Simmaron Research Foundation @simmaronresearch.bsky.social 501c3 dedicated to discovering treatments for ME/CFS, LongCovid and IACCs, collaborating with expert clinicians and scientists.
UNITED24 Media @united24media.com 🇺🇦 Firsthand news from the epicenter of global events. Stay informed and support the cause. Donate today: http://u24.gov.ua
🔗 united24media.com
FakerMcFakename @grayhurst.bsky.social Libby, vibing in New England
Angelica Jade Bastién @angelicabastien.bsky.social writer. critic. essayist. on staff at New York Magazine. Southern broad. https://angelicabastien.com/
https://angelicabastien.substack.com
Cassie Liu, MD, PhD @thecassieliu.medsky.social Resident Physician at Stony Brook Medicine @stonybrookmedicine.bsky.social | Alumna of UNMC MSTP #MDPhD @unmc.bsky.social | Passionate about #humanism, #AAPI, #advocacy, & #resiliency in medicine & research | Always learning, views my own. | She/Hers
Camille A. Clare MD MPH @cclaremdmph.bsky.social ObGyn, Medical Educator, Patient Advocate & Activist, Mentor, Sponsor, Servant Leader, Clinician-Researcher and Scientist, she/her/hers, personal account, supporter of climate equity
ella t. holmes (wizard) @ellatholmes.bsky.social Writer✨ Essayist. Disability Justice advocate. Thought-haver. Covid competent. Best of The Net Nominee & Aurealis shortlister🤯
Shrek Scholar 👑
Verbing at Scylla Publishing
💖 https://linktr.ee/ellatholmes
Sara Nović @novicsara.bsky.social MOTHER TONGUE, out now.
Also TRUE BIZ + GIRL AT WAR
🧏🏻 deafie | they/she/👉🏼 |📍Philly
https://buttondown.com/signs+wonders/archive
https://linktr.ee/Novic
Disability Rights Watch (US) @disrightswatch.bsky.social A disabled collective aggregating (and occasionally leaking) information related to current disability rights dangers in the US. Anonymous tips accepted @ site.
https://disability-rights-watch.com
Amie M Marie @amiemmm.bsky.social Arriving from Twitter (previously @amiemariamarie)
Disabled Playwright | The Play About Theresa May (2021) | Scrounge (2022) | https://www.waterstones.com/author/amie-m-marie/4998522
Domenic Angelino @domenichealth.bsky.social Fitness Expert | Writer | Brown University Public Health Alum
linktr.ee/domenichealth
domenicangelino.com
instagram.com/domenichealth
linkedin.com/in/domenicangelino
tiktok.com/@domenichealth
Dia VanGunten / Writer @pinkzombierose.bsky.social Punk, weirdo, lefty, comics creator, psi fi, magical realism, existentialism, metaphysics. Theater of the absurd. Creator of Pink Zombie Rose, a Graphic series - A Contagion Of Enlightenment. Undead Psychonauts will either save the world or end it. 💀🥀
Long COVID Campaign | www.longcovidcampaign.org @lccampaign.bsky.social Equitable, accessible & affordable treatment for all. The Long COVID Campaign advocates for accelerated research & expanded support programs in U.S. & globally.
Nora Zuckerman @norazuckerman.bsky.social TV writer. Showrunner for POKER FACE. Also worked on PRODIGAL SON, MARVEL'S AGENTS of S.H.I.E.L.D., SUITS, HAVEN, FRINGE, and HUMAN TARGET.
https://www.imdb.com/name/nm2358277/
Clara Jeffery @clarajeffery.bsky.social Editor-in-Chief of Mother Jones/Center for Investigative Reporting/Reveal. Past president of the American Society of Magazine Editors. Mom. Upzoning, street tree, and rescue dog enthusiast. Views, mine.
Edward Hunter Christie @ehunterchristie.bsky.social Political and Strategic Affairs
Former NATO official
PhD VUB & Royal Military Academy of Belgium
Views my own
Jessica Ellis @baddestmamajama.bsky.social Filmmaker (WHAT LIES WEST) and formerly a little Twitter famous. Married to @sean-a-tiger.bsky.social, writes with @nicksinnott.com
Jon Douglas @atranscendedman.bsky.social Transparent to the transcendent.
Building TrialPilot - https://www.trialpilot.app/
https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Maeve Cullinan @maevecullinan.bsky.social Global Health Security journalist at The Telegraph. Contact: maeve.cullinan@telegraph.co.uk
Covering infectious diseases, viruses, bacteria, parasites, AMR, vaccines, climate change, conflict, human rights, reproductive rights, etc.
Pia Long @perfumer-pia.bsky.social Perfumer & co-founder of Olfiction (an independent fragrance lab) and Eau de Boujee (brand). Finnish. Gamer. Reader. Invisibly disabled. She/her. linktr.ee/perfumer.pia blog: https://open.substack.com/pub/perfumer
Sarah Steube Perkins @sarahsteubeperkins.bsky.social Makeup, perfume, liberation for all
📍Colorado, US
Nanette Suzanne Danielsson @nanettedanielsson.bsky.social 🦋 Activist with ME ♿️ PhD in Psychology 🎓Former researcher 📚 & integration strategist💡Expat in Sweden 🇺🇸➡️🇸🇪 #Latina🌶🐕🌳🎨🖼✍️ #Democracy #ProChoice #HumanRights #SocialJustice 🏳️🌈🏳️⚧️♀️♻️✊🏾⚖️🌎🙏🕊💙 #ChronicIllness #ME #MECFS
#MillionsMissing 🚫Crypto 🚫DMs 🟰 Block 🚫Porn
Daniel Libatique @thedancinggrad.bsky.social Asst. Prof. of Classical Studies @ Fairfield University. Ovid, narratology, gender. He/him 🏳️🌈. Twitch and Instagram: TheDancingGrad. Oxford comma enthusiast.
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Dr Nicola Clague-Baker @claguenjc36.bsky.social Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own
she/her
Elana Levin @levin.bsky.social (They) Digital & narrative trainings.
Host of Graphic Policy Radio: a podcast on genre media & movements for social change. 🤘🏻 🏳️🌈 🖖🏻 Public Health, unions, NYC, comic books, music history & DS9. #CountryRockSunday https://graphicpolicy.com/radio/
Kat Boniface @katboniface.bsky.social Riverside, CA
Equine History Collective
Renegade Research
https://katboniface.wordpress.com/the-glutamate-boss/
Boris Dralyuk @bdralyuk.bsky.social My Hollywood & Other Poems (Paul Dry Books); translate Babel, Zoshchenko, Kurkov, et al.; odds & ends @nybooks.com, @thetls.bsky.social, etc.; teach at @utulsa.bsky.social; EiC @nimrodjournal.bsky.social
Douglas Kell @dbkell.bsky.social Research Scientist who prefers facts to lies. Focus on Long COVID. Free book: http://osf.io/pnxcs/.
Isabel Kaplan @isabelkaplan.bsky.social Novelist (NSFW) battling Long Covid. Saying/writing/drawing the quiet parts out loud & on the page. Substack: isabelkaplan.substack.com
Caitlin Kelly @caitlinkelly.bsky.social Senior editor at ProPublica.
Liv @oliviaaahliv.bsky.social I like posting about TV shows, things I like, and things I hate
Becca Roth @beccaroth.bsky.social Writer/Director 😷🏳️🌈
Rebecca Feldman @rebeccamfeldman.bsky.social
Tara Ballav Adhikari, PhD @tbadhikari.bsky.social Public Health Researcher at Aarhus University(@au.dk), Denmark | Posts #GlobalHealth #PublicHealth #NCDs #ClimateChange #COPD #LungHealth, and occasionally #Nepal #Politics #Cricket & #Football
Nepal🇳🇵🔄 Denmark🇩🇰
Putrino Lab @putrinolab.bsky.social
Brijana Prooker @briprooker.bsky.social LA-based freelance journalist covering health, gender & culture. Mama to rescue pit bull named Ivy & orange kitty girl named Doosis. Bylines in ELLE, Washington Post, Good Housekeeping, Shondaland, Observer, Newsday, POPSUGAR, etc. She/Her
Kendra F. @survivingcfs.bsky.social escaped homelessness brought on by #mecfs. I’m just here to share thoughts and feelings.
Andrew Weissmann @weissmann.substack.com My new book Liar’s Kingdom can be ordered here: https://linktr.ee/LiarsKingdomBook; NYU Law; MSNOW legal analyst & podcast cohost "Main Justice »;
Substack "Behind The Headlines" https://weissmann.substack.com
Offering legal analysis & opinion
Andy Kaczynski @kfile.bsky.social CNN investigative reporter. Kfile founder. Co- founder of the Team Beans Infant Brain Tumor Fund. The New York Times once called me a “wunderkind.”
Anne Applebaum @anneapplebaum.wsocial.eu staff writer @theatlantic.com and senior fellow @snfagora.bsky.social. author of GULAG, IRON CURTAIN, RED FAMINE, TWILIGHT OF DEMOCRACY and AUTOCRACY INC
https://linktr.ee/anneapplebaum
Heather Mallick @hmallick.bsky.social
Canadian news columnist formerly CBC, newspapers, magazines etc. author, feminist, bookish person, centre-left. @heathermallick.substack
Alexa Borys @alexaborysnarrator.bsky.social Audiobook Narrator
Romance/Fantasy/Thriller
Alexaborys.com
Matt Reznick @huffmanprairie.bsky.social I like the LA Sparks, Everton FC, indie rock, and psychological thriller/horror novels. Say hi to your dog for me. Dayton, OH.
Erin Orion @eoah.bsky.social Writer. Artist. Healer. Disability activist. Survivor. Warrior-mama. ND AF.
Ruby Corbyn-Ross @rubycorbynross.bsky.social Singer, Songwriter, Traveler, Friend, Dancer, Artist, Creator. 🌈♠️✨🎶🧝♀️🎨🌎
Olga Tokariuk @olgatokariuk.bsky.social Academy Associate, Chatham House. Journalist, disinfo researcher, occasionally lecturer, speaker and moderator. Proud Ukrainian, currently in the UK
Oonagh Cousins @oonaghcousins.bsky.social - G Ginaassaf @ginaassaf.bsky.social
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Erin C. Sanders, MSN, WHNP-BC @erinsandersnp.bsky.social Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
Karyn Bishof @kbishof.bsky.social 🔵 Founder & Pres. @C19LAP https://www.longhauler-advocacy.org
🔵 Pw/ #LongCOVID, #IACCS, #Disability
🔵 Fmr. Firefighter/Paramedic
🔵 Fmr. Educator, Coach, & Dir. of Athletics
🔵 B.S. (ex science & health promotion)
🔵 #StillCOVIDING #COVIDConscious #Mask
Prof Danny Altmann @daltmann.bsky.social Professor of Immunology, Imperial College London. Editor of OUP Oxford Open Immunology. Co-author - Penguin Long Covid Handbook. Discusses: Covid-19, Long Covid, T cells, immunogenetics and HLA, respiratory infection, science policy, arboviruses, C19th lit
Adam @abrokenbattery.bsky.social Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
https://linktr.ee/abrokenbattery
Neurologist Mom @neurologistmom.bsky.social A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
📍Seattle, WA
Katie Lazell-Fairman @klazell.bsky.social Artist, Long Covid, ME/CFS, POTS, EDS, previously Data Scientist. Life on pause due to #longcovid. Climate collapse aware.
Exhausted in QC 🇨🇦 @ninjazz636.bsky.social #LongCovid first-waver. Cursed by the universe. Gardens. Cheese. Cats. Science. Climate. Pardon my French!
🚫 No DMs. #Democracy 🇺🇦 🇬🇱
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Laura @harmonicsoul.bsky.social X Refugee 11/8/24. California Native. ME/CFS and Long Covid Community.
Looking to reconnect with other X Refugees in chronic illness community. Please say hello and give me a follow.
Prof. Akiko Iwasaki @virusesimmunity.bsky.social We study antiviral immunity and viral disease pathogenesis. We are developing mucosal vaccine strategies to prevent infection and transmission. #COVID19 #longCOVID #vaccines
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Julie Marcoux @majulli.bsky.social ME CFS, Long COVID, Comorbidities & disability advocate | Former social worker | She/Her/Elle | #MECFS #EMSFC #LongCovid #CovidLongue #DisabilityJustice
Tiohtià:ke | Montreal 🇨🇦
Wilhelmina Jenkins @wilhelminaj.bsky.social Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.
Prof. Kevin Fenton @profkevinfenton.bsky.social 🦋London’s Public Health Director
🦋I Explain Health Trends & Disease Threats
🦋Wellbeing Tips & Public Health Career Advice
🦋Following/being followed ≠ Endorsed.
🦋Follow For A Healthier You.
Nate @riffraffnath.bsky.social stuck at home with long covid
community organizer, educator, video artist
🌈♿🤒🕎 (they/she)
Eliza Charley | Actress on Pause @elizacharley.bsky.social Actress on Pause with Myalgic Encephalomyelitis
🌍 Florence, Italy <-> Melbourne, Australia
🎙️ Writer, Producer, Actor
🦋Living that Stockdale Paradox life
@oldbeardo.bsky.social @oldbeardo.bsky.social Arts Center manager, scenic designer, former teacher and college professor
𝘎𝘰𝘥 𝘏𝘢𝘵𝘦𝘴 𝘍𝘭𝘢𝘨𝘴 @bheanilla.bsky.social
Tom Nichols @radiofreetom.bsky.social Staff writer at The Atlantic. Cat guy, Jeopardy champ. New Englander and curmudgeon. Speaker info: https://www.leighbureau.com/speakers/tnichols
Walker Bragman @walkerbragman.bsky.social He/Him. Dad. Journo tracking dark money and attacks on public health. JD, ADHD, occasional cartoonist.
