Long Covid Advocacy @longcovidadvoc.com A non-profit social enterprise dedicated to people with Long Covid + ME. Shifting the paradigm one step at a time...
💙📚Home to the #cripademia book club.
https://www.longcovidadvoc.com/
🛍️ https://longcovidadvoc.shop/
Institute of Genetics and Cancer @uoe-igc.bsky.social Our mission is to improve the lives of people living with genetic disease and cancer through research.
Miles W. Griffis @mileswgriffis.bsky.social Co-founder/editor @TheSickTimes.org
Columnist @HighCountryNews.org
miles@thesicktimes.org #LongCOVID
Margaret O’Hara @margaretohara.bsky.social Patient Advocate in #LongCovid and #HyperemesisGravidarum
Patient Involvement in Research in #NHS
Heike @heikewigr.bsky.social One of #MillionsMissing since 2002
#MEcfs Diagnose 2021
🐦 @will_ins_Gruene
Nic Wilson @nicwilson.bsky.social Author of LAND BENEATH THE WAVES (one of BBC Wildlife's Best Books of 2025), Editor, Guardian Country Diarist, BBC Gardeners' World Mag.
Patron #JohnClare Countryside Project, Fellow British Naturalists' Assoc. MA PGCE. Rep: Cathryn Summerhayes
@msmarquartpoetry.bsky.social @msmarquartpoetry.bsky.social 
The Sick Times @thesicktimes.org Award-winning nonprofit news site chronicling the #LongCOVID crisis. Founded by @BetsyLadyzhets.bsky.social & @MilesWGriffis.bsky.social
Website: thesicktimes.org
Newsletter: thesicktimes.org/newsletter
Donate: the-sick-times.fundjournalism.org
Eileen Parkes @eileenparkes.bsky.social Assoc Prof Oxford MD PhD. Oncology, early phase trials, tumour microenvironment #womenInSTEM #immunology
@devonkevin123.bsky.social @devonkevin123.bsky.social 
Hannah Buttle @han-written.bsky.social freelance journalist 
Clare M @clamc.bsky.social Consultant Anaesthetist, cyclist, sports goth, learning Spanish, recovery from Long Covid took 18 months. Boycott Teva!
Sharon Jameson @sharjam.bsky.social A Northern lass at heart but New Zealand is home.Retired Primary teacher. Opinionated. Living with ME/CFS. Politics, Music and Arts are my thing!
Dan Herbert @danherb10.bsky.social Me?
Prehistory. Normans. Recently Vikings. New Model Army. Asterix. Old Gods. Arsenal. Corinthian Casuals.
University Library Buildings Development Manager.
Neurodivergent. Cursed by MECFS.
#MDANT
Something Chronic @somethingchronic.bsky.social Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
Supporting Healthcare Heroes UK (SHH-UK) @shh-uk.bsky.social 💙UK Registered Charity: 1205685
💙Long COVID doesn’t stop the care - neither do we.
💙Join our Campaign: #SafeAir4All
Foysol Choudhury MBE @foysolchoudhury.bsky.social Former Member of the Scottish Parliament | Former Shadow Minister for Culture, Europe & International Development.| Equality Campaigner | Dad | Edinburgh | Scotland
🌎 www.foysolchoudhury.co.uk
Emma Lewell MP @emmalewellmp.bsky.social Labour MP for South Shields🌹
Email: emma.lewell.mp@parliament.uk
Phone (Constituency): 0191 427 1240
lewellemp.com
Rachel Gilmour, MP for Tiverton and Minehead @rachelgilmourld.bsky.social Published and promoted by David Wulff on behalf of Rachel Gilmour (Liberal Democrats) both at 8-9 Mountbatten Road, Tiverton, EX16 6SW. Hosted by Bluesky.
rachel.gilmour.mp@parliament.uk
Ed Davey @eddavey.libdems.org.uk Leader of @LibDems.org.uk, husband, father, carer, and MP for Kingston & Surbiton.
Promoted by Liberal Democrats, 66 Buckingham Gate, SW1E 6AU.
Tessa Munt MP 🔶 @tessamunt.bsky.social LibDem MP for Wells and Mendip Hills. Passionate to serve my home area with energy, experience, and deep care for people. tessa.munt.mp@parliament.uk
Alison Twycross RN PhD @alitwy.bsky.social Living with Long Covid.
Doing my bit to support UK healthcare workers with Long Covid.
Chair of Supporting Healthcare Heroes UK.
Associate Member Long Covid Support.
