Bindi Brook @bindibrook.bsky.social Professor of mathematical medicine and biology, University of Nottingham. Research interests: multiscale mathematical and systems modelling, tissue mechanics and mechanobiology, in respiratory medicine #asthma #COPD #LAM and #LongCovid. Views my own.
Dr Kay Owen @drkayowen.bsky.social Developmental psychologist. Pro nature. Pro equality. Generally woke
Margaret O’Hara @margaretohara.bsky.social Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Nathan Dumpleton @nathandumpleton.bsky.social Resident NHS Doctor 🩺
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
A 😎 Long Covid and MECFS Billboards (DM for free merch!) @aaronca11.bsky.social Billboard campaign/fundraiser here
https://www.notrecovereduk.org
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
The Skylark @theskylark.bsky.social Feed for Long Covid new arrivals on BlueSky. Reposts from trusted LC advocacy and supportive accounts who've migrated from other social media.
Will stop reposting November 2026.
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Canadian Covid Society @covidsociety.ca At the Canadian Covid Society, we strive to protect the health and safety of people in Canada against the harms of COVID-19 and long Covid, through education, engaging and empowering the public and organizations with scientific knowledge.
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Karen Knapp @karenmknapp.bsky.social Professor of MSK imaging at the University of Exeter. Diagnostic Radiographer. Osteoporosis, AI, MSK, New Tech researcher. Views my own
Cat in the Hat @catinthehat.bsky.social Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”
Darren Brown OBE @darrenabrown.bsky.social Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Dr Graham Lloyd-Jones @drgrahamlj.bsky.social Consultant Radiologist UK.
Medical imaging educator.
Founder/Director of radiologymasterclass.co.uk.
Investigating links between poor oral health and systemic disease | oral microbiome | COVID-19 & LongCOVID.
Oral Health Section Editor - Springer Nature
Grace Hurford PhD @ghurford.bsky.social mountaineer, chutney/ cake maker, based in UK Lake District.❤️EU ; trying to be 💚; v lecturer in health policy leadership/MBA dissertation sup RKCollege Zurich.😷 masking until we get st vaccines. #LongCovidAdvocacy
Diane H @dianeh71.bsky.social Love music, books, animals, baking, great TV & nostalgia.
Insta Threads: diane_haywood_71
Twitter: DianeH @DianeHaywood71
@northernsi.bsky.social @northernsi.bsky.social Design. Longhauler.
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Lindsay Skipper @lindsayskipper.bsky.social Living but not thriving with Long Covid | Peer support committee member for Long Covid Physio | PPIE representative in #LongCOVID research
Monica Verduzco-Gutierrez @mvgutierrezmd.bsky.social Professor & Chair of Rehab Med in SATX | Mom, runner, #LatinasInMedicine, #Physiatry, #LongCOVID
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/. 
Petter Brodin @petterbrodin.bsky.social Pediatrician &
Professor of Pediatric Immunology
Human Systems Immunology
MRC LMS, Imperial College London
& Karolinska Institutet
Mark Ross @drmarkross.bsky.social Dad|Husband|Associate Professor in Exercise Physiology|Exercise, Immune Cells, Inflammation|BASES Acc Sport Scientist| Heriot Watt University |views are my own
https://scholar.google.co.uk/citations?user=bCdynIsAAAAJ&hl=en
Anna Brooks, PhD @drannanz.bsky.social Immunologist | Flow Cytometrist
Immunometabolism, Infectious Diseases, Immune dysfunction, Long Covid & ME/CFS
Senior Research Fellow
Liggins Institute | University of Auckland
DysImmune Research Aotearoa
www.dysimmune.nz
🇳🇿🥝🩸🧬🧪🔬👩🏼🔬
Charlotte Bolton @profbolton.bsky.social Prof Respiratory Medicine. Focus on #COPD, #GlobalHealth, #rehabilitation #recovery, #AirQuality #Medsky #RespMed. #Lung #lungsky #research. Clinical Academic. FRCP. Social justice, addressing inequalities. Uni of #Nottingham. Views expressed my own.
Prof Christina Pagel @chrischirp.bsky.social Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal. https://www.trumpactiontracker.info/
Trish Greenhalgh @trishgreenhalgh.bsky.social DEI hire. Prof of Primary Care, Uni of Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
Kit Yates @kityates.bsky.social Author and Professor of Maths and Public Engagement.
