Dystonia Medical Research Foundation @dystoniafoundation.bsky.social Dystonia is a neurological movement disorder that causes excessive, involuntary muscle contractions. The Dystonia Medical Research Foundation (DMRF) is a 501(c)3 non-profit organization dedicated to serving all people with dystonia and their families.
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
The Guardian @theguardian.com The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com
🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com
🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
Peer Community in Registered Reports @pci-regreports.bsky.social Taking Registered Reports to the next level. A free, supra-journal platform that reviews & recommends Registered Reports preprints across all fields
https://rr.peercommunityin.org/
Alan Rusbridger @arusbridger.bsky.social EX Editor, the Guardian/ prospect magazine. The New World. ARusbridger.com/ Speaking: karen@chartwellspeakers.com.
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
ICanCME Canadian Research Network @icancmeresearch.bsky.social Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Mind @mind.org.uk Fighting for mental health – for support, for respect, for you ✊
Chris Giles @chrisgiles.ft.com Economics Commentator, Financial Times; Honorary Professor of Practice, UCL Policy Lab
Sign up to my central banks newsletter here https://ep.ft.com/newsletters/subscribe?newsletterIds=6501cc9ec6e3c91c18b0b9e6
Wendy's Parkinson Journey @wendysparkinson.bsky.social Wendy: "International platform sharing Wendy’s Parkinson’s Journey — a story of strength, positivity, and personal experience."
Stephen Smith @gsds3.bsky.social
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
The Psychologist @psychmag.bsky.social The British Psychological Society's magazine, born in 1988, available in print for members, online and app.
http://www.bps.org.uk/psychologist
Posts/views: Editor Dr @jonsutton.bsky.social and Deputy Editor @jennifergledhill.bsky.social.
Adam Sharp @adamcsharp.bsky.social 1. Writer (https://www.adamsharp.me/)
2. Obsessed with lists
3. COMMON PEOPLE
4. THE CORRECT ORDER OF BISCUITS
5. THE WHEEL IS SPINNING BUT THE HAMSTER IS DEAD (http://geni.us/yDxa)
International Parkinson and Movement Disorder Society® @movedisorder.bsky.social
Mena Farag @drmfarag.bsky.social ٣٤ ⋅ Doctor ⋅ MBBS, MRCP, PhD ⋅ Neurology SpR (ST7) https://orcid.org/0000-0002-0679-0117
University and College Union (UCU) @ucu.org.uk UK trade union for academics, lecturers, trainers, researchers and professional services staff in further education, higher education, prison education, and adult and community education.
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Prof Ed Wild @profwild.bsky.social Queen Square Neurologist, Huntington’s disease researcher, Associate Director UCL HD Centre, co-founder HDBuzz
Lancaster University Business and Innovation @lancsunibusiness.bsky.social
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Pelo Blanco Photo @peloblancophoto.bsky.social Lover of art. Photographer living in the PNW. No DMs.
https://peloblanco-photo.pixels.com/
Scientific Today @scitoday.bsky.social Scientific content aggregator with custom content feeds. Science news, jobs, events and more. Sign up at https://www.scientific.today.
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
MS Sucks 🎗 @handle.invalid Web Developer #Joomla | Beekeeper | Widow
Disabled USMC Vet | Living with #DDD & #MS
📓 MS Sucks: a snarky journal for tracking your MS bullshit → mssucks.co/links
☕️ Buy me a coffee ➜ https://buymeacoffee.com/mssucks
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
The Massachusetts ME/CFS and FM Association @massmecfs.bsky.social To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic
Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research.
https://www.massmecfs.org
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
Lizzie Furr @nonhdparentstudy.bsky.social Trainee Clinical Psychologist at Lancaster University
Looking for participants for my doctoral thesis on “The Journeys of Non-Affected Parents within Families with Huntington’s disease”
Contact me for more info: l.furr@lancaster.ac.uk
Amanda Ross @amandaross21bs.bsky.social Lancaster University Science and Technology Marketing Manager, Coach, Musician and Wellbeing Leader.
