Hannahh 💞 @heljens.bsky.social lowkey your favorite mistake 🎀
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Wayside Scribbles @waysidescribbles.bsky.social Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: 𝕏 Twitter 📸 IG 👥 FB @waysidescribbles (no S on X) | Support me: https://buymeacoffee.com/waysidescribbles
Aktionskalender_ME/CFS_Long Covid_Post-Vac @aktionskalender.bsky.social Kleine Gruppe von Betroffenen und Allies, die einen Onlinekalender für Events, Aktionen, Konferenzen etc. rund um ME/CFS, Post-Vac und Long Covid entwickelt hat und betreut - www.aktionskalender.org
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisn’tover
Der_René @cliovader.eurosky.social *hier könnte Ihre Werbung stehen*
Ich bin’s, der René:
linksgrüner
Demokrat | Europäer 🇪🇺 | Nerd | Veganer 🌱 | Motorradfahrer | 📍Dresdner
#TaxTheRich
MicMak @micmak.bsky.social Afro TCK.
Erik Slingerlnd @slingerik.bsky.social Vader Man Zoon #Dutch
Nihil Volentibus Arduum est
Persoonlijk account
#Cybersecurity #treinleven #OSINT #Infosec #Saab #Fotografie
Eva @salzkofel.bsky.social ☆ Gesundheitswesen • hirnvernebelt seit 2/22 • PostCovid/MECFS • oft reicht es nur zum Mitlesen... • will wieder auf'n Berg! • SocialMediaGreenhorn ☆
Lilly Panholzer @lillypan.bsky.social Kunstvermittlerin/Lehrerin on pause/Psychologin in Fachausbildung#biomedizinische ME/CFS Forschung JETZT! #TalkCollapse #saubereLuft #IGÖ #luegerplatz.com
Joao @joao-walker.bsky.social Wegen Long Covid die meiste Zeit zu Hause
Co-Founder @aktionskalender.bsky.social
Dr. Sascha Reth @saschareth.bsky.social 
@fiona289.bsky.social @fiona289.bsky.social 
KimK @kimk-research.bsky.social Retired 🪷 Grandmother ♿️ amputee 🤍 domestic violence advocacy 🥄 longCOVID advocacy @renegaderesearch.bsky.social 🥩 animal-based keto
Özgür Toprak @ozgurtoprak8303.bsky.social Kurdischer Politiker und Aktivist
Soziologie der Universität Eskisehir, Abteilung für Lederbekleidung der Universität Usak.
ZÜRICH🇨🇭
X Mein Konto &: @komunalistx
So Lala @doremifasolala.bsky.social ⚓︎
Slasher Film | Horror Movie @slasherfilm2024.bsky.social WATCH THE TEASER TRAILER NOW on YouTube: https://tinyurl.com/ebbrwb6f (Warning: 18+)
Movie coming soon. Calling all #HORROR fans.
#horrorcommunity
Ottawa, ON, Canada 🇨🇦
Instagram: https://tinyurl.com/yf2e6vr8
FB page: https://tinyurl.com/mwwrf68e
Patricia @dasichimwir.bsky.social 
Long COVID Labs @longcovidlabs.bsky.social Non-profit accelerating a cure for 100M+ people with Long COVID.
Longcovidlabs.org
Fatigatio e.V. - Bundesverband ME/CFS @fatigatioev.bsky.social Wir unterstützen Menschen mit ME/CFS (Myalgische Enzephalomyelitis / Chronisches Fatigue Syndrom) und setzen uns seit 1993 für Versorgung, Forschung und Aufklärung ein.
Größte deutsche Patientenorganisation mit gut 3.000 Mitgliedern. 
Paul Westcountry Wanderings @westcountrywand.bsky.social YouTuber, photographer, wanderer. Likes countryside, walking, railways, canals, nature, history, coast. Passionate about the positive and the Westcountry of England. - J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Fabian Fritz @ffhambu.bsky.social Dr. phil.; former professor; #Sozialpädagogik #Demokratiebildung #KinderundJugendarbeit #socialwork #Antifaschist #fcsp 🤎🤍❤️ Check: emptystands.me
Homepage: https://www.bildung.uni-siegen.de/mitarbeiter/fritz
Maik Herberhold @mherberhold.bsky.social Kinder- u. Jugendpsychiater u. -psychotherapeut. Kuckucksnestpilot. Katholik.
