Fabian Fritz @ffhambu.bsky.social Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
We Own It @weownit.org.uk After 40 years, privatisation of our public services has failed. It's time for public ownership. We use it, we pay for it, We Own It.
https://weownit.org.uk/people-not-profit
https://weownit.org.uk/act-now/donate
Conor Browne @brownecfm.bsky.social Biorisk analyst
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Martijn van den Broek @mfamyfuerza.bsky.social 🧬 Biology of ageing
🌍 Exploring systems, synthetic, regenerative, computational biology, and complexity science
🇪🇺🏴😷
Bloomberg News @bloomberg.com The first word in business news.
Newsletters: http://bloom.bg/newsletters
Podcasts: http://bloom.bg/podcasts
The Big Take podcast: http://trib.al/jtoXfuT
de Volkskrant @volkskrant.nl Onafhankelijk, betrouwbaar, toegankelijk: volg de Volkskrant hier voor actualiteit, opinie, cultuur en meer.
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Sharon Hodgson MP @sharonhodgsonmp.bsky.social Labour MP for Washington and Gateshead South🌹
If you would like to contact me, please email sharon.hodgson.mp@parliament.uk
Prof Nisreen Alwan @nisreenalwan.bsky.social نسرين العلوان
Pronounced /nisri:n/ with an s not a z and a long ee ☺️
Professor of Public Health MBE
Southampton
Not afraid of my voice
Still curious
Posting my personal views not those of any organisation
Reposts not necessarily endorsements
💚 🧿 🌻
Margaret O’Hara @margaretohara.bsky.social Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
bexlogan.bsky.social @bexlogan.bsky.social Living with Long Covid induced ME since April 2020 | Existing from bed | Advocate | POTS | Former NHS staff nurse & fitness instructor |
Emily Mendenhall @emendenhall.bsky.social Editor-in-Chief of Science Politics, Anthropologist and Professor, Director of STIA, Author of Invisible Illness, Guggenheim Fellow
Waldmeer @waldmeer.eurosky.social ME/CFS | Medizin | Wissenschaft
Website: https://bit.ly/waldmeer
Auch unter: @waldpol.eurosky.social
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
themupsmuppet @sophie11.bsky.social enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
MarliesKdG @marlieskdg.bsky.social Imperfecte deugkneus. Helaas met ME/LongCovid. Probeert Covid dus nog steeds te ontlopen. Steekt veel energie in het minder gebruiken ervan. Automatonfan.
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Denis - The COVID Info Guy @thecovidinfoguy.bsky.social Sharing info on COVID since the start of the pandemic.
#COVIDisNotOver #COVIDisAirborne #MaskUp😷
@valebodi.bsky.social @valebodi.bsky.social Surviving MyalgicE aka ME/CFS & AAG to tell the story, pwME & advocate w/ a JD. Into MEdical, Social, Climate Justice & Arts. ME-dical apolide, Human Neutrino, Gnarled pacer
MEssland Worldwide https://www.tandfonline.com/doi/pdf/10.2217/fmb-2022-0031
EndMalnutritioninME @malnutritionme.bsky.social Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
@erinmg.bsky.social @erinmg.bsky.social Mum to very severe long Covid kid.
Formerly a journo who left media frypan for law world fire.
Here to learn.
#longcovidkids
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Yann (ME/LC) @me-cfs.bsky.social Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak.
I care.
Ⓐ💚, (FR/DE/EN, but posts in english)
Clinging onto the ledge above the abyss.
Martin McKee @martinmckee.bsky.social Prof of European Public Health LSHTM
Co-Director European Observatory on Health Systems & Policy
Member Independent SAGE
Past President BMA & EUPHA
Committed to 🇬🇧 rejoining 🇪🇺
https://www.lshtm.ac.uk/aboutus/people/mckee.martin
ME Centraal @mecentraal.bsky.social Platform voor mensen met Myalgische Encefalomyelitis, hun familie, vrienden, verzorgers & geïnteresseerden.
https://mecentraal.wordpress.com
https://www.facebook.com/MECentraal
mecentraal@gmail.com
Natasha Devon @natashadevon.bsky.social Author, Campaigner, Broadcaster.