Shashika Bandara @shashikalb.bsky.social Fish curry enthusiast. Global Health Policy and Human Rights. Ph.D. @McGillU. Formerly @DukeU.
Laura Kornas @laurakornas.bsky.social Head of Partnerships and Engagement for Health & Social Care
Acting Associate Dean for Engagement, Faculty of Health and Medicine
Cara Humanitarian Sanctuary Fellowship Co-Lead
Mum of 3, wife of 1, plate spinner extraordinaire
Jemma Kerns @drjemmakerns.bsky.social Scientist, spectroscopist, passionate about research culture and improving women's health.
Cumbria Wildlife Trust @cumbriawildlife.bsky.social We're a conservation charity dedicated to protecting nature in Cumbria. Become a member today to support wildlife and wild places! 🐿️🌱👇
https://www.cumbriawildlifetrust.org.uk/join
Emma Mitchell @silverpebble2.bsky.social Sunday Times bestselling author: how nature & craft improve #mentalhealth |
BBC Springwatch | Etsy (silverpebble)| Creative & mental health workshops #AuDHD 🏳️🌈| Agent: Juliet Pickering
Lancaster University media relations team @lancasteruninews.bsky.social Research, media coverage and news from Lancaster University. Looking for an expert? https://lancaster.ac.uk/news/experts/
Lancaster University @lancasteruni.bsky.social Lancaster University’s official account. We’re a highly ranked collegiate university with a global reputation for teaching and research
https://www.lancaster.ac.uk/
Dr Lucy Foulkes @lucyfoulkes.bsky.social Psychologist at University of Oxford | Adolescence + mental health
Linktr.ee/lucyfoulkes
TogetherForSharon® @togetherforsharon.bsky.social TogetherForSharon® In memory of my Mother, Sharon to voice awareness & hope for a PD cure. http://www.togetherforsharon.com
Ola Demkowicz @olademk.bsky.social Researching adolescent mental health mechanisms & inequality | Mixed methods | Senior Lecturer, Psychology of Education | University of Manchester | She/her | 🐝🌱📚🏳️🌈🐈
Dr Victoria Tew @vjtew.bsky.social I’m Toria, hi! DClinPsy University Teacher; Clinical Psychologist; gay woman; mum. Sheffield, UK. 🏳️🌈 she/her
Paul Ridley @paulridley5.bsky.social Minnesota Vikings NFL is my passion, happily married & proud father of of my grown up children with Autism & Aspergers. Parent & Carer & campaigner @PaulRidley5on x/twitter
Foulshaw Ospreys @foulshaw2.bsky.social Volunteer at Cumbria Wildlife Trust's Foulshaw Moss reserve, Cumbria UK. Reporting on our Ospreys and other wonderful wildlife. Posts are my own, not official CWT.
Check out our live Osprey webcam.
https://www.cumbriawildlifetrust.org.uk/osprey-webcam
Diane Coyle @dianecoyle1859.bsky.social Bennett Professor of Public Policy, University of Cambridge; economist
Prof Deborah Lupton, MPH PhD @dalupton.bsky.social Prof, Arts, Design & Architecture, UNSW Sydney, Australia. Sociology of health and digital media research too. Personal blog: https://simplysociology.wordpress.com/
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Rob Thomas @robthomasbirds.bsky.social Bird-watcher & conservationist in and from Wales. Roles include Associate Researcher at Cardiff Uni, co-Director of Eco-explore CIC, Trustee of Wild Cymru / Cymru Wyllt, & Craig y Rhondda. Views are my own, but you are welcome to share them!
The Point of Care Foundation @pointofcarefdn.bsky.social Former independent charity with a mission to humanise health and care.
This account is no longer being monitored. Visit theschwartzcenter.org for information on Schwartz Rounds, or picker.org for our Experiences of Care programme.
Paula Fitzsimon @paulafitzsimon.bsky.social CBT Therapist and Senior Lecturer at the University of Chester.
