ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Aidan Walker @aidanwalker.bsky.social internet meme researcher and historian, sometimes reporter
https://linktr.ee/aidanwalker1
Substack: How To Do Things With Memes, @aidanetcetera TikTok, Insta, YouTubey
Nintendeal @nintendeal.com Nintendo video game deals and news plus whatever else I find interesting. As an Amazon Associate, I earn from qualifying purchases.
Track your video game collection and create a wishlist on dekudeals.com
Posts by @andrewalerts.bsky.social
Design Room @designroom.site A new website dedicated to video game oral histories from @mattleone.bsky.social. Find us at designroom.site. Logo by asawallander.se.
Rogue @rogue.site A video game website run by humans.
Scientific American @sciam.bsky.social A legacy of discovery. A future of innovation.
Truthout @truthout.org Independent reporting and commentary on a diverse range of social justice issues.
Support our work: truthout.org/donate
Get our daily email: truthout.org/subscribe
Follow us: go.bsky.app/9WsnfPT
KQED News @kqednews.kqed.org Bay Area public radio and digital news.
Sign up for our daily newsletter: http://kqed.org/newsletters
Ruth Ben-Ghiat @ruthbenghiat.bsky.social Historian; Author, NYT Bestseller Strongmen; Publisher, Lucid, a Substack newsletter on authoritarianism and threats to democracy; Film & TV Consultant
Jack - amatica health @jackamatica.bsky.social ME/CFS patient and researcher
Co founder of amatica health
https://amaticahealth.com
@amaticahealth.bsky.social @amaticahealth.bsky.social
Disability Rights Education & Defense Fund @dredf.bsky.social DREDF is a leading national civil rights law and policy center directed by individuals with disabilities. Website: dredf.org
Aftermath @aftermath.site Aftermath is an independent, worker-owned website about video games and internet culture.
www.aftermath.site
Devin Lane @devinlane.com 🧑💻 Software engineer / web dev
🎸 Songwriter / producer / guitarist: https://gentlereturn.bandcamp.com/
🫂 Long covid justice, treatment, research
🌁 Based in sf bay area, ca, usa
Meighan Stone @meighanstone.bsky.social Executive Director of Long COVID Campaign @lccampaign.bsky.social. Past: President Malala Fund, Senior Fellow Council on Foreign Relations & Harvard fellow. Single mom living with #LongCOVID #MECFS #POTS #MCAS one day at a time ♿
Liz Highleyman @lizhighleyman.bsky.social Freelance medical journalist. Science editor for @pozmagazine.bsky.social, Hep & CancerHealth. Words for aidsmap, Slate, Bay Area Reporter. Research beagle adopter.
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚- A @aimeeweiss.bsky.social @aimeeweiss.bsky.social
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Long Covid Families @longcovidfam.bsky.social We are families working inside research, public health, and policy. Turning lived experience into system change for children. U.S. based.
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/- G Ginaassaf @ginaassaf.bsky.social
Salvatore Mattera @salvmattera.bsky.social Help people with Long COVID by posting a review of your doctor or a treatment you've tried: http://HelpForLongCOVID.com - All opinions my own.
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
Michael Peluso, MD @michaelpelusomd.bsky.social Long COVID and HIV cure clinician and researcher
Gary Marcus @garymarcus.bsky.social AI and cognitive science, Founder and CEO (Geometric Intelligence, acquired by Uber). 8 books including Guitar Zero, Rebooting AI and Taming Silicon Valley.
Newsletter (100k subscribers): garymarcus.substack.com
@erubie.bsky.social @erubie.bsky.social
Jody Houser ✒️🗯️🎲 @jodyhouser.bsky.social NYT Bestselling Comics Writer: Star Wars, Doctor Who, Stranger Things, Critical Role, Mother Panic, Spider-Man, Harley & Ivy, Faith. RPG addict. She/her. Shop: ko-fi.com/jodyhouser/shop
Putrino Lab @putrinolab.bsky.social
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
The Other Happy Place @theotherhappyplace.bsky.social Making a horror game with @ectafoole and @fungalhalo
Artist and writer
Seeking representation
She/her
Jessi
Horror hottie.
My body is broken, but my spirit is strong!
I make a lot of art.
Born in 1987 will never die
Jimmy Kimmel @jimmykimmel.com adventurer
Senator Bernie Sanders @sanders.senate.gov Sen. Sanders of Vermont, Ranking Member of the U.S. Senate Committee on Health, Education, Labor & Pensions, is the longest-serving independent in congressional history.
Chris Murphy @chrismurphyct.bsky.social U.S. Senator from Connecticut.
Alexandria Ocasio-Cortez @aoc.bsky.social Waitress turned Congresswoman for the Bronx and Queens. Grassroots elected, small-dollar supported. A better world is possible.
ocasiocortez.com
sarah thankam mathews @smathewss.bsky.social writer, fun guy 🍄. ✍🏾 novel ALL THIS COULD BE DIFFERENT, shortlisted for the national book award, and some other stuff. work in a bunch of places. organizes sometimes.
newsletter: http://smathewss.substack.com
Dissect Podcast @dissectpodcast.bsky.social Analyzing one album per season, one song per episode.
Matthew Hahn @matthewhahn.com Former prisoner. Dharma student. Union tradesman. Dharma leader at Spirit Rock, Insight Meditation Center, & San Jose Insight. Sober since 2005. Hobbyist photographer. San Jose, CA.
Kicked a divot out of Stalin’s grave.
https://linktr.ee/MatthewHahn
Julia Métraux @juliametraux.bsky.social Disability Reporter @ Mother Jones • jmetraux@motherjones.com • She/her • Berkeley Journalism alum • Signal: @juliametraux.49
Author page: https://www.motherjones.com/author/julia-metraux/
Free monthly newsletter: https://bit.ly/4tUXg9r
Resia Pretorius @resiapretorius.bsky.social Distinguished professor, Stellenbosch University and Honorary professor, University of Liverpool.
David Kaufman @kaufmanmd.bsky.social Physician/Internist focused on complex illness including Long Covid, ME/CFS, dysautonomia/POTS, MCAS, connective tissue disorder, and of course SIBO/Leaky Gut.
And sadly, the ongoing coup.
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
The Lever @levernews.com Award-winning, reader-supported media outlet holding power accountable. LeverNews.com
NY Times Pitchbot @nytpitchbot.bsky.social I have never felt more politically homeless. Parody. Merch: https://tinyurl.com/msjjmwpt
ProPublica @propublica.org Investigative journalism in the public interest. Headlines and (sometimes literal) receipts.
propublica.org
More Perfect Union @moreperfectunion.bsky.social Nonprofit newsroom. Media that builds power for working people.
Join us: https://linktr.ee/moreperfectunion
Julia MV @julialmv.bsky.social Long COVID patient-researcher
@ Scripps Research & Patient-Led Research Collaborative
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
Randall Munroe @xkcd.com
localthunk @localthunk.com Literally a fool
Creator of Balatro ( @playbalatro.com )
Business/Media: balatro@playstack.com
Blog: localthunk.com
Direct contact: localthunk.contact@gmail.com
🇨🇦- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
Alexandra Petri @petridishes.bsky.social I’m not in James Thurber’s attic any more! right now I’m home yay ! I’m the one who writes this column https://www.theatlantic.com/author/alexandra-petri/ and loves puns
Wes Ely, MD, MPH @weselymd.bsky.social Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, Dementia, Delirium, PICS. Fighting misinformation. Posts my own. Still learning.
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
loscharlos @loscharlos.bsky.social 😎🌁🎷 #LongCovid March 2020 😵💫
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
The Vertlartnic @thev.bsky.social Democracy Drowns In Dankness
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
betsy ladyzhets 😷 @betsyladyzhets.bsky.social editor/co-founder @thesicktimes.org | journalist covering Long COVID & related crises | she/her/🏳️🌈
email: betsy@thesicktimes.org | signal: betsyladyzhets.25 | https://thesicktimes.org/
Chris J. Maddison @cmaddis.bsky.social Asst. Prof. in Machine Learning at UofT. #LongCOVID patient.
https://www.cs.toronto.edu/~cmaddis/
Billy Hanlon @bhanlon15.bsky.social ME/CFS | Long COVID | IACC
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Post-Viral Trials @postviraltrials.bsky.social News and information about interventional trials for Long Covid, ME/CFS, POTS, and other post-viral illnesses. Message or tag me if you’re in a trial or otherwise have information to share.
Michael Hobbes @michaelhobbes.bsky.social Solitary, poor, nasty, brutish and short.
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
alex jaffe @alexjaf.bsky.social marine microbial ecology + wastewater | stanford postdoc | he/him/his
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Sara Luterman @slooterman.bsky.social Disabled disability and aging reporter at The 19th. Opinions are my own. Follows are not endorsements.
Signal: slooterman.18
Email: sluterman at 19thnews dot org
Dysautonomia International @dysautonomia.bsky.social We are the leading non-profit advocating for over 70M people around the world living with autonomic nervous system disorders. Research, Clinician Education, Patient Empowerment, Public Awareness & Advocacy is what we do. DysautonomiaInternational.org
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Janna Moen, PhD @jannamoen.bsky.social Postdoctoral scientist studying the neurobiology of #longCOVID in the Iwasaki lab @ Yale. Patient, scientist, advocate. | ♿🏳️🌈 | she/her
My long COVID research newsletter: lcbreakdown.substack.com
Ezra S @ezra.zone creator of longcovidstudies.net, member of the Patient-Led Research Collaborative, and freelancer.