Katharine Cheston @kacheston.bsky.social Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology.
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Prof Christina Pagel @chrischirp.bsky.social Prof Operational Research , @UCL_CORU, passionate about health care, women in STEMs, defending liberal democracy (!). Member of @independentsage, posts personal. https://www.trumpactiontracker.info/
Cato Frederiks 🏳️🌈🏳️🌈 @catofrederiks.bsky.social Trying to live my life, preferably without a dozen chronic issues, assisted by a healthy dose of DnD, and the very slow production of my (Dutch) trilogy.
Follow my journey after a spinal fusion
https://linktr.ee/catofrederiks
Clean Air Advocacy Ireland @cleanairie.bsky.social We are a community of parents, healthcare workers, teachers, students and individuals who care about improving indoor air quality
https://linktr.ee/cleanairadvocacyireland
Scribbler Pen @scribblerpen.bsky.social Writer, editor, analyst. Disability employment rights advocate.
Trade union disability rep. Arts, science and languages nerd, internationalist, hiker, nature lover. Could really do without Long Covid
Oonagh Cousins @oonaghcousins.bsky.social
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
Valwen 😷🏳️🌈 @valwen.bsky.social ♿️ Naval Architect & Marine Engineer. I’ll never shut up if I think something is unfair or deeply wrong. I’m annoying, I know!
#pwME #MECFS #EDS #Endometriosis #Dysautonomia & long #NEISVoid etc. #COVIDisAirborne!
Twitter immigrant. Also on Mastodon.
Jacy Sonne ♿️ @jacysonne.bsky.social Disability Advocacy #FMMECFS #Migraineur #POTS #Dystonia #Spoonie
Rare brain tumor survivor
Too many med dx to list here
DV and the Disabled.
Pro: Science
LGBTQ
BIPOC
AAPI
Ian Kushner @ikushner.bsky.social Minneapolitan. Former endurance athlete with #longCOVID. Dad joke enthusiast. Avid reader and cook. Aspiring birder. Suns, Capitals, and Twins fan.
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Valerie Eliot Smith @valerieeliotsmith.bsky.social Independent researcher living with myalgic encephalomyelitis (ME) since 1981. Barrister (ret'd) #TMTlaw Visiting scholar @QMUL Blog at http://valerieeliotsmith.com
Based in London, UK
The Adam Friedland Show @adamfriedlandshow.bsky.social Home of the World's No.1 Centre-Left Talk Show.
Subscribe on YouTube: https://www.youtube.com/c/TheAdamFriedlandShow
Dr Noor Bari @njbbari3.bsky.social MBBS BSc Hons Infectious Diseases 🇬🇧 🇦🇺 Zero COVID Australia NjbBari3@mastodon.social NjbBari3 on X
Mark @mark-melbin.bsky.social My name is Blue Canary. At times I drunk-tweet. These are the times I sound completely sane and rational.
Escaping from Elon Musk.
Twitter: twitter.com/mark_melbin
Threads: www.threads.net/@mark_melbin
Mastodon: mastodon.online/@mark_melbin
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Binita Kane @binitakane.bsky.social Long COVID/ME interested lung doctor | Campaigner | Independent SAGE | Co-Founder South Asian Heritage Month | Diversity Power List 24/25
Website: https://thelongcovidclinic.co.uk
Linktree: https://linktr.ee/binitakane
Joseph @josephwithfibro.bsky.social Long Covid Toolkit | Computer Science Student | #Fibromyalgia #Dysautonomia
Kamil Slowikowski @slowkow.com Computational biologist 🧬🖥️ at Mass General Brigham and Broad Institute, PhD at Harvard. Bioinformatics, transcriptomics, COVID, genomics, immunology, genetics, statistics, and web development. I made #ggrepel and I blog at https://slowkow.com
Jenny (Kowalczuk) Sanders @jennysanders.bsky.social On a quest for joy.
Mother of #psychosis experiencing adult child - Writer and #poet - living with #ME/CFS/LC.
