Long Covid Switzerland @longcovidch.bsky.social Long Covid Switzerland. The voice of people affected by long covid and long covid kids. Evidence-based, provaxx, promask, protect the kids. 
Sus Scrofa @susscrofa.bsky.social Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin.
Wer solche Fragen an mich stellt, wird blockiert.
Golightly @holdgolightly.bsky.social Früher Künstlerin, Textildesignerin, Reisende.
Eine von #MillionsMissing seit ca. 1987
Halt ich so @pfarrermitmaske.bsky.social PfarrermitMaske und Seelsorger im Gesundheitswesen unterwegs (he/him)
ME/CFS-Netzwerk Baden-Württemberg @mecfsbw.bsky.social Das ME/CFS-Netzwerk Baden-Württemberg gründete sich im April 2022 und engagiert sich seitdem für die Wahrnehmung von ME/CFS
https://mecfs-freiburg.de/
Dt. Ges. für ME/CFS @dgmecfs.bsky.social ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
mecfs.de
ICanCME Canadian Research Network @icancmeresearch.bsky.social Interdisciplinary #Canadian Collaborative #MyalgicEncephalomyelitis Research Network (created in 2019).
#MECFS #PwME #LongCovid
(Account managed by Sabrina.)- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.
jardinduvin @jardinduvin.bsky.social 🦭🦭🦭 (er/ihn)
https://linktr.ee/jardinduvin
Dan Wyke @danwyke.bsky.social Severe M.E., person-centred counsellor (not practicing), recovering poet (Rack & Waterloo Press)
Dr. Daniel Loy @drdanielloy.bsky.social Ehemann, Jurist. #MECFS.
Team #SIGNforMECFS. Team #GOfundMECFS.
One of the #MillionsMissing.
Bettina Semolina @bettinasemolina.bsky.social #mecfs
(sie/ihr)
"Es ist hoffnungslos, aussichtslos und ermüdend, aber noch schlimmer wäre es, wenn wir aufgeben würden."
Profilbild: Ölbild einer liegenden Person vor einem Teich
Header: Ausschnitt einer Person, die ein Fadenspiel vor sich hält
Stephen MIA @stephenmia.bsky.social Former Skier, Cyclist, Climber, Hill Walker, Diagnostic Radiographer and functioning human. Now - ME, POTS, LC, Vax Injury - Pro Vax - Still finding the joy
Sandra _mecfs_since1987 @pociomo.bsky.social
#severemecfs #mecfs
Jennifer Brea @jenbrea.bsky.social 
Stephanie Grach M.D. M.S. @grachstephanie.bsky.social Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers | https://t.co/TkYm2MXvir
LightUpTheNight4ME @lightupthenight4me.bsky.social Offizieller Account
ME/CFS Awareness, Aufklärung und ein bisschen mehr
https://lightupthenight4me.wixsite.com/website 
Karin @pantoeffelchen.bsky.social #dogs. #podcasts. #audiobooks.
living a kafkaesque life due to #MECFS.
Raul Krauthausen @raulkrauthausen.bsky.social Sent from my wheelchair ♿ ️
Autor | Moderator | Medienmacher
Aktivist: #Inklusion & #Barrierefreiheit
www.raul.de
RonjaR @ronjar.bsky.social #MECFS since 2004
Der Postillon 📯 @der-postillon.com Ehrliche Nachrichten - unabhängig, schnell, seit 1845
@crashi.bsky.social @crashi.bsky.social ME/CFS 
Erin C. Sanders, MSN, WHNP-BC @erinsandersnp.bsky.social Proud Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | Catalyst | Connector | Healing | #JusticeAccomplice | She/Her
Nina @verlorenezeit.bsky.social Industrial engineer with severe M.E.
Art, astronomy, writing, podcasts, thunderstorms. 
Juli Maëlle @julimaelle.bsky.social Ex-Fotografin 📸 & Musikerin 🎶,
jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie.
Leidenschaft still on.
#noAfD #wirsindmehr
Michael Stingl @neurostingl.bsky.social Facharzt für Neurologie
ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Lisa @lisathefirst20.bsky.social 23 | #MECFS #SFN |
hausgebunden
Marina Weisband @afelia.bsky.social Bildung, Beteiligung, Demokratie.
DrCWerner @drcwerner.bsky.social #Familydoctor #GP
#InternalMedicine #MedicalTribune #nutritionalMedicine #0-
TonAllgemeinmedizin
Pflegeherz @pflegeherz.bsky.social Krpfl. - Med./Pfleg. Fachbubble - Parteilos: SARS-CoV-2, LC, PCS, ME/CFS, PAIS, MS, Borreliose, Studien. Spielt kein Taubenschach. Trolle, Evidenzlose, Pechdenker und andere Wirre werden direkt kommentarlos ausgeblendet und blockiert!
Tess Falor, Ph.D. @tessfalor.bsky.social Founder - Renegade Research
#MECFS #LongCovid
Melanie Schickedanz @xixmelaniexix.bsky.social #Krankheit #Behinderung #MECFS #LongCovid Trying to make the world a little bit better.
Open Medicine Foundation (OMF) @openmedf.bsky.social OMF is fundraising to support open, collaborative research to find effective treatments and a cure for ME/CFS, Long COVID, and related diseases.
symptomodyssee @symptomodyssee.bsky.social Bessere Diagnostik & Versorgung für Patient*innen mit untererforschten Krankheitsbildern.
