@dawncollett.bsky.social @dawncollett.bsky.social 
@lifeatthewindow.bsky.social @lifeatthewindow.bsky.social Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits donβt work. Also posting on endometriosis and a little on mental illness too π΄σ §σ ’σ ³σ £σ ΄σ Ώ
Lucinda Crimson @elsiemagenta.bsky.social Artist/teacher with me/cfs, adhd, cats and a vegan kitchen π·
Living on Whadjuk Noongar Boodja.
https://www.lucindacrimson.com
Anna Kerr @annajk.bsky.social ME patient, art appreciator, advocate, mother.
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Dr. Daniel Loy @drdanielloy.bsky.social Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Cyrus @cyruxime.bsky.social Energetically compromised (bedridden) by severe #MECFS. All systems operating at minimum capacity & overloaded. In a previous life: comp sci x math, powerlifting. #LongCovid ally.- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
The Skylark @theskylark.bsky.social Feed for Long Covid new arrivals on BlueSky. Reposts from trusted LC advocacy and supportive accounts who've migrated from other social media.
Will stop reposting November 2026.
ChristelAdina @christeladina.bsky.social Writer, dreamer, muse and mystery. Rock and Roll girl.
She/Her 55
[Banner ID: my own art piece. Turquoise background with overlapped lines, geometric shapes, & bit that looks like a bar graph, in bright blocked colors red, orange, blue, yellow, fuchsia/]
Rose πΉ @rose.bsky.team COO of Bluesky π¦ - hiring https://bsky.social/about/join!
Action for ME @actionforme.bsky.social Providing support & holistic healthcare services to people of all ages affected by #MECFS. Charity number: 1036419 / SC040452
CrunchME @crunchme.bsky.social CrunchME is a patient-led organisation, creating the evidence and insight base needed to crunch infection-associated chronic conditions (IACCs), including #MECFS and #LongCovid.
π https://crunchme.org/
Ror Preston @rorpreston.bsky.social Founder @ CrunchME | Creating the evidence & insight base to crunch infection-associated chronic conditions π
#MECFS #LongCovid #IACC #PAIS
π https://crunchme.org/
OhTWIST @ohtwist.bsky.social Oh That's Why I'm So Tired - Ehlers-Danlos syndromes blogger and medical educator, co-author EDS Toolkit for Doctors 2018, book on EDS and autism coming 2026 (tbd) (toes crossed)
https://ohtwist.com
Social Enterprise UK @socialenterpriseuk.bsky.social We are the UKβs strong voice for social enterprise, offering membership and network building for businesses with a social or environmental purpose.
@lisajstrategy.bsky.social @lisajstrategy.bsky.social 
Sarah @sarahisathome.bsky.social Giving this one a whirl...
(Banner art by Rythaze, avatar art by vintage unknown)
Riemerville @riemerville.bsky.social Salty | #LongCovid,#POTS & #ME | Books, Music, Food, Art #ATXRE | Excuse my typos
We are living in a choose-your-own dystopian novel
salty @saltysalt.bsky.social I π books, feminism, disability activism, anti-racism, science, cats, avoiding COVID infections, queer people, and my family 
Marie Follayttar @mariefollayttar.bsky.social
Sea Glass Collector -Advocate - Artist - Poet-Community Organizer - Political Strategist
Disabled Director of Mainers for Accountable Leadership(leave)
Rare Chronic Cancer survivor
Long Covid, Me/CFS
Autistic
Occupied wabanaki
Hannah Poon @hannahthemouse.bsky.social Neurodivergent writer, poet, artist, Crohnie, etc π¦ | she/her | host of the podcast Literary Lullabies | I wrote a book: https://www.amazon.ca/stores/Hannah-Poon/author/B09BP1ZRS7
jodiesattva @jodiesattva.com Irreverent cook, gamer, and dogmom
Low-Spoon Gourmet
youtube.com/@jodiesattva
reddit.com/r/jodiesattva
patreon.com/jodiesattva
βΏοΈ #mecfs π CYT π§ͺ EIT π #IDIC
Alt text β
οΈ
pfp: selfie
bg: OH THE HUE-MANATEE
gender: wanker (wa/wer)
Nicky McCurdy @nickmccurdy.com βΏοΈ π³οΈββ§οΈ she/her
PrincessFox πππππ³οΈββ§οΈπ¨π¦ @trainsgenderfoamer.bsky.social she/they/xe/pup/it disabled auDHDistic Genderfluid foamer, Muslim Convert Trainposter, Progressive Wonk
Radically Inclusive and Plural
Pragmatic Communist & Streetcar Enjoyer :3
π³οΈββ§οΈπ¨π¦π οΈπβπ»π΅πΈβͺοΈπ΄
19
PFP by SplashZone
Exhausted in QC π¨π¦ @ninjazz636.bsky.social #LongCovid first-waver. Cursed by the universe. Gardens. Cheese. Cats. Science. Climate. Pardon my French!