Former Professor of Children’s Nursing. #FBLC
Fiona Hamilton @fionahamiltontimes.bsky.social Chief Reporter, The Times
Eleanor Hayward @eleanorhayward.bsky.social Health Editor at The Times
Jo Platt MP @joplatt.bsky.social Labour & Co-operative Member of Parliament for Leigh and Atherton. This includes Golborne, Lowton, Tyldesley and Astley. For constituency queries, email Jo.platt.mp@parliament.uk
Ros Scott @baronessros.bsky.social Lib Dem Peer. Deputy Speaker House of Lords. President National Association of Local Councils.
Long Covid Advocacy Ireland-LCAI @lcaireland.bsky.social The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ireland for all patients.
https://longcovidadvocacyireland.com
Walk for ME @walk4me.bsky.social We are an awareness and fundraising event for biomedical research into ME/CFS.
Blake Forman @blakeformansci.bsky.social Senior Science Writer at Technology Networks | Science communicator | Covering breaking science news | All views my own
#SciComm
https://www.technologynetworks.com/tn/editor/blake-forman
Ben Bason @benjamesbason.bsky.social Journalist at ITV Calendar. Always on the lookout for stories - email ben.bason@itv.com. Views are my own.
Maggie Boxey Writes @maggieboxey.bsky.social Writer & bridge-builder. For the stuck, the healing, and the waking up. Author . Podcaster . TEDx Speaker . in recovery . ME/CFS . collective hope 🦋
Jo Weston @jowestonwriter.bsky.social Editor, proofreader, writer + poet.
Writing services: https://linktr.ee/jowestonwriter
Residencies: Maggies Nott'm + Writers Victoria/Melbourne City of Lit.
'How not to multitask' pub. by Wildpressed Books - sold out in print, ebook available on Amazon.- S Simon McGrath @simonmcg.bsky.social I occasionally try to explain and comment on ME researchh, or even contribute to it. And I advocate for more and better research.
Olly Mann @ollymann.bsky.social Podcaster 🎤 Radio Host 📻Voiceover 🎧 Answer Me This!, The Modern Mann, Today In History with the Retrospectors, The Week Unwrapped
https://ollymann.com
Inclusion Barnet @inclusionbarnet.bsky.social Peer-Led, Deaf and Disabled People's Organisation based in Barnet. We believe in the power of lived experience.
Visit our website: www.inclusionbarnet.org.uk
@afmcguk.bsky.social @afmcguk.bsky.social 
Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social Author of "stranger and stranger”, letter writer, advocate and fundraiser for biomedical ME/CFS research.
Sky News @news.sky.com The full story, first. Free, wherever you get your news. 
Mind @mind.org.uk Fighting for mental health – for support, for respect, for you ✊
UK Parliament @ukparliament.parliament.uk Where the House of Commons and the House of Lords scrutinise the work of the Government. Learn more about Parliament, its people and our unique heritage.
linktr.ee/ukparliament
JustGiving @justgiving.bsky.social The world’s leading platform for charity giving. We help *amazing* people like you raise more money for the causes you care about.
easyfundraising.org.uk @easyfundraising.bsky.social 
Guts Charity UK @gutscharityuk.bsky.social The UK charity for the digestive system from top to bottom; the gut, liver and pancreas 💚
We’re getting to grips with guts 🤩
https://lnk.bio/GutsCharityUK
Trussell Scotland @trussellscot.bsky.social An anti-poverty charity and community of food banks working to end hunger in Scotland and across the UK 💚
Trussell @trusselluk.bsky.social An anti-poverty charity and community of food banks working to end hunger together 💚
Royal College of Anaesthetists @rcoanews.bsky.social The RCoA is the professional body responsible for the specialty of anaesthesia throughout the UK. Please DM for enquiries.
Royal College of Nursing @rcn.org.uk We are a trade union & professional body with over half a million nurse, midwife, HCA, AP & student members.
For membership and workplace queries: https://www.rcn.org.uk/Get-Help
Page monitored Monday-Friday 8am-6pm
Nature @nature.com Research, news, and commentary from Nature, the international science journal. For daily science news, get Nature Briefing: https://go.nature.com/get-Nature-Briefing
The i Paper @theipaper.com Impartial news and intelligent debate
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➡️ Subscribe: http://inews.co.uk/subscribe
Channel 4 News @channel4news.bsky.social Stories that reveal and inspire, challenging expectations.
Weekdays 7-8pm on Channel 4.
Got a story? C4Nstories@itn.co.uk
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Substack: https://channel4news.substack.com
Website: www.channel4.com/news
YouTube: www.youtube.com/@Channel4News
ITV News (Official) @itvnews.bsky.social Original news from across the UK and around the world. Available on ITVX 24/7. National news: ITV1 weekdays at 1:30pm, 6:30pm and 10pm. Regional news: ITV1 weekdays at 6pm.
