Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Emma Gore-Lloyd @emmagl.bsky.social Co-founder #ThereForME | Calling for an NHS that's there for Long Covid & ME | https://www.thereforme.uk/
Linguist, DELTA-qualified English 2nd lang teacher | https://hiveofactivities.wordpress.com
Design | https://emmarubystudio.com/
She / her
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
K G Leslie @kglesliephysio.bsky.social Neurological physiotherapist. Co-founder Physios for ME. PhD student @ Liverpool university
Darren Brown OBE @darrenabrown.bsky.social Physiotherapist | OBE 2024 | Fellow of Chartered Society of Physiotherapy | Elisse Zack Award for Excellence in #HIV #Rehabilitation | World Physiotherapy International Practice Award | Long COVID Physio past Chair
https://linktr.ee/darrenabrown
Chris Ponting @cgatist.bsky.social Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions 💙
#MECFS #LongCovid #IACC #PAIS
📍 https://crunchme.org/
Karen Hargrave @karenlhargrave.bsky.social Co-founder #ThereForME | www.thereforme.uk
Independent researcher & policy analyst | Migration & displacement | Projects with @odi-global.bsky.social | www.linkedin.com/in/karen-hargrave
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Long Covid Support @longcovidsupport.bsky.social UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
#MEAction Scotland @meactionscotland.bsky.social 
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
UK Charity Invest in ME Research @investinmeresearch.bsky.social An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
NHS Charities Together @nhscharitiestogether.co.uk Uniting for better healthcare, for everyone. 💙
https://linktr.ee/nhscharitiestogether
NHS Million @nhsmillion.bsky.social Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.
Oxford University Hospitals @ouhospitals.bsky.social NHS Foundation Trust delivering care at the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Oxford, the Horton General Hospital in Banbury, and in the community.
#OneTeamOneOUH | www.ouh.nhs.uk
Sheffield Health Partnership University NHS Foundation Trust @shpu.bsky.social We provide mental health, learning disability and specialist services in Sheffield.
If you need help in a crisis visit http://sheffieldpartnership.nhs.uk/urgent-help
Sheffield Children's NHS Foundation Trust @sheffieldchildrens.bsky.social Dedicated children's hospital NHS Trust based in South Yorkshire providing specialist care locally, regionally, nationally and internationally.
Lewisham and Greenwich NHS Trust @lgtnhs.bsky.social 🏥 University Hospital Lewisham | 🏥 Queen Elizabeth Hospital, Woolwich | 🚑 Lewisham Community services.
www.lewishamandgreenwich.nhs.uk
University Hospitals Plymouth NHS Trust @uhpnhs.bsky.social Please be aware that this account is not currently monitored.
Please read our social media acceptable use guidance here: https://www.plymouthhospitals.nhs.uk/social-media-acceptable-use-guidance
Buckinghamshire Healthcare NHS Trust @buckshealthcare.bsky.social Providing quality healthcare services from two acute hospitals, five community hospitals and a number of community sites across the county.
Whittington Health NHS Trust @whithealth.bsky.social Helping local people live longer, healthier lives across Islington, Haringey, Camden, Barnet and beyond.
Maidstone and Tunbridge Wells NHS Trust @mtwnhs.bsky.social 👋 We are #TeamMTW
🏥 Maidstone, Tunbridge Wells and Fordcombe hospitals.
#ExceptionalPeopleOutstandingCare
www.mtw.nhs.uk
Carers UK @carers-uk.bsky.social Carers UK is the leading national charity for unpaid carers. We support, advocate for, champion and connect carers across the UK, so that no one has to care alone.
Carers Scotland @carersscotland.bsky.social Carers Scotland work with and on behalf of unpaid carers who provide support to family and friends who have disabilities, long term conditions or frailty associated with older age to enable them to live independently in their own homes and communities.
@samaritans.bsky.social @samaritans.bsky.social 
Citizens Advice @citizensadvice.bsky.social We are Citizens Advice - the people's champion.
If you need advice, visit our website: citizensadvice.org.uk
Disability Rights UK @disrightsuk.bsky.social We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all.
https://linktr.ee/disabilityrightsuk
Campaign for Disability Justice @campaignfdj.bsky.social A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social
Join a growing movement calling for a decent life for Disabled people: https://buff.ly/IZDn3T5
BuDS Disability Service @buds-disability.bsky.social BuDS Disability Service is a user-led, pan-disability grassroots charity working across England. Formerly Buckinghamshire Disability Service. Registered Charity 1102511 #Fair4All #Reach4Work
Walk for ME @walk4me.bsky.social We are an awareness and fundraising event for biomedical research into ME/CFS.
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
I write about invisible illness. @elephantstalk.bsky.social Harvard trained narrative storyteller. Formerly @Forbes. Author, The Elephant in the Playroom. Every patient has a story a doctor never hears. Tell yours at spikethegame.net #peersupport
WE&ME Foundation @weandme.bsky.social United in hope, we fund and support groundbreaking research to uncover answers and bring relief to those battling #MECFS and related illnesses. Together, we can change lives. 💙
Long COVID Rise Up @longcovidriseup.bsky.social International Federation advocating for #LongCOVID research and prevention | Together, we rise! 💪😷
#StopTheDiseaseProcess #BlockTheSpread
www.longcovidriseup.eu
UK Health Security Agency @ukhsa.bsky.social Official feed of the UK Health Security Agency (UKHSA) providing regular news updates on the work of the organisation.
Long COVID Canada - Collaborative @longcovidcan-co.bsky.social We provide support, resources & reliable science-based information to patients, parents or caregivers of those suffering from Long Covid in Canada in our FB support group. Engaging w our community& building collaborations. Because we are STRONGER TOGETHER.
Long Covid The Answers @longcovidanswers.bsky.social The CREDIBLE destination for Long COVID | Dr. Funmi Okunola MD At: longcovidtheanswers.com
#longcovid Symptom Info & Evidence-Based Relief
Ask Our Experts – FREE Access to Top Global LC Experts
Accredited Educational Podcasts & CPD/CME Credits
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Association Action Covid Long @actioncovidlong.bsky.social 
WHO @who.int The World Health Organization (WHO) is the United Nations’ health agency, championing Health For All.
Always check the latest posts for updated advice/information.
We reserve the right to remove misinformation, spam, and hate speech under our posts.
Helen The OT @helentheot.bsky.social Independent OT in private practice, coming soon | Supporting Long Covid, ME/CFS, POTS, neuro & cognitive challenges | Lived + clinical insight 💚
National Voices @nationalvoices.bsky.social A coalition of over 200 charities making what matters to people matter in health and care.
Account monitored Mon-Fri, 9am-5pm.
Georg Schomerus @geschom.bsky.social Psychiatrist, stigma researcher, w/ special interest in time trends, SUD Stigma, and Long COVID/ ME/CFS stigma. Chair of Psychiatry at Leipzig University. Opinions are my own @MHandsociety.bsky.social
Smile For ME @smileformeuk.bsky.social We are a UK charity that sends Smiles to ME sufferers and their carers to brighten their day and make them smile 😊 Registered Charity Number 1185760 🩵 www.smileforme.org.uk
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
NIHR @nihr.bsky.social National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth.
Impact, Innovation, Investment, Inclusion
Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Bluesky @bsky.app official Bluesky account (check username👆)
Bugs, feature requests, feedback: support@bsky.app