Yvonne @emoyvonne.bsky.social Navigating life with Long Covid.
Dreaming about disability justice, anti-ageism, poetry, policy, the sky & the sea.
🖤🖤🖤
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Solveig Marie Stenbæk @sunroadstonecreek.bsky.social Living with Myalgic Encephalomyelitis, ME—not CFS.
Jamie Crawford @jamiecrawford68.bsky.social NUFC, ME/CFS, handcrafts, dogs, and an abiding hatred for fascists and racists. Speaketh not to fools, for they despise knowledge.
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Louise Foster @louisefoster.bsky.social @SfpLouise on X, much prefer to be here!
Anti Brexit, pro immigration, humanist, (actually Marxist), studied & am passionate about politics & economics. Hate current journey of travel in UK, US & on X. Diminished by Long Covid, Fibro, ME & PoTS.
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
Emily Johnson @emilyrj.bsky.social News/book edits, marketing, linguistics, research. #EDS Iowa admin. #Dysautonomia Iowa, #MastCell & http://Disabled.Social mod. @RenegadeResearch.bsky.social volunteer. Patient Advocate. #SevereME Same pic, a bit different handles on X, Substack. #Iowa ♿️🏳️🌈📚
Simarilon @simarilon.eurosky.social 𝕄𝔼/ℂ𝔽𝕊 𝕫𝕖𝕣𝕤𝕥ö𝕣𝕥 𝕃𝕖𝕓𝕖𝕟..🪫
🔸Team Wissenschaft
🔸Science lover 🧪🧫⚗️🧬🔭🔬📡🛰️
🔸Atheist
🔸#fckafd
🔸@320.23 ppm
Bilder aus meiner kleinen Welt, sind Bilder aus dem Garten, oder sehr nahem Umfeld.
https://threema.id/7PDE2HNA
HAL @haslee.bsky.social Loving kindness and humane side of humanity. In awe of beauty and power of nature, but also of human ingenuity.
I'll post rarely, but will enjoy reading posts that
inspire and educate.
Chronic Illness Friendship Club @chronicillnessfc.bsky.social An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! 📍SF
#EDS #MCAS #POTS #ME #PMDD #AuDHD #PTSD
Mental health advocate, indigenous #LGBTQIA+🍉
Sign up at the form below🤍✨
Morgen🖤 @morgenlefay.bsky.social 🦇 I'm learning to exist more boldly.✨
AuDHD gardening artist writer with MECFS...among other things.
Lots of pixel art lately
#morgenspixels
(Sometimes I post random poems when I can't sleep)
✨🌌🤷🌙🖤
CarolC @carolconnolly.bsky.social Hello, how are you? (She/Her)
https://twitter.com/carolconnollyie
https://mastodon.social/@carolconnolly
http://instagram.com/carolc_carolc/
Sparrow / Liz @untonuggan.myatproto.social angry mast cells (HaT and #MCAS) + #POTS + neurodivergent. Disabled queer. white. emperor of typos. brain fog zone ⚠️. they/them
🎶 iii'm still masking 🎶
working on porting more of my body science infodumps and such to:
liminalnest.wordpress.com
#NEISvoid
@sopweg.bsky.social @sopweg.bsky.social 
Cato Frederiks 🏳️🌈🏳️🌈 @catofrederiks.bsky.social Trying to live my life, preferably without a dozen chronic issues, assisted by a healthy dose of DnD, and the very slow production of my (Dutch) trilogy.
Follow my journey after a spinal fusion
https://linktr.ee/catofrederiks
Vanessa Smith @normalness.bsky.social We're all normal to ourselves. I write. I hate hustle. I love shiny objects. Can't even influence an ant. Anthropology & sociology graduate. Author of books. Spoonie. And much more.
www.normalness.com
Eva @dieeva.bsky.social #MECFS moderat, durch psych.Sportreha sehr verschlechtert.Autoimmunerkr.spät diagnostiziert, während aktiver Zöliakie langwierige, schwere Infekte, nicht wieder gesund geworden.Hier zum Austausch,u.a.Therapiemöglichkeiten.
Auch zu Lp(a)/kardiovas.Vorsorge
Maria @mariahwa.bsky.social 
Stacy @stacysp.bsky.social Former healthcare worker #MECFS #FM
Isabella Cueto @isabellacueto.bsky.social Reporter covering chronic disease, MAHA and more for STAT.
