victoria @vashetc.blacksky.app † doktora | research+policy | perpetually horizontal
ID’s: Brown skin grl w/ curly hair wearing shirt that says hot girls arent ableist. Banner: Sepia picture of a couple married w/ family around.
vashetc.com | restandmecfs.com | survivorsandallies.com
TeasetMonster @teasetmonster.bsky.social Teaset(she/her) ✦🫖🗝️✦ When my body and brain aren’t too broken by ME/CFS, I draw art. And no matter what, there’s always tea. (I'm also @dailyteaset.bsky.social )
🩵 my art tag -> #TeaMonArt
https://teasetmonster.carrd.co/
@violet-rose58.bsky.social @violet-rose58.bsky.social 4 years cancer survivor who loves to make people laugh
Love of animals
Heather Paterson @heatherpaterson.co.uk Head of Partnerships and Development @consortium.lgbt | Chair @proudchangemakers.bsky.social | LGBTQ+ Columnist Exposed Magazine
Proud queer 🏳️🌈 Trans ally 🏳️⚧️ Intersectional feminist ✊ Anti-fascist #LGBWithTheT
www.heatherpaterson.co.uk
Erin Ryan Hey ♿️ @erinryanhey.bsky.social disabled writer, speaker, educator, and creator | 🏳️⚧️
Profile:  white person with glasses and brown hair, smiling
Banner: my life has always been a continuous struggle with ill health and ambition, and I have mastered neither.
Marushka-T @marushka-t.bsky.social PwME since 2000. Focused on queer & disability rights & advocacy. Allergic to pseudoscience. Looking forward to the decline and fall of the neoliberal empire. No DMs pls.
#ME/CFS #🏳️⚧️ #🏳️🌈 #SlavaUkraini #FreePalestine #COVIDaware #EatTheRich
oceans_of_mona 🏳️⚧️ @vanillablue.bsky.social They/She
Queer + trans + non-binary
Tri-Cities, WA ➡️ Bellingham ➡️Columbus
AuDHD
Seattle Seahawks
Columbus Crew + Blue Jackets
Film dork/Blankie
Born into indie rock, moulded by it
Letterboxd https://boxd.it/2I4Dj
Sampler playlist http://bit.ly/3YZSNUd
Disability Culture Lab @disabilitylab.bsky.social DCL is a nonprofit disability media and narrative lab, by and for disabled folks. We exist to dismantle ableism and celebrate disabled community and culture.
https://linktr.ee/disabilityculturelab
Madeline Miller @madelinemiller.bsky.social Writer (The Song of Achilles, Circe), reader, theater lover. Cats, Long Covid. She/her. 
Katie Klocksin, by the wayside @katieklocksin.bsky.social One of the #MillionsMissing with #LongCovid #MECFS JohnVsJon.com // Once a radio and podcast producer, always a Transom alum // native plants
🌻🪻🌼
sararobitaille.bsky.social @sararobitaille.bsky.social While recovering from #LongCOVID, #MECFS, #POTS I discovered I am an #artist & #childrensbooks #author. Even with #disability, limitations, and symptoms, I am learning to love my life, knowing that I am enough. I want to share my gifts to help others!
ME/FM Society of BC @mefmsocietyofbc.bsky.social 
Chris | ME/CFS Research Foundation @ungenesbar.bsky.social LongCovid & ME/CFS advocate/activist // Project Manager and Creator at https://mecfs-research.org // Co-Founder https://unitetofight.org // creator of http://mecfsmed.de // gay 🏳️🌈
Homebase: Berlin
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
DecodeME @decodemestudy.bsky.social 🧬 The world’s biggest study of genetic causes of #MECFS. Launched September 2022. 🧬 decodeme.ed.ac.uk
Mads @blueforpwme.bsky.social 🇬🇧DxwM.E.1995-EBV.ex-dancer,⛱️lifeguard,performer,working on writing my 1st novel to rep #pwME! #PAIS I’m a dreamer,nature lover & surfer 🏄♂️🛹1-2 times a yr if I’m lucky. AuDHD Many undiagnosed comorbidities! Ie.MCAS.OI/DYSAUTONOMIA.EDS. GASTRO.CHIARI/SPINAL🦋
Beth F W @omfcharitymugs.bsky.social Severe ME/CFS patient since 2006, fundraising for the Open Medicine Foundation, all proceeds from all sales go directly to OMF, Worldwide shipping🩵
https://omfcharitymugs.teemill.com
TransActual @transactualuk.bsky.social Advocating, informing and empowering. By trans people, for trans people.
https://www.transactual.org.uk/
Info: info@transactual.org.uk
Press: press@transactual.org.uk
Social media policy: http://transactual.org.uk/socials
Disability Rebellion @disrebellion.bsky.social Welcome to the Disability Rebellion - a feisty fightback against ableism and cruel government cuts! • DM for Discord invite • DR links: linktr.ee/DRDRebellion
@womensartbluesky.bsky.social @womensartbluesky.bsky.social The original & only WomensArt created/ curated by art historian/author PL Henderson to celebrate/promote women in the arts.
Real art...real artists...No AI
Images © to respective owners
🌙biomimic🐾 @biomimic.bsky.social Disabled & ND. Writer, teacher, disability justice & advocacy. 💀to capitalism & imperialism. It’s the end of an era, build well-relations up from ashes.
Carrie Marshall - MySeveralWorlds.com @myseveralworlds.com ✒️ I write about life with severe #ChronicPain related to #SpA #PsA #MEcfs #fibromyalgia #APS
🦋 MySeveralWorlds.com
👩🦼 #DisabilityAdvocate
🤝 Team Fibro & Spondylitis
🎨 DISABLED ARTIST
🌴 https://linktr.ee/myseveralworlds
Ghost @ghostspiral.bsky.social Horizontal and housebound #mecfs — f**k the illness, f**k yoga! art nature fiction books chocolate trees clouds 🌧️ ex liver of a fun and interesting life
Deborah Brian @deborahbrian.bsky.social Recovering academic, research manager, #POTS, #ChronicIllness, etc. Opinions my own; fools not suffered. Meeanjin. she/her
Andrea Fighting for #MECFS Diagnostic Biomarkers @mecfsnanoneedle.bsky.social Severe #MECFS Patient
Bedridden. No energy to speak.
#MECFSDiagnosticBiomarkers
Drug companies need a #MECFS and #LongCovid diagnostic blood test for successful clinical trials.
https://mecfsdiagnosticbiomarkers.substack.com/
Katharine Cheston @kacheston.bsky.social Researching “the greatest medical scandal of the 21st century”. Infection-Associated Chronic Illness, activism, stigma, medical humanities. Postdoctoral fellow in Sociology. 
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
A tired human @saffronandsky.bsky.social disability justice💜 Mod chronic illness 4 decades. long covid in '22 = very severe MCAS, ME&POTs= bedbound. Parent, mixed race, writer, gardener ♿ 🏳️🌈☸️
Ellie @madknittrsteaparty.bsky.social Love crafts, history, stories, natural world & spending time with husband, children, family & friends. When M.E /CFS & POTS doesn't stop me - which is most of the time right now. Usually found in a dressing gown. Devon, UK ♿🌿🏳️🌈🏳️⚧️🕊
ME/CFS Research Foundation @mecfsresearch.bsky.social Für mehr ME/CFS Forschung!
We promote & finance #MECFS research!
ME/CFS: Myalgic Encephalomyelitis / Chronic Fatigue Syndrome
Linkübersicht: https://t.ly/Tt3W8
The Conversation UK @uk.theconversation.com Independent news website. Only publishes articles written by academics and researchers. No paywall, no ads. All Creative Commons licensed.
Sign-up now for our free newsletter: https://theconversation.com/uk/newsletters/
This account is mostly automated.
Disability Matters @dismatters.bsky.social A six year international programme of disability, health and science. Wellcome Trust Discretionary Award.
https://www.sheffield.ac.uk/ihuman/disability-matters
Trude Schei @tschei.bsky.social ME patient advocate, architect by training
Jennie Jacques @jenniejacques1.bsky.social Donate to Justice For ME here if you can please 🙏 💙🦋
https://shorturl.at/x1Vyx
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
Lorraine Boissoneault @lodrinkswater.bsky.social Writer, reader, Francophone, nerd. Fan of archaeology, dynamically disabled. Does the word thing for Smithsonian Mag, New Yorker, Great Lakes Now, YouTube science channels. Writing "Body Weather," a book about climate change & chronic illness
#MEAction Scotland @meactionscotland.bsky.social 
Solve M.E. @solveme.bsky.social Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.
Kathryn Hoffmann @kathrynhoffmann.bsky.social ME/CFS & postakute Infektionssyndrome (PAIS). Prävention & Primärversorgung.
- Univ.Prof. und Ärztin -
!Alles hier: my own opinion! = Private account
Spielt kein Taubenschach!
PoTS UK @ukpots.bsky.social Educates and supports patients, family, friends and medical professionals within the UK about Postural Tachycardia Syndrome (PoTS)
PoTS UK - Charity 1159813
https://linktr.ee/potsuk
Sam 🍉 😷 @spoonsnroses.bsky.social Arty, lefty tree-hugger and fat catlady. Yes to disability solidarity, no to discrimination in healthcare. She/her. Not all those who wander are lost, but I am.
Eleanor @eleanoralbaugh.bsky.social Crafter by necessity to stay occupied whilst dealing with health issues. MCAS PoTS Hypothyroidism (need T3 for life) ME. Please entertain me and let’s connect.
In a previous life xcountry skier, hen and beekeeper, keen gardener and HCW.
Alt text required.
Robin Boardman @robinboardman.com 🪧 @extinctionrebellion.uk youngest cofounder
✍️ Writing and editing revolutionary books
🩼 Disabled with Chronic Migraines (Long Covid)
🔔 Turn notifications on for my top news
👇 Sign up for insights & stories
robinboardman.com
Rosalind Davies @terradivina.bsky.social Teaching because writing is lonely. Writing because teaching is hard. #memoir #nature #belief
Too Tired To Make @tootiredtomake.bsky.social Too Tired To Make: An act of thinking in public about how creativity actually happens under constraint.
#M.E.
#CFA
#MyalgicEncephalomyelitis
#ChronicFatigueSyndrome
#ADHD
#Creators
#Makers
Simmaron Research Foundation @simmaronresearch.bsky.social 501c3 dedicated to discovering treatments for ME/CFS, LongCovid and IACCs, collaborating with expert clinicians and scientists.
@ravenfingers.bsky.social @ravenfingers.bsky.social They/them. Against oppression, patriarchy + psychopaths in positions of power. Egalitarian. Democratic eco-something. Lover of all wildlife, not a lover of homo sapiens. Neurodivergent zebra. Love 60s/70s/90s culture
Nico @nico-nobody.bsky.social ME | PoTS | FMS | PCOS | GERD // 28 // she/her // GER | ENG
ME survivor @mrpianoman67.bsky.social I am a classical pianist and had ME 35 years ago after a viral infection. I like reading research into ME.
HERITAGE Long COVID and ME/CFS study @heritage-study.bsky.social HERITAGE is a UK research study on Long Covid Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) study. Led with patients, studying care models, outcomes & costs to improve services nationwide. NIHR funded.
https://heritage.leeds.ac.uk/join/
Autistic Realms (Helen Edgar) @autisticrealms.bsky.social 💜 ♾️ AuDHD | Monotropic | Neuro-affirming Autism advocate & consultant.
Interests: monotropism, flow, burnout & neuroqueer theory.
Writer • Trainer • Resource Creator | Former SEND EY/Primary teacher ♾️ 💜
https://www.autisticrealms.com/
emily fraser 🌿🐌✨ @emilyesfraser.bsky.social Former doc filmmaker/cinematographer/teacher, current full-time sick person, occasional poet
London Arts and Health @lahartshealth.bsky.social #CreativeHealth, imagination & wellbeing. Passionately supporting the grassroots. #CreativityandWellbeingWeek 18-24th May 2026. More at https://linktr.ee/LAHinfo
DisabledWorld @disabled-world.com The Disabled World disability community website encompasses a broad spectrum of issues and experiences faced by the approximately 1.3 billion people (around 16%) worldwide who live with significant disabilities - https://www.disabled-world.com
Mat Fraser @matfraser.bsky.social Disabled actor, writer, drummer, lefty, pescatarian, husband, brother, son, atheist. He/Him.
ArtReview @artreview.bsky.social The independent critical voice in contemporary art since 1949.
Sign up to our newsletter: https://artreview.com/newsletters/
Shop: https://shop.artreview.com
Campaign for the Arts @campaignforthearts.org We believe the arts make life better, and everyone should have opportunities to experience and take part in them. 🎶💃🎭🎨✍️📸🎥🧵🏛️
https://www.campaignforthearts.org/join/
Disability Scoop @disabilityscoop.bsky.social Disability Scoop is the premier source for developmental disability news
Ash Cox @ashtronomy.co.uk ℹ️ Account archived ℹ️
Disabled Artivist, Creative Access Producer and Consultant. Trustee at 20 Stories High. https://www.ashtronomy.co.uk/ 🏳️🌈🏳️⚧️🇵🇸🌚👩🚀🪩👑🌱🌠
Sonia Boué @soniaboue.bsky.social Anglo-Spanish artist researcher & writer. 