"Das ist nur Stress" ist keine Diagnose.
symptomodyssee@chaos.social
Dr. Sabine Hermisson 🦋 @sabinehermisson.bsky.social PD Dr. (religion, empirical education research)
mother of Mila who suffers from very severe ME/CFS (Bell 0)
https://milaandmecfs.files.wordpress.com/2022/05/mila-spiegel.pdf
Vienna, Austria
#CleanAir
Eric Topol @erictopol.bsky.social physician-scientist, author, editor
https://www.scripps.edu/faculty/topol/
Ground Truths https://erictopol.substack.com
SUPER AGERS https://www.simonandschuster.com/books/Super-Agers/Eric-Topol/9781668067666
Bettina Grande @bettinagrande.bsky.social Psychological psychotherapist | Heidelberg & Charité Berlin
Advocacy against psychologization of #MECFS, #PEM & #PENE
Research & psychotherapy
adapted to ME/CFS
Psychotherapie-Netzwerk ME/CFS
https://doi.org/10.3390/medicina59040719
Dr. Markus Fraczek @mareksjf.bsky.social • Scientist ‖ PhD mathematical physics (not MD) ‖ Dr. rer. nat.
• Interests: Medicine ‖ History ‖ Global Politics
• #MECFS ➡️ http://mecfs.de/was-ist-me
• EN ‖ PL ‖ DE
DrChronically M.D. @drchronically.bsky.social 
schreinerorg @schreinerorg.bsky.social documentalist | one of #millionsmissing | team #GOfundMECFS & #SIGNforMECFS | suffering from #myalgicencephalomyelitis 08 | 1. FC Union Berlin
Julia @juliawithmecfs.bsky.social Alles rund ums Leben mit ME/CFS, POTS, CRPS und vielem mehr | Aufklärung und Bewusstsein
Naomi Harvey PhD @naomidharvey.bsky.social Zoologist & veterinary research. She/her.
22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️
Patient Expert in ME/CFS, POTS and syndromic Long Covid.
Please excuse my typos.
It's ME(Jaime) @exceedhergrasp1.bsky.social Scientific Director, #MEAction
Affiliations: Stanford Genome, Université de Montréal
TIME100 Health
#ME, #EDS, #POTS, #LongCOVID
Views my own
Irish ME/CFS Association @irishmecfsassoc.bsky.social Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research
NB: Posts ≠ advice.
Registered Charity RCN 20100254.
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
#MEAction Network @meactnet.bsky.social A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet
#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
#MillionsMissing Sweden @millionsmissingswe.bsky.social #MillionsMissing is a global campaign for ME health equality!
https://meaction.net
#MillionsMissingSweden #MEAction #MECFS #pwME #svmed #MEAwarenessHour
Ben H @benhmecfs.bsky.social ME/CFS patient advocate, Open Medicine Foundation science correspondent. Bedbound. Former: exercise physiology, biochemist in training, athlete-Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.
Janet Dafoe @janetdafoe.bsky.social ME/CFS patient advocate and caregiver. Mom to Whitney. Spouse of Ron Davis. Child Psychologist. 
RemissionBiome MECFS/LongCovid Patient-led Research Project @remissionbiome.bsky.social Project run by #RenegadeResearch @renegaderesearch.bsky.social a non-profit 501c3 decentralized org pioneering patient/caregiver led research focused on #MECFS & #LongCovid • Renegade-Research.org • RemissionBiome.org 💙 Donate now ▶️ tinyurl.com/44azdsxm
Martin Rücker @martinruecker.bsky.social investigativjournalist | www.martin-ruecker.com | Threema: TUFVC84Z
sibylle dahrendorf @sibylledahrendorf.bsky.social Ex-filmmaker, home & bedbound due to #ComplexChronicIllnesses II https://sibylledahrendorf.jimdofree.com II https://linktr.ee/sibylledahrendorf II
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
Carole Bruce @cabruce.bsky.social Previously a psychotherapist.
Bedridden #ME 32years
Daughter severe ME, eldest son MS.
I like art, nature, books, people, music, poetry and podcasts!
̷L̷o̷r̷e̷n̷z̷ ̷ @restthingever.bsky.social formerly{{Passionate Software Developer. Guitarist, singer, songwriter. Foodie and traveller}}. Lover of Art Déco, geometry & Sci-Fi.
Struggling with ME/CFS since 2020. Currently at Bell 50.
Based in 🇨🇭
#MECFS #pwME #MyalgicEncephalomyelitis
Chantal Britt @chantalbritt.bsky.social Science journalist/comms, researcher, chronically impatient & difficult patient. Long covid, ME, ProVax, AntiGlobuli
@ BFH, Long Covid Switzerland & Europe, Kids CH, SPO, Swiss PPIE
Ex Bloomberg, Swissinfo, SAKK, ESCMID, SCAHT, 3RCC, ENOVAT, EUPATI
ME/CFS News @mecfsnews.bsky.social News, interesting information and commentary on ME/CFS.
Ö. Ges. für ME/CFS @mecfs.at 💛 Österreichische Ges. für #MECFS
⚡ NEWS zu #MECFS #pwME #myalgicE
👇 Informationen, Spenden, Kontakt
http://linktr.ee/oeg_mecfs
https://mecfs.at/
Tom Kindlon @tomkindlon.bsky.social 95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 37 years, severe ME 32 years.
@IrishMECFSAssoc trustee 29 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
Julie Rehmeyer @julierehmeyer.bsky.social Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. I mostly write about complex chronic illness and math. Bylines in NYT, WashPost, Discover, Wired, Slate, Stat News, Science News, lots more. She/her.
Malu @maluxx.bsky.social Ärztin, lange in der Versorgungsmedizin gearbeitet, VersMedV „Expertin“, Hilfe bei Antrag, Widerspruch, Klage
🔹ME/CFS 🔹MCAS 🔹LongCovid