Will Curvis @willcurvis.bsky.social Guitar toting clinical neuropsychologist
Centre for Mental Health @centreformh.bsky.social Speaking up for social justice in mental health. Find out more https://www.centreformentalhealth.org.uk/
Jennifer Nadel @jennifernadel.bsky.social Co-Founder Compassion in Politics; Director Compassionate Politics CCARE Stanford University; Journalist, Author, Speaker
Mick Cooper @mickcooper77.bsky.social Dad of four; Professor of Counselling Psychology; psychotherapist; author on pluralistic, existential, and relational therapies; comments my own
United We Dream @unitedwedream.org 🧡 Led by immigrant youth. Powered by community.
📲 Text HERE TO STAY to 787-57 to join our network
Learn more ⬇️
https://linktr.ee/unitedwedream
Michael West @westm61.bsky.social Supporting the development of compassionate care cultures in healthcare and promoting understanding of human flourishing
Www.lums.lancs.ac.uk/profiles/michael-west
Citizens UK @citizensuk.org We are the UK's biggest, most diverse, and most effective people-powered alliance. Bringing everyday people together to win change since 1989.
LSCftCulture @lscftculture.bsky.social WeDoMore creating inclusive, kind & safe cultures for work & care
Chief People Officer FCIPD at LSCft shares trust practice #NHS 💙
Susie Dent @susiedentwords.bsky.social Always in the Corner
Resolution Foundation @resolutionfoundation.org The Resolution Foundation is an independent think-tank dedicated to lifting living standards in the UK.
EveryDoctor @everydoctor.org.uk EveryDoctor is a not-for-profit campaigning organisation advocating for the safety and well-being of NHS patients and staff members and fighting for the future of the NHS.
Email: campaigns@everydoctor.org.uk
https://linktr.ee/EveryDoctor
Dr Rachel Clarke @drrachelclarke.com Palliative care doctor 👩🏻⚕ Author 📚 Winner: 2025 Women's Prize for Non-Fiction 🫀 Founder: Hospice Ukraine 🇺🇦 Rep: Clare Alexander at Aitken Alexander 📝
www.drrachelclarke.com
ProfBrianCox @profbriancox.bsky.social Professor of Particle Physics at The University of Manchester and Royal Society Professor for Public Engagement in Science
Alice Roberts @profaliceroberts.bsky.social Prof of Public Engagement in Science, Uni of Birmingham; anatomist, author, broadcaster; vice President of Humanists UK. All views my own.
Frances Ryan @francesryan.bsky.social Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? (paperback out now) and Crippled.
E: frances.ryan.freelance@guardian.co.uk
Sarah K @dr-know.bsky.social Researcher in digital, recovering academic. Data feminist.
On about games, books, cats, telly.
Always #LWithTheT
She/her
James Kirby @jameskirby.bsky.social Clinical Psychologist | PhD | Assoc. Prof. & Co-Director of Compassionate Mind Research Group at The University of Queensland
Stan Steindl @drstansteindl.bsky.social Helping people cultivate compassion and self-compassion in their daily lives with clarity and practical tips.
Dr Rebecca Poz @rebeccapoz.bsky.social
Equal Care Co-op @equalcare.coop We are an (emerging) social care platform co-op, putting power back in the hands of the givers and receivers of care and support.
KathersP @kathersp.bsky.social Clinical psychologist, cognitive analytic practitioner, keeper of chickens and likes growing veg.
Catalyse @catcatalyse.bsky.social Promoting Cognitive Analytic Therapy via training & CPD, service development, supervision, research & other projects in health, community & workplace settings www.catalyse.uk.com
ACP-UK @acp-uk.bsky.social The Association of Clinical Psychologists UK is the representative professional body for clinical psychologists. Find out more here http://acpuk.org.uk
Mad in America @mad-in-america.bsky.social Rethinking Psychiatry Advocacy, Blogs, News, Podcasts and Resources. https://www.madinamerica.com
Claire Martin @doccmartin.bsky.social NHS psychologist with older people. @Assoc_CAT therapist. @OpenJusticeCoP core member. Knits. Views can never truly be your ‘own’, can they? Rtw =\= endorsement
Cathy Amor @catamor.bsky.social Clinical and Occupational Psychologist. Cognitive analytic therapy practitioner and supervisor. Interested in psychology (natch), world affairs, nutrition and ice dancing.