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
Tom Shakespeare @tomshakespeare.bsky.social Talks, writes, teaches. "The Ha-ha" & "The Ends" might make you laugh. Patreon https://patreon.com/Tomtalksdisabillity?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=creatorshare_fan&utm_content=join_link
Blue Badge Bunch @bluebadgebunch.bsky.social Award-winning kids theatre company specialising in accessible and interactive shows.
WINNER Disability Champions Award 2023
New York Times Pick of Edinburgh Fringe 2024
Tickets: www.bluebadgebunch.com
Dis-labled Radio/ Podcast @dislabled.bsky.social Welcome to Dis-labled, the magazine show that amplifies voices, challenges stereotypes, & reminds the world that we are more than labels. Transmitting from communityfocus.co.uk, North London. Also proud to be broadcast on Resonance.fm 104.4 FM.
CRIPtic Arts @cripticarts.bsky.social Creating an artistic landscape where disabled people flourish
cripticarts.org
DAiSY: Disability Arts in Surrey @daisy-arts.bsky.social DAiSY is an umbrella organisation that promotes and celebrates the works of D/deaf, disabled & neurodiverse artists and disability arts organisations in Surrey
Disability Arts Online @disabilityarts.bsky.social Sharing Disability Arts and Culture with the world since 2004. Follow for our latest news, reviews, events and blogs.
Disability Rights UK @disrightsuk.bsky.social We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all.
https://linktr.ee/disabilityrightsuk
Libby Banks @libbyiscomplex.bsky.social Autistic therapist/writer/thinker. She/They. POTS/hEDS/MCAS. Bisexual goofball. Developer of Contextual Systems Therapy. Happily partnered to my AuDHD dreamboat. http://www.libbyiscomplex.com
Laura Mauldin @lauramauldin.bsky.social Author IN SICKNESS & IN HEALTH (Ecco,2026); ‘24 New America Fellow; NYC-based Prof @uconn ; ✍️ in LARB, The Baffler, The New Republic, etc; Rep @McKinnonLit, ASL interp 🏳️🌈 LauraMauldin.com
Diane R. Wiener (she/they) @dianeoctopod.bsky.social Neuroqueer Ashkenazi hylozoist, #DisabilityJustice activist & educator, poet, CNF author, artist, musician, SWer
EIC @wordgathering.bsky.social
#BLM
#TransLivesMatter
#QueerLivesMatter
#CripLit #CripArts
dianerwiener.com
wordgathering.syr.edu
Wordgathering @wordgathering.bsky.social Est. 2007. Biannual digital journal. #Disability #poetry #lit
EIC @DianeOctopod.bsky.social #BLM #CripLit #CripArts
#OpenAccess #OA
Wordgathering.syr.edu
Philip (He/Him) ♿ @disabledphil.bsky.social Disabled lefty shouting into the void.
Renegade Research @renegaderesearch.bsky.social Patient-led 501c3 nonprofit focused on #MECFS & #LongCovid 💙 https://linktr.ee/renegaderesearch • Runs @remissionbiome.bsky.social
Nick Benton @nickbenton.bsky.social Writer living with myalgic encephalomyelitis (ME) for five years.
Substack for all things ME: https://thepersonalme.substack.com/
I'm not on here much. For enquiries email nicholasbenton1997@gmail.com
Lyndsey @lyndseydoob.bsky.social Constantly battling between needing to be informed, and having a good day.
Vegan 🐷, leftie, Chronic sufferer (ME CFS)
Always on the side of the underdog.
Free 🇵🇸🇨🇬🇸🇩🇸🇸🏴
Petition pusher
Shine some sunshine on ever darkening days.
🚫DMs. 🚫 go fund me.
Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social DPAC is a grass roots campaign group
Email: mail@dpac.uk.net
Tamara C @tamararivc.bsky.social Published an ME/CFS Hypothesis of Noradrenergic Neuron Dysfunction and Phosphatidylcholine Deficiency - https://www.preprints.org/manuscript/202409.1467/v2
Walk for ME @walk4me.bsky.social We are an awareness and fundraising event for biomedical research into ME/CFS.
