Angela @j-beanz.bsky.social Democratic supporter. Dog mom. Fed up with the impact of Trump's policies on our people. I love my blue state.
Litsa Dremousis @litsadremousis.bsky.social ALTITUDE SICKNESS (Future Tense Books). Upcoming: A EULOGY FOR THE LIVING. Left WaPo b/c of Bezos. The Blvr, Esquire, Flare Lit Mag, McSwy's, NPR, NY Mag, NYT, Pictura Journal, P&W, PW, The Rumpus, Short Beasts, et al. #pwME https://litsadremousis.com
Brian Shuell @bshuell.bsky.social 
Carey @29carey29.bsky.social Adjusting to chronic illness caused by a virus being ignored by society. Wanting to connect with others to learn and find community.
#LC #POTS #Keepmasksinhealthcare #AirborneAware #Covidisn’tover
pumpkin @pumpkinstars.bsky.social hi im pumpkin. she/her. 🧠🌶️. Asexual. Anti-racist. I like gardens and colors. ME/CFS, hEDS, MCAS, POTS, Fibro. bed tethered. i love people and also people scare me. 🇺🇸
Chimere L. Sweeney @chimsween20.bsky.social I am a Black disabled woman with Long Covid. Activist, writer, speaker, panelist, and fake lecturer (lol). Owner of the Black Long Covid Experience and curator or The Blackest Side of Long Covid via Substack. Holla at me.
info@blacklongcovidexperience.com
JustAnne @smartpatient.bsky.social Having had and treated patients with chronic conditions and serious medical issues, I am here to provide support for those who need it and learn more.
Uniquely Me )0( 🌊🇺🇸🇺🇦 @psychichealerc.bsky.social Mom to ND son born w/ a missing part of his brain, Mom to 7🐈 & 🐇 Wife, Liberal, OH, Bookworm, Steelers, AI /Graphic Design Artist, Psychic Witch. Dad fought in Vietnam I am Fighting for Democracy! 🇺🇦🇺🇸💚😪 Ftrump
Solidarity RPM @solidarityrpm.bsky.social Darren Mark Skilton - Brighton & Hove. Left. Supporting activism, social action, and activist organisations. Collective Action.
Socialist. LGBTQIA+. Anti-facism. Anti-racism. Climate activism. Free Palestine. NHS. Love and Solidarity.
Health Citizens Institute @healthcitizens.org From Environment to Health
From Science to Policy-Making
Chris Young @squarepegsuk.bsky.social There’s Nothing About us Without us
Every day massive, life changing, decisions are made by those in power without us
Together, people like us can use the power of collective action to bring about change
Join us
https://squarepegsuk.substack.com
Chronic Living Therapy (a directory) @chronicliving123.bsky.social Soon launching - a directory of therapists who understand the biomedical nature of #MECFS, #LongCovid and many other chronic illnesses. https://chroniclivingtherapy.com/
Miranda @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
Cranky Queer Guide to Chronic Illness @crankyqueer.bsky.social #Queer and #trans #disabled people have always had to find new paths for our survival
#Illder storyteller and strategist: http://thecrankyqueer.substack.com
#PandemicsAreChronic
❤️T4T❤️Mask4Mask❤️ #FBLC
Long Covid Safety Net @longcovidsafetynet.bsky.social Advocacy for people with post-viral illnesses facing homelessness, domestic violence, and poverty. We need a safety net for Long Covid and ME/CFS.
New York City | longcovidsafety.net
VirusSucks.com @virussucks.com #LongCovid since May 9, 2022. I was out for my morning run when exhaustion hit me. PEM, orthostatic intolerance, etc
Last #SARSCov2 infection: April 2022.
Medical news
https://m.youtube.com/@VirusSucks-com/shorts
#COVID is airborne so ventilate
Letícia Soares @leticiasaurus.bsky.social Co-lead & patient-researcher @patientled.bsky.social. Biologist, PhD. Brasileira. 
Bateman Horne Center @batemanhornecenter.bsky.social The Bateman Horne Center is a medical center of excellence for people with ME/CFS, Long COVID, fibromyalgia, post-viral illness, and comorbid conditions.
