Immersion EM @immersion-em.bsky.social Informations, discussion, découverte autour de l'Encéphalomyélite Myalgique (EM/SFC), du Covid Long, des Syndromes Post Infectieux.
Site immersion-em.com
Maud Sac @papillyon.bsky.social Severe ME/CFS, mostly bedbound.
@voxem.bsky.social
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Netroots Nation @netrootsnation.bsky.social The largest progressive gathering in the U.S. 🔥
📍 #NN27 will be in Denver: July 8-10, 2027
NetrootsNation.org
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
The Autistic Coach | Mati (he/they) @theautisticcoach.bsky.social I build neuroaffirming communities by empowering my fellow autistic humans with advocacy & self-care tools for navigating a productivist society
AuDHD ♾️ 🌀 דזשענדער־טרייף
#POTS #Dyspraxia ♿️
EN/FR
theautisticcoach.com
Also @autisticrabbi.bsky.social
Firas Kontar @firask.bsky.social Auteur : Syrie, la Révolution impossible - éditions Aldeia
Contributeur : Syrie, le pays brûlé le livre noir des années Assad - Éditions Seuil
Claquemuraille @claquemuraille.bsky.social Musician, electronic/electroacoustic music, experimental music.
Political topics: prison abolition, anti-fascism, anti-speciesism
Other topics: weird and horror movies, twentieth-century art
Khedidja Zerouali @khedidjazerouali.bsky.social Journaliste à Mediapart
Elise Wang @elisewang.bsky.social medievalist. law & history (old) | conspiracy theories (old and new) | taiwan (new and yet to be) | chicago —> los angeles
carnegie fellow ‘24-‘26, writing a book on medieval conspiracy theories
elisedwang.com
Estelle @stlle.bsky.social Avant : kiné, tennis, voyages, cinéma // Aujourd’hui : 100% Covid long 🏠
Former physiotherapist, tennis player // Now homebound with LC POTS MCAS 😷🦠
Clem ~ Niko ♿️✝️🏳️🌈🏳️⚧️🇵🇱 SEED @clemjolichose.northsky.social Radicalement queer 🌌 affilié•e Twitch, co-orga @seedevent.bsky.social, modo @desentredeux.bsky.social @emjii-live.bsky.social, auteurice | 22, Futurx Archiviste
https://twitch.tv/clemjolichose
https://linktr.ee/clemjolichose
@un-enfant-handi.bsky.social @un-enfant-handi.bsky.social Spitfire from the R.A.A.F (Radical Anti-Ableist Front)
Veille anti-validiste permanente/valido-sceptique
Acide-Gauche
🏳️🌈LGBTQIA+ safe space🏳️⚧️
(PP: Photo de ma tête.
Bannière: militantEs anti-validistes tenant une banderole où est inscrit: Not Dead Yet)
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Ludivine Bantigny @ludivinebantigny.bsky.social Historienne
Histoire du travail, des mouvements sociaux, des révolutions; histoire des luttes de femmes et des féminismes; justice sociale et émancipation
https://grhis.univ-rouen.fr/grhis/?page_id=362
Anna Wood @annakwood.bsky.social Physicist, education researcher, gardener, bird watcher/photographer, chronic illness/ME
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
Royal Free 1955 @rfh1955.bsky.social ME/CFS archive. For education, not profit. Researched since 2011 by @continuitytweets.bsky.social & @ciaranj_farrell. Reposts not necessarily endorsements. No art, emoji etc.
https://rfh1955.blogspot.com/
Matthew Dalby @matthewjdalby.bsky.social 
Workwell Foundation @workwellfoundation.bsky.social #Nonprofit clinical #research providing 2-day #CPET #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses. workwellfoundation.org
EndMalnutritioninME @malnutritionme.bsky.social Campaign for improvements in medical care for ME patients with gastrointestinal symptoms. http://25megroup.org
Sten Helmfrid @stenhelmfrid.bsky.social Ph.D. in physics, also interested in mathematics, science theory, and history. Follows research on ME/CFS.
Stockholm, Sweden
Chronic Illness Humor @chronicillness.bsky.social Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for while. https://chronicillnesstees.etsy.com
https://mybodyistryingtokillme.com/
https://www.redbubble.com/people/ChronicillnessT
#chronicillness
Katie J. @kjohnstone.bsky.social ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
Dr Rae Duncan @sunny-rae1.bsky.social Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x 
Carmen Scheibenbogen @scheibenbogen.bsky.social Immunologist and ME/CFS researcher @Charité
https://cfc.charite.de/
Illustrator Interrupted @franceyme.bsky.social https://amandafrancey.com/ Australian illustrator, graphic designer, photographer. Advocating for myalgic encephalomyelitis #MECFS #LongCovid #ClimateAction
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
It's M.E. Linda @happyhoundhouse.bsky.social 2001 PVFS 'Recovered' to 90% by 2006. Sepsis 2013 resulted in M.E. / relapse. Brain/fitness not 'what it used to be'. Beloved Lisnakill Myles-Happy Hound himself 🌈
Ziyad Al-Aly MD @zalaly.bsky.social Physician | Scientist | working on Long Covid
Dr Claire Taylor @drclairetaylor.bsky.social 
Daniel Missailidis, PhD @danielmissailidis.bsky.social Researching the cell biology of ME/CFS since 2016, now also Long COVID and PD. Papers: https://scholars.latrobe.edu.au/d2missailidi/publications
Dr Rebecca Ryan @drrebeccaryan.bsky.social Love everything Gut Brain Axis related.