Website: https://www.itv.com/news
Newsletter: https://itvnews.substack.com
NBC News @nbcnews.com News updates from around the 🌎, all day, every day.
BBC Newsnight @bbcnewsnight.bsky.social Welcome! Find us weekdays 10:30pm on BBC Two, BBC News, iPlayer with Victoria Derbyshire, Paddy O'Connell & Matt Chorley - plus Katie Razzall, Nicholas Watt and Faisal Islam
News Medical @newsmedical.bsky.social A news website targeted at professionals working in medical and life sciences fields. NewsGuard Rating 100 / 100 High Credibility: Website adheres to all nine standards of credibility and transparency. https://www.news-medical.net/medical/newsguard
Forbes @forbes.com 
The New York Times @nytimes.com We seek the truth and help people understand the world. Not a subscriber? Your first month is now free in our app. https://nytimes.onelink.me/Xpht/zbx4nci9
The Times and Sunday Times @thetimes.com 🗞️ The best of our journalism
👉 https://www.thetimes.com/
Financial Times @financialtimes.com The best of FT journalism, including breaking news and analysis.
https://www.ft.com
The users this account follows are verified FT staff or contributors.
Daily Express @express.co.uk 
Metro UK @metro.co.uk Free to read. Free to think. 📰 📱
The Independent @the-independent.com News, comment and features from The Independent, the world's most free-thinking newspaper.
The Guardian @theguardian.com The need for independent journalism has never been greater. Become a Guardian supporter https://support.theguardian.com
🇺🇸 Guardian US https://bsky.app/profile/us.theguardian.com
🇦🇺 Guardian Australia https://bsky.app/profile/australia.theguardian.com
BuDS Disability Service @buds-disability.bsky.social BuDS Disability Service is a user-led, pan-disability grassroots charity working across England. Formerly Buckinghamshire Disability Service. Registered Charity 1102511 #Fair4All #Reach4Work
Campaign for Disability Justice @campaignfdj.bsky.social A UK-wide campaign run by Disabled people, for Disabled people, run by a local charity @inclusionbarnet.bsky.social
Join a growing movement calling for a decent life for Disabled people: https://buff.ly/IZDn3T5
Disability Rights UK @disrightsuk.bsky.social We one of the UK’s leading Disabled People's Organisation run by and for Disabled people, working for justice and equality for all.
https://linktr.ee/disabilityrightsuk
Citizens Advice @citizensadvice.bsky.social We are Citizens Advice - the people's champion.
If you need advice, visit our website: citizensadvice.org.uk
Turn2us @turn2us.org.uk Turn2us is a national charity tackling financial insecurity together. Use our Benefits Calculator, Grants Search and PIP Helper. Monitored Monday to Friday, 9am to 5pm.
https://brewl.ink/turn2us_org
@samaritans.bsky.social @samaritans.bsky.social 
Oxfam GB @oxfamgb.bsky.social The official account of Oxfam Great Britain. Oxfam is a global community of people who believe in a kinder, and radically better world, where everyone has the power to thrive not just survive.
Age UK @age-uk.bsky.social We believe every older person should be valued and included. Let's change how we age 💜 https://www.ageuk.org.uk/
The Lewy Body Society @lewybodysociety.bsky.social We raise awareness, fund research and provide support.
Lewy body dementia the most common type of dementia you have never heard of. Charity No. 1114579
Carers Scotland @carersscotland.bsky.social Carers Scotland work with and on behalf of unpaid carers who provide support to family and friends who have disabilities, long term conditions or frailty associated with older age to enable them to live independently in their own homes and communities.
Carers UK @carers-uk.bsky.social Carers UK is the leading national charity for unpaid carers. We support, advocate for, champion and connect carers across the UK, so that no one has to care alone.
Putrino Lab @putrinolab.bsky.social 
NIHR Cambridge Biomedical Research Centre @cambridgebrc.bsky.social An @nihr.bsky.social partnership between @cuh.nhs.uk and the University of Cambridge @cam.ac.uk We research different diseases to find new treatments & medicines. Based at CUH & Cambridge Biomedical Research Centre https://cambridgebrc.nihr.ac.uk
NIHR Biomedical Research Centre: Oxford Health @oxhealthbrc.bsky.social The NIHR BRC: Oxford Health based at Oxford Health NHS FT is run in partnership with University of Oxford with 11 partner university and NHS Trusts across England.
NIHR @nihr.bsky.social National Institute for Health and Care Research - we fund, enable and deliver world-leading health and social care research that improves people's health and wellbeing, and promotes economic growth.