π« No DMs. #Democracy πΊπ¦ π¬π±
Heather D. βΏ @heather-d.bsky.social (she/her) Auntie. Disabled. USMC Veteran. Queer. Angry leftist. Grown.
#MarfanSyndrome #POTS #MECFS #ADHD #AuDHD #Autism
#FreePalestine
Rod Garrett @rodgarrett.bsky.social Former normal person until covid came along. Now I have long covid. Over 6 years now. I'm too healthy for help and not healthy enough to help myself. Life's a paradox. And finally, DJT is a child rapist, liar, asshole and dumbshit.
DisabledInSTEM @disabledinstem.bsky.social We are here to affirm that you DO belong in STEM! This is a safe space for people with disabilities in STEM to connect. Contact: disabledinstem@gmail.com
Elyse (she/hers) @elysew.bsky.social I ππ books and cats. Very shy so donβt feel bad if I donβt respond to DMs.
Iβm an academic librarian.
Battling fibromyalgia, ME/CFS, chronic migraines, anxiety, and treatment-resistant depression. I also have ADHD.
Massachusetts, USA.
Rebekah Driscoll @rebekahdriscoll.com New York-based composer, tree-hugger, language-learner, spoonie/disabled
she/her
https://rebekahdriscoll.com
https://twitter.com/RebekahDriscoll
Azra L Hawthorne @azra-l-hawthorne.itch.io Queer, Disabled, System, Freelance ttrpg writer, lover of science, wants the world to be a better place. White. 35
email: arblwrites@zohomail.com PFP by Crowesn Tiefling Piccrew
https://azra-l-hawthorne.carrd.co/
Rhaps π€πΈ @rhapsperhaps.bsky.social β¨ Disabled Queer Comfy-cozy Creator
π₯ House Potato and Bed Burrito
π€ Sleepy, Salty, Sensory-friendly Streams
βΏ AuDHD, hEDS, ME/CFS
π³οΈβππ³οΈββ§οΈ AroAce Agender
π
They/Them
π https://rhapsperhaps.carrd.co/
βοΈ rhapsperhaps@gmail.com
2D: RinKira
i & h: sugarysmall
Fae Teletarchae @creatrixarcanum.bsky.social Crowned with Oak and Serpents
Root Cutting by Ash, Blood, and Bone.
Actually Autistic (She/Them) Disabled. Future French citizen. I say a lot of naughty words. Fuck Ai #art #wod #vtm #occult
Kari Dru @karidru.bsky.social Blind painter, tea drinker, and weird hermit. They/He
https://ko-fi.com/karidru
October.Rosehip on discord
Pingu, The plague penguinπ§ π· @zanfr.bsky.social Patient Safety Advocate and Risk Prevention Strategist
I hack, engineer, take photos, and know a thing or two about science
UBI, safe/clean air (indoor too!), climate advocate.
Posts are generally under CC BY-NC-ND license
Coffee Makes Everything Better @aegg527.bsky.social BUY CANADIAN
#Pots #Dysautonomia #MCAS #ElbowsUp #Happy Doggo
#Enhypen7 #SKZ #Ateez #BTS #&TEAM #Cortis #TxT #P1Harmony
πΊπ¦ π³οΈββ§οΈ π³οΈβπ π¬π± π©π° π¨π¦
Brian (Stuttering Loudly) @stutteringloudly.bsky.social Person who stutters. Neurodivergent.
#TEFL Certified.