🔗 https://www.statnews.com/staff/isabella-cueto/
Nuwuzoho @nuwuzoho.bsky.social Former athlete taken down by covid
Here for research & discussion about #longcovid #POTS #MCAS and related conditions
Trying to work my way out of the pain cave
@eknight8.bsky.social @eknight8.bsky.social Mum to two amazing autistic sons (one has a PDA profile). Sadly one has ME, PoTS, hEDS and MCAS. Scientific background and interested in research in these areas. Avoiding Covid. 
@cloverrosebeach.bsky.social @cloverrosebeach.bsky.social Dog-lover, CFS-haver, artistic, ADHD
Kelly Blew🏳️🌈🎨🧶📚🏴☠️😼👩❤️👩🪷💣🗽💙🌊 @kblewcrew.bsky.social #Artist
Married Lefty #Liberal #LGBTQIA #DSA
Childless #cat Lady😸 KittenFoster #Disabled #pwME #CFS
#POTS #MCAS #SFN
Former Healthcare worker
#Durham Urb/suburb homesteading co-op
#DurhamNC #RESIST #BullCity #Feminist #Bluecrew #SocialDemocrat
Ren G. @tigren37.bsky.social Queer, brown, disabled, and angry.
In between bouts of raging about the state of things, I read books and play video games.
I guess I'm like a twitch streamer or something now?
https://www.twitch.tv/tigren37/
#DisabledPeopleExist
CáitKate @cait05.bsky.social Tá mé ag foghlaim Gaeilge. Loving learning Irish
Moodinites Unite!
Stop intergenerational trauma
Disabled
Covid Cautious - flomask, respirator, CleanAir, HEPA filters
Stop the genocide.
Climate Action Immediately!
Bisexual
No DMs.
Maaike @maaikeverbruggen.bsky.social non-practicing intellectual on war & tech
NL/EN
Johanna @yarrhanna.bsky.social Hello from Chicago
Maddy @maddyoby.bsky.social Disability. M.E. Netball. Women’s cricket. Clean Air. Art.
Curator of netball and women’s cricket lists and starter packs. ↘️
Wilmar lgI, PhD @wiligl.bsky.social PhD, Statistician, Psychologist [Views my own]
Note: "Heart" means "insightful"
#Activism #Democracy #Socialism #ClimateAction #Degrowth #MMT #Palestine
Karen @karenpearny.bsky.social Hope not Hate ✌🏻
I have ME & fibromyalgia ♿️ and fucktolerance 😂
📚 🎧 🌊 🌳 Cornwall🩵
❤️ Manchester United
my boys 💙💙💙 music 💓 🤠
The Unhurried Reader 📚🦊🇺🇦🇬🇱 @theunhurriedreader.bsky.social Reader, writer, nature-lover, garden-potterer, history-dabbler, selenophile. Distracted by birds. 🐦⬛
theunhurriedreader.substack.com
@the_unhurried_reader on Instagram (yes, I know that's confusing).
#InvisibleIllnessVisibleLives
#Nordlichtberaubt
Hoa @nocaffeineplz.bsky.social Graphic & web designer, mainly using this account for illness fieldnotes.
♿ Chronically ill & disabled with ME/CFS, MCAS, hEDS, Psoriasis, Endometriosis/Adenomyosis, a̶n̶d̶ l̶i̶k̶e̶l̶y̶ s̶o̶m̶e̶ r̶a̶m̶p̶a̶n̶t̶ u̶n̶d̶i̶a̶g̶n̶o̶s̶e̶d̶ A̶D̶H̶D̶ and ADHD
Je poste principalement en anglais !
Ani @randiani.bsky.social #DoNoHarm
#CallForPublicHealthAction
words assure, actions commit
Squatter on Indigenous Land
Heidi ☕️ 🇩🇰 🏳️🌈 @hla72.bsky.social Crazy cat lady from Denmark. Cumberbatch fan. Proud Gen X
Anglophile. ME/Fibro, lipoedema & Mental Health.
Books, UK telly, film, theatre, food, music, #soundsofthe80s
On WhatsApp and IG. Not on X anymore.