Freedolinski @freedolinski.bsky.social Ein Liebhaber des Halbschattens
Verena Hackl @verhac.bsky.social ME/CFS, Long Covid & PAIS | science & physiotherapy | #SaubereLuft #CleanAir | 📍Vienna | posts/skeets = personal opinion
www.verhac.at
de/en
@rsch @richard-schachtel.bsky.social 
Donata 🍋 @donata1608.bsky.social Nach EBV Reaktivierung und #longcovid an #MECFS erkrankt.
https://x.com/donata1608?s=21&t=F8uKwluVNekKRdF5TBO1Pg
Isabel Ramirez-Burnett @isabelrb.bsky.social CEO | Renegade Research | Project Director of Remission Biome
NBC-HWC, AIP-C
@remissionbiome.bsky.social
Ulrich Pfefferle @reffeff.bsky.social #NoAfD, #Gärtner #SPD,-mittig #BVB #HumanRights, #KeinenExtremismus #German, Katzenfreund, #NoQuerfrontWagenknecht #Nordlicht #Ehefueralle, Ex-Ostwestfale #FCKPTN, 🇮🇱 🇺🇦 🕊
Elly Brosius, MS @ellybrosius.bsky.social Pets, nature, physics, health, sewing, crafts, ME/CFS/OI/LC science & symptoms, medicinal metaphors, gratefulness practice. Volunteer for Renegade Research including R50, NoVA ME/CFS, OI & Long Covid Support Group, MEAction NC.
Belasco @belasco.bsky.social Queer disabled chronically ill nature-loving nerd trapped in Texas
Brent Forman 🇨🇦 @joeblow604.bsky.social Living with Myalgic Encephalomyelitis since 2011. Artist, Advocate, Creative
Former Electro-Mechanical Prototyper
Inclusive
#pwME #MECFS #MCAS #POTS #Fibro #LongCovid #Disability #chronicillness
#art #artist #painting #oilpainting #digitalart #photography
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on endometriosis and a little on mental illness too 🏴
Christian Humer @chumer.dev PL/VM/Compilers at Oracle. Working on Truffle/Graal.
ME/CFS Caretaker and Activist (https://ooe-mecfs.at).
Austrian expat in Zurich.
Meike @mik-boo.bsky.social - H hoepfm.bsky.social @hoepfm.bsky.social
@skorckjevje.bsky.social @skorckjevje.bsky.social 
Eva&Me @evajuststoppingby.bsky.social ME/CFS from bed bound to house bound, Fahrradliebe auf Pause
@ivi81.bsky.social @ivi81.bsky.social 
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
Anne Vroegindeweij @thisistheillme.bsky.social 🇬🇧: Severe ME & long covid
🇳🇱: Auteur van 'De achterblijvers' (Uitgeverij De Geus)
🏳️🌈
Pressecop24.com @pressecop24.bsky.social Pressecop24.com veröffentlicht Nachrichten und Meldungen aus der Demokratur in Deutschland! Siehe auch www.behoerdenstress.de und www.pressecop24.com
Philkjp @philkjp.bsky.social Kinder- und Jugendlichenpsychotherapeut
RPG-Fan, Oldtimer, Holzbau und Hühner
Un-American @bennevis.bsky.social 🕊️
🥀
Un-American Activities Comm
https://www.britannica.com/topic/House-Un-American-Activities-Committee
https://www.michael-parenti.org/
https://www.watermelonplus.com/earths-greatest-enemy/videos/earth-s-greatest-enemy-film
EARTH'S GREATEST Enemy
Yvonne @emoyvonne.bsky.social Navigating life with Long Covid.
Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea.
🖤🖤🖤
Camilo Caceres-Parra, Physio Msc @camilocaceresp.bsky.social Critical Care Physiotherapist | Looking for research options (MPhil or PhD) in Post Intensive Care Syndrome (PICS), physical activity in ICU, early rehab.
🇨🇱🇦🇺| Melbourne, Vic.
Julia @mllelanterne.bsky.social International Socialist; Mathematician/Physicist; Software engineer with a focus on machine learning; Long Covid/MECFS since early 2024
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
@bemmemitbrot.bsky.social @bemmemitbrot.bsky.social 
ThorEd @thoredpfalz.bsky.social #Longcovid seit 09/23
#PlötzlichIstAllesAnders
#MECFS #PEM #POTS
#CouchBettUndZurück
Florian Karolinus @karolinus.bsky.social Bin hier incognito unterwegs. Schon ein wenig Lebenserfahrung gesammelt. 🚒🚑🪖💻🍽📚🌻🌲🌳#MECFS #LongCovid
peony @peony386.bsky.social clean air #protectthekids || MECFS
Petit Feu @petitfeu.bsky.social Still suffering from #MECFS. Life still on hold.
she/her
💙 = ME/CFS solidarity
#noAfD
Cffnthmrnng @cffnthmrnng.bsky.social #LongCovidKids #LongCovid
#ME/CFSKids #ME/CFS
#MillionsMissing #CureME
Sommerregen @sommerregen.bsky.social Pro Wissenschaft, pro Maske, pro Impfung, pro Bildung, pro Zivilcourage. Anti Nazis, Anti Schwurbler, Anti Dummheit, Anti Egoschweine, Anti Diskriminierung.