Former HCW (2015-2022)
#Immunocompromised π· #AplasticAnemia π¦΄
#COVIDinformed #DisabilityJustice
#ProWrestling fanπ€
KC DanversΒ² Enthusiastπ¦ΈββοΈπ¦ΈββοΈ
#IStandWithMelissaSchuman π
#IStandWithEvanRachelWood β€οΈβπ©Ή
Gretchen Musa @persevere.bsky.social Artist, LGTBQIA+ ally, accessibility advocate, special education teacher, IWU parent, first degree black belt, immune compromised, islet cell transplant recipient, aiming for Novid, disheartened American
Murr @neoodist.bsky.social Support change and awareness around SarsCov2, Long Covid, and climate change. Novid. Teacher | Creator | Questioner - βWhy?β and βWhy not?β
Te Waipounamu, Aotearoa NZ
Call Me Cassandra @stitchingtwitcher.bsky.social Spotter of patterns, sometimes wishing I could unsee
ME/CFS, Chronic Illness, AuDHD, Still Coviding
Leonie Smith @leoniegsmith.bsky.social Retired from esafety and embracing my offline creative roots in the Blue Mountains Australia.
Shevi @radicalchick24.bsky.social Disabled former special collections archival processor and historian. Severe ME/CFS, POTS, Long COVID, MCAS, Chronic Migraine,
Connective Tissue Disorder, CSF leak, etc. π· Mask up and protect both yourself and everyone else!βΏοΈ
She/Her
There will be cats πββ¬οΈ
J. Offir, PhD @joffirphd.bsky.social Ph.D. in social psychology. Former researcher in pandemic behavioral risk reduction (non-pharma intervention).
Healthcare & public health; psych.; ed.; disability rights; women's rights; environmental issues; politics/activism.
Nick Tsergas @nicktsergas.ca ββββββββγ
€
Public-interest tech person β’ former Founding Editor, Canada Healthwatch
ββββββββγ
€
nicktsergas.ca
ββββββββγ
€
Christine Cooper π¨π¦π΄σ §σ ’σ ³σ £σ ΄σ Ώ @coopspeak.bsky.social Opinionated & Age Raging
β’She/Herβ’ProChoiceβ’
Twitter Refugeeβ’
Podcast CoHost
βNo Ostriching Here.β @TheReSisters w/@mjnabuurs
Clean Air Matters β’
Protect Public Health β’
Women Will Save The World
#HealthcareIsAHumanRight
#CleanAirIsMyJam
#SoberLife
MJ Nabuurs @mjnabuurs.bsky.social Trying to remain human in a world determined to challenge humanity. Extrovert with a need for quiet time, despite appearances to the contrary. Co-host of @theresisters.bsky.social βNo Ostriching Here.β pod with @coopspeak.bsky.social.
βΏ hiding from plagues - Always masked - N95 or bust @smollestbunny2.bsky.social βοΈAotearoa
Uppity disabled poor person
Political commentator
Knowledgeable but always learning
AuDHD
#StillCoviding
#landback
Human made only
Consider supporting me and my projects/survival
https://ko-fi.com/systemerror
https://payhip.com/Smollestbunny
knox π§ @tho-ugh-ts.bsky.social he/him
cat dad (beanbag and toast)
angry disabled cummunist
if you canβt be good, be safe
GC @thepotspostman.bsky.social Just a mailman with #POTS
Here to spread awareness and advocate for those with #dysautonomia and #chronicillness
Spacecraftprojects @spacecraftprojects.bsky.social 
KelsRACHA μΌμ @k3lseyhardst0ne.bsky.social Kelsey. Writer. Ohio. 30+
I will probably be posting a lot about: health care, chronic illness/disability (hEDS/HSD & more), politics, human rights, cats, gardening/plants, & Stray Kids.
JustKim and Xoe @xoelive.bsky.social Life long repro advocate. Here for social Justice, science, and pet picts. Officially tired. **Wear a mask- everywhere.** LC, EDS. Love a good debate, but wonβt tolerate fools. I live for fresh air, the slow crawl to health, & my dog, and cats.
Olivia Just Wants Tech To Be Fun Again @kingdomfantasy6.bsky.social MultiDisciplinarian Artist! | Informational threads everywhere from tech to disability | β‘οΈ | She/They | Queer
Getting used to Linux era; don't be a jerk to non-techies
Kofi: https://ko-fi.com/kingdomfantasy6
Throne: http://throne.me/kingdomfantasy6
Jane Hobson @janehobson.bsky.social Freelance photographer. Performing Arts. Previously a strategic whizz in advertising/marcomms. London & Edinburgh (& anywhere inbetween & beyond). ND. www.janehobson.com
Tracey @mayflygirl.bsky.social Live in UK. Please donβt follow me if youβre going to post lots of US politics. Thank you. Iβm new here & donβt know how else to deal with this!
