundheitlichen Gründen vom Leben suspendiert: Long-Covid!
fight for our right since 2021
Stay with ME/CFS, Post-Vac!
Specialist in health and social
#AfDnee
SPD AG Selbst Aktiv Hessen Süd #WiesbadenerErklärung
Denise Dewald, MD @denisedewald.bsky.social Health is inextricably linked with politics. Democracy requires participation. End all aid to Netanyahu’s regime. Opinions my own.
Prof Christina Pagel @chrischirp.bsky.social Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal. https://www.trumpactiontracker.info/
Kashif Pirzada, MD @kashprime.bsky.social Emergency Physician in Toronto. Co-Chair of the Canadian Covid Society.
Fighter of illness and misfortune, interested in history, politics, tech and AI. #fella,🇨🇦/acc
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Dr Elisa Perego @elisaperego78.bsky.social #LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Christos Argyropoulos MD, PhD, FASN 🇺🇸 0kale/acc @christosargyrop.bsky.social Division Chief, Nephrology UNMHSC
(im)personal views & account #zerokale
Firm believer : caveat emptor & stupidity is immoral
Random thoughts about #nephrology #stats #bioinformatics #perl #HPC #nanopore #RNAseq #covid19 #amateurcoding
#ButlerianJihad
Chris | ME/CFS Research Foundation @ungenesbar.bsky.social LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin