Alem Matthees @alemmatthees.bsky.social A dissident with severe ME/CFS who contributed to the PACE trial reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
mu @mu.social A mew social thing by @eurosky.social, try for yourself: mu.social
Come visit us on the information superhighway: hello.mu.social
Feedback https://userinput.app/#/s/did:plc:ooensn4mr5mhznzypvxelfa3/3mnwmwn7sn22u
Eurosky Social @eurosky.social Building open social web infrastructure and apps in Europe. Public interest non-profit, part of Modal Foundation.
App: mu.social
Accounts: move.eurosky.tech
Discover: portal.eurosky.tech
Web: eurosky.tech
Help: eurosky.tech/help
Fund: fund.eurosky.tech
Free Our Feeds @freeourfeeds.com We're a campaign to focus attention and resources on building information technologies that serve the interests of people over companies.
It's time to free social media from billionaire control.
Join: FreeOurFeeds.com | Donate: https://gofund.me/2e144bae
Political Poll Bot @pollresults.org Sending out poll results as they get posted
Official bot of https://pollresults.org
All polls: https://pollresults.org/polls
RSS feed: https://api.pollresults.org/v1.0/feed.xml
Karen Mahtin @karenmahtin.bsky.social Enby queer mom, anarchist, would-be (organic) farmer, wingnut, US health "care" consumer. Antifa member. Interests include: Palestine, immigration, weather, fires, native plants, books, cats, community, music, cannabis. Waltham HS, Brandeis, SRJC. No $ dms
Severe ME Difrifol Cymru @severemecymru.bsky.social Informal group of people in Wales with Severe/Very Severe ME and their carers. Campaigning to get Motion 8884 through to a debate at the Senedd.
Rosen de Almeida @errrferrr.bsky.social migra, parent und poet struggling to radically rest. bits of journalism in crip time. i'm pedro pascal's age.
grand daddy da casa olivian tarabiscoté*e 🪻🖤
pronomen: --- oder er/they
Opta Analyst @optaanalyst.optajoe.com Data-driven storytelling for sport. 📈
U.S. sports @optaanalystus.optajoe.com
https://www.theanalyst.com
Sign up for our Stat, Viz, Quiz football newsletter: http://theanalyst.com/sign-up
MeteoSchweiz @meteoschweiz.ch Hier posten Meteorologen und Meteorologinnen von MeteoSchweiz - dem Bundesamt für Meteorologie und Klimatologie.
Led By Donkeys @ledbydonkeys.org Art, Activism and Accountability
https://linktr.ee/ledbydonkeys?utm_source=linktree_admin_share
Ray Delahanty | CityNerd @nerd4cities.bsky.social Plangineer (AICP) when I’m at work, alter ego CityNerd when I’m not. New videos on cities and transportation every Wednesday. Nerd4cities.com | http://linktr.ee/CityNerd
Ness @nessau.bsky.social Vegetation ecologist & research laboratory manager - on pause (MECFS / LC). Also: fire behaviour, libraries, cultural preservation, music, guinea pigs, TNR cats, sunsets.
AUS
𝙳𝚞𝚌-𝚀𝚞𝚊𝚗𝚐 𝙽𝚐𝚞𝚢𝚎𝚗 @d-qn.github.io Data/Visual Journalist LeTemps🇨🇭 @letemps.ch | Lecturer #ddj AJM UniNE | #dataviz #rstats #datascience | Formerly Tamedia, Swiss Broadcasting Corporation, Quant, Genetics PhD | He/him
Based in Lausanne, Switzerland
GrapheneOS @grapheneos.org Open source privacy and security focused mobile OS with Android app compatibility.
https://grapheneos.org/
Charlie Hillier @charliehillier.bsky.social Science, Molecular Biology, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Hotblack @invalid-handle.com Will talk science, tech, economics, politics, post stupid puns and captions for pictures
Cares about inequalities and exclusion, particularly around health
Enjoys cricket
Made @news.invalid-handle.com and @ftl.invalid-handle.com
VC @vgc1720.bsky.social she/her
I ❤️ turtlenecks & human rights.
MS Informatics & Analytics / Cultural Analytics.
Happily 💍
@covidactiongso.bsky.social 😷
Billionaire Tax Now @billionairetaxnow.bsky.social Working families will be voting YES on Prop 40 this November to prevent hospital closures and ensure California billionaires pay their fair share. https://yeson40.com
IFTAS - Independent Federated Trust & Safety @iftas.org We support Trust & Safety on the Social Web. Learn more at https://about.iftas.org
Follow our bridged posts feed: @iftas.mastodon.iftas.org.ap.brid.gy
Check out the T&S Feed: https://bsky.app/profile/iftas.org/feed/aaaka26kinvjk
State Senator Jesse Arreguin @jessearreguin.bsky.social Proudly representing California Senate District 7
Comment Policy: https://linktr.ee/senatorarreguin
Edith CL @edithcl.bsky.social #longcovid #MEcfsally #mèresaufront #féministe #citoyenneengagée, idéatrice congrès #ecologiedelenfance
voxEM @voxem.bsky.social Collectif qui porte la voix des malades d'encéphalomyélite myalgique #EMSFC en France via des actions publiques et en ligne.
To make #MECFS voices heard, voxEM organize online and public actions throughout France.
🔗 https://voxem.fr/
📧 contact@voxem.fr
DWeb @getdweb.net DWeb connects people, projects, and protocols essential to building a decentralized web. A web that is private, reliable, secure and open.
Jakob @jakobjuhola.bsky.social We're the birds now
Helma @helma.bsky.social Ein freundliches Hallo an alle :)
(she/her)
"One day at a time. We cross the bridge when we get there"
Bibesch Header:
Ein Rüsseltier
Bibesch Profilfoto:
Gesicht mit Maske
noyb – European Center for Digital Rights @noyb.eu Visit our website 👉 http://noyb.eu
Support our mission 👉 http://noyb.eu/support
est. 2017 by @maxschrems.bsky.social
#MakingPrivacyReality #InvestInPrivacy
Chroniques covidiennes 🇨🇦 @covidchronique.bsky.social Jambes sciées par le SRAS CoV-2 depuis 2022, marié à une médecin d'urgence, déterminé à sortir de ce purgatoire—voici mon parcours. Si ce type de publication vous interpelle, sonnez la cloche—vous n'y verrez jamais que science et conscientisation ✊😷
COVID Chronicles @covidchronicles.bsky.social Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
Teunke Arvo @teunkearvo.bsky.social Independent historical researcher (involuntarily self-taught), writing at a frustratingly slow 🐌 pace due to severe chronic illness.
Comprendre l'EM @comprendrelem.bsky.social Comprendre L’Encéphalomyélite Myalgique est une publication par et pour les personnes avec EM. Il est voué à la diffusion des savoirs sur l’EM/SFC, en français, de manière simple et didactique. Et aux réflexions politiques.
smartvote.ch @smartvote.bsky.social Die Schweizer Online-Wahlhilfe seit 2003 – L'aide au vote en ligne depuis 2003.
http://smartvote.ch | http://smartmonitor.ch | http://Politools.net
JustME @justmegi.mstdn.social.ap.brid.gy Trying to survive the polycrisis #DisabilityJustice #CovidIsAirborne #LandBack #BlackLivesMatter #AbolishICE
#fedi22 #NEISvoid #editing #SensitivityEditing
🌉 bridged from ⁂ https://mstdn.social/@justmegi, follow @ap.brid.gy to interact
Senator Alex Padilla @padilla.senate.gov U.S. Senator for California. Devoted husband and proud dad. Dodgers diehard. EngiNERD.
Buffy Wicks @buffywicks.bsky.social CA State Assemblymember from the beautiful East Bay, Chair of the Appropriations Committee, mom of 2 fierce little girls.
https://lnk.bio/BuffyWicks
Rep. John Garamendi @repgaramendi.bsky.social Father, Grandfather, Californian. Congressman for California's 8th Congressional District.
Senior member of the House Armed Services and Transportation and Infrastructure Committees.
Annabelle @abellel.bsky.social Bed bound with Me/cfs. I love fungi and ecology but spend most of my time thinking about medication and being angry at the government
Interopid @interopidum.bsky.social DE/FR, intersex man, opiate user, asozial writer, cripple, antipsy, with ME since ~2017
#IntersexAwarness #SupportDontPunish #MyalgicEncephalomyelitis #antiAI
https://interopidum.wixsite.com/interopidum
Phoebe Petrovic @phoebepetrovic.bsky.social now: researcher chronicling threats to democracy @ Documented. then: investigative reporter @ Wisconsin Watch & ProPublica fellow. send me tips about the anti-LGBTQ movement or authoritarianism on signal: phoebe.411
Casey Doherty @caseydoherty.bsky.social she/her
Disability policy by day, PhD student by night, building @disabilitypolicy.bsky.social by later night
ME/Long Covid/Lyme/MCAS, PMOS, OCD+
Need masks in the DMV area? Msg me!
Opinions my own. Reposts/likes not endorsements.
maia arson crimew 🏴 @crimew.gay it/she
investigative journalist, hacktivist, dj, award losing musician and many other things
signal: @nyancrimew.01
im THAT fucker, look me up on wikipedia
some posts may be by ryan
https://maia.crimew.gay
Bettina Semolina @bettinasemolina.bsky.social #mecfs
(sie/ihr)
"Es ist hoffnungslos, aussichtslos und ermüdend, aber noch schlimmer wäre es, wenn wir aufgeben würden."
Profilbild: Ölbild einer liegenden Person vor einem Teich
Header: Ausschnitt einer Person, die ein Fadenspiel vor sich hält
Sus Scrofa @susscrofa.bsky.social Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin.
Wer solche Fragen an mich stellt, wird blockiert.
Radical Graffiti @radicalgraffiti.bsky.social Just sharing pics of anti-capitalist, anti-authoritarian and anti-colonial graffiti, stickers and street art seen around the world.
https://linktr.ee/Radicalgraffiti
miss_malingerer @missmalingerer.bsky.social absolutely zonked on the ‘oids 🥳
95% Bedbound ME/CFS/Long Covid
g @g--0.bsky.social anti racist anti eugenics anti genocide
funk acolyte
ride bikes every day
he/him- J PieFed - Open Source Federated Forum [Unofficial] @join.piefed.social.web.brid.gy A link aggregator, a forum, a hub of social interaction and information, built for the fediverse.
🌉 bridged from 🌐 https://join.piefed.social/: https://fed.brid.gy/web/join.piefed.social
The ME Inquiry Report @themeinquiryreport.bsky.social Din rätt till vård och stöd (tidigare Eremiten/Mitteremitage)
Zohran Kwame Mamdani @zohrankmamdani.bsky.social Mayor of New York City
It's Going Down @igd.bsky.social In search of new forms of life. Sharing news, podcasts, and opinion about autonomous social movements across so-called North America.
Snow Leopard @snowypanthera.bsky.social Animagus. Hearty but not hale. Celebrant of beautiful action. Likes bicycles. Note: The only time I post with my real name is in scientific journals. Kaurna Country. She/Her.
Existential Comics @existentialcomics.com A philosophy webcomic about the inevitable anguish of living a brief life in an absurd world. Also jokes.
Jamie Fish @jamiefish3d.bsky.social Hard Surface modeler / Texture Artist / Game Artist
ME / CFS and POTS
She / They
https://jamiemfish89.artstation.com/
Grenfell United @grenfellunited.bsky.social We are survivors and bereaved families of Grenfell 💚 We are here for justice and to #DemandCharges for our 72 loved ones 💚 #UnitedforGrenfell
Michelle Mahoney @michellemahoney.bsky.social Neurodivergent Activist, Writer, Educator, Disability Advocate.
Author of Strange Fellow Bobby: The Neurodivergence of Robert F. Kennedy, Sr.
Substack: michellemahoneyautisticadvocate.substack.com
Kirsty 🌻 @kirstysmestory.bsky.social Living with moderate/severe M.E. 🦋 severely affected by the Pfizer vaccine 💉 in 2021 and health issues from covid infection ‘23
Not anti-vaccine
Gillian Kent @cambridgegill.bsky.social
FuckCars @fuckcarsreddit.bsky.social Official account of http://reddit.com/r/fuckcars
DM me urbanist issues in your city, I'll help boost it!
Initiative LiegendDemo @liegenddemo.bsky.social Wir, die Initiative #LiegendDemo, demonstrieren für Menschen mit #MECFS; egal, wodurch die Erkrankung ausgelöst wurde. Für #aufklärung #versorgung #forschung
Linkliste:
https://Lnk.bio/liegenddemo
Anarchist Memes @anarchistmemes.org AnarchistMemes.org
Pauline @pine-no-tree.bsky.social Currently out of order due to Long Covid and ME/CFS
Graphic design student
she/her
écrevisse @ecrevisse.bsky.social Broadly a post-anarchist minus the psycho analytic gobble garble.
I think we should abolish a lot of things.
Pretentiously leftist ramblings and shouting into the Void.
Walk for ME @walk4me.bsky.social We are an awareness and fundraising event for biomedical research into ME/CFS.
The Decline @thedekeline.bsky.social "Fellow members
Club “We've got ours”
I'd like to introduce you to our host
He's got his and I've got mine
Meet The Decline"
Elbows way up!
Danilo Buonsenso @buonsenso.bsky.social Pediatric Infectious Disease doctor.
Fighting to care for children with Long Covid & ME/CFS.
My book on my LONG COVID JOURNEY: https://tinyurl.com/4tsvhwat
David Graeber Institute @davidgraeberinst.bsky.social A platform for projects related to David Graeber’s legacy, developing his ideas and projects that will take on a life of their own, continuing and contributing to his work.
https://davidgraeber.institute
Naomi Whittingham @naomiwhitt.bsky.social Writing is my voice from a hidden world. Published in The Daily Telegraph and Open Democracy. Now focusing on my own website.
www.alifehidden.com
Framasoft @framasoft.org Association d'éducation populaire aux enjeux du numérique et des communs culturels.
Pas de support sur Bluesky.
🏠 https://framasoft.org
🔗 https://ls.framasoft.org
💝 https://soutenir.framasoft.org
💌 https://contact.framasoft.org
YayaJenni @jenni4me.bsky.social Mom.Yaya. Wife. Former gymnastics teacher. Warrior. Camper. PA. Dems. Volunteer. Disabled. Advocate #hEDS 🦓. #ME/CFS. Nature lover. ALLY 🏳️🌈Life long learner. ♉️⚛️☯️☮️🌀🧘🏻♀️🏔️🏕️🌚🌝
ME félag Íslands @mefelag.bsky.social The Icelandic ME association #MEawareness #mefelag #longcovid #vitundarvakning
Sara Nović @novicsara.bsky.social MOTHER TONGUE, out now.
Also TRUE BIZ + GIRL AT WAR
🧏🏻 deafie | they/she/👉🏼 |📍Philly
https://buttondown.com/signs+wonders/archive
https://linktr.ee/Novic
Mark Vink, MD @huisarts-vink.bsky.social Huisarts n.p. en verzekeringsarts n.p. (Nominated for the 2016 John Maddox Science Prize). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth.
CBT + GET for MEcfs = quackery
https://www.researchgate.net/profile/Mark-Vink-2
Tania J. Spencer @taniaspencer.bsky.social 🇨🇦🇿🇦 • writer • photographer • social anthropology • former journalist • Long COVID first waver • vaxxer • masker • maker of Corsi-Rosenthals • Antifa, obviously
📌 Whitehorse, YT
OpenSecrets.org @opensecrets.org The most comprehensive, nonpartisan money-in-politics resource. Follow the money at opensecrets.org
Waldpol @waldpol.eurosky.social Politik | Gesellschaft | Kultur
Auch unter: @waldmeer.eurosky.social
MEAction UK @meactionuk.bsky.social Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
Recovery in the Bin @ritb.bsky.social recoveryinthebin.org
A critical theorist and activist collective of survivors, service users, disabled people.
Disabled People Against Cuts - DPAC @dis-ppl-protest.bsky.social DPAC is a grass roots campaign group
Email: mail@dpac.uk.net
Disability News Service @johnpring.bsky.social In-depth reporting on issues affecting disabled people in the UK since 2009. www.disabilitynewsservice.com
Zoe Baker @anarchozoe.bsky.social Historian of political thought. Trans woman (she/her). Author of Means and Ends: The Revolutionary Practice of Anarchism in Europe and the United States. For all my work see https://linktr.ee/zoebaker
Wayne Soon @waynesoon.bsky.social Historian of Medicine, China, Taiwan, and Diaspora at the University of Minnesota. Associate Professor. Currently researching on global health insurance histories in East Asia. https://a.co/d/4tahHXR
Gina @gina25.bsky.social Currently on a break
Le Joyeux Scribe @joyeuxscribe.bsky.social FR/ENG (il/iel | he/they)
Marottes :
Écriture, JDR, correction, traduction, SFFF, écologie, luttes sociales, calembours, théâtre, impro
Casquettes :
Parent (4 enfants), TDAH, covid long = handicap, conseiller emploi, catholique qui proteste, ancien jociste
Mark Faghy @profmarkfaghy.bsky.social Professor of Clinical Exercise Science - Clinical Exercise Physiologist - Researcher in #LongCOVID - Nature Research Award Winner 2024 - Derby UK
Sam Norpel @samnorpel.bsky.social Wife, Mom, Former Executive, now #disabled by #LongCOVID.
When I feel up to it, I try to use #ArtTherapy 🎨 to express what life is like as a LC patient 🖼️ & raise awareness. I also paint flowers 💐🌺🌻 to bring a little joy.
Rivka Solomon @rivkabluesky.bsky.social • Advocate/Organizer: Immune-Associated and Infection-Associated Chronic Illnesses, ME/CFS, Long COVID, Lyme, disability and women
• Writer: Washington Post, Marie Claire magazine, NPR, Ms. magazine, Newsweek
• Playwright: Dozens of productions
Miranda 🌸 @crookedneighbor.bsky.social Long Covid patient and caregiver writing about homelessness, poverty, and administrative burden in ME/CFS. (she/her)
LongCovidSafety.net
Mady Hornig, MA, MD @mhornig.bsky.social Translational MD-scientist, mom, 🎶 | Bklyn born + bred
Pathogen/microbe-host interactions + 🧠outcomes across the life course | gut-immune-🧠 axis
#ASD #ADHD #PANS/#PANDAS #OCD affective disorders/#TRD Alzheimer’s #MECFS #LongCOVID
All posts = my views
Satcha EM @satcha.bsky.social Encéphalomyélite myalgique
#mecfs #emsfc @voxem.bsky.social
Handie 🛌🏽👩🏽🦼
Les Dévalideuses @lesdevalideuses.bsky.social Le collectif handi-féministe qui démonte les idées reçues sur le handicap.
Syndicat Jeunes MG @snjmg.bsky.social Syndicat des Jeunes MG, ouvert à toustes les soignant-es, malades et handi-es.
N'hésitez pas à nous rejoindre !
Partenaire @RevuePrescrire.
https://linktr.ee/SNJMG
Mask Bloc Lyon @maskbloclyon.bsky.social Distribution gratuite de masques FFP2 à Lyon. #AutodéfenseSanitaire
Contact par messages privés ou mail à maskbloclyon@tuta.io
Prof. dr. Vivienne Matthies-Boon @vmatthiesboon.bsky.social Socrates Professor focused on Medical Ethics and Postinfectious Illnesses (incl. Long Covid). Radboud University, Netherlands
@ali-en-jachere.bsky.social @ali-en-jachere.bsky.social Mediatrice scientifique, actuellement en prospection de projets de vie compatibles avec une em/sfc post covid (covid long)
Odile Maurin @odile31.bsky.social Handicitoyenne 62 ans, activiste anti #validisme - Présidente @handi-social.bsky.social - ex élue @peps31.bsky.social ex #ArchipelCitoyen ex #AMC ex #CESER - #GiletJaune #Toulouse - autiste - SED - tweet perso
https://campsite.bio/odilemaurin