Nivedita Sarveswaran @neuroniv.bsky.social Postdoc in pain genetics & nociceptor biology @TheCIMR | via @biokent @UCLQSIoN @YaleMed | 🇦🇺🇬🇧🇱🇰
PANS+ Scotland @pansplusscot.bsky.social Not for profit organisation working to raise awareness and seek support for those impacted by PANS and other immune mediated neuropsychiatric conditions in Scotland
@bobby-jrg.bsky.social @bobby-jrg.bsky.social
Junior Einsteins Science Club® @junioreinsteins.bsky.social Award-winning Science events for kids. Founded Ireland☘️ Scientist, Mum, speaker United Nations 🇺🇳 Fun, messy, screen-free hands-on, STEM fun Ireland 🇮🇪 UK 🇬🇧 Canada 🇨🇦 Saudi Arabia 🇸🇦 Luxembourg 🇱🇺 Ukraine 🇺🇦 International Schools partnerships. Franchise.
Hepworth Lab @hepworth-lab.bsky.social Mucosal Immunology Lab at the University of Manchester
Sharon Hodgson MP @sharonhodgsonmp.bsky.social Labour MP for Washington and Gateshead South🌹
If you would like to contact me, please email sharon.hodgson.mp@parliament.uk
Immunoglobulin National Society @ignsorg.bsky.social Dedicated to advancing #immunoglobulin therapy practice for clinicians through education, standards, and certification. Home of #Patient360: empowering patients and families with tools and support to navigate their care with confidence.
➡️ www.ig-ns.org
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Otto Balsiger @obalsiger.bsky.social Director of Finance, Membership and Publishing at the British Society for Immunology (BSI), also Treasurer/Trustee of Applied Microbiology International (AMI). Dad who loves science and sports (especially #immunology and #taekwondo) All views are my own.
Rare Disease Advisor @rarediseaseadvisor.bsky.social Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
https://www.rarediseaseadvisor.com/
EHDN News @ehdn-news.bsky.social European Huntington's Disease Network newsletter. Editor: Catherine Deeprose. Views are my own and RTs are not endorsements. Email: newsletter@ehdn.org
Neuropatias Autoinmunes- GBS|CIDP España @neuropatias.bsky.social La asociacion de pacientes con neuropatias autoinmunes , familiares y amigos.
Síndrome de Guillain-Barré, CIDP (polineuropatia desmielinizante inflamatoria cronica) , NMM (neuropatia multifocal motora), etc. : somos tu casa.
Heather Paterson @heatherpaterson.co.uk Head of Partnerships and Development @consortium.lgbt | Chair @proudchangemakers.bsky.social | LGBTQ+ Columnist Exposed Magazine
Proud queer 🏳️🌈 Trans ally 🏳️⚧️ Intersectional feminist ✊ Anti-fascist #LGBWithTheT
www.heatherpaterson.co.uk
Ashley Dalton MP @ashleydaltonmp.bsky.social Labour MP for West Lancashire, email casework to ashley.dalton.mp@parliament.uk | Living with metastatic breast cancer
🔗www.ashleydalton.uk
Instagram: @ashleydalton_mp
Facebook: @AshleyDaltonLabour
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
Child Brain Injury Trust UK @cbituk.bsky.social Empowering young lives, elevating families, and enriching futures after acquired brain injury 💜💙 Support. Strength. Hope. #BrighterFutures
-> https://linktr.ee/cbituk
Epilepsy Connections @epilepsyconnect.bsky.social We are a Glasgow-based charity, supporting people with epilepsy to live well and have their voices heard.
Follow us to learn more about our work, explore educational content, and stay updated with the latest news in the epilepsy community!
Epilepsy Scotland @epilepsyscotland.bsky.social Providing information, support, and services to people living with epilepsy and their families in Scotland. Freephone helpline 0808 800 2200. Find out more at www.epilepsyscotland.org.uk
MND Scotland @mndscotland.bsky.social Making time count for people living with motor neuron disease.
https://linktr.ee/MNDScotland
The Brain Tumour Charity @braintumourcharity.bsky.social The world's leading brain tumour charity & the largest dedicated funder of research into brain tumours globally.
Brain Tumour Research @braintumourrsch.bsky.social 💛 Our Vision - To find a cure for all types of brain tumours
💛 Our Mission - To increase the UK investment in research into brain tumours
http://www.braintumourresearch.org
The Migraine Trust @themigrainetrust.bsky.social The Migraine Trust is the national charity for migraine in the United Kingdom.
House of Commons @houseofcommons.parliament.uk Where elected MPs represent the public, legislate, and scrutinise the Government. Find out more about their work and how Parliament happens.
UK Parliament @ukparliament.parliament.uk Where the House of Commons and the House of Lords scrutinise the work of the Government. Learn more about Parliament, its people and our unique heritage.
linktr.ee/ukparliament
Association of British Neurologists @abn-info.bsky.social The ABN brings together neurologists from across the UK
Scottish Recovery Network @scotrecoverynet.bsky.social We bring people, services & organisations across sectors together to create a mental health system that is powered by lived experience. www.scottishrecovery.net
Get help now: https://scottishrecovery.net/contact/get-help-now/
Public Health Scotland @publichealthscot.bsky.social Public Health Scotland is the national agency for improving and protecting the health and wellbeing of the people of Scotland.
Find out more at publichealthscotland.scot
Neurology Academy @neurologyacademy.bsky.social Uniquely practical education, producing specialist clinical leaders, transforming local healthcare.
https://neurologyacademy.org/
ME Association @meassociation.org.uk A UK registered charity for people with #MECFS and Long Covid (and Post Covid ME/CFS). We inform, educate, raise awareness, fund medical research and campaign for positive change.
RPs do not necessarily mean endorsement.
https://linktr.ee/meassociation
The European Federation of Neurological Associations (EFNA) @efna.net The European Federation of Neurological Associations [EFNA] is a non-governmental organisation (NGO) that brings together 21 pan-European neurology patient groups.
Our slogan ‘Empowering Patient Neurology Groups’ encapsulates our goals as an association.
OneNeurology @oneneurology.net Under the OneNeurology Partnership, international neurological organisations and regional umbrellas are uniting to make neurology a global public health priority. Visit oneneurology.net
Neurological Alliance of Scotland @neuroalscotland.bsky.social The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
UKABIF @ukabif.bsky.social UKABIF provides information, education and networking opportunities. We also facilitate regional groups and campaign on brain injury issues.
Stroke Association @thestrokeassoc.bsky.social We're here to help survivors and their loved ones facing the catastrophic impact of stroke find strength through support. Monitored 8am-4pm.
Patient Information Forum @pifonline.bsky.social PIF is the independent voice of health information. We promote access to trusted, evidence-based health information for all. We run the PIF TICK – the independent credibility mark for health information.
www.pifonline.org.uk www.piftick.org.uk
Patient Safety Learning @patientsafetylearning.org Patient Safety Learning is a charity and independent voice for improving patient safety.
🔗Our website: https://www.patientsafetylearning.org/
🔗the hub, our platform to share learning for patient safety: https://www.pslhub.org/
Parkinson's UK @parkinsons.org.uk We’re Parkinson’s UK, the charity that’s here to support every Parkinson’s journey. Every step of the way.
https://prksn.uk/4g94RcM
MND Association @mndassoc.bsky.social Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Long Covid SOS @longcovidsos.bsky.social UK based charity advocating for those impacted by #LongCovid
Recognition - Research - Rights
www.longcovidsos.org
info@longcovidsos.org
Charity reg no 1199120
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Friends, Families and Travellers @fft.bsky.social A leading national charity working to get a fair deal for Gypsies, Roma and Travellers.
Esme's Umbrella @charlesbonnetsyndrome.uk A charity dedicated to raising awareness of Charles Bonnet Syndrome (CBS), a condition that causes visual hallucinations following sight loss. Supporting individuals and their families while advocating for greater understanding and research. ☂️
Compassion in Dying @compassionindying.bsky.social We want people to be in control of their end-of-life decisions because there is no-one better to make them.
Carers UK @carers-uk.bsky.social Carers UK is the leading national charity for unpaid carers. We support, advocate for, champion and connect carers across the UK, so that no one has to care alone.
British Islamic Medical Association @britishima.bsky.social Join our growing community of almost 10,000 Muslim healthcare professionals in the UK. Unite. Inspire. Serve. http://britishima.org/join
British Dupuytren's Society @british-dupuytrens.bsky.social Raising awaresness of Dupuytren's, Ledderhose and Peyronie's. Supporting patients and research.
Blood Cancer UK @bloodcanceruk.bsky.social Dedicated to beating blood cancer through research, and supporting those affected by leukaemia, lymphoma, myeloma, MDS & MPNs.
Association of Medical Research Charities @amrc-uk.bsky.social The membership organisation of leading medical and health research charities in the UK.
www.amrc.org.uk
Addison's Disease Self Help Group (ADSHG) @addisonsdisease.bsky.social The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA
Arthritis Action @arthritisaction.org.uk We're the UK charity helping people with arthritis to live fuller lives with less pain.
www.arthritisaction.org.uk
Action for Pulmonary Fibrosis @actionpfcharity.bsky.social 💜UK charity supporting people affected by pulmonary fibrosis
🧬funding research towards a better future for people living with PF
The Dementia League @dementialeague.bsky.social The Dementia League – Empowering you with science-backed ways to protect your brain! We summarize the latest peer-reviewed research on lowering dementia & Alzheimer’s risk + healthy brain habits. Stay informed, take action. Follow for weekly breakthroughs!
Activity Uplift @activityuplift.bsky.social Fun activities for Dementia & Alzheimer's Caregivers, Seniors, and Activity Professionals. https://activityuplift.com
The Battleground @battlegroundeu.bsky.social Narratives Matter in Critical Times
https://thebattleground.eu/ > thebattleground.substack.com
The Battleground is a non-profit media to counter false narratives and propaganda that are eroding trust in politics and the media.
PANS PANDAS UK @panspandasuk.bsky.social UK charity raising awareness and understanding of post-infectious neuropsychiatric disorders. We support families and campaign for better care.
Dementia Community @dementiacommunity.bsky.social Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk
Charity Today @charitytoday.co.uk The UK’s leading charity news platform sharing sector news, insight & inspiring stories. Got a story? support@charitytoday.co.uk
Visit 👉 app.charitytoday.co.uk & save to your home screen.
RebeccaPalmer @rebeccapalmer.ca Deep thinker. Futurist. Dinosaur enthusiast. Former obscure world record holder. Travel maximizer.
Helping others ask questions and identify solutions. Triigo.com
Lincolnshire Community Foundation @lcflincs.bsky.social We are dedicated to enriching lives and strengthening communities across Lincolnshire. We connect generous donors with local causes, addressing vital needs and creating lasting impact. Join us in building a brighter future for our County.
Proud Changemakers 🏳️🌈🏳️⚧️ @proudchangemakers.bsky.social We’re here to elevate, advocate and support LGBTQIA+ people, voices and stories from across civil society. 🏳️🌈 🏳️⚧️ #TransLivesMatter
CRN 1212877
https://www.proudchangemakers.org/
Amy Neumann @amyneumann.bsky.social Tech for Good, Keynote Speaker, Author, Trainer, Artist, Reiki Master. #AI Ethics #nonprofits #empoweryournonprofit #thriveinai #nptech #LGBTQIA+ Ally | Insatiably Curious About Human Behavior | empoweryournonprofit.org | ThriveInAI.ai | AmyNeumannArt.com
CAST - Centre for the Acceleration of Social Technology @techforgoodcast.bsky.social UK charity. Providing free courses, resources and networking opportunities to help charities and social impact organisations harness the full power of digital and AI. Also working with funders to create an environment of support. See www.wearecast.org.uk.
Jacob Lant @jacoblant.bsky.social Chief Exec at National Voices, England’s leading network of over 200 health and social care charities. Long time champion of involving people and communities in designing health and care services. Also loves DIY, libraries and Sheffield Wednesday.
Jane Ide @janeideceo.bsky.social Proud CEO of ACEVO, the membership body for civil society leaders in England & Wales. Chair of Reach Volunteering, trustee of Access Foundation for Social Investment. Here to talk civil society & related stuff. Also on Linked In. X does not mark the spot.
Voluntary Sector North West @vsnw.bsky.social Working for a well connected and influential voluntary, community, faith and social enterprise (VCFSE) sector in the North West
🌐 vsnw.org.uk
📧 info@vsnw.org.uk
The King's Fund @thekingsfund.bsky.social The King's Fund is an independent charity working to improve people's health. Our vision is a world where everyone can live a healthy life. https://www.kingsfund.org.uk/
Disability Rights UK @disrightsuk.bsky.social We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all.
https://linktr.ee/disabilityrightsuk
The Young Foundation @theyoungfdn.bsky.social The UK's home for community research and social innovation. Also powering the Institute for Community Studies.
www.youngfoundation.org
Also on X and Threads
The Idea Bureau @theideabureau.bsky.social Impactful and innovative digital solutions for organisations who care.
We help charities, non-profits and NGOs accelerate their impact, make a mark and achieve extraordinary things.
https://theideabureau.co/
Social Movement Technologies @socialmovetech.bsky.social Campaign support for people power movements and groups across the world. Follow to hear about free and paid training and coaching, reading groups for organizing wisdom, and great organizing. https://socialmovementtechnologies.org
JustGiving @justgiving.bsky.social The world’s leading platform for charity giving. We help *amazing* people like you raise more money for the causes you care about.