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Stephanie Anne Shelton @sashelton.bsky.social 🏳️🌈🐕🩵🎮 📖 My opinions | #AssociateProfessor of #QualitativeResearch at UNC-Chapel Hill | Editor: #JQTSIE | #researcher | #queer | #firstgen | #dogmom | #gamer | #booknerd | #ruralqueer | #GoTarheels
Dr. Or M. Bialik |📚|🔬|🌊|⚒️ @obialik.bsky.social Sediment, climate change, and impostor syndrome | Science and SFF for the win | Writing for a living and fun | Opinions are my own (or the characters' in my head).
Academic stuff: https://obialik.weebly.com
Non-academic writing: https://ombialik.weebly.com
Department of Physics at the University of Oxford @oxfordphysics.bsky.social We work to develop, nurture and promote a physics community. Visit https://linktr.ee/PhysicsOxford for events, news and to learn more about the research taking place in our Department.
Dorothy Bishop @deevybee.bsky.social Retired professor of psychology at University of Oxford. Interests in developmental neuropsychology and improving science. Blogs at deevybee.blogspot.com
Francesca H. Dakin @francescadakin.bsky.social Senior Digital Health Researcher at Oxford University
DPhil from @OxPrimaryCare @NIHRSPCR
https://www.phc.ox.ac.uk/team/francesca-dakin
Dr Anna C Sicilia @clinpsysussex.bsky.social Chartered Clinical Psychologist
Media Consultant
Mental Health Trainer
(she/her)
Director @psychologybrighton.bsky.social
🏳️🌈 LGBT+ affirmative services
Private practice www.psychologybrighton.com
Huntington's Disease Association of Ireland @hdai-ie.bsky.social HDAI RCN 20025656. Sharing news on Huntingtons Disease /connecting to the international HD community. http://huntingtons.ie
British Psychological Society @bpsofficial.bsky.social For over 120 years we’ve championed our members & psychology as a discipline. For customer support contact: info@bps.org.uk. Shares & ❤ not (always) endorsements.
BPS Research Digest @researchdigest.bsky.social The latest psychological research, digested by the British Psychological Society. www.bps.org.uk/research-digest
Sign up for our free weekly newsletter: www.tinyurl.com/digestemail
British Library @britishlibrary.bsky.social We’re the national library of the UK.
Very British Problems @soverybritish.bsky.social New VBP quiz book bit.ly/3DkBcgi: VBP books, tops, cards, calendars & contact: bit.ly/3mWIF9S. Buy me a tea: ko-fi.com/robtemple
Clinical Psychology in Europe @clinpsycheurope.bsky.social Official Academic Journal of the European Association of Clinical Psychology and Psychological Treatment #EACLIPT
PsychOpen GOLD journal @zpid.bsky.social
Indexed in Web of Science, Scopus, DOAJ, Google Scholar
The Dementia League @dementialeague.bsky.social The Dementia League – Empowering you with science-backed ways to protect your brain! We summarize the latest peer-reviewed research on lowering dementia & Alzheimer’s risk + healthy brain habits. Stay informed, take action. Follow for weekly breakthroughs!
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
David Blanchflower BSc @davidbflower.bsky.social Astronomer and Astrophotographer. Pictures of space appearing in posts, magazines and on the telly.
Multiple Sclerosis @multiplesclerosis.bsky.social A source of multiple sclerosis and related news, views and research
https://patienttalk.org/category/multiple-sclerosis-2/
Dementia Community @dementiacommunity.bsky.social Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk