Wayside Scribbles @waysidescribbles.bsky.social Left by the wayside. Won't give up without a scribble. #longcovid #mecfs | Also on: 𝕏 Twitter 📸 IG 👥 FB @waysidescribbles (no S on X) | Support me: https://buymeacoffee.com/waysidescribbles
Patricia Donnellan, MPH 🇺🇦📎 @stpaulsbay.bsky.social Patricia Donnellan, MPH | Found the unifying cause of chronic disease: rs5522-driven inflammation. Cured my own 29-yr CFS. Proving it’s fluid, not fat—from Long COVID to Maternal Mortality. 🧬
www.beyondbloodtests.org
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
Thank You for Masking! @thanksformasking.bsky.social A sticker project supporting a wonderful family in Gaza - Bahaa, Manal, and their two kids Anwar (3) and Ayla (6mo).
https://linktree.com/thanksformasking
VirusSucks.com @virussucks.com #LongCovid since May 9, 2022. I was out for my morning run when exhaustion hit me. PEM, orthostatic intolerance, etc
Last #SARSCov2 infection: April 2022.
Medical news
https://m.youtube.com/@VirusSucks-com/shorts
#COVID is airborne so ventilate
Ramses Temmerman @ramsestemmerman.bsky.social Former DJ/Event Manager | Administrator #MEcvs Infokanaal (Youtube) | Advocate for more biomedical research for post-infectious #MEcfs & #LongCovid | 🇧🇪 🇪🇺
Fred Rossi @darthfoo.bsky.social I write about shrinking reserves from #LongCOVID and #MECFS with brutal honesty and zero fluff. Also: Star Wars, comics, cats, and Penguins goals. 🚨 #LetsGoPens #PwME
https://darthfoo.substack.com
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person 
American Medical Journal @americanmedicaljournal.com AMJ: #1 open access destination for HCPs. Peer-reviewed journals & diverse content hub. Interviews, podcasts, webinars, infographics.
🔗: https://www.emjreviews.com/en-us/amj/
Dr. Nicole Lee Schroeder @nicole-lee-sch.bsky.social Historian of disability, early America, and the 19th century.
Assistant Prof at Kean University, views mine not my employer's.
Learn More: https://nicoleleeschroeder.com/
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Nev @alphukit.bsky.social Outdoors and all things nature type of guy.
I love camping, hiking, foraging and travelling anywhere, anytime.
European Medical Journal @emjreviews.com #1 open access destination for healthcare professionals globally.
🔗 emjreviews.com
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
@fiona289.bsky.social @fiona289.bsky.social 
Reese @puppylove23.bsky.social 🐶 Woof! I'm Reese , a Boston Terrier with a black belt in snuggles. My human, BRETT CULBERT– you know, my actor papa who's on TV and all that? – thinks he's the star, but let's be real, I'm the real leading role here.
Eric Salsburg…Grow The Resistance. @ericsalsburg.bsky.social 🟦Fuck trump, Fuck Fascists, Fuck Netanyahu…Save Our Democracy.
Save us, VOTE BLUE MIDTERMS/2028. LOVE YOUR NEIGHBORS!
Philly Sports Lifer. Animal Rights/Animal Welfare, Climate Change, Human/Civil Rights, Fighting For The Underdog, Standing with Ukraine 🇺🇦
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
@cm297.bsky.social @cm297.bsky.social 
Vanessa Global @vanessaglobal.bsky.social 199K LIBRARY: universities,libraries,politicians,scientists,academics, lawyers,economists,linguists,historians,writers,BLUE, ANTIFA!
Me: brown NA,Oregonian,veteran,globetrotter,critical thinker,linguist,teacher,reader,atheist,constructive,ANTI-TRUMPIST
@hibiscusinsular.bsky.social @hibiscusinsular.bsky.social born@330ppm
David Tuller @davetuller1.bsky.social Senior Fellow in Public Health and Journalism, Center for Global Public Health at the University of California, Berkeley. I blog at Virology Blog (virology.ws). My academic position is largely funded by donations from patients. davetuller@berkeley.edu
@whiteangel83.bsky.social @whiteangel83.bsky.social 
ProdigalHoosier @prodigalhoosier.medsky.network Co-conspirator/Partner to @Bellmore
Mom
OG Punk Rock Grrrl
IU Alum
CASA Volunteer
Mantid Mom
Future Corvid Murder Bestie
NERD: History, Politics, Policy
Healthcare, Justice, & Education Equity, Organizing, Books, Research, Data, Trauma Informed Care
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
Steph @handle.invalid I am a beautiful young adult vixen thats waiting for something.
🍎 Taylor Twins 🍏 @thirstytwins.satan.social 🦋Taylor Twins TWINS BING TWINS🦋
🌀gemelos Taylor Gemelos siendo gemelas🌀
⓸ 泰勒双胞胎 双胞胎就是双胞胎 ⓸
#instagram #threads #X #tumblr #bluesky https://0-info.my.canva.site/barcode-century-docx
Anna - Please boost pinned tweet.🙏 @halcionandon.bsky.social Diary of #ChronicIllness & #abuse
👉Safe housing needed 🏡
#Melbourne 🇦🇺
Human biology experiment w limited energy
#SevereME #LongCovid #POTS #ChronicPain +
Crowdfund me to safety: chuffed.org/project/161937-help-anna-escape
Patients with Power @ptswithpower.com Patient-scientist fighting for medicine based in SCIENCE; NOT BIAS⚡Calling out harmful healthcare culture⚡Breaking down difficult doctor behaviour✍️🧐
Open Research and Public Engagement Roadmap @engagedroadmap.bsky.social Co-Creating Ireland's Public Involvement in Open Research Roadmap
ENGAGED is building a national roadmap to shape public involvement in open research in Ireland. We believe that research can and does play an important role in tackling societal challenges.
Film Milf 🌊💙Blue Dem. Resister. 🏳️🌈 LGBTQ+ 📚 @filmilf.bsky.social Work @ TrixStarT Film Productions.
🌊💙Blue Dem. Resister. 🏳️🌈LGBTQ+ 📚
Fully Full Frontal 4 Film. Crazy Cool Comics.
@mrsjohnboywalton.bsky.social @mrsjohnboywalton.bsky.social 
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Helen @helenld.bsky.social Jeweller 💍 Scientific & Archeological Illustrator 👩🏼🎨 Graphic Designer 👩💻 I ♥️ dogs🐕 rats🐀 nature🍃 bugs🐞 skulls💀 water💦 flowers🌸 music🎶
first wave #LongCovid 🌊
Team member @longcovidsos 🛟
Bᴏɴɴɪᴇ @moderndarkage.bsky.social x.com/ModernDarkAge
Dr Ben King 🌍 @benking01.bsky.social Long Covid & PE recovery.
GeographyTeacher.
Sustainability & Climate Change.
BSc Env Science & Physics (Stirling).
Soil Erosion PhD & Geog PGCE (Exeter).
Tuba player.
Devon, UK
Lauren Towler, Ph.D. @laurentowler.bsky.social Lecturer in health psychology and sex researcher @University of Southampton | Interests include: sexual wellbeing, condom use, sexual aging, body image, health inequalities, disability/chronic illnesses and sexuality | spoonie 🥄♿️| she/her
Scarletp @scarletp1792.bsky.social Flâneur
Working on my unconscious biases every day
Narrm-Melbourne-Victoria
#DutyOfCare #CleanAirInSchools
💙📚 #auspol
Banner: a still from The Truman Show
Truman realises he can walk out of his reality
Something I want to do more & more often
VC @vgc1720.bsky.social she/her
I ❤️ turtlenecks & human rights.
MS Informatics & Analytics / Cultural Analytics.