youngEMERG @youngemerg.bsky.social young European ME Research Group - A European forum formed with EMERG to support and encourage early career researchers in ME/CFS research
https://youngemerg.com/index.shtml
Cleo👠✨ @ozgib.bsky.social Silliness ~ Movies ~ Music ~ Being supportive ~ Animals ~ Nature ~ Arts & crafts ~ INFJ
👉🏻NO unsolicited DMs👈🏻
♿️ Myalgic encephalomyelitis, Fibro, hEDS, LongCovid, MCAS, POTS
🦋BellaLeona ♿️ 🌈 MeidasMighty 📢 @bellaleona.bsky.social 57, She/her, INFP, Swiftie over 50, art, nature, animals, Tom Petty, liberal politics, BLM ally ✊🏽 ✊🏾 ✊🏿 anti 🍊, fond of all witchy things, cottage core, not demure, chaotic, chronically ill, ME/CFS/FM, neurodivergent & LGBTQ spectrum (Abro), dark humor
Gnomic Witch ♿♾️🏳️🌈🏳️⚧️🍉🌻☪️ @morgagnomic.bsky.social 🏳️🌈🏳️⚧️♠️Qu️eer ♾️Neurodivergent
🌻Invisible Disabilities
✊🏼Anti-Racist White
🏞On Kalapuya Land
📖Writer
🏺Artist
🎲🦖Geek
🧙♀️Witch
🌱Eco-Socialist
They/Them Xe/Xem Fae/Faer
Angry As Hell
🚫AI
⛔️BIGOTS BLOCKED⛔
Help us Save our Kitty 😭 https://gofund.me/d2d32a398
AroundScotlandWithME @aroundscotlandme.bsky.social Basking in the pleasure of ME/CFS, I ramble physically, verbally and mentally around Scotland. Lost forever in the Scots Mist of my mind.
Too ill for DMs or even holding chats via posts.
Lang may yer lum reek
scotjess.bsky.social @scotjess.bsky.social I love my boys (plural) even if only one of them, Elvis, is alive. 🦎🧡
💚 #TheSims (since 1). Got The Sims 4 Christmas 2014, year when shit hit the fan as I got #MEcfs Also #POTS #MenieresDisease & likely #MCAS #hEDS
#Autistic late discovered
She/Her
Mish Green @mishgreen.bsky.social Short stories, poems, essays, zines, spoken word - queer crip art in text and sounds. Garbage connoisseur esq.
Writes for Comma Press, Commonword. Fave compliment: being called 'muscular' by the Guardian.
https://linktr.ee/mishgreen
www.mishgreen.co.uk
This is CFS art @thisiscfsart.bsky.social An online exhibit of creative expressions by people suffering from ME/CFS. Visit the exhibit at www.thisiscfs.art.
MamaCassOFee @mamacassofee.bsky.social Disabled human who survives on frozen dinners, cannabis & cats! 😹 DESPISE TRUMP!
I've weighed 650lbs, lost 400lbs. Remission of Stage 3C cancer! PsA, ME, EDS, POTS, Sjorgens & Raynauds.
Socializing online cuz I'm <mostly> home/bed bound. 🌸
Fernlight @fernlight.bsky.social The sun in my heart, the stars in my head. ✨
European, Dark Green, Feminist, Queer, Forest spirit, Stargazer, Gamer, Birder, Mineral & Fossil collector, Community Manager. I'm passionate about an inclusive world.🏳️🌈🏳️⚧️🇪🇺💚🌻♾️
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋
Alone LL @ladylonghaul.bsky.social Born 324 ppm. small spoons & sensory spaces. 🥄🎧
#ADHD #hEDS #LongCovid #MCAS #pwME #Migraine #POTS #PsoriaticArthritis #Tinnitus #Disability #Adoptee #Climate
ko-fi.com/ladylonghaul
LongCovidKids
Awareness Banner
5 years since Long Covid Changed Lives
✨️Jill Kelley (she/they)✨️ @justicejoyandjill.bsky.social ♀️ Abolition feminist ✊🏻 Socialist
Queerdo 🌈 Auntifa 💄
🌄 Rematriate the land
Use ALT Text ♿️ not AI 🚫
🍉 Free Palestine. Congo. Haiti. Sudan...
Bettina Grande @bettinagrande.bsky.social Psychological psychotherapist | Heidelberg & Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy
adapted to ME/CFS
Psychotherapie-Netzwerk ME/CFS
https://doi.org/10.3390/medicina59040719
Space Weather Watch @spacewxwatch.bsky.social Space weather physicist sharing northern lights forecasts and solar physics updates. Local forecasts for your area: https://auroraforecasttonight.com
No, I'm Banksy and so is my wife. @schnoodles.bsky.social Welcome to my sunny outlook and cheerful disposition!
I'm chronically ill and housebound, when I can do a thing it's probably in the garden.
ME/CFS and a few other things, but I find medical stuff to be very dull.