Rivka Solomon @rivkabluesky.bsky.social • Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women
• Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek
• Playwright: Dozens of productions
Amber Christ @amberchrist.bsky.social Managing Director, Health Advocacy @justiceinaging.org
Posting on all things Medicare and Medicaid for older adults. Sprinkles of humor, music, & VW Buses. She/her
Kansas Citian
Mia Mingus @miamingus.bsky.social transformative justice. disability justice. abolition.
(she/her)
https://leavingevidence.wordpress.com
https://www.soiltjp.org
Justice in Aging @justiceinaging.org Since 1972, we've used the power of the law to fight senior poverty nationwide. Explore our resources: https://to.justiceinaging.org/resources
American Association on Health & Disability @aahealthdisability.bsky.social https://aahd.us/linktree/
AAHD is dedicated to ensuring health equity for children and adults with disabilities through policy, research, education and dissemination at the federal, state and community level.
COVID Safe Campus @covidsafecampus.bsky.social Disabled academics and advocates with public health and policy expertise, challenging ableism and fighting for COVID safety in higher ed and beyond.
Supporting students and organizing since January 2022!
https://linktr.ee/covidsafecampus
Richard Corsi @corsiaq.bsky.social Dean - College of Engineering at the University of California, Davis. Indoor air quality researcher. Dog lover. Music lover. Acoustic guitarist. Faith in younger generations.
Posts are my own.
National Disability Rights Network @ndrnadvocates.bsky.social We are the national membership association for the congressionally mandated Protection & Advocacy Systems and Client Assistance Programs. https://linktr.ee/ndrnadvocates
Berlin Buyers Club @berlin-buyers-club.bsky.social Cure Long Covid & ME/CFS berlinbuyersclub.com
C.H. Romatowski @romatowski.bsky.social Editor, translator, filmmaker. Recovering academic. Leftist. Perfumista. ME/CFS, MCAS, POTS. EN/FR. She/they. DMV. More some days than others.
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
LongCovidPharmD @longcovidpharmd.bsky.social Pharmacist interested in Long COVID and ME/CFS research
Pro-mask, pro-clean air!
Substack: https://pharmd.substack.com/
Still COVIDing Canada @stillcovidingca.bsky.social https://stillcoviding.ca/ | https://linktr.ee/stillcovidingcanada
#StillCoviding #COVID #CovidIsntOver #LongCovid #CovidLongue #BringBackMasks
Mike Hoerger, PhD, MSCR, MBA @michael-hoerger.bsky.social Expert in weighing medical evidence, cancer, COVID forecasting & mitigation, health disparities, financial analytics. 120 publications. PhD program director. Cancer center program leader.
pmc19.com/data
psychmike.com
Dr Elisa Perego @elisaperego78.bsky.social #LongCovid | researcher | Covid | infectious disease | health, disability, inequality in present and past | human-environment interactions | big data | medicine history | patient-led research | MA PHD| ≠ MD |
Dr Claire Taylor @drclairetaylor.bsky.social 
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
Judy Stone @drjudystone.bsky.social Infectious disease doc. Holocaust memoir Author: Resilience: One Family’s Story of Hope http://bit.ly/ResilienceStone & Conducting Clinical Research http://bit.ly/CCRText ID doc, freelancer/Forbes contributor, amateur photographer.
Joaquín Beltrán @joaquinlife.bsky.social 
Long COVID Physio @longcovidphysio.bsky.social #LongCOVIDPhysio is an international peer support, education and advocacy, patient-led association of Physiotherapists living with #LongCOVID & allies
https://bio.site/longcovidphysio
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Long Covid UK @longcoviduk.bsky.social Long Covid UK is a charity working to reduce the impact of Long Covid and improve the lives of all affected.
Long Covid UK is a working name of Long Covid Support (Registered Charity in England and Wales: 1198938 | Company: 13422248)
Dr. Lisa Iannattone @lisaiannattone.bsky.social 
MeetJess @meetjess.bsky.social Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
Amanda Finley Digs All the Things @rubyslippahs.bsky.social COVID long-hauler. Former archaeologist, opera, fed employee. Kids & homeless. Feral princess. Topes #WearAMask Comms: @publichealthaction.bsky.social
📍 Ba'al Pit
FB: is.gd/bp2vTA
Media: covidlonghaulers@gmail.com
YouTube.com/@covidlonghaulers
She/her
The John Snow Project @johnsnowproject.bsky.social Reliable, honest information on COVID-19 from public health, clinical, and research experts. http://johnsnowproject.org
Dr Rae Duncan @sunny-rae1.bsky.social Consultant Cardiologist, also treating and researching Long Covid. Long Covid Advisory Team @ WHN, #TeamClots, Medical Champion @ Long Covid Kids. Prevention is better than cure. Views my own and not medical advice x 
Conor Browne @brownecfm.bsky.social Biorisk analyst
Katy B @katybrc.bsky.social Myalgic Encephalomyelitis - M.E + POTS for 38 years
Donor to the UK MEcfs Biobank for 10 years & @DecodeMEstudy
Please watch http://dialogues-mecfs.co.uk/videos/
London, UK
No DMs please
#pwME 
Clinically Vulnerable Families 💙💜💗 @cvcev.bsky.social UK Covid-19 Inquiry Core Participant
Safe access to health, workplaces, education and beyond
Donate: http://bit.ly/CVFdonate
JOIN us on FB 📸cv_cev ❌️@cv_cev
www.clinicallyvulnerable.org
Prof. Bethan Evans @drbevans.bsky.social Professor of Human Geography at Uni of Liverpool, research on chronic illness, energy limiting conditions, fat embodiment. Feminist, Fat Activist, Spoonie, PwME, Friend, Sister, Daughter, Person. Hobbies: SF, cats, knitting/crochet. she/her or they/their 🏳️⚧️
Lucibee @lucibee.bsky.social Science defender and eco-worrier.
(she/her)
No DMs please (can't access).
Nasim Marie Jafry @nmjk.bsky.social The State of Me, HarperCollins, 2008 | Shortlisted Bridport Flash Fiction Prize 2012 & 2023 | Love jazz, tulips, birds, French films | Second novel in progress | Had ME since 1983 https://societyofauthors.org/soa-member/nasim-marie-jafry/
Dom @dom2023.bsky.social ME since 2016. Have been working on microbiome since 2021. Finally got a test in 2023 with symptoms at 90% (first time in five years). Discovered four biomarkers in my sample correlated with 90%. Hope to maintain 90% in 2023/4.
Tatiana Trifan #FBLC @tatianatrifan.bsky.social Life is full of surprises, but never when you need one.
Completely allergic to any form of racism, sexism, genderism.
#StandWithUkraine
Views are my own
sarah boothby @swastrosarah.bsky.social Speaking up for everyone affected by severe/very severe ME/LongCovidME. #MEKills #MaeveInquest #pwME
backstory: https://x.com/swastrosarah?lang=en-GB Justice4ME.uk
ME is much more than chronic fatigue; it kills every year.
Nate Bear @natebear1.bsky.social Ecology, tech, empire, public health, other stuff.
About me and where I write about these things:
http://donotpanic.news
Jose-Luis Jimenez @jljcolorado.bsky.social Dist. Prof. Chem. & CIRES, Univ. Colorado. #HighlyCited2022, Fellow AAAR & AGU. http://Bit.ly/TenSR http://Bit.ly/ATRVs Aerosols, pollution #EndFossilFuels #COVIDisAirborne. Views are my own
Sally Witcher @salwitcher.bsky.social Working for a safe, inclusive world that prioritises people and planet not profit.
Esther @elhopkins.bsky.social Composer
Clean Air Advocate
#Covidisairborne #FBCV
Vote Green Party 💚
#Feminist
Nathalie Pearson @natpearson.bsky.social #Hampshire
#SafeAirSchools
#Climate #Nature #LongCovid
Devoted mother | Founder SafeAirSchools.org | Proud King’s College London alumna | Founding Member Long Covid Kids | Passionate about healthcare | Leave nobody behind | Neurodivergent
Ruth Brooker @ruthbrooker.bsky.social Teller of stories. Drinker of wine. Parent to small boys and trying not to lose my brains. Travel by bike. Magazine writer on pause.