Impact, Innovation, Investment, Inclusion
NIHR Biomedical Research Centre: Maudsley @nihrmaudsleybrc.bsky.social We are part of the National Institute for Health and Care Research and hosted by South London and Maudsley NHS Foundation Trust in partnership with King's College London. www.maudsleybrc.nihr.ac.uk #mentalhealth
Maidstone and Tunbridge Wells NHS Trust @mtwnhs.bsky.social 👋 We are #TeamMTW
🏥 Maidstone, Tunbridge Wells and Fordcombe hospitals.
#ExceptionalPeopleOutstandingCare
www.mtw.nhs.uk
Whittington Health NHS Trust @whithealth.bsky.social Helping local people live longer, healthier lives across Islington, Haringey, Camden, Barnet and beyond.
Buckinghamshire Healthcare NHS Trust @buckshealthcare.bsky.social Providing quality healthcare services from two acute hospitals, five community hospitals and a number of community sites across the county.
University Hospitals Plymouth NHS Trust @uhpnhs.bsky.social Please be aware that this account is not currently monitored.
Please read our social media acceptable use guidance here: https://www.plymouthhospitals.nhs.uk/social-media-acceptable-use-guidance
Lewisham and Greenwich NHS Trust @lgtnhs.bsky.social 🏥 University Hospital Lewisham | 🏥 Queen Elizabeth Hospital, Woolwich | 🚑 Lewisham Community services.
www.lewishamandgreenwich.nhs.uk
Sheffield Children's NHS Foundation Trust @sheffieldchildrens.bsky.social Dedicated children's hospital NHS Trust based in South Yorkshire providing specialist care locally, regionally, nationally and internationally.
Sheffield Health Partnership University NHS Foundation Trust @shpu.bsky.social We provide mental health, learning disability and specialist services in Sheffield.
If you need help in a crisis visit http://sheffieldpartnership.nhs.uk/urgent-help
Oxford University Hospitals @ouhospitals.bsky.social NHS Foundation Trust delivering care at the John Radcliffe Hospital, Churchill Hospital and Nuffield Orthopaedic Centre in Oxford, the Horton General Hospital in Banbury, and in the community.
#OneTeamOneOUH | www.ouh.nhs.uk
NHS Million @nhsmillion.bsky.social Creating a team of a million people who are willing to fight for the NHS and its staff at this challenging time. Here to highlight key issues and boost morale.
NHS Charities Together @nhscharitiestogether.co.uk Uniting for better healthcare, for everyone. 💙
https://linktr.ee/nhscharitiestogether
UK Charity Invest in ME Research @investinmeresearch.bsky.social An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
(charity nr. 1153730)
www.investinme.org
ME Research UK @meresearchuk.bsky.social ME Research UK is a charity which funds scientific (biomedical) investigation into the causes, consequences and treatment of ME/CFS (charity number SC036942)
Neurological Alliance of Scotland @neuroalscotland.bsky.social The Neurological Alliance of Scotland is an umbrella body of organisations that represent people with a neurological condition and those who support them. We work to improve the care and support that people receive.
#MEAction Scotland @meactionscotland.bsky.social 
Beth Paint @craftymissb.bsky.social Politically Adrift, Crafter, Artist, Pwme, Medically Retired, Mum, Grandma, Dog Mum. UK, Newcastle. No DMs.
Long Covid Support @longcovidsupport.bsky.social UK charity dedicated to supporting people with Long Covid
• Support • Research • Advocacy • Education •
www.longcovid.org
https://linktr.ee/longcovidsupport
📧info@longcovid.org
Physios For ME @physiosforme.bsky.social A group of physiotherapists with a special interest in Myalgic Encephalomyelitis (ME) with the aim to improve physiotherapy management for people with ME
Find out more at physiosforme.com
Brian Hughes @bmhughes.bsky.social Prof Psych • Writer • Galway • he/him
New book 'Psychology's Quiet Conservatism': https://link.springer.com/book/9783032077233
Blog: https://thesciencebit.net/
Bio: https://brianmhughes.com/
📷 https://www.photoblogism.net
Dan Wyke @danwyke.bsky.social Severe M.E. patient, person-centred counsellor (currently not practicing), recovering poet (Rack & Waterloo Press)
Patient-Led Research Collaborative @patientled.bsky.social Patient-Led Research for #LongCovid! http://patientledresearch.com
DrMichelleBull💙 @michelleb4.bsky.social A mixture of stuff
#MECFS #LongCovid #frailty #mtb #cycling
#feelthefearanddoitanyway
co-founder @PhysiosForME
Views are all my own
Todd Davenport @sunsopeningband.bsky.social Non nobis solum nati sumus. Husband. Dad x3. Upstreamist. Pracademic. Oregifornian. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. Alphabet soup after my name: DPT PhD MPH OCS. https://www.linkedin.com/in/todd-davenport-2795ba10