BinGanzBrav @binganzbrav.bsky.social Queerfeminismus - Antifaschismus - Antirassismus
Informationen über rechte Netzwerke - Evangelikale - christliche Fundis - Anarchismus - Abolitionismus - 🏳️🌈🏳️⚧️
Pronomen: she/her
Rosemariecrps_nevergiveup @rosemariecrps.bsky.social Urteile über mein Leben, wenn Du in meinen Schuhen gelaufen bist! Kindness changes everything
CRPS PainFighter, Autoimmun,Immunsupremiert,FckAFD/CdsU/Trump/Putin/Musk, CovidIsNotOver, 9x💉, DieMaskeBleibtAuf,TeamVorsicht, Kontrollgruppe User 880.437
Arcia_LoC @arcialoc.bsky.social Aushilfsbibliothekarin und Mädchen für Recherchen an einer Bildungseinrichtung für junge Erwachsene, jetzt mit einser Abitur. :)
Mama von K1 und K2 und Ehefrau vom besten Mann der Welt.
Katzen - Garten - Chaos ...
Lebt im schönsten Bezirk Berlins.
melinda_is_done 💦 @melindaiscomplex.bsky.social My body has given up but I haven't...
Bed-tethered disabled Advocate on hiatus (but RESISTing) due to severe ME & LC & comorbids. Co-founder #MEAction Maryland.
Orioles/Ravens/Caps fan. She/her
🩷💜💙
Tanya @chronicmyalgice.bsky.social Dutch | life derailed due to #IBD & #MECFS | sofa bound | wants to raise awareness about post infectious diseases | one of the #MillionsMissing
Wilma Ruhe @wilmaruhe.bsky.social Mutter in EMR mit Tochter ,
Dauercamperin, Hundebesitzerin,
Single geb.1968
freut sich über neue Kontakte
"Leben und Leben lassen"
#MECFS #Hashi #NNRI
#StandwithUkraine 💙💛
#SchleswigHolstein
#Kiel
#FCKNZS
#FCKPTN
#Wirsindmehr
#SeieinMensch
Hachi Lola @lolahachi.bsky.social Love reading about wildlife and science. Chronically ill and disabled
SevereME LongCovid ME/cfs 
ME Advocacy Project @meadvocacyproject.bsky.social The ME Advocacy Project is a grassroots initiative founded by individuals living with post-infectious illnesses Myalgic Encephalomyelitis and/or Long COVID.
Unceded Canada
ME/CFS sufferer @mecfs.bsky.social ME-CFS since Covid, Dog-Lover, Nature-Lover, used to be a trail-runner
DagmarBerlin🌺🌺 @dagmarberlin.bsky.social Mein Sohn hat seit 10 Jahren MECFS, POTS MCAD
Any @kusstiluft.bsky.social 🦠 Wuhan SARS-Cov-2
❤️🩹 #LongCovid —> #ME/CFS
💶 arm, aber Serotonin-Überschuß
🤷🏻 Ex-Editorin, Ex-Lehrkraft
😷 #TeamVorsicht
Tanja @joypops.bsky.social It is in the most surreal situations that a person feels the most present, the closest to reality. — Ling Ma
KCO))) @kcotto.bsky.social #MECFS,Post Covid,Pizza-Lover,Gitarre,Musik,Bücher,Kochen,Linksgrün,#TaxTheRich
Nick Else @nick2155.bsky.social ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid
Hoa @nocaffeineplz.bsky.social Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, a̶n̶d̶ l̶i̶k̶e̶l̶y̶ s̶o̶m̶e̶ r̶a̶m̶p̶a̶n̶t̶ u̶n̶d̶i̶a̶g̶n̶o̶s̶e̶d̶ A̶D̶H̶D̶ and ADHD
Je poste principalement en anglais !
@purpurblatt.bsky.social @purpurblatt.bsky.social mecfs and mold avoidance 
@tipsy71.bsky.social @tipsy71.bsky.social Mom of three (one MECFS, hEDS, POTS, SFN, CCI and ASS warrior 💙)
minoe @miinoe.bsky.social #behindert und gebe nicht auf für meine Rechte zu kämpfen!
🦓🦻👩🦽😎🤯😷
#EDS #POTS #MCAS #MECFS #SFN usw.