Gastroenterologist
POTS, MCAS, hEDS, Long Covid, VCS
Laurel @dreamsatstake.bsky.social Mostly bedridden with severe myalgic encephalomyelitis/ME
Interests: health, reading, nature, film, photography, art, travel, social issues
Former blog: www.dreamsatstake.com
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Danilo Buonsenso @buonsenso.bsky.social Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
Peter White @mediumwhite.bsky.social Europhile 🏳️🌈, lived in 🇬🇧🇮🇹🇨🇼🇧🇪 🇧🇩. Dedicated follower of science. Former textile engineer, now a Mgmt consultant. I believe in believing people.
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
John Haughton MD, MS @doc4care.bsky.social
Physician. Recovered, Long Covid 2022. continues
John@100apples.com
Metformin, TLR4 quieting, microclot busting, NRF2 promoting, HIF1a limiting approach. “CORE” circ, oxygen, rebuild energy
Tx Long Covid & MECFS
Chief Med Officer Renegade Research
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines 
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
📍 https://crunchme.org/
Millions Missing Podcast @millionsmissingpod.bsky.social Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Oonagh Cousins @oonaghcousins.bsky.social 
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Mark Vink, MD @huisarts-vink.bsky.social Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
@wamesmecfs.bsky.social @wamesmecfs.bsky.social 
Breanna Weigel @breannaweigel.bsky.social Public Health PhD Candidate by day, Piano Teacher by afternoon | she/her
Elke Hausmann @drelke.bsky.social German, English, Spanish
Sociology, Medicine, General Practice
MEAction UK @meactionuk.bsky.social Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care. 
Anthony Pecqueux @pecqueuxanthony.bsky.social Socio-anthropologie, & le reste...
Pragmatisme / Poésie / Orchidées: de quoi remplir tout un mondeS
Centre Max Weber - Équipe "Politiques de la Connaissance"
SUD - Recherche @solidaires.org
@revue-traces.bsky.social
Lotis @lotis.bsky.social Change de région, maison, pas dispo. Ecrire beaucoup (Fleurs des nuits), militer un peu. Podcast : A ma place (Spotify, Apple Podcast, Podcast Addict, Deezer...)
https://lotisauteur.com/
https://patreon.com/Lotis
www.crimscollectif.com
AQEM - Association québécoise de l'encéphalomyélite myalgique @aqem.bsky.social L’AQEM vise l'avancement de la connaissance, de la reconnaissance de l' #EMSFC du mieux-être des #paEM | #Canada #Quebec | www.aqem.ca | IG/X @aqem_sfc
#EncephalomyeliteMyalgique #MyalgicEncephalomyelitis #MECFS #pwME #CovidLongue #CovidLong #LongCovid
EG @egccnomb.bsky.social
https://www.editions-kelach.com/pages/divers/notre-equipe/elodie-greffe.html
blaine @jblainefoster.bsky.social genetics BS ➡️ history MA ➡️ PharmD | 🌈🏳️⚧️ | MECFS | 🇨🇦 | any/all
Max Rob @max-rob.bsky.social Anticapitalisme de gauche ou gauche anticapitaliste ?
Telle est la question.
[un post/j. max.]
Johann Soufi @jsoufi.bsky.social International Lawyer ⚖️ | PhD researcher 🎓| Justice & Human Rights | Views my own.
Gwen Pallarès 🏳️⚧️ @sornette.bsky.social F ⚧️ MCF INSPÉ - Didactique des sciences : éducation, argumentation, pensée critique, controverses sociotechniques, numérique. Militante - transitude, féminisme, autisme, sciences. Compte perso.
Albertine Proust @albertinep.bsky.social "Rags. Petrol. Matches"
Scientifique, féministe, clarinettiste, pianiste, ukuléliste... Humaine de Rustine, la labrador parfaite et mère de l'humain de Terrine, la joyeuse golden retriever. Pas de ALT ? Pas de re-blousque | Elle/she
Ghalem @ghalemt22.bsky.social #Hirak pour une #Algérie #Laïque et démocratique
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
ME/CFS Science @mecfsscience.org In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Formerly known as ME/CFS Skeptic.
https://mecfsscience.org/
Heather Paterson @heatherpaterson.co.uk Head of Partnerships and Development @consortium.lgbt | Chair @proudchangemakers.bsky.social | LGBTQ+ Columnist Exposed Magazine
Proud queer 🏳️🌈 Trans ally 🏳️⚧️ Intersectional feminist ✊ Anti-fascist #LGBWithTheT
www.heatherpaterson.co.uk- M Miaoupowa @miaoupowa.bsky.social Pour un monde en paix plein de petits chats ronronnants.