Dr. Carla, neuropsychiater, post-COVID researcher @carlarus.bsky.social I am both a doctor and a patient (other chronic illness than post-COVID). So I know both sides of the bed. Very educational.
Zack Polanski @zackpolanski.bsky.social Green Party Leader (England & Wales)
London Assembly Member.
🏳️🌈
Promoted by Elfrede Brambley-Cranshaw on behalf of the Green Party of England and Wales. c/I po box 78066, London. SE16 9GQ
atypicalHippy @atypicalhippy.bsky.social #ADHD Dx Jan 2021
#LongCovid / #PEM / #POTS Jan 2022
#Aphantasia Bi 53yo
pronoun averse, but he/him
I mostly use social media in relation to neurodiversity and disability, but sometimes get caught up in a bit of politics.
Gaza Freedom Flotilla Coalition @freedomflotilla.bsky.social Campaigning on and off the water to end the illegal Israeli blockade of Gaza and for freedom of movement for all Palestinians.
https://linktr.ee/freedomflotillacoalition 
CommonGroundOrgUK @commongroundorguk.bsky.social The billionaires and their media are using hate and fear to divide communities and win power. We believe there’s more that unites than divides us and we’re having the conversations that prove it. www.commongroundorg.co.uk
Alex @admiringbog.bsky.social person with ME/CFS
professional slug
peony @peony386.bsky.social clean air #protectthekids || MECFS
Naomi Alderman @naomialderman.bsky.social I write novels (eg The Power, new novel is The Future), I make games (eg Zombies, Run!), unorthodox Jew. not-getting-into-pointless-arguments-on-the-internet is an act of revolution. However complex you think things are, they're more complex than that
Mayor Zohran Kwame Mamdani @mayor.nyc.gov Fighting every day to deliver a city that working New Yorkers can actually afford. Mayor of New York City.
@sickroll.bsky.social @sickroll.bsky.social Part time artist, full time sick person 
Jenny @me-cfsgirl.bsky.social ME-CFS since 1995. Love crafting when I can find the energy. One of the WIMEL writers.
me with ME 🇬🇧 📷 🍂 ❤️☮️ 🇺🇦🇪🇺🇨🇦 @me-with-me.bsky.social Just a #pwME/CFS, an #unpaidcarer for my wife who has rheumatoid arthritis and for our #SEN son, navigating my way through life and #ElectiveHomeEducation. In an increasingly volatile society.
#childloss #stillbirth #rainbowbaby #miscarriage
Liz Burlingame @lizmeactga.bsky.social Living with ME/CFS since 1991. Here for the long haul. I am one of the #MillionsMissing.
Dr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social Respiratory and Sleep Medicine
Neurobiology and Long Cövid
Vice President of ISLC & PAIS
🆂🆃🅴🆅🅴🅽 🌈☕🐸 @zencoffeebreak.com (they/them)
aro-ace • non-binary • long covid & ME/CFS • secular humanist
#LongCovid #TransRights #SmashThePatriarchy
Masto: zencoffeebreak@mas.to
Just my posts: bsky.app/profile/zencoffeebreak.com/feed/noreposts
Emma 🛏️♿🌱☮️♻️🍉 @veganmua.bsky.social She/her. Severe ME, CCI/AAI, hEDS & co, AuDHD. Ex makeup artist, ethical vegan, socialist. #BlackLivesMatter
#TransRightsAreHumanRights
Support striking workers
PapaGolf @pfgweb.bsky.social Healthcare professional passionate about Spiritual Care, Person-Centred Care & Staff Wellbeing. Ultimately the secret of quality is love! Personal views.
Lothlorien Poetry Journal @lothlorienpoetryj.bsky.social Lothlorien Poetry Journal is a literary journal featuring free verse/rhyming/experimental poetry, short stories, flash fiction and art.
https://lothlorienpoetryjournal.blogspot.com/p/submission-guidelines.html
Laura Elliott @tinywriterlaura.bsky.social Disabled writer of things. Bad at being on BlueSky. Debut sci-fi horror novel AWAKENED out now with Angry Robot Books.
‘An impressive debut worth losing sleep over’ - New York Times
Alexis Pauline Gumbs @alexispauline.bsky.social Queer Black Feminist Love Evangelist. Author of SURVIVAL IS A PROMISE: The Eternal Life of Audre Lorde.
Overhear @overhearapp.bsky.social Putting poetry and prose on the map with geolocated audio📍🗺️🎧 download the app at https://www.theoverhear.app/