Art is by Ronald Searle
Kris (@atxcopywriter on the old place) @khicks.bsky.social Professionally: Content marketing writer specializing in B2B tech
Personally: Reading enthusiast, horror fan, seeker of stories; she/her
Sara Habein @sarahabein.bsky.social Montana person. Writer. Reader. Co-founder Electric City Creative. She/her
Books and music stuff here:
https://www.instagram.com/glorifiedloveletters/
Glorified Love Letters newsletter: https://buttondown.com/glorifiedloveletters
Amy Hart @amyhartbooks.bsky.social She/her. I write books about anxious vampires, witches, and werewolves. 🇳🇿🏳️🌈
https://linktr.ee/amyhartbooks
LaffingKat @laffingkat.bsky.social Former editor, happily partnered queer woman, disability/chronic illness advocate. I mostly share my amateur photography, as well as anything else that tickles my fancy.
Sam @humanmanifold.bsky.social Evidence-based medicine over eminence-based medicine. #MECFS
Matthijs 🌱❗🧷❗ #PRO 🇪🇺 | ¡No pasarán! @thyztwizta.bsky.social Seculier humanist | anti-theïst | anti-spiritualist | wetenschapsnerd | haat complotdenkers | ♥️ wielrennen & muziek maken | was liever astronoom geworden | Long Covid | POTS | PEM | social anxiety | OCD | ME/CFS
Pillow Writers @pillowwriters.bsky.social Pillow Writers is a free international online writing group for the ME/CFS community. All welcome.
LadyBuzzard @ladybuzzard.bsky.social I’m a bit of an anomaly. It could be the AuDHD.
Fibro/ME/CFS/MCAS/POTS
British (naturalised citizen). 🇬🇧 Recovering American.
Happily married.
I'm not rude, just a bit feral.
Unapologetically stealing memes to add alt-text
Signal LadyBuzzard.76
RoxyG100 @roxyg100.bsky.social Life has decided that I have a lot of time on my hands, so let's fill it with art.
https://ko-fi.com/patdavies0575
puppy uses arch btw £220/200 @mireaze.bsky.social 26yo It/its 🏴🏳️⚧️
puppygirl snuffbait rapeslut
Owned and collared, my mind and body are not mine to control anymore
They belong to @huntergsd.bsky.social
I live to be bruised and bleeding
Bork
Linktr.ee/Mireaze
Allie 🧚♀️ free 🇵🇸 @allie-c2.bsky.social You may remember me from twitter before it went to shit.I have cptsd (bpd alot better after years of therapy). Basically recovered ocd & osdd. In the process of audhd diagnosis. mild me/cfs?! I also have APS( apparently borderline? )& ibs.
Rene Sugar @renesugar.bsky.social https://renesugar.substack.com/
Ö. Ges. für ME/CFS @mecfs.at 💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
Rachel K. (Tala) @talaattanagra.bsky.social Here for science, nature, philosophy, mycology, history, advocacy, Afroasiatic languages, linguistics in general.
Medically-retired analyst w/ MEcfs. Epicurean. Humanist. Existentialist. DMV-area forager. SCA, Atlantia. Harvard, GSE. Tinzouline ⵣ♡.
Callirhoé @callirhoe.bsky.social Between illness and rebellion.
Climate, healthcare, anti-ableism, ophthalmology. EDS,MCAS, ME/CFS.
Climat, santé, antivalidisme, ophtalmo.
Engineer by training, activist by heart.
Fantasy &SF. Good Omens &Andor.
Posting in 🇫🇷/🇬🇧
https://linktr.ee/callirhoe_
Danielle Beckman @daniellebeckman.bsky.social I like brains and microscopes. Interested in Neurovirology
PharmD, MS in Biophysics, PhD in Biochemistry
🇧🇷 Rio 🇺🇸 Sacramento 🇩🇪 Munich
International Society of Long COVID & Post-Acute Infection Syndromes: https://islc-pais.com/
daniellebeckman.com
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Marcia Mersky @marciamam.bsky.social Long Covid/MECFS patient, quilter and gardener when able to be active.
Fliss Alc @flissaki.bsky.social Microbiologist, amateur long covid specialist, mask-wearer, europhile, thalassophile, biophile, grecophile 🇬🇷.
One of #MillionsMissing - LC, ME/CFS, POTS, MCAS
Ashra 🍉 @ashra.bsky.social Blood is compulsory. She/Her. Living on Darug country. Dancing the ME/CFS tango
Eleanor Fielding @meownersclub.bsky.social ‘We’re driving in the dark with our sunglasses on!”