🐈⬛🐈⬛ Katzen sind die beste Medizin
#SocialJustice
#TransformativeJustice
🐘 @mi_noe@berlin.social
🐦 @tomaten_matsch
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
Dr. René Schwartz @rcschwartz.bsky.social Biologe, Bodenkundler, Elbekümmerer, Luftfahrtkritiker vs. Borreliose, Bartonellose, Babesiose, ME/CFS
Britta K. @fuermeinejungs.bsky.social drei von vier Familienmitgliedern an #ME/CFS erkrankt 
chaosimkittel.bsky.social @chaosimkittel.bsky.social Epidemiologie-Philosophin mit medizinischem Background. Kopf.Körper.Leben. #nichteingebildet
Leon @leonw.bsky.social Severe ME sufferer | let’s see what the blue sky has to offer 🔵
Bea Dekkers @beadekkers.bsky.social LongCovid, MEcvs, POTS en MCAS sinds oktober 2020.
Voorheen autisme specialist MSEN, persoonlijk begeleider VG zorg, nu WIA, IVA
Samen met @marcbalemans en labrador Fiep
Ino_ue InAktivistin in Ruhe 👟💙 @inogue.bsky.social Jeder Post ohne mindestens einem Rechtschreibfehler ist nicht von mir. Specialeffects oft fehlende Kommas oder wie der Ö. noch dazu sagt Beistriche
Karla Kueken @karlakueken.bsky.social ME/CFS, LongCovid, Feminismus und eine Prise Sarkasmus.
Karl @karlander.bsky.social 
Petra Ponsch @pponsch.bsky.social ME/CFS seit 2018
#MECFS #Lyme #Fibromyalgie #millionsmissing #MEawareness
J. Evelyn @evitorialpage.bsky.social I live in a house. #MECFS #CCI #hEDS former global health/comms/tech
Laura Miers @lauramiers.bsky.social Chronically ill, LongCovid since 2020. Public health advocate and lived experience expert. Ex-Texan. Medicine, languages, Sociology, & law. Global citizen & polyglot.
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
Erin C. Sanders, MSN, WHNP-BC @erinsandersnp.bsky.social Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Norma @looftsabine.bsky.social Interessierter Laie
Wissenschaft/Forschung - Covid, LongCovid, ME/CFS - Pandemie, Endemie -
pro Ukraine
"Outbreak" - "Wag the Dog" -
"World War Z" and now
"Wayward Pines"? Human?
Lou @apeskygirl.bsky.social Tree hugger with ME/CFS since 1992. #MEAction volunteer. Patient Advocate. OMF & Stanford Study Participant. ME/CFS • ND • POTS • EDS • One of the Millions Missing. Former Copywriter and Art Director. Now I watch squirrels and make things.
María Richardson @diatoma.bsky.social Ella/she/her. I write, I read, I draw plants. Chronically ill en la Ciudad de México. #ME #MECFS #POTS #LongCovid
Sabrina Poirier @sabrinapoirier.bsky.social #CommunityEngagement Expert. Life sidelined by #MECFS #MCAS #POTS #Fibro #Gastroparesis +
#MECFS & #LongCovid #ResearchPartner & #Advocate • Chair of #MedicalEducation Group • #PwME #Disability
(Unceded) #Canada
https://linktr.ee/sabrinapoiriercanada
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷
Dialogues ME/CFS @dialoguesmecfs.bsky.social https://www.dialogues-mecfs.co.uk Website with videos created by Natalie Boulton & Josh Biggs with a Wellcome Public Engagement Fund Award. Professionals and patients explain key aspects of #ME/CFS and a longer film explores the wider context and history. 
RonjaR @ronjar.bsky.social #MECFS since 2004
Alexis M. 🎃 @turnoftheshrew.bsky.social begrudgingly online for chronic illness research & disability justice community. living meaningfully & unapologetically as a hermit against my will.
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Millions Missing France @millionsmissingfr.bsky.social Asso de patient·e·s. Pour la prise en charge de l'encéphalomyélite myalgique #EM en France et le développement de la recherche.
Entraide & soutien 🤝 www.millionsmissing.fr
🔴 Membre de World ME Alliance.
Long Covid Kids @longcovidkids.bsky.social The charity supporting & advocating for children & young people with Long Covid & overlapping illness.
#LongCovidKids #LongCovid #PaediatricLongCovid
#LongCovidAwareness #MECFS
Jacqz-MEwarrior_au @mewarriorau.bsky.social ME advocate longing for a cure, or some form of treatment. Mum of 3, grandmum of 3. Lived with the horrendous & disabling disease #ME (not CFS) for 28 years.
