Anne Kremer @annek94350.bsky.social Psychiatry resident currently on very long sick leave due to long covid/ME. Also interested in the ethics of both subjects.
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Alem Matthees @alemmatthees.bsky.social A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Dr. med. Michaela Bauer @drmichaelabauer.bsky.social https://www.dr-michaela-bauer.ch/
Fachärztin für Psychiatrie & Psychotherapie FMH; Fähigkeitsausweis Abhängigkeitserkrankungen
Entpsychologisierung von ME/CFS
Gründungsmitglied Psychotherapie-Netzwerk ME/CFS e.V.
Christian Haberhauer @haberhauer.bsky.social Redakteur - APA Innenpolitik
@calltobase.bsky.social @calltobase.bsky.social 
Naomi Whittingham @naomiwhitt.bsky.social Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Schweizerische Gesellschaft für ME & CFS @sgme.bsky.social 💙 Fighting tirelessly for ME patients in Switzerland and worldwide 💙
#MyalgicE
#MEawareness
#MyalgischeEnzephalomyelitis
Fred Rossi @darthfoo.bsky.social I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
https://darthfoo.substack.com
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Claus Ernst @clausernst.bsky.social Explainer video production: https://clausernst.com/en/
Moderate Long Covid since "mild" SARS-CoV-2 infection in Jan. 2021
Johan Van Weyenbergh @johanvawe.bsky.social Immunologist curious about viruses, cancer, evolution and all things human
Likes all #systems thinking and still working out all the #omics 🤓
#immunosky #medsky #idsky
Jason Murphy @jasemurphy.bsky.social Author of one(1) book. Journalist. Economist. #rstats #mecfs #ausecon. May be found walking his dog in Melbourne, Australia. 
Tom Parsons @tomparsons.bsky.social Writer, Musician, pwME. 
Andrew Gifford @andrewgiffordphoto.bsky.social Depleted human. Slowly making photographs about a life with ME/CFS, like Long Covid.
https://linktr.ee/andrewgifford.photography
Bristol, UK. 335.42 ppm. He/him/oi.
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Pete Delahunty @darkbaa.bsky.social 🇦🇺For a minute there I lost myself..
WORK: Camera, Sound, Lighting, Editing, Audio Post, Colour Grading, Deliverables, Gadgets
ME: Science, Nature, Dogs, Photography, Cars, Aviation, Sustainability of all the above.
#MECFS #AuDHD #Neurodivergent
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Constanze Ertl @constanzeertl.bsky.social journalist, ORF, Vienna
persistence > contacts + competence :)
constanzeertl.at
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Brian Fog @uselesspriest.bsky.social Long COVID, mild, since Apr 2022
ME / Long COVID diagnosed May 2024
Georg Schomerus @geschom.bsky.social Psychiatrist, stigma researcher, w/ special interest in time trends, SUD Stigma, and Long COVID/ ME/CFS stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
Dr. Blome aka Dr. Strange @blomechristine.bsky.social Post-COVID & ME/CFS researcher | no MD | http://patient-reported-outcomes.com | Hamburg Center for Health Economics @hche-uhh.bsky.social | derm PROMs | Botschafterin @dagl.bsky.social | DMs open
Lisa Staadegaard @lisastaadegaard.bsky.social 
Francien Al @francien.bsky.social Live and work in Amsterdam. Socially and politically involved. Mother of daughter Pip, who has had ME since she was 17 and has been completely bedridden since her very serious ME in 2021.
Ben Bloodworth @benbloodworth.bsky.social 😮💨pwME/👹Left/🐔COYS/👻Lurkhorse
🇵🇸Free Palestine/🍉Save Gaza NOW!
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Thomas Bunker Ph.D. @biologistbunk.bsky.social Battling Long COVID for 5 years. Had 2 recoveries early on, still trying for a 3rd! Ran a LC clinical trial exploring two degrees of Intermittent Fasting and we got postive results! I love science, nature and helping others...
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Michiel @murtoz.bsky.social Horizontal advocate for #pwME. 🇳🇱 in 🏴.