#RLS #ME #PEM
Retired lecturer/therapist
Open University, CCCS B’ham, feminism, politics, culture, disability, science, music, languages.
meownersclub@bsky.social
Maker of #FanningTheFlames
Alana Delaforce RN PhD @alanadelaforce.bsky.social Leader / Nurse / Implementation Scientist / Mum / Nerd
Working at CSIRO in the Australian E-Health Research Centre to improve the lives and wellbeing of all Australians through the development and implementation of digital health interventions.
Dan Gabriel @dangabrielgames.bsky.social Austro-argentinean game and narrative designer, writer. Cares about stories, empathy & high level analytical thinking. Open for work.
Homebound due to #ME/CFS.
linkedin.com/in/dangabrielgames
ThereForME @thereforme.bsky.social Working to improve support, understanding & quality of life for people affected by ME & related conditions through evidence, awareness & advocacy. www.thereforme.uk
han olliver @hanolliver.bsky.social sick/crip trans artist & writer in minneapolis ⟡ they/he ⟡ hanolliver.com
Tom Parsons @tomparsons.bsky.social Writer, Musician, pwME. 
@nonnypops.bsky.social @nonnypops.bsky.social 
Childless Cat Lady @mrsjayroe.bsky.social Myalgic Encephalomyelitis sufferer, animal rights and environmental advocate, believer of science, loving wife, and helpful neighbor.
Robbie @robbielane87.bsky.social Just a dude with ADHD and severe ME/CFS with a sprinkle of fibromyalgia and a tic disorder.. and and pinch of DiD..
Trying to get by one day at a time 🖤
Lene Benedicte @lenebene.bsky.social Music was my occupation before #MEcfs took it away from me. Education #music plus #drama and #theatre #Iwrite
#animals #genealogy #litterature #languages #BritishTVseries #equalopportunities #environment #endallwars #endpoverty
Camille Buckner @camillebuckner.bsky.social My pen is huge & I love sentences. And words. Like wombat & elixir. People & planet over profits. Build new systems. Equity. Inclusion. Justice. #BLM #LandBack #DefundHate #LongCovid #MECFS #Poetry #AcademicSky🏳️⚧️🩷💛🩵😷🍉
🚫AI
Banner: Large stone balls
PP: My 🤚🏼
Yvie Juniper-Johnson @yviejohnson.com 🌈Illustrator & Storyteller & Poet
♿️ ME & TN // ✨AuDHD // 🪴Intuitive
🦋 Disability, Creativity & Feeling Whole
🏴 Denbigh, Wales // dw i'n dysgu 🏴
Delightful: https://yviejohnson.com
@birdsong4db.bsky.social @birdsong4db.bsky.social 
TamaraDNomad @tamaradnomad.bsky.social Disabled advocate - #Interiordesigner - #Anthropology student - Multi local - #SWYer - #Fibro + #MECFS - 1 of the #MillionsMissing + #Disabledguerrera
https://linktr.ee/jailedtiger
CoRy Wysz 💤 @corywysz.bsky.social A disabled Photo Alchemist who thrives off Eldritch Whimsy.
HQ - https://corywysz.com/
Jenn🦋Anne💙Miller😷 @jennannemiller.bsky.social #MECFS #MEPOTS #MEPEM #MillionsMissing #MEWarrior #Disability - live it daily #IACC #PAISs #MillionsMoreMissing #LongCovid
FDR Socially Progressive Democrat #StopProject2025 💙💙💙🌊 🌈🩵🩵🤍🩷🩷 #Equality #AmericaIsAntifa #Resist
💙💙💙💙💙💙💙💙me/it💙💙💙💙💙💙💙💙
brokenwingpoet @brokenwingpoet.bsky.social Poet. Writing on disability & eco justice. Bedbound with Long COVID and Severe ME. 🍉 🇵🇸 🌲 🐦 😷
My first first poetry book, WILDNESS UNAFRAID (Kelsay Books, 2026) is out now! Available at multiple book stores below:
https://linktr.ee/Brokenwingpoet
Mus @musargenteus.bsky.social Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it's the only thing that ever has.
-- Margaret Mead
R! @technicoloursheep.bsky.social Hi. severe #MEcfs ♿️ | Ex-Film industry worker📽 | they/them
https://gofund.me/770cc8093
Sarah O'Connell @sarahoc1.bsky.social #pwME patient 12 yrs & mum of 2 with ME, #LongCovid & PANS • ME & LC Advocate • Co-Founder LCAI • Women's Health; Endometriosis,PMDD • Sci-fi & movie lover
ellis.nl @ellisvandrent.bsky.social 🇳🇱 🐈⬛🐈🛏️
#ME/cvs #POTS #IsupportLBGTQI
#MillionsMissing