Happily 💍
@covidactiongso.bsky.social 😷
@icedaft.bsky.social @icedaft.bsky.social Conglomerat - Human - German - European - Pensive 🤔 Husband - Father - Humanist - Direct🫣 #Triumph #Motorbikes #Motorcycles #Volunteer #Firefighter 🚒🚨 #Europe 🇪🇺 #Travel #HSSP #onlinegamer #gamer
https://www.threads.net/@icedaft?igshid=NTc4MTIwNjQ2YQ==
SAGE POETESS, WRITER, EDITOR @sagetaylorkingsley.bsky.social 🌊💙🌀Protest + Mystic POET *BEAUTIFUL LATE BLOOMER* Best-Selling Author EDITOR GHOSTWRITER 100 books. LoA~Self-Love~Lover of democracy, nature, dogs, life! Kindness is my religion 🙏
TONS of poetry ➡️ https://sagepoetess.substack.com
ME-CFS Spoonie Bibliophile
Ben Chroma @benchroma.bsky.social Old enough to miss Blockbuster
Masking is Praxis
Loudly Disabled
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
jo @moerakijo.bsky.social Living with Long Covid and ME
Love books, libraries, histories
she/her
Aotearoa New Zealand
#LongCovid #ME #WearAMask😷
#CovidIsNotOver
#LongCovidAwareness
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
@groundpizza.bsky.social @groundpizza.bsky.social 
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Rupert Rivett @rupertrivett.bsky.social 📸 Photographer | capturing life's candid moments with my camera 📸
🌍 https://rupertrivett.photoshelter.com 🌍
#RealStreetPhotography #Photojournalism|
Skilled in unobtrusive, authentic #storytelling
📣NEW SUBSTACK 📔
👇📸👇📸👇📸👇📸
https://rupephoto.substack.com/- J @justindstern.bsky.social @justindstern.bsky.social
THE ANOINTED ATHEIST @theanointedatheist.bsky.social Atheist. Social democrat. Vegetarian. Science.
Baseball. Humor. Books. Dog rescuer. Advocate.
Fan of critical thinking. I write about religion.
If my posts offend you, turn the other cheek.
Nic @lilnic000.bsky.social 
@esambannar.bsky.social @esambannar.bsky.social https://gofund.me/e2edd02f https://www.paypal.com/paypalme/Esambanar1
❄❄Warthog Elsa❄❄🌊🇺🇦🇹🇼🎮😷 ☂️🗽🌏🏴🎗️🧡☀️🦁 @socookre.bsky.social Robloxian. #LongCOVID patient. #FreeLanternSociety supporter. I'm also known as Elsa Fidelis. Slava Ukraini! 🇺🇦
https://linkat.blue/socookre.bsky.social
Panda Mama @pandamama2024.bsky.social Parent raising awareness of #PANDAS #PANS. #BrainInflammation in #children triggered by virus /infection. #NoMoreLostChildren #ChangeIsComing
Shared Umbrellas @sharedumbrellas.bsky.social Supporting those proving extra care for themselves or a loved one. It can be isolating and often extremely challenging, now more than ever in these times of uncertain funding. You are not alone. Let’s help each other. #Disability #ChronicIllness #CareGiver
ChildRapeSurvivor @childrapesurvivor.bsky.social Nowhere I ran could I outrun my father who stalked me for decades. Now he is dead I can talk about it. Decades of trauma.
1 in 3 girls lives with child rape.
I have PTSD & Intergenerational Trauma.
No Genocide, Covid Safe, Queer, Climate Change Action
Rob G @ribenab1.bsky.social Grandma Bobby. Retired. Once was uni film producer; sub-editor; media analyst. Now just a worrier.
Ruth Spencer @ruthmspencer.bsky.social GP Glasgow, interests- Homelessness, addictions, mental health.
Cat Fraser @catsocialintel.bsky.social Building a new way for business + society to protect people (like we protect the planet) #biosysystemsprotection #bioscience #bioreality #data #design #green Community-led always 💛 #pwME #fbLC @laboflivedexp.bsky.social
🌍 protecthumanbiosystems.world
Martin Bonner @argentas.bsky.social Exeter, UK. Interests include Science, Technology, Medicine, Healthcare, and Disability Rights. Partner of Heart/Lung transplant recipient.