Books -
Math(s) of Life and Death
How to Expect the Unexpected
You Don't Know What You're missing
https://tinyurl.com/37rx2yuv
He/Him
Long Covid Support @longcovidsupport.bsky.social UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS- J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Cathy Thomson @cathythomsonpt.bsky.social APP & Clinical Specialist PFP
Committee member British PF Society
Advocacy Committee Member LongCovid Physio
Jo Dainow @joda.bsky.social Trustee at Long Covid Support longcovid.org
#LongCovid #TreatLongCovid
Happy when in nature. Mason Bee Guardian. 
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Dr Kate Cushing @drkatecushing.bsky.social Doctor, scientist, mum, cat slave.
Public Governor Newcastle upon Tyne Hospitals Trust
Long Covid & CCH.
Love Northumberland/Newcastle, owls/wildlife/books/art/music/politics/EU
Wrote Little Orange Book 4 parents of babies & small kids.
Green Party member
Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social UK Covid-19 Inquiry Core Participant
Safe access to health, workplaces, education and beyond
Donate: http://bit.ly/CVFdonate
JOIN us on FB 📸cv_cev ❌️@cv_cev
www.clinicallyvulnerable.org
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Prof Nisreen Alwan @nisreenalwan.bsky.social نسرين العلوان
Pronounced /nisri:n/ with an s not a z and a long ee ☺️
Professor of Public Health MBE
Southampton
Not afraid of my voice
Still curious
Posting my personal views not those of any organisation
Reposts not necessarily endorsements
💚 🧿 🌻
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Independent SAGE @independentsage.bsky.social An independent group of scientists providing transparent advice during the COVID crisis.
World Health Network @thewhn.bsky.social Bringing people, science, and compassion together to solve world problems and protect health. Let's #EndThisPandemic together.
Danielle Beckman @daniellebeckman.bsky.social PharmD, MS in Biophysics, PhD in Biochemistry
🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Sarah Barley-McMullen (she/her) @sarahbarleymc.bsky.social Ill health retired 😞FHEA🎓Christian. Chair, Pride in Belper 🏳️🌈🏳️⚧️. Chair, Long Covid SOS. JNC. Married to my Wife. ❤️Long Covid-autoimmune/immunocompromised
@michaeltikus.bsky.social @michaeltikus.bsky.social 
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Putrino Lab @putrinolab.bsky.social 
Dr Elisa Perego @elisaperego78.bsky.social #LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Sean Mullen, Ph.D. @drseanmullen.bsky.social Research Director of the #Exercise #Technology & #Cognition Lab | #Movement #Neuroscience | Husband | Dad | #MartialArtist | #FlowArtist | #Tennis Teaching Pro | Advocate for Persons with Long Covid
COVID Advocacy Initiative @covidadvocacy.bsky.social https://linktr.ee/covidadvocacy
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Kirsty Stanley @kirstyes.bsky.social Writer, Blogger, Reader, Occupational Therapist, Dog Mum. Long Covid. ADHD. Severe Asthma.
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
Danilo Buonsenso @buonsenso.bsky.social Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
Yonker Lab @laelyonker.bsky.social The Yonker Lab focuses on mucosal immunity and disease responses related to airway infections in children.
Dr Chris Kirk @chriskirkasp.bsky.social Senior Lecturer Sheffield Hallam University; Applied sport scientist Altius Sports Performance; PhD CSci CSCS FCASES; MMA, BJJ 🟫; All views are my own & not those of my employer.
https://linktr.ee/chriskirk_asp
Andrew Ewing @andrewewing11.bsky.social Research on nano/neuro chemistry, echem, chemical imaging @Univ Gothenburg. Member Swedish Academy of Science. Chair, WHN LC Work Group. Opinions are entirely my own. Take them or leave them!
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
Dr Rae Duncan @sunny-rae1.bsky.social Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x 
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
tern @1goodtern.bsky.social truth, science, hope
Sammie McFarland @sammiemc.bsky.social Long Covid Kids Founder & CEO
Hoping to be on the right side of history.
♿️#LongCovid ✳️#CleanAir 🙋🏻♀️Campaigner
🧠🧡🫀#LongCovidKids
🌊#ColdWater 🧜🏻♀️#Swimming
🧘🏻#Pilates coach - #Pacing since 2020 🦠 😷
🫅🏼#CoronationChampion 💥#Volunteer
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Bluesky @bsky.app official Bluesky account (check username👆)
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