cbme-mark.bsky.social @cbme-mark.bsky.social Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
Greens Against Covid @greensagainstcovid.bsky.social #GreenParty of England and Wales #covid and #longcovid campaign working group. Join us? https://linktr.ee/greensagainstcovid
Sten Helmfrid @stenhelmfrid.bsky.social Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
Naomi Whittingham @naomiwhitt.bsky.social Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
ME/CFS Research Foundation @mecfsresearch.bsky.social Für mehr ME/CFS Forschung!
We promote & finance #MECFS research!
🍋 https://LemonChallengeMECFS.org
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
Empty Stands @emptystands.me ⚽️ Fußballfans mit ME/CFS & Long COVID
🪧 Für mehr Aufmerksamkeit & Forschung
🖇️Linktree 👇🏼
https://emptystands.me/links/
@wamesmecfs.bsky.social @wamesmecfs.bsky.social 
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
EndMalnutritioninME @malnutritionme.bsky.social Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Institute of Genetics and Cancer @uoe-igc.bsky.social Our mission is to improve the lives of people living with genetic disease and cancer through research.
Fatigatio e.V. - Bundesverband ME/CFS @fatigatioev.bsky.social Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern. 
youngEMERG @youngemerg.bsky.social young European ME Research Group - A European forum formed with EMERG to support and encourage early career researchers in ME/CFS research
https://youngemerg.com/index.shtml
Jeremy Jeffs | photography & documentary @jeremy-jeffs.bsky.social Documentary photographer & film maker at Magnetofilms.com, editor/writer at PersonalWork.online
Currently working on projects about ME/CFS (I have lived experience), loneliness and men's mental health.
https://linktr.ee/jeremyjeffs 
Swifts and Swallows @swiftsandswallows.bsky.social My daughter had Severe ME, POTS & MCAS and died in 2024 after years of medical neglect.
I am also the parent carer of a younger daughter with ME & POTS.
Loves to see cute photos of cats, birds & animals so I can share with my daughter to brighten her day 
Hilda Bastian @hildabast.bsky.social Scientist (PhD she/her), writer, cartoonist. 🦘
Tracking NextGen Covid Vaccines at https://vaxtracker.wordpress.com/
Personal newsletter: Living With Evidence https://hildabastian.wordpress.com/
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
The Massachusetts ME/CFS and FM Association @massmecfs.bsky.social To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic
Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research.
https://www.massmecfs.org
Dr. Jeroen den Dunnen @drdendunnen.bsky.social Immunologist and Head of Department of CIMM at the Amsterdam UMC, Netherlands. My team studies the role of antibodies during infection and autoimmune diseases, with a particular focus on post-acute infection syndromes (PAIS), such as Long-COVID and ME/CFS.
MX-5 Owners Club @mx5oc.bsky.social Established in 1994 the MX-5 Owners Club is the world's largest Club dedicated to the ownership, use and promotion of the Mazda MX-5 (Miata/Roadster). Membership is open to all owners and enthusiasts of the MX-5.
Find out more at www.mx5oc.co.uk
Let's Learn Japanese! ジャパ日常【 JapaNichijou 】 @japanichijou.bsky.social 一緒に楽しく日本語勉強しよう ⛩🗻👘🍣
Let's play Nihongo!!!
I tweet about Japanese words, sentences or grammar🌸
VRChat Group : https://vrc.group/JPHITS.0893
VRChat World : https://vrchat.com/home/world/wrld_3551c936-7e77-4152-93ef-69677507bd82/info
Trish Davis @ozfish.bsky.social Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info 
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
European ME Coalition (EMEC) @emec.bsky.social Advocacy organization for ME/CFS patients and their carers in Europe
David Davies-Payne @d2p.bsky.social Paediatric Radiologist, Aotearoa New Zealand
Following more immunologists than radiologists
#MECFS #LongCOVID and a bit of #MacDev #iOSDev
he/him
https://ddp.nz | https://dysimmune.nz
UniteToFight @unitetofight.bsky.social LongCovid & ME/CFS conference project. We’re a small group of affected people living with LC & ME/CFS, alongside dedicated supporters.
#UniteToFight2024
www.youtube.com/@unitetofight2024
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
WHN Long Covid Working Group Vice Chair
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
ICanCME Canadian Research Network @icancmeresearch.bsky.social Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Herbert Renz-Polster @renzpolster.bsky.social physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
PolyBio Research Foundation @polybiorf.bsky.social 501(c)3 transforming how #LongCovid, #ME/CFS & Lyme+ are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
rthm_health @rthm.bsky.social RTHM is a secure health platform that makes it easy to gather your records, connect the dots with AI, and affordably access treatments.
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Charlie Hillier @charliehillier.bsky.social Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Daniel Missailidis, PhD @danielmissailidis.bsky.social Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Rowan Gardner @rowanbio.bsky.social Founder & CBIO @precisionlife.bsky.social, NED at STFC Innovations Limited. Former Juror for Cartier Women's Initiative.
Interests #bio #diversity #ai #techbio #climate #precisionmedicine #digitalhealth personal account
PrecisionLife @precisionlife.bsky.social Solving chronic disease with the world’s leading precision medicine AI. Creating better, more personalized treatment options and diagnostic tools to predict, treat, and prevent the most common, costly, and complex diseases.
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
British Geological Survey @bgs.ac.uk A world-leading independent research organisation providing objective, expert geoscientific data, information and knowledge 🌎
Carmen Joy Imes @carmenjoyimes.bsky.social Associate Professor of Old Testament, Talbot School of Theology; Author of Bearing God's Name, Being God's Image, and Becoming God's Family. YouTuber: Torah Tuesday.
Tim Mackie Discussion Group @tmackiegroup.bsky.social Study the Bible In Community - Seek, Study and Share
Tim Mackie and Jon Collins with The BibleProject
daily bunnies 🐇✨ @dailybunnies.bsky.social your daily dose of bunnies ⸜(｡˃ ᵕ ˂ )⸝♡
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Science for ME (S4ME) @s4me.info We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who support us.
Facts about ME/CFS:
https://www.s4me.info/threads/science-for-me-fact-sheets.43310
MEAction UK @meactionuk.bsky.social Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. 
Mark Vink, MD @huisarts-vink.bsky.social Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Oonagh Cousins @oonaghcousins.bsky.social 
Emma Gore-Lloyd @emmagl.bsky.social Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Eleanor Hayward @eleanorhayward.bsky.social Health Editor at The Times
Fiona Hamilton @fionahamiltontimes.bsky.social Chief Reporter, The Times
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
UK Charity Invest in ME Research @investinmeresearch.bsky.social An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
#MEAction Scotland @meactionscotland.bsky.social 
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Audrey Ryback @aryback.bsky.social ME researcher at the University of Edinburgh.
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app