Clean Air Campaigner #CleanAirforKids
https://www.cleanairforkids.co.uk/
Paula Knight 🎨✒️♿ @paulaknight.bsky.social Author, illustrator, comics creator
THE FACTS OF LIFE (Myriad) Kidlit Books x3
Words and pictures
https://linktr.ee/paulajknight
https://www.redbubble.com/people/PaulaJKnight
https://ko-fi.com/bedscapepaula
Bedridden #MEcfs ♿ TAC/ Migraine
cbme-mark.bsky.social @cbme-mark.bsky.social Severe ME/CFS with added Long Covid. Running a support group in Cambridge, UK.
Pronouns: depends how the day pans out
Anil van der Zee @anilvanderzee.bsky.social Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using BlueSky to raise awareness for #MyalgicE | #IACC I #PAIS
#art2cureME #pwme #millionsmissing
MAIKEONE[big] @maosbot.bsky.social Mother, wife, Australian, Professor of Machine Learning in Oxford. Long Covid, trans rights, music, reggae, AI must be good for humans, https://www.robots.ox.ac.uk/~mosb. She/her 🏳️⚧️🏳️🌈
Kimberly Prather PhD @kprather.bsky.social Atmospheric Chemistry professor, air quality, clouds-climate, health, viruses, bioaerosols, public speaker, environmental justice. ❤️ ❤️ gardening, cooking, empathy.
https://airborne.ucsd.edu
https://kprather.scrippsprofiles.ucsd.edu/
Kirstie Sivapalan @kirsties.bsky.social UK #pwME #pwLC #MECFS #LongCovid #PEM (post-exertional malaise)
as well as #Politics and other related chat. I use lists to manage my chats here. Feel free to use them or ask to be added
https://writingandme.com/
https://open.substack.com/pub/kirstiesi
George Monbiot @georgemonbiot.bsky.social Ungainly on land
Rupert Higham @ruperthigham.bsky.social 🧑🎓@UCL |⚖️Values-based leadership |✊Educational dialogue & agency | 🌍Humane intelligent responses to global threats |💕 Carer for #LongCovid-affected family
Trish Greenhalgh @trishgreenhalgh.bsky.social DEI hire. Prof of Primary Care, Uni of Oxford. Researching digital health/ inequities, covid prevention (masks/ air quality). Wild swimmer. Mum to Rob (marine bio) & Al (doc). She/her. https://scholar.google.com.au/citations?user=QDCqsJwAAAAJ&hl=en&oi=ao
Erin Biba @erinbiba.bsky.social She/Her
Freelance Science Journalist. Fact Checker.
NatGeo, BBC, SciAm, NBC News, PopSci, WIRED, and others.
Hire me to fact check your book.
I post about Jewish stuff, disability, Star Trek, and The Buffalo Bills.
Jersey girl.
Prof Sheena Cruickshank @sheencr.bsky.social Immunologist & science communicator based at UoM fascinated by our immune response to threats (pathogens, pollution) & microbiome & how this exposome affects health. Also quite likely to share random dog and nature pics 🧪👩🔬 #AcademicSky #SciCom
Sarah Barley-McMullen (she/her) @sarahbarleymc.bsky.social Ill health retired 😞FHEA🎓Christian. Chair, Pride in Belper 🏳️🌈🏳️⚧️. Chair, Long Covid SOS. JNC. Married to my Wife. ❤️Long Covid-autoimmune/immunocompromised
@michaeltikus.bsky.social @michaeltikus.bsky.social 
Tapanui 'Flu @tapanuiflu.bsky.social Myalgic Encephalomyelitis since 1983 Tapanui Flu epidemic | #ME | #PwME | #LongCovid ally | Covid cautious
Grandmother | Ex social scientist | Mostly housebound | On welfare
Website: tapanuiflu.blog
Aotearoa | New Zealand
@BendyHEDS&Co @bendyhedsandco.bsky.social For Awareness & Support of
#Hypermobility #hEDS/HSD #POTS #ME/CFS #MESpine #Stenosis #MCAS & co.