Crowdfunder @crowdfunder.bsky.social Online crowdfunding, fundraising and grant funding - Your home for everything you care about.
www.crowdfunder.co.uk
Enthuse @enthuse.com Donations, fundraising and event reg tech, all under your cause’s own brand. Official online fundraising partner for London Marathon Events and Great Run.
UK Charity News @uk-charity.bsky.social Follow for hourly news on UK Charities
CharitySoStraight @charitysostraight.bsky.social The home of #CharitySoStraight campaigning to make charity workplaces more LGBTQIA+ friendly + inclusive. By Queer people / for EVERYONE.
UK Community Foundations @ukcf.bsky.social UK Community Foundations (UKCF) brings together 47 accredited and independent community foundations across England, Northern Ireland, Scotland and Wales, connecting people who care with causes that matter. Visit our website to learn more.
Here for civil society leaders @acevo.bsky.social Together with our network, we inspire and support civil society leaders through connection, skills and influence. Our members lead civil society organisations of every shape and size across England and Wales: acevo.org.uk
Charity Times @charitytimes.bsky.social Charity Times is the leading charity leadership title for third sector professionals
Home of the #CharityTimesAwards
https://www.charitytimes.com
UK Fundraising @ukfundraising.bsky.social Fundraising news, community and inspiration for professional charity and nonprofit fundraisers. Since 1994. From @howardlake.bsky.social.
See also @fundraisingworld.bsky.social
Locality @locality.org.uk We support local community organisations to be strong and successful. #PowerOfCommunity
AKA @localitynews
locality.org.uk
NPC @thinknpc.bsky.social We are the think tank and consultancy for the impact sector. Sign up to our newsletter: https://www.thinknpc.org/newsletter-signup/
The London Community Foundation @london-cf.bsky.social We work with donors to support London's small, local charities and community groups. Helping you make a difference to London. Where it matters most. £140 million in grants distributed since 2010 to local, London, community organisations.
Farrah Nazir @farrah-nazir.bsky.social 📊 EDI Insights & Learning Lead at @wellcometrust.bsky.social
🔥 Cofounder New Fables Collective https://newfablescollective.com
✨ “What we cannot imagine cannot come into being” bell hooks
✍🏽 https://farrah-nazir.medium.com/
CASE @casecooperative.bsky.social Providing advice, support, training and mentoring to co-operative and social enterprise businesses in the East Midlands.
Note this account is not currently being regularly monitored.
Email us at enquiries@case.coop
www.case.coop
Public Law Project @publiclawproject.bsky.social Promoting access to justice, upholding the rule of law, ensuring fair systems
London Funders @londonfunders.bsky.social We bring funders together to build a better London by taking action on what matters to our city and our communities.
https://londonfunders.org.uk/
UCL Policy Lab @uclpolicylab.bsky.social Bringing extraordinary ideas and everyday experience together to tackle the challenges facing us all.
Lloyds Bank Foundation @lbfew.bsky.social We partner with small and local charities, people, and communities working towards a more just and compassionate society.
Rich Collins @richcollins.bsky.social CEO of Inflammatory Neuropathies UK. Loves a bit of data. Has a beard (he/him)
inflammatory @inflammatory.bsky.social Chronic inflammatory demyelinating polyradiculoneuropathy (CIDP) is a rare heterogeneous, but treatable autoimmune mediated peripheral neuropathy characterized by demyelination. #CIDP #immunosky #Neurology #NeuroSky #NeuroSkyence #ankylosingspondylitis #ms
Claire Sam @londonlorelei.bsky.social #CIDP
#ChronicInflammatoryDemyelinatingPolyneuropathy #AutoimmuneDisease
Medway Plus @medwayplus.org A charity based in the Medway Towns, UK.
Our objectives are:
To develop the capacity and skills of the socially and economically disadvantaged community of Medway & the promotion to the public of urban or rural regeneration in areas of deprivation
Matt Baillie Smith @mattbailliesmith.bsky.social Professor of Global Development & Dean of Research Culture, Northumbria University UK.
Research voluntary labour and: humanitarianism; global development; climate action; citizenship.
www.mattbailliesmith.com
https://uk.linkedin.com/in/matt-baillie-smith
Third Sector @thirdsector.co.uk The UK's leading title for the voluntary and not-for-profit sector. Home of the Third Sector Podcast: https://podfollow.com/thirdsector/view
TechSoup @techsoup.bsky.social We connect #nonprofit organizations to mission-critical tech resources, knowledge and community for change-makers.
Josh Wing @josh-wing.bsky.social Marketing and Events Coordinator at #NottsCounty Foundation ⚽ Formerly at BBC Sport, Match of the Day, Radio 5 Live Sport, BBC Radio Derby and Derby County FC 📻 🎤 Gooner that fought #GuillainBarreSyndrome