Charlie @chip-n-cheese.bsky.social β¨27 they/them
π³οΈβπQueer and Ace
βΏοΈhEDS, POTS, Chronic Migraines
π·Covid Cautious
πFuck Trump
βοΈπ¦βπ₯Fantasy book lover
πChicago
Sy @sahibkaur.bsky.social local loser & history buff.
Susi M. Rose @susimrose.bsky.social Literary matchmaker for MS students π | Crafting MG/YA mysteries ποΈ | AuDHD & PsA. Wife, Mom, & puppy-servant (to a dog who literally eats homework). In a committed relationship with caffeine. βοΈβ¨
Eskittles (They/Them) @eskittles.bsky.social π¨π¦ Simmer | πββ¬ parent | ππ€ππ€ | 37 | Late-identified autistic | Disabled | Was a therapist before I became chronically ill | AURORA super fan | Gallery ID: Shiggity-Shwaa
Lyric (7.3 spoilers) @scientiaclan.etheirys.social Plural, Polyam, nonbinary/bigender SAHP.
37, disabled gamer, writer, gposer. Not a bot just a lot of free time
Multifandom. Profic/prosurvivor. Fiction =/= reality.
Do no harm, but take no shit.
#RinShots - gposes w/Rin!
#gpose - all gpose!
Stephanie Shea @stephanieshea.bsky.social π©·ππ π«πππ¨π―ππ«π’π§π π©ππ«πππππ’π¨π§π’π¬π, ππ«π’ππ§ππ₯π² π§ππ’π π‘ππ¨π«π‘π¨π¨π π’π§ππ«π¨π―ππ«π, ππ«πππ¦ππ¨ππ | TAKE TWO (out now!) rep: @totally_anntastic
Stefanie Shea @stefanieshea.bsky.social Feminist. Artist. Musician. Former English prof. #MyastheniaGravis, #POTS, #RareDisease Advocate. Homebound. Music and Politics junkie. She/her
https://linktr.ee/Stefaniesheaart
David Kronig @davekronig.bsky.social Voting rights & government accountability lawyer. Previously: American Oversight, WisDems. Musician. Immunocompromised/disabled. Lawyer. Fan of N95s, democracy, and righteous fights. he/him. Opinions are mine alone but generally pretty good
Carrie Anna McGinn @carriemcginn.bsky.social Infection-associated chronic illness advocate | Life sidelined by #LongCovid #MECFS #POTS | #PatientPartner | MSc | Mom | She/Her | π¨π¦ #Canada #Quebec
#CovidConscious #StillMasking
#MyalgicEncephalomyelitis #pwME #EMSFC
#CovidLongue #CovidLong #pwLC
Too Long Covid π @toolongcovid.bsky.social Long Covid sucks. Wear a mask. Collective care. Aotearoa NZ.
#longcovid #mecfs #covidcareful #disability #toitutetiriti
https://buymeacoffee.com/toolong
EC Hamilton (Siobhan O'Leary) @siobhanftb.bsky.social She/Elle EN/FR. Policy, critical public health, medical anthropology, cats. IU 651. Opinions are my own. Ex-journo under Siobhan O'Leary (bylines: Rewire.News, VICE, Shadowproof). Public speaker, irregular blogger. π³οΈββ§οΈ liberation now.
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa βΏοΈπ³οΈβππ
Eve @evenicholls.bsky.social Queer disabled quilter. She/her. Free Palestine.
Neurodivergent? Queer? Joint pain? Go and read up on Ehlers Danlos Syndrome. Yes, even if you're not all that flexible these days. Even if it's not you, it's probably some of your friends. 
Ylangirl @ylangirl.bsky.social Small but mighty, early educator teaching through the early pandemic years. 30 years teaching at-risk children & home visiting families. No longer essential now #LongCovid and #ME. Speak truth to power. #MaskUp π·#EduSky #EarlyChildhoodEducation #VERMONT
Nico Reznick @nicoreznick.bsky.social Vaguely humanoid, with all the good and bad that goes with that.- D Cat @dizzycatdesign.bsky.social
ALowerhouse @vertigogrl.bsky.social An unintentional collector of an alphabet soup of chronic illnesses #MECFS #EDS #MCAS #POTS. Pronouns: she/her
Allison is a Jewish anti-Zionist @allisonshore.bsky.social chronic pain |disabled|chronic illness |spoonie| βself-hating jewβ | Free Palestine | Land Back| Trans & Immigrant Rights are Human Rightsπ΅πΈπ³οΈβππ·
Neha Sampat @nehas.bsky.social Found my voice & using it. #Belonging builder. Do-Betterer. Mama, Speaker, Writer, Poet, #ChronicMigraine Warrior, #Spoonie (but no chamcha!), Box-Breaker, Former Lawyer and current BelongLab CEO.