#PANS/PANDAS & #LongCovid ally
#NEISVoid
#MedEd for EDS/HSD & co 🔗 conditions go to:
👉 https://gptoolkit.ehlers-danlos.org/ 👈
Dx Revision Watch @dxrevisionwatch.bsky.social Formerly monitoring/reporting on developments with ICD-11, ICD-10-CM, DSM-5, SNOMED CT & other classification and terminology systems
Katie J. @kjohnstone.bsky.social ME/CFS and related things. (she/her)
I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social
Richard Vallée @richardvallee.bsky.social I play language. Mostly irreverent. Debugger.
AI. Global warming. Integrity. Health. Science.
Chronically ill punk rocker.
I think about the future a lot.
Emma Wooller @emmawooller.bsky.social - J Jenny Ceolta-Smith #FBLC @jceoltasmith.bsky.social Background #RetiredOccupationalTherapist due to #LongCovid background in vocational rehabilitation & PhD research includes #DWP policy, provision & front line practice. Not fully active here yet.
Ravi Veriah Jacques @ravihvj.bsky.social Post-Covid ME/CFS since March 2021. Before then, a life I loved.
Stanford History | 2021 Schwarzman Scholar
Dormouse @dormousediaries.bsky.social Cartoonist, #BylinesNetwork, artist, occasional writer, and sketcher of things. Likes tea and books. Sometimes hibernates.
Living with #LongCovid
Profile picture: Dormouse in a teapot chewing on an ink-pen.
Banner: Cup, saucer and a dormouse with a pen.
Ruairidh Milne @ruairidhm.bsky.social Long Covid since March 2020.
“Nothing about me without me” - doesn't seem unreasonable.
Previously: health research, public health, technology assessment and appraisal
Also some Shetland!
Dr Jo Greer @drjogreer.bsky.social Mum, Carer, Educational Psychologist
www.theredtreeandME.com
James Glen @jamesglen.bsky.social Having a bit of a break O_o
● Founding member @LongCovidSupport
● Long Covid advocate #FBLC
● Watford FC fan
● #FBPE 🇪🇺
Ciara Wright PhD @ciarawrightphd.bsky.social Long Covid March 2022, life on pause as Functional Medicine Nutritionist, Scientist, Mountain Runner. Loves trees, houseplants, dogs, profanity. Liberal Atheist, she/her
Stickman Communications @stickmancomms.bsky.social Stickmen helping to build understanding and acceptance of hidden disabilities and chronic illness, in a way that empowers us. (Run by Hannah Ensor - who has #hypermobility #PoTS and probably other stuff.) +talking about personal experience of #disability
Lizzy @hopefullizzy.bsky.social 31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice✨ Bristol, UK
Whitney Dafoe @whitneydafoe.bsky.social Severe ME/CFS patient and advocate. Writer, photographer, filmmaker. artist, activist, creative. Bedridden since 2013 sick since 2004. Never. Giving. Up. ✊
Antonio Caramia @antoniocaramia.bsky.social 
John Peters @johnthejack.bsky.social Unbeliever (political & religious), Wales rugby, #c4news, porridge, tea, #MEcfs
'Obvious but wrong'
Also JTJ on the other place
https://johnthejack.com
Chronic Illness Channel @chronicchannel.bsky.social Youtube Channel covering Chronic Illness, Universal Basic Income and Air Quality.
https://www.youtube.com/@ChronicIllnessChannel
Clean The Air http://bit.ly/CleanTheAirUK
Jen DressForME @jengovey.bsky.social I dress up in fancy dress for the charity Invest in ME Research to raise funds & awareness of Myalgic Encephalomyelitis. In a previous life I worked in film. I’m an advocate for good science, treatments & better healthcare for #pwME. 
Dr Ben King 🌍 @benking01.bsky.social Long Covid & PE recovery.
GeographyTeacher.
Sustainability & Climate Change.
BSc Env Science & Physics (Stirling).
Soil Erosion PhD & Geog PGCE (Exeter).
Tuba player.
Devon, UK
Amy Boylan @amyboylanwrites.bsky.social Freelance #copywriter. PhD Geology. Life on ⏸ 1st 🌊 #LongCovid #PoTS #MCAS #LongCovidKids #CovidIsAirborne 😷