Angela MV (she.he.they) @angelamswinca.bsky.social 🦠😷♿️#LongCovid disabled | 📢 fmr prez Body Politic | 🏠LAX | ⚖️health justice | ✊🏽✊🏾✊🏿racial justice
alt text profile pic: tan skinned person in a tan KN95 mask and suit, dark wavy hair with short bangs
Karla Monterroso @karlaliliana.bsky.social Part chaplain, part cross-pollinator, part coach, part builder. Multiracial multicultural institution dreamer. Brava pero vulnerable.
www.bravaleaders.com
elisa @mildtin.bsky.social Usually a lurker, Chronically Online for #LongCovid and other #IACC | Australia
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Vicky van der Togt @vickyvdtogt.bsky.social Facilitator | Researcher | Advocate
C.H. Romatowski @chromatowski.bsky.social This account will prob be about biomed research—complex chronic illnesses and Covid—w/some material on disability justice and organizing.
ME ‘05, LC ‘23, many of their friends along the way. Very severely ill (FUNCAP 0.9). No unsolicited advice please!
Death Panel @deathpanel.bsky.social Stay alive another week
patreon.com/deathpanelpod
Fi Lowenstein @filowenstein.bsky.social writer + journalist covering health justice, wellness culture, LGBTQ+ stuff + more...
https://www.fionalowenstein.com/
The Long COVID Survival Guide:
https://theexperimentpublishing.com/catalogs/fall-2022/long-covid-survival-guide/
they/them
Fuck Long Covid ❌ @fucklongcovid.com exposed late january 2020, fucked up since march 2020
Imani Barbarin @imanibarbarin.bsky.social Disabled Loudmouth.
https://www.canva.com/design/DAFjqA7WtS0/11YO6Ql6Yl9J792_jipiwQ/edit?utm_content=DAFjqA7WtS0&utm_campaign=designshare&utm_medium=link2&utm_source=sharebutton
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Yr buskined mistress & yr warrior love @rhymeswithvery.bsky.social ACT I: Books, bookstores, publishing, the Bay Area, my dog, trees, rocks, crows, large bodies of water. ACT II: #FcktheNIH, post-vaccine syndrome, #ME, other new health disasters, good people, disability justice. ACT III:
Alice Wong @sfdirewolf.bsky.social Author, editor, activist, cat lover. Founder of the Disability Visibility Project.
#DisabilityJustice feed I created:
https://bsky.app/profile/did:plc:65kss3ewg5ida5mjyuk73v5r/feed/aaaba7ikg4sho
More about me
https://linktr.ee/disability_visibility
Lisa McCorkell @lisamccorkell.bsky.social formerly a patient-led research collaborative co-lead, always a co-founder | MPP | she/her | natures 10 in 2022
Michael Sieverts @yogafogie.bsky.social DMV native. COVID long hauler. Patient-Led Research Collaborative.
Jews For Racial & Economic Justice Action @jfrejnyc.bsky.social Building a vibrant Jewish Left in NY, fighting arm-in-arm with our neighbors for care not cops. Extremely pro-glitter. https://www.jfrej.org/
S💿phie CD @sophie-cd.bsky.social Australian, Cypriot & Greek anti-disease designer existing in Berlin. Been to hell & back thanks to the pandemic. check @sophsoph.psd & @berlin_buyers_club on the gram 🤓
Hannah Davis @ahandvanish.bsky.social Research, algorithmic art & music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled.bsky.social.
Ed Yong @edyong209.bsky.social Writer, journalist. Science, health. Pandemics, animals. Birder, photographer. Many words, some awards. AN IMMENSE WORLD, I CONTAIN MULTITUDES. Married to Liz Neeley, parent to Typo. he/him
📷 Canon R6mkii + RF 800mm
Edyong.me
Pats @patt.bsky.social dev @skyswipe.bsky.social @atdigitalgarden.bsky.social
software engineering, social networks, financial markets, medicine, algorithms, decentralization, swe, cs, math, stats
Join Skyswipe today:
→ https://apps.apple.com/us/app/skyswipe/id6745531492
Sita 💫 @mamasita.bsky.social surviving dystopia | astrology | long covid | cannabis
Claudia ✨ @theclaw.bsky.social Now, more: Great value
Olenka Sayko @osayko.bsky.social Theater/film/music/book lover. Lipstick hoarder. Ukrainian-American. Life on pause due to #LongCOVID of the #MECFS / #POTS / #MCAS variety. Left-ish libertarian-ish. Suffering NY Rangers fan. Audiobook connoisseuse.
Taylor Lorenz @taylorlorenz.bsky.social Subscribe to my tech and online culture newsletter UserMag.co
Listen/watch Power User podcast on all platforms!!
Support my work on Patreon: https://www.patreon.com/cw/taylorlorenz
Tara ✨ @taramaac.bsky.social
Thaïs @thais22.bsky.social