Creative work shared on https://rewritepsychosis.org
Joanne VanDerNagel @joannevdn.bsky.social Psychiatrist, researcher ehealth equity,
Scout.
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Warren Togami @wtogami.bsky.social Founder Fedora Linux. ex-Red Hat. ex-Blockstream 🇺🇦 Ukraine Supporter. Long COVID ME/CFS since 2022.
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Nicky Proctor @nickyproctor.bsky.social New here...
Writing up my PhD in coach learning and development.
Love learning, family, ancestry and tolerance.
Campaigning for better healthcare for ME
#Biggest Medical Scandal of 21st Century
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Babs Ruiz @ixabil.bsky.social LongCovid. My child also has long covid. 💔 we both have the PEM, POTS and cognitive issues-sub (ME..)
Love animals, science, nature, history.
Once an active girl; swimming and hiking. Have 2 lady-cats.
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
Melissa Challenor @picklemelissa.bsky.social Ex-twit *urbanmel*
MEAW 🐾 🇦🇺
Former International trade & investment; Thailand 🇹🇭 Board of Investment expert
#ME #LC #LongCOVID #CRPS #PEM_PENE_Sucks
@traceyburgess.bsky.social @traceyburgess.bsky.social
Dr Louise Hyde @seasidegp.bsky.social She/her, NHS GP in Scotland, #LongCovid sufferer, views my own. 😷💉💨🇪🇺
Mirja Nicolas @privilegienschreck.bsky.social Medical Gaslighting; Psychologisierung, Stigmatisierung von ME/CFS, PAIS;
Kritik an "Psychosomatischer Medizin"
Universität Leipzig
sie/ihr, they/them
@JohnVsJonVsME @johnvsjonvsme.bsky.social #JohnVsJonVsME campaign to get John Oliver or Jon Stewart to bring the awful history of #MyalgicEncephelomyelitis #GreatestMEdicalScandal to light
JohnVsJon.com
Maya Lindemann @mayalongcovid.bsky.social RWJF ClinicalScholars Alum, School Nurse, Scientific Diver/ocean lover bedridden by severe #LongCovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Dr. Raven the Science Maven @ravenscimaven.bsky.social I'm Raven Baxter, Ph.D. I'm molecular biologist and science educator who loves sharing science with the world! thesciencemaven.com
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Shelley Jules @shelleyjules.bsky.social MECFS from the long before times but not diagnosed for 23 years…LC since 2020 - interested in advancing patient led research (Renegade Research & Remission Biome) & all avenues that lead to effective treatments for everyone. She/her. Love is my language. 💖
The John Snow Project @johnsnowproject.bsky.social Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
Fuck Long Covid ❌ @fucklongcovid.com exposed late january 2020, fucked up since march 2020
Cindy L @cuboidalhug.bsky.social
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Guus @guusontheinternet.bsky.social Creative turned activist #NietHersteld - Long Covid since jan’21 ♿️ - posts with brain fog, so pls bear with me - eager to learn - posts in 🇬🇧 & 🇳🇱
Josh @properchels34.bsky.social Long Covid, ME/CFS, POTS…. For now
Fen van Rhijn, MD @fvrhijn.bsky.social MD | rheumatology resident
#ME due to #LongCovid
Nonbinary 🌈🌈🌈🌈 | views are mine.
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
MEActMaryland @meactmaryland.bsky.social #MEActionMaryland
Maryland chapter of the #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in MD/DMV
https://youtube.com/@meactmaryland
https://linktr.ee/meactmd
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Clean Air Classrooms #CleanAirForLife @cleanairclassrm.bsky.social #CleanAir #IndoorAirQuality #HealthyLearning
#N95 #VaccinePlusPlan #CO2Monitor
#DisabilityAccess
Allied Health & Building Profession Led
Founder @mishwoz.bsky.social
Information for UK schools & parents
https://tinyurl.com/CleanAirClassroomResource
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Myra Batchelder @myrabatchelder.bsky.social Advocate. Consultant. Health Equity. Social Impact.
New Yorker. Midwesterner.
She/her.
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Michal Caspi Tal, PhD @immunofever.bsky.social Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford
https://talresearchgroup.mit.edu/