Here to escape the toxicity of X, but you can find me there too as @MartinJBonner
Stephanie Mathis, MLS(ASCP) 😷💜 @stephmu00mls.bsky.social USA nationally certified Medical Laboratory Scientist who has traveled to 11 states in 20 years,
works overnight shift, and loves Microbiology and Blood Bank!
(Also singing, reading, cooking/baking, & cuddling/playing with her Mom's kitties! 😻)
Nurme / Caveguy22 🐸 (MRVN Music) @caveguy.bsky.social Hi :> am a Fenno-Swedish musician, genealogist, & writer! ✨
LGBTQIA+ Rights ❤️
🌺 (Currently playing Slayer with ME/CFS, Ehlers Danlos, & Fibromyalgia) 🌺
💎 Chronically ill friends, you are all very welcome here 💎
https://linktr.ee/mrvnmusic 🎶 :D
Isabelle @invisibleisabelle.bsky.social Posting about my live with #LongCovid in order to find new ways of engaging with it and making an invisible illness visible
GelfyCheriru @gelfycheriru.bsky.social 🎨🖌️Artist/Designer/Photographer/Crafter 🖼️📷
🥄 Spoonie/Disabled ♿ Neurodivergent
🕸️ Alternative&Witchy🕸️
🦹♀️She/her🧙♀️
🚫No Ai/NFT
https://linktr.ee/gelfycheriru - for all links
https://ko-fi.com/gelfycheriru - for support, memberships, and shop
Keith White @keithwhite832.bsky.social HTX Age 44, a huge sports fan, political nerd, Anti Trump, Anti Racist, pro freedom, pro women's rights and pro porn at times. #BLM #BIPOC African American, Native American and Afro Latino. x.com/keithwhite346
rachel @rachlke.bsky.social reader🌙🔮📚she/her- M @mum2twins.bsky.social @mum2twins.bsky.social
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
@jhuff.bsky.social @jhuff.bsky.social I generally don’t deal in absolutes
Oxaloacetate CFS @oxaloacetatecfs.bsky.social A Medical Food clinically proven to lower fatigue in patients with Long Covid & ME/CFS
Tired of being tired?
oxaloacetatecfs.com
SeeClairely @seeclairely.bsky.social Developed long Covid after being infected in March 2020. Once a scientist always a scientist. Campaigner for recognition, research and treatments. Limited spoons! #FBLC #covidisairborne #cleanair #longcovidawareness #ThereForME
Kerry @covidconscious.bsky.social Covid aware 🦠 masks in healthcare
😷🏥 #longcovid #mecfs #pots #mcas - O @onedavidwright.bsky.social @onedavidwright.bsky.social
public 4 Public Health 🇨🇦🇪🇺 - with 🇺🇦🇬🇱 @public4ph.bsky.social 🏠🦛 = www.breakthefake.ca
📣: #needPH
Here (to):
- support knowledge & professional voices
- for thought-provoking 🗣️
- connect people to info & info to people
NOT here to make a career, why I stay anonymous!
Typos are proportional to my stress levels!
fhronesis @fhronesis.bsky.social Me/cfs severe Housebound, mostly bedbound. Used to love arts, philosophy, painting, theater, gardening, human sciences... Neuro issues, I can't enjoy or easily do that anymore. Antivalidist.
Lisa Wiedemann @lisawiedemann.bsky.social researcher/lecturer/STS science and technology studies/working on ME/CFS/LongCovid/digital health/type 1 diabetes care/material semiotics
@patrb.bsky.social @patrb.bsky.social Love cats, books, music, art, and Democracy
PH 🕊️🌱😷 @ph-ph-ph.bsky.social 🕊 2050 is too late 🌏 it’s a climate + biodiversity EMERGENCY 🦋 SARS-CoV-2 is in the AIR: ventilate/HEPA #BetterMasks 😷 #ZeroCovid 🌱 PUBLIC Health
EVERYTHING is connected
30,000(+) 💔 AUS SARS2