#MyalgicEncephalomyelitis #pwME #MyalgicE (#MECFS #CFS) #LongCovid #ChronicIllness
Beth #MillionsMissing @bethmazur.bsky.social #pwME and science/data nerd. co-founder #MEAction. Mostly post about #millionsmissing, #MEcfs, #LongCovid, #microbiome, #MCAS, #POTS, #citizenscience, and #healthequality. CS @MIT
Dr. Klaus Hochleitner @kla138.bsky.social Biologist (cell and molecular biology, immunology), volunteer fire fighter, scuba diver, book lover. 
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | 🇨🇦 #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Cort Johnson @cortjohnson.bsky.social Long (long) time person with ME/CFS/FM, Translator ME/CFS/ fibromyalgia/long COVID/POTS, etc. research and advocate. Creator of Health Rising and Phoenix Rising. Roaming the western US since 2012
ez @elinz.bsky.social ME/CFS, science, history of ideas, disability, photography, film, board games, curiousity, history of medicine. Location: Sweden
#pwME #MECFS #NEISvoid #ChronicIllness
Came here from: https://twitter.com/ezchili
MoleyME Caroline @moleyme.bsky.social Lancashire Lass with #MECFS likes flowers 🌸trees 🌳nature 🌱climate ⛈️ justice for all 👩🦽 interested in #longcovid prefer to interact a with community of kind humans ! . North West England . Feel like a Mole in an #MECFS hole trying to dig my way out!♿️
Millions Missing Podcast @millionsmissingpod.bsky.social Share your story / Amplifying the chronically ill / #MyalgicEncephalomyelitis #LongCovid et al / #MillionsMissing / Contact: millionsmissingpodcast@gmail.com / linktr.ee/millionsmissingpodcast
ThisisMEtweeting @thisismetweety.bsky.social Apparently I don’t like viruses. #MEcfs as a child; post viral syndrome as an adult; now #LongCovid; #fibro; #hypermobility;
#hEDS #pwME. Kiddo with #LC. #ND. #HealthPolicy research. (Yes I know it’s Skeeting & hashtags don’t work the same. Give me time.)
Chronic Illness Channel @chronicchannel.bsky.social Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality.
https://www.youtube.com/@ChronicIllnessChannel
Clean The Air http://bit.ly/CleanTheAirUK
Treaty of Westphalia @twestphalia.bsky.social Academic background: Comparative Literature (European 19th c)
Bluesky focus: LC/ME, Russian invasion into Ukraine, Arts/Culture
Chantal Britt @chantalbritt.bsky.social Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVax, AntiGlobuli
@ BFH, Long Covid Switzerland & Europe, Kids CH, SPO, Swiss PPIE
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC, ENOVAT, EUPATI
OneOther @one0ther.bsky.social 
paco1@bsky.social📯 @paco1.bsky.social
NoAFD
Grün zu 💯%
Habeck4Kanzler
NIE WIEDER CDU
Pro Maske
Pro Impfung
Stand with Ukraine
Stand with Georgia
Antifaschist
Höcke ist ein Nazi
AFDVerbotjetzt
Marcus CJ H. 📯 @marcuscjhartmann.de Lebe lang und in Frieden 🖖
#LongCovid 04.22 - 11.25 #Fahrradfahrer, #Healermain
zert. IT-Sec, gepr. Webentwickler
SharonR_MECFS 🇨🇦 @sharonrmecfs.bsky.social Nature Science politics. Elbows Up💪post my own 📸🍄🌱🐝🐸
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
John Clutter @theclutterer.bsky.social John Clutter from Twitter. Economist, Theologian. Introverted idealist. Trying out new things. ME/CFS and stuff. Skeet!
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
MillionsMissingFinland @missingfinland.bsky.social ME/CFS G93.3 hoito & diagnosointi:
2021 Duodecim
https://rb.gy/m9spr
2021 NICE
https://rb.gy/h7eok
2021 Mayo Clinic Proceedings
https://rb.gy/fd54d
MillionsMissingNL @mmissingholland.bsky.social Actiegroep #MillionsMissing Holland wil betere zorg & sociale gelijkheid voor ME-patienten.
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Petra_MECFS @petramecfs.bsky.social Informatikerin aus Bayern
Jetzt #chronischkrank
#MECFS, #POTS, #MCAS,
#PostVac, #PostCovid, #LongCovid
Martina Greg ME @martiname.bsky.social #MECFS
Amy K @ack025.bsky.social Links+follows related to: Ehlers-Danlos + Lyme + MEcfs + Autoimmune (Myasthenia Gravis, Sjogren’s, Hashimoto’s) + POTS + Mast Cell + ApoE (4/4) + Bilateral Vestibulopathy + BPPV + SIBO + migraine + mito myopathy + Long COVID + LMCA & Celiac Artery Stenosis
Emmi Skyten @emmiskyten.bsky.social Sustainability science studies on hold because of POTS + Long covid / suspected ME. Previously interesting, now mostly into resting.