@keepinghopealive.bsky.social @keepinghopealive.bsky.social Disabled Advocate βΏοΈπ¦ME,LC,AuDHDππ
Nature Lover π± she/her
Trying to find a space of calm in all the chaos. π«Ά
Rae Majka @raemajka.bsky.social I facilitate a free, virtual, secular, inclusive, parent-led, live-class co-op for COVID-safe homeschoolers. Offerings for kids ages 3-18.
Don't participate in social murder: wear a respirator!
She/Her. 2e Mom w/ CVID, MS, seizures, & cPTSD
@rueroo.bsky.social @rueroo.bsky.social ππ³οΈββ§οΈπ³οΈβππ©πͺ chronically ill, Fibromyalgia, chronic migraine, and much more. Mom, Mimi, PNW, LGBTQ+Ally, Gen X
Nathalie π·π§¬π§π»ββοΈ βοΈ π¨π¦ππΌββοΈ @natlauter.bsky.social ProπProπ· Health Advocate
~Speak with honesty
~Think with sincerity
~Act with integrity
~Be real
#CovidIsAirborne whether you like it or not.
#ScienceMatters π§ͺ π©Ί βοΈπ©βπ¬
chronically a dyke @chronicallyadyke.bsky.social #DisabilityJustice advocate, patient researcher, and writer.
#Abolitionist. Free Palestine, Sudan, Congo, and all people of the global majority.
βΏοΈ #Lupus #vEDS #LongCOVID #immunocompromised
FunkisHen @funkishen.bsky.social Housebound by ME (myalgic encephalomyelitis), married, has a dog, agender, AuDHD, lives in the forest.
Gender neutral pronouns preferred.
Trying to be kind.
Lefa @lefasn.bsky.social Writer, creative producer, mobile-bookshop owner, tea addict, feminist, repping disability pride. Naarm (Melbourne), Australia. #MECFS
Helen/OT_Skiff @otskiff.bsky.social Occupational Therapist (neurorehab) on pause due to #LongCOVID, #POTS, #PwME, #ChronicMigraine, #VestibularMigraine #HSD, #MCAS & #TeamClots π«
Swiftie π«Ά, F1 π, cricket π fan
London, UK
Hellie @splitgill.bsky.social He/They, 27
I'm an asexual, auDHD, intersex & trans jew for a free Palestine.
cPTSD, PMDD, hEDS, PCOS, endometriosis, lupus, long COVID. Coconut allergy. Cancer survivor.
We deserve to live happily and be seen. Masking is trans rights.
Dame Sa @damesa.bsky.social Long Covid sufferer since 2020. #FBLC
Will mostly be banging on about #Covid and #LongCovid and criticising governments for their diabolical public health policies. #CleanAir
https://petition.parliament.uk/petitions/700304
christina4hope @christina4hope.bsky.social πME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ectβ¦ Posts English and German.
Bavaria ,Germany
Mein Name ist M⦠TM. @bremen.bsky.social Pro Wissenschaft. Contra Schwurbel.
π www.mecfs-assistenzhund.de πβπ¦Ί
#TeamWissenschaft #TeamVorsicht #CovidIsntOver #DieMaskeBleibtAuf #MECFS #NichtMeinKanzler
Reiselustig π und entdeckungshungrig π. (Normalerweiseβ¦ π)
Frances Ryan @francesryan.bsky.social Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? (paperback out now) and Crippled.
E: frances.ryan.freelance@guardian.co.uk
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. β
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIASβ‘Calling out harmful healthcare cultureβ‘Breaking down difficult doctor behaviourβοΈπ§
Madame Hardy @madamehardy.bsky.social Madame Hardy. Was mme_hardy on Twitter. I love gardening, sewing, and reading. Mostly reposts of other people's jokes and historical stuff.
She/her.