Hui Buh @huibubu.bsky.social #fckafd #fckfdp #longcovid #hamburg #games #punkrock
Patient Advocacy @patientadvocacy.bsky.social patientadvocacy100@gmail.com
Staffan @bythewayside.bsky.social Currently chronically ill. Tirefully working to change things around. #longcovid
burgermind @burgermind.bsky.social ME since 2021
#PwME #mecfs #longcovid #fibro #pots #severeME
I live on a lovely little island ( #OrcasIsland #PNW )
pfp: my black cat sleeping with forelegs stretched out
Tamara C @tamararivc.bsky.social Published an ME/CFS Hypothesis of Noradrenergic Neuron Dysfunction and Phosphatidylcholine Deficiency - https://www.preprints.org/manuscript/202409.1467/v2
@lintay.bsky.social @lintay.bsky.social 
Mare @mare1967.bsky.social #CleanAir #SaubereRaumluft (in Schulen, medizinischen Einrichtungen, Alters-/Pflegeheimen) #LongCovid (seit Sommer 2022) #TeamScience #DavosStandard #DavosSafe #Luftfilter //
Ex-Weltenbummlerin; used to travel the world //
Zurich, Switzerland
@milbern.bsky.social @milbern.bsky.social 
Jo @sepfieldpatient.bsky.social Chronically ill (CVID, adrenal insufficiency, autoimmune diseases, and the rest), sometimes a maker of things…
Eddie Mundo @eddiemundo.bsky.social Rural GP (in sleep mode), musician, boxer (was), dog lover, jigsaw doer #longcovid #AuDHD 🏳️🌈 ♾️ Yidinji lands
tamsin yeld into the void @68thmonkey.bsky.social Previously an alien, but really a monkey. MECFS since 2017. ♿️🌈 Science, nature, climate, dogs, politics makes me mad but I just cant help myself. Peace & Love 😍✌️ (definitely not fear). Lucky to live in Bundjalung Country 🇦🇺 (Advocate for Bleats not Skeets)- A Andrew Green @andrewg76201347.bsky.social ME/CFS, POTS, MCAS, lupus, Hashimoto’s. Patient & carer. Disabled scientist. Female - using fake name bc I post about son's illness. Location: Australia
MoleyME Caroline @moleyme.bsky.social Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
Anne-Louise aka ALS @annelouisebme.bsky.social I used to know all things medical devices in hospitals - Biomedical/Clinical Engineering; infrequent poster; watchful waiting on ME/CFS research since May 1992; watercolour learner; living on Peramangk country
Snoefår @snoefar.bsky.social ME/CFS, Trauma, Schönes und anderes, früher Gesundheitswesen, Tiere und Garten, heute Bett. - K @kneoh.bsky.social @kneoh.bsky.social
Dirk Paessler @dpaessler.bsky.social Our mission is to speed up negative emissions
CEO Carbon Drawdown Initiative https://www.carbon-drawdown.de
VP Negative Emissions Platform https://negative-emissions.org/
Sabrina Eggmann, PhD @sabrinaeggmann.bsky.social Critical care physiotherapist and postdoctoral researcher, interested in #ICUrehab, MSc in Neurorehabilitation, PgDip in Critical Care
#ICUSky #LongCovid
jo @moerakijo.bsky.social Living with Long Covid and ME
Love books, libraries, histories
she/her
Aotearoa New Zealand
#LongCovid #ME #WearAMask😷
#CovidIsNotOver
#LongCovidAwareness
Mills @darlingems.bsky.social One day at a time || severely disabled — LC, ME/CFS, POTS || Disability Advocacy
MarliesKdG @marlieskdg.bsky.social Imperfecte deugkneus. Helaas met ME/LongCovid. Probeert Covid dus nog steeds te ontlopen. Steekt veel energie in het minder gebruiken ervan. Automatonfan.
Niko Suvisto @nikosuvisto.com Life on hold by severe #MECFS, currently 99% bedbound 🛌
Documenting my life like it is now, advocacy through photography 📷
📍Finland
https://nikosuvisto.com/
Jutta Reinke @juttareinke.bsky.social Neugierig by Nature | aktuell #LongCovid #MECFS gebremst |
#TeamHabeck #TeamRobert #Habeck4Kanzler #DieGruenen |Creator of jucandle_by_jutta, Kerzen-Design made with Love und Zuhause https://tinyurl.com/57tynyt5
S.Jones @seastarsal.bsky.social Chronically enraged that I've had ME/CFS since 1992.
cfsgraphics.com
Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic.bsky.social #LongCovid Scientific Consultant
PhD Nutrition & Metabolism
Hon Research Fellow, Lund Uni
Posts: nutrition ▪ health ▪ all-things-science ▪ activism ▪ fun facts ▪ #PostVac
Donations: https://ko-fi.com/drsmash
Facebook: https://www.facebook.com/LongCovidSC
BD @bdunsmore.bsky.social More observer than commentator. Here to absorb and pass on. Long covid/CFS has altered my life dramatically. It sucks.
🍋 Mene @mene15.bsky.social 
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
Reid Maltby 🇵🇸🍉 @rmaltby.bsky.social Free Palestine
Long Covid
Lovely wife, small dog
Cdn settler (he/him)
MLB, Blue Jays
Get Ry Cooder to sing my eulogy
DMs off
Banner: large black and white cat who is missed
Profile: selfie with dear departed short pal