Ally. Cis. PwME/LC. Volunteer with @meactionscotland.bsky.social. He/Him. #SaveSavannah #BIPOCLivesMatter #TransLivesMatter #EndGenocide #CovidIsAirborne #YallMaskin #CleanTheAir
Fabian Fritz @ffhambu.bsky.social Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Mark Vink, MD @huisarts-vink.bsky.social Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
Nicholas Feustel @nicholasfeustel.com Filmmaker and Online Video Creator, specialising in documentaries and infotainment formats on health and human rights. (he/him)
ALT text profile photo: Man with a salt-and-pepper full beard, wearing a flat cap, with a thoughtful but friendly expression.
Dr. Karin Kelle-Herfurth @karin-kelle-herfurth.de Beratende Fachärztin PRM, MHBA: Rehabilitative Prävention und Gesundheitsökonomie – hier: Strukturanalysen und Reflexion professioneller Kommunikation, institutioneller Machtlogiken und Handlungsräume | #MECFS #LongCOVID
Dennis Dekker @dennis-dekker-1972.eurosky.social Longcovid sinds 2022
Martin Rücker @martinruecker.bsky.social investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
Trish Davis @ozfish.bsky.social Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info 
Rik Haagmans @rikhaagmans.bsky.social 
Mascha Delena @maschadelena.bsky.social 
Fatigatio e.V. - Bundesverband ME/CFS @fatigatioev.bsky.social Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern. 
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Sus Scrofa @susscrofa.bsky.social Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin.
Wer solche Fragen an mich stellt, wird blockiert.
MT 💙🕊🦸🏻♀️🌻🌍 @mtwoltering.bsky.social Creative & social project initiator used to work 🌎👩🏻💻 and💃🏻 a lot internationally.
Can't stand injustice. Designing solutions for health for everyone in the few moments my inflamed🤯 brain allows me to. @ 🛏🏠
#ME #LongCovid #NeuroInflammation
Fréderic Van Wassenhove @f-v-w.bsky.social 
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Gottfried Janssen @loopert.eurosky.social Oud ict-er, (health care), nu langdurig ziek thuis en in de moestuin, low profile natuur fotografie, samenwonend met partner met #longcovid
Post automatisch wat ziektebeelden en soms wat andere fotootjes uit de moestuin
Ntisec @ntisec.bsky.social Father, creative, thinker, asks questions. Since 1997 mild MEcfs, since early March 2020 rather severe longcovid. Dutch & English
Be Kho @bekhonl.bsky.social Life on hold since 2021 #LongCovid #POTS #ME
Psychologist for 25 years CBT, EMDR, ACT.
Here to advocate for biomedical research & treatment #PAIS #IACC.
Painfully aware of the harm that was done by my profession to PAIS patients.
Martin W. Angler @martinangler.com Science Journalist
#LongCovid Context
ABSW 2024 Awards Finalist
theMHS 2024 Awards "Highly Commended"
Portfolio https://muckrack.com/martinangler
Chris J. Maddison @cmaddis.bsky.social Asst. Prof. in Machine Learning at UofT. #LongCOVID patient.
https://www.cs.toronto.edu/~cmaddis/
Brad Hoffman @bradghoffman.bsky.social Long-covid first waver with ME | Former Associate Professor and Diabetes Researcher
Tjeerd Haitjema @tjehai.bsky.social MD PhD, pulmonologist, not practicing since Long Covid hit. (Cycling, sailing) piano, books.
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Jet Roz @jetroz.bsky.social Former art historian, curator, traveler and hiker turned Long Covid patient. Five years and counting 🛏️🧟♀️
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Prof Brendan Crabb AC @brendancrabb.bsky.social research scientist in infectious diseases, health equity advocate, director & ceo burnet institute (www.burnet.edu.au), chair, australian global health alliance & pacific friends of global health (www.ausglobalhealth.org)
Rien de Böck @riendebock.bsky.social Former mathematician. Life came to a sudden halt due to #LongCovid/ME, tweets in Dutch and English.
@LongCovidNL.
Anne Vroegindeweij @thisistheillme.bsky.social 🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Hermien @hermien.bsky.social Ik onderzoek, adviseer en schrijf. Ik ♥️ taal, bibliotheken, literatuur, filosofie, politiek, geschiedenis.
#NietHersteld - De Podcast
@NietHersteld.bsky.social
Fred Verdult @fredverdult.bsky.social Passie voor Perry, fietsen in Alpen, zweten in sauna | Levensgeluk verknald door lyme | Directeur Lymefonds | Trots Ridder op voorspraak Nobel laureate
Matt Lazell-Fairman @mfairma.bsky.social ME. Spouse w LC, ME. Writer, bread baker, daydreamer. Still waiting on fair funding and apology from HHS. Masking like someone’s life depends on it.
Rob Wijbenga @ludiekje.bsky.social editor-in-chief ME Global Chronicle, co-founder & mod/adm ME Centraal
Joël @jlvlmn.bsky.social 🩺 Homebound due to severe M.E./POTS
Bilge Cetin @bilgecetin.bsky.social Living in the Netherlands. M.E. since 2019. Here to connect with the ME folks and researchers. english, dutch and turkish
Bart Le Fermier @bart-lefermier.bsky.social Long Covid since feb '21.
themupsmuppet @sophie11.bsky.social enkel MEmorabele tweets, uh blueskies? skeets? ....whatever!
Alexis Gilbert @alexisme.bsky.social Medically retired due to M.E. Previously Consultant in Health Protection, FFPH (2020) MPH MBBS BSc | Severe ME, Long Covid and POTS patient | Global health
Most active on IG stories: https://www.instagram.com/alexis___me/
Philip Corsius @philipcorsius.bsky.social Dad. Husband. Son. Once were brother.
Tom Molmans, MD @molbaas.bsky.social Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
Bente Kubin - Magic Everyday @bentealinda.bsky.social Had pech, werd ziek, leven weg (sinds 2009) | Bedgebonden door zeer ernstige ME, POTS, LongCovid, Lyme, CCI | Columniste | Insta: @bentealinda | Strooi met schrijfsels en vooral veel liefde🫶🏼↴
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
Mike's Euro Maras for M.E. @mikeseumarathons.bsky.social I run marathons around Europe raising funds for Invest In ME's biomedical research projects to cure ME.
35 countries. £52k raised.
Next race: Euro Country 36: Reykjavik, Iceland 🇮🇸 (22.08.26)
www.mikeseumarathons.eu
www.justgiving.com/mikeseumarathons
Nydia @nydiadamnhoney.bsky.social Een van de moeders van DAMN, HONEY
Dom @domsalisbury.bsky.social Energetically compromised #pwME and patient advocate (when able) · Research scientist by trade · Interested in how we live · Open-minded but generally sceptical
https://domsalisbury.github.io
Oonagh Cousins @oonaghcousins.bsky.social 
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Kathryn Hoffmann @kathrynhoffmann.bsky.social ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung.
- Univ.Prof. und Ärztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Jonathan @dernetteausderecke.bsky.social Seit 11/2023 Leben mit angezogener Handbremse #MECFS
Sonst Veranstaltungstechniker und Student der Politik und Soziologie
Chris | ME/CFS Research Foundation @ungenesbar.bsky.social LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
Long Covid Nederland @longcovidnederland.bsky.social Onafhankelijke patiëntenvereniging voor én door #LongCovid patiënten. Volg ons ook op FB, X, LinkedIn en Instagram. Lid van oa Post Covid Netwerk Nederland en Long Covid Europe. longcovidnederland.com
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Siebe @siebepersists.bsky.social Be kind
Be rational
Protect democracy
Govern AGI
Cure ME/CFS & Long Covid
Reinier ter Beke @terbeke.bsky.social Juli 25: poging 2 tot DE overstap.
Schaatsen, cyber security, moestuin, vader/vriend, longcovid, voormalig marathonner, groen, duurzaam.
Jennie Jacques @jenniejacques1.bsky.social Donate to Justice For ME here if you can please 🙏 💙🦋
https://shorturl.at/x1Vyx
Alison Escalante MD @alisonescalantemd.bsky.social Pediatrician, Author Sigh, See, Start, Contributor Forbes & PsychToday. Parenting, Neurodiversity, Long COVID advocate.
Michel van Klink @vankvank.bsky.social .
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
Michal Caspi Tal, PhD @immunofever.bsky.social Immunoengineer at MIT BE developing predictive diagnostics. Captivated by #inflammation, #SexDifferences #Lyme, #COVID, #IACI, #IACC and #onehealth. Mom of 2. prev/ PhD in Immunology @Yale; PostDoc @Stanford
https://talresearchgroup.mit.edu/
Lou Corsius @loucorsius.bsky.social