Co-founder of Accountability Journalism Institute. Accountabilityjournalism.org
Signal: walkerbragman.44
Reporting: https://www.importantcontext.news
Nina Cohodes @ninacohodes.bsky.social
🦋Dr. Natalia🕊🌻🪬 @solnatamd.medsky.social MD, PhD, MLS in Healthcare Law
ICU doc • immigrant • anti-disinformation • medical ethics • public health
Views r own
Seeking Boston Marathon @seekingboston.bsky.social Disabled w/ Long Covid & stage IV cancer. Co-host of The Butterfly Pavilion Podcast. Former marathoner & triathlete that raced w/ Liam. Artist. Long Covid advocacy satire videos. Love my wife, kids, family. https://linktr.ee/seekingbostonmarathon
Khullain Paints (Ash) @khullainpaints.bsky.social Former commission miniature painter. POTS & ME/CFS sufferer. Disabled. Fuelled by tea. On a hiatus due to chronic illness.
Joshua Reed Eakle 🗽 @joshuaeakle.com Building a liberal movement. Comms @Liberalism.org. Board @ProjectLiberal.org. Husband and father. Views my own.
Ms. Eldritch @mseldritch.bsky.social Queer, polyamorous, & guaranteed to steal your heart. Eldritch deity. I talk about monsters, books, and magic. (she/her) 🏳️🌈 18+.
She/Her
Texas, USA
Tia Harewood-Millington @tiahm.bsky.social stage manager | event planner
both last names plz and thank you
Marisa Kabas @marisakabas.bsky.social independent journalist, thehandbasket.co
email: marisa@thehandbasket.co
signal: marisakabas.04
Lara Crowther @fillthewhole.bsky.social Neuroscience. Biomedical Sciences. Med Ed.
Covid aware. Clean the air. Wear a mask.
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
Liza @limiltlessliza.bsky.social LongCovid Advocate
Zebra
Yogi
Plant mom
Story Teller
Dianna Cowern @thephysicsgirl.bsky.social Lame puns and #longcovid. Maybe some science here and there.
Sebas @sebajones.bsky.social Long covid/ME since 2020. Literary fiction and em dash fan. Retired junglist. 🪴 patient.
Guiri madrileño. Socialista. Anti-fascista.
Rene Sugar @renesugar.bsky.social https://renesugar.substack.com/
PhillyPhile215 @phillyphile215.bsky.social Just a Philly girl, livin' in a lonely world…and a Luddite learning (now) to BlueSky. #LongCovid since March 2020
Soraya Nadia McDonald @soraya.press proprietor, Soraya [dot] Press | subscribe 👉🏽 soraya.press
📍Brooklyn
Amy @alexandrite113.bsky.social
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10
#StupidSuez @diplomatofnight.com يقتل القتيل ويمشي في جنازته
https://buymeacoffee.com/emissaryofnight
John Leavitt @leavittalone.bsky.social @Leavittalone from Twitter . Writer and cartoonist. Seen in The Toast, New Yorker, The Awl, The Nib, Racked, The Rumpus, The Baffler, etc. That guy you met at that party once. http://www.leavittalone.com/
Connie Schultz @connieschultz.bsky.social Columnist, novelist, j-prof.
NYT bestselling novel, The Daughters of Erietown. Next novel: Because You Asked. On Substack at Hopefully Yours. I’m with Sherrod.
https://connieschultz.substack.com/
I Travel Like Sound Dog @chadstanton.blacksky.app Ask around boy I’m hotter than Picante
Alison Willmore @alisonwillmore.bsky.social Film critic at Vulture, co-host of the Critical Darlings podcast https://podcasts.apple.com/us/podcast/critical-darlings/id1885681327
Hypervisible @hypervisible.blacksky.app Every future imagined by a tech company is worse than the previous iteration…or something like that.
Karen K. Ho @karenho.bsky.social Writer, reporter, and floofy dog owner. Previously at ARTnews, Business Insider, Quartz and other outlets. Based in Toronto.
Sheera Frenkel @sheeraf.bsky.social NYTimes reporter and co-author of NYT bestseller “An Ugly Truth” with Cecilia Kang.
Tell me a story. (Ideally through a non-work device using Signal. Find me via my username sheera.11)