Jules Blaster @julesblaster.bsky.social Journaliste et sportif indépendant.
J’aime bien écrire des lettres.
« Boxing Day » chez @blast-info.fr
https://lnk.bio/blasterjules
Bo des ref @bodesref.bsky.social If you want to run, run a mile. If you want to experience a different life, run a marathon.
Emil Zatopek
FabKa ✏️📐🇫🇷 🇺🇦 🇵🇸 🍝 @fabk.bsky.social 
ACAV - Action Collective Antifasciste Valence @acav26.bsky.social 📣 Antifascisme & anarchisme intersectionnel 🏴
📍 Présent-es à Valence et alentours, Romans, Nyons, Montélimar
📲 Insta : acav26
nora bouazzouni @nora.bz nora.bz • autrice • journaliste alimentation-séries-genre • 📚 VIOLENCES EN CUISINE (2025) & MANGEZ LES RICHES (2023) & STEAKSISME (2021) & FAIMINISME (2017) • traductrice • taulière @payetapige.com
Dr Matthieu Piccoli @matthieupiccoli.bsky.social Humaniste.
Gériatre.
Personne ne sera à l'abri tant que tout le monde ne sera pas à l'abri.
Partager ≠ approuver
Mohi Sharif's family @mohiysharef.bsky.social I'm Mohiy from Gaza, Palestine 🇵🇸. A father to a boy and two girls. I'm still trapped at Gaza and dream of a better peaceful life
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋
Lori @lorilorilo.bsky.social I love gardening but we need to talk about pandemics, disabilities and eugenics. Help
❌ I will not relay AI knowingly, or pictures without descriptive alt text.
ALT
PP: a yellow and pink primrose;
Cover: buttercup and daisies.
Adil Haque @adhaque.bsky.social Law professor
La Horde @lahorde.bsky.social Depuis 2012, notre collectif diffuse de l'information sur les initiatives des groupes antifas, des analyses et du matériel (schémas, cartes, stickers, badges…), et il propose des formations et des interventions sur l'extrême droite et l'antifascisme.
Cartouches XXI @spartakusxxi.bsky.social Cartouches et rations de combat.
Culture et métapolitique.
Tribal Army @tribalarmyorg.bsky.social Tribal Army Provides a platform to challenge the generational neglect of Indigenous people of world.
•Website: https://tribalarmy.org
•Twitter: https://x.com/TribalArmy
Mahmoud Jehad @drzoolsurgeon.bsky.social I’m a General Surgeon in North Gaza
Donation Link:
https://gofund.me/21fb48e46
Facebook:
https://www.facebook.com/share/14AQGpFaMV/?mibextid=wwXIfr
Instagram: https://www.instagram.com/dr_.zool?igsh=MXJ6dnAzbjJxNXNxeQ==
georgesdiam @georgesdim.bsky.social Pace no fascim Paz 🇯🇴🇱🇧
Je bloque l' extrême droite et donc
l' extrême centre, aussi .
"Homme de songe", comme l'écrivait Hugo, utopiste.
Observatoire international des prisons (OIP) @oipsectionfr.bsky.social Organisation non gouvernementale de défense des #droits et de la #dignité des personnes #détenues, l'OIP milite pour un moindre recours à l' #enfermement
🔗 oip.org
📧 urlr.me/rQbBFC
#Prison #DroitsHumains #Justice
La Vie des idées @laviedesidees.bsky.social Revue en ligne de sciences humaines.
Vie intellectuelle et actualité éditoriale internationale
👉 https://laviedesidees.fr/
@ali-en-jachere.bsky.social @ali-en-jachere.bsky.social Mediatrice scientifique, actuellement en prospection de projets de vie compatibles avec une em/sfc post covid (covid long)
Hansraj Meena @hansrajmeena.bsky.social Environmental & Socio- Political Activist with Principle of secularism, Equality,Humanity & Justice. A Tribal, Son Of Farmer. Founder of Tribal Army.
•Twitter : https://x.com/HansrajMeena
•Instagram : https://www.instagram.com/hansrajmeenaofficial
Dominique Fourtune @dominique.fourtune.fr De vin, de poésie et de permaculture, voilà la condition humaine du XXI ème siècle.
https://tunebook.fr
WIRED @wired.com For Future Reference.
Sign up for our newsletters: https://wrd.cm/newsletters
Find our WIRED journalists here: https://go.bsky.app/Boj9b5E
Kay Rubenz ✊🏿🖤 @kayrubenz.bsky.social DJ afro-descendant et militant NOIR.
insta: @k.rbnz
bookings : management.kayrubenz@gmail.com
Podcast : « MASC’OFF »
@MascOff_podcast sur youtube
Les blancs ne sont pas mes ennemis.
C’est moi qui suis l’ennemi de la suprématie blanche.
Éditions Libertalia @libertalialivre.bsky.social Libertalia, édition indépendante et antifasciste.
Librairie Libertalia, 12 rue Marcelin-Berthelot, Montreuil (métro Croix-de-Chavaux).
Librairie Libertalia de la Maison des Métallos, Paris 11 (métro Couronnes).