Here to connect with other sick people and for science stuff.
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
PurpleSpeedwell @purplespeedwell.bsky.social Mostly bedridden with #MyalgicEncephalomyelitis, a devastating illness with little funding and no treatment.
Toronto, Canada
Ally of #pwLC
#pwME #LongCovid #POTS #MCAS #MEcfs
Herbert Renz-Polster @renzpolster.bsky.social physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS
Nina Weber @ninaweber.bsky.social Medizin-Redakteurin beim SPIEGEL, Biochemikerin, Buchautorin.
https://www.spiegel.de/impressum/autor-de0618d4-0001-0003-0000-000000015007
Dr. Robert @drrobertmd.bsky.social Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.
Philkjp @philkjp.bsky.social Kinder- und Jugendlichenpsychotherapeut
RPG-Fan, Oldtimer, Holzbau und Hühner
I.T. @vogelfrei.bsky.social autoimmune SFN, Long Covid, chronic migraines, POTS, antibiotic toxicity, chronically reactivated EBV
Moi m'EM @nofutureforme.bsky.social #EM encéphalomyélite myalgique (c'est pas une maladie rare mais elle n'est pas enseignée en France) #MECFS #pwME #POTS
LymeDisease.org @lymenews.bsky.social The #LymeDisease community's leading source for news, insight and advocacy. Publisher of The Lyme Times, creator of MyLymeData. A 501(c)(3) organization. Tick-Borne Diseases, Infection Associated Chronic Conditions #IACC, #OneHealth
Katrin LangensiepenMEP/GreensEFA @klangensiepenmep.bsky.social Mitglied d. Europäischen Parlament | MEP | Greens/EFA Stellv. Vorsitzende d. Sozialausschuss (EMPL) Mitglied im Gleichstellungs+Binnenausschuss (FEMM+ IMCO) ♿️(she/her)
https://www.katrin-langensiepen.eu
Lose Internetbekanntschaft. @xartangelx.bsky.social Mutter einer Tochter. Filmfan. Schlafen als Hobby. Antifaschistin aus Überzeugung. ME/CFS.
Ju 📎 @jolu.bsky.social sie/she
Menschenrechte sind nicht verhandelbar
Feed "TerminDemoGegenRechts" ⬇️ #TDGR
#TeamVorsicht #CovidIsNotOver
#MaskUp 😷 #LongCovid
#KeinerBleibtAllein
#TaxTheRich
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Perfect time pic @perfectpic.bsky.social Perfectly Timed Photos That Will Blow Your Mind . No content own dm for credit/removal 
University of Basel @unibas.ch The official Bluesky account of the oldest university in Switzerland.
Xara @ebvmecfs.bsky.social Seit 2019 mecfs und andere Erkrankungen meistens im Bett, liebe Fotografie, wandern, radeln alles genommen von mecfs. Mecfs ist eine neuroimmunologische Multisystem Erkrankung 
Dt. Ges. für ME/CFS @dgmecfs.bsky.social ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
pudding girl @estrogenpudding.bsky.social living with me/cfs | covid conscious
hobby film photographer
eepy estrogen enjoyer
Initiative LiegendDemo @liegenddemo.bsky.social Wir, die Initiative #LiegendDemo, demonstrieren für Menschen mit #MECFS; egal, wodurch die Erkrankung ausgelöst wurde. Für #aufklärung #versorgung #forschung
Linkliste:
https://Lnk.bio/liegenddemo
Rusty Cage @rustycage.bsky.social I'm gonna break my rusty cage and run...
ME/CFS since "just the flu" in 2018. 
Xondaria @lutanda.bsky.social Ich war einmal Bäuerin #Klimagerechtigkeit #Ernährungssouveränität #GutesLebenfürAlle
#DemarcaçãoJá
Jetzt habe ich #severeME und kämpfe für #PwME
#MECFS - chronisch müde sind nur die Angehörigen
ME Neddie @menana.bsky.social Another MECFS-Warrior. Mother of 3, located in the social sector, now retired due to my state.
Against all odds I keep my head up.
For more recognition, research and